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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


DR CRANDALL THEORY....YEAST THE CAUSE OF THIS CRAPPYNESS?!!!

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DR CRANDALL THEORY....YEAST THE CAUSE OF THIS CRAPPYNESS?!!!

Post  naomi on Fri Mar 11, 2011 1:18 pm

http://www.empowher.com/yeast-infection/content/dr-marjorie-crandall-yeast-infections-candida-allergy-and-vulvodynia

I propose that this residual inflammation can be due to yeasts remaining in vulvar and vaginal tissues.
[u]

I REALLY THINK THIS COULD BE A POSSIBLE CAUSE YET NO CONSULTANTS (GYNAE DERMS ETC) IN THE UK WILL SUPPORT ME IN THIS. YET ONE ALLERGIST WILL.

GUYS ITS WORTH A TRY, ITS A TEN STEP PROGRAMME AND MARJORIE IS V SUPPORTIVE. I CANT COPY YOU HER PROGRAMME AS ITS A HUGE DOCUMENT AND I WOULD ALSO GET DONE FOR COPYRIGHT STUFF BUT IF YOU WANT A COPY YOU CAN GET IT OFF HER WEBSITE XXXXX

http://www.yeastconsulting.com/index.html
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Re: DR CRANDALL THEORY....YEAST THE CAUSE OF THIS CRAPPYNESS?!!!

Post  seagirl88 on Mon Mar 14, 2011 5:32 am

I ran across this website a couple of months ago and it's the only thing that seems to make sense. Her description of the "red" form of candida matches my symptoms almost completely, plus it accounts for the fact that many of us test negative for yeast infections (or that anti-fungals are not effective). Has anybody had any experience with this program?

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Re: DR CRANDALL THEORY....YEAST THE CAUSE OF THIS CRAPPYNESS?!!!

Post  naomi on Mon Mar 14, 2011 9:22 am

yeh i have contact with marjorie, shes a lovely lady!

I have had to go down the NHS (national health service) in the UK as the NHS do not support this theory or have never even heard of it...obviously didnt cover that 30minutes on vulvodynia in their lectures at medical school Smile

I started a month ago on the candida diet so have cut lots of foods out (mainly the crappy, chemical/processed crap) and have lost weight (weight that i put on comfort eating from this). I havent got back onto the 10 step programme that Marjorie recommends as another doctor I have met is reading it at the moment still, im hoping she will prescribe me the antifungals etc.

Her pack is def recommended!! My Dad has bought about 4 copies and given it to various professionals....2 of which I know will use it as a door stop but hey hoe!

I'll copy my story to tell you how I got into this V mess xxx
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Re: DR CRANDALL THEORY....YEAST THE CAUSE OF THIS CRAPPYNESS?!!!

Post  naomi on Mon Mar 14, 2011 9:26 am

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Re: DR CRANDALL THEORY....YEAST THE CAUSE OF THIS CRAPPYNESS?!!!

Post  itchyandscratchy on Mon Apr 25, 2011 10:13 pm

The theory makes a lot sense to me, I was mystified when my doctor told me my problem wasn't thrush when I had exactly the same symptoms I always get from thrush. Also, drinking cinnamon tea (antibacterial/antifungal) helps my symptoms a lot, this wouldn't make any sense unless there was some kind of infection.
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Re: DR CRANDALL THEORY....YEAST THE CAUSE OF THIS CRAPPYNESS?!!!

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