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» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


DR CRANDALL THEORY....YEAST THE CAUSE OF THIS CRAPPYNESS?!!!

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DR CRANDALL THEORY....YEAST THE CAUSE OF THIS CRAPPYNESS?!!!

Post  naomi on Fri Mar 11, 2011 1:18 pm

http://www.empowher.com/yeast-infection/content/dr-marjorie-crandall-yeast-infections-candida-allergy-and-vulvodynia

I propose that this residual inflammation can be due to yeasts remaining in vulvar and vaginal tissues.
[u]

I REALLY THINK THIS COULD BE A POSSIBLE CAUSE YET NO CONSULTANTS (GYNAE DERMS ETC) IN THE UK WILL SUPPORT ME IN THIS. YET ONE ALLERGIST WILL.

GUYS ITS WORTH A TRY, ITS A TEN STEP PROGRAMME AND MARJORIE IS V SUPPORTIVE. I CANT COPY YOU HER PROGRAMME AS ITS A HUGE DOCUMENT AND I WOULD ALSO GET DONE FOR COPYRIGHT STUFF BUT IF YOU WANT A COPY YOU CAN GET IT OFF HER WEBSITE XXXXX

http://www.yeastconsulting.com/index.html
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Re: DR CRANDALL THEORY....YEAST THE CAUSE OF THIS CRAPPYNESS?!!!

Post  seagirl88 on Mon Mar 14, 2011 5:32 am

I ran across this website a couple of months ago and it's the only thing that seems to make sense. Her description of the "red" form of candida matches my symptoms almost completely, plus it accounts for the fact that many of us test negative for yeast infections (or that anti-fungals are not effective). Has anybody had any experience with this program?

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Re: DR CRANDALL THEORY....YEAST THE CAUSE OF THIS CRAPPYNESS?!!!

Post  naomi on Mon Mar 14, 2011 9:22 am

yeh i have contact with marjorie, shes a lovely lady!

I have had to go down the NHS (national health service) in the UK as the NHS do not support this theory or have never even heard of it...obviously didnt cover that 30minutes on vulvodynia in their lectures at medical school Smile

I started a month ago on the candida diet so have cut lots of foods out (mainly the crappy, chemical/processed crap) and have lost weight (weight that i put on comfort eating from this). I havent got back onto the 10 step programme that Marjorie recommends as another doctor I have met is reading it at the moment still, im hoping she will prescribe me the antifungals etc.

Her pack is def recommended!! My Dad has bought about 4 copies and given it to various professionals....2 of which I know will use it as a door stop but hey hoe!

I'll copy my story to tell you how I got into this V mess xxx
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Re: DR CRANDALL THEORY....YEAST THE CAUSE OF THIS CRAPPYNESS?!!!

Post  naomi on Mon Mar 14, 2011 9:26 am

http://www.experienceproject.com/uw.php?e=660437
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Re: DR CRANDALL THEORY....YEAST THE CAUSE OF THIS CRAPPYNESS?!!!

Post  itchyandscratchy on Mon Apr 25, 2011 10:13 pm

The theory makes a lot sense to me, I was mystified when my doctor told me my problem wasn't thrush when I had exactly the same symptoms I always get from thrush. Also, drinking cinnamon tea (antibacterial/antifungal) helps my symptoms a lot, this wouldn't make any sense unless there was some kind of infection.
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Re: DR CRANDALL THEORY....YEAST THE CAUSE OF THIS CRAPPYNESS?!!!

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