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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


DR CRANDALL THEORY....YEAST THE CAUSE OF THIS CRAPPYNESS?!!!

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DR CRANDALL THEORY....YEAST THE CAUSE OF THIS CRAPPYNESS?!!!

Post  naomi on Fri Mar 11, 2011 1:18 pm

http://www.empowher.com/yeast-infection/content/dr-marjorie-crandall-yeast-infections-candida-allergy-and-vulvodynia

I propose that this residual inflammation can be due to yeasts remaining in vulvar and vaginal tissues.
[u]

I REALLY THINK THIS COULD BE A POSSIBLE CAUSE YET NO CONSULTANTS (GYNAE DERMS ETC) IN THE UK WILL SUPPORT ME IN THIS. YET ONE ALLERGIST WILL.

GUYS ITS WORTH A TRY, ITS A TEN STEP PROGRAMME AND MARJORIE IS V SUPPORTIVE. I CANT COPY YOU HER PROGRAMME AS ITS A HUGE DOCUMENT AND I WOULD ALSO GET DONE FOR COPYRIGHT STUFF BUT IF YOU WANT A COPY YOU CAN GET IT OFF HER WEBSITE XXXXX

http://www.yeastconsulting.com/index.html
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Re: DR CRANDALL THEORY....YEAST THE CAUSE OF THIS CRAPPYNESS?!!!

Post  seagirl88 on Mon Mar 14, 2011 5:32 am

I ran across this website a couple of months ago and it's the only thing that seems to make sense. Her description of the "red" form of candida matches my symptoms almost completely, plus it accounts for the fact that many of us test negative for yeast infections (or that anti-fungals are not effective). Has anybody had any experience with this program?

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Re: DR CRANDALL THEORY....YEAST THE CAUSE OF THIS CRAPPYNESS?!!!

Post  naomi on Mon Mar 14, 2011 9:22 am

yeh i have contact with marjorie, shes a lovely lady!

I have had to go down the NHS (national health service) in the UK as the NHS do not support this theory or have never even heard of it...obviously didnt cover that 30minutes on vulvodynia in their lectures at medical school Smile

I started a month ago on the candida diet so have cut lots of foods out (mainly the crappy, chemical/processed crap) and have lost weight (weight that i put on comfort eating from this). I havent got back onto the 10 step programme that Marjorie recommends as another doctor I have met is reading it at the moment still, im hoping she will prescribe me the antifungals etc.

Her pack is def recommended!! My Dad has bought about 4 copies and given it to various professionals....2 of which I know will use it as a door stop but hey hoe!

I'll copy my story to tell you how I got into this V mess xxx
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Re: DR CRANDALL THEORY....YEAST THE CAUSE OF THIS CRAPPYNESS?!!!

Post  naomi on Mon Mar 14, 2011 9:26 am

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Re: DR CRANDALL THEORY....YEAST THE CAUSE OF THIS CRAPPYNESS?!!!

Post  itchyandscratchy on Mon Apr 25, 2011 10:13 pm

The theory makes a lot sense to me, I was mystified when my doctor told me my problem wasn't thrush when I had exactly the same symptoms I always get from thrush. Also, drinking cinnamon tea (antibacterial/antifungal) helps my symptoms a lot, this wouldn't make any sense unless there was some kind of infection.
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Re: DR CRANDALL THEORY....YEAST THE CAUSE OF THIS CRAPPYNESS?!!!

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