Log in

I forgot my password

Latest topics
Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


Vulval Specialist Appointment

View previous topic View next topic Go down

Vulval Specialist Appointment

Post  Guest on Fri Mar 11, 2011 7:34 pm

Hi all. Had my appointment with my gynacologist last week and vulval specialist this week. Both are convinced this is allergy related as i am so swollen and very itchy. She said that the skin isnt inflamed! Had oral steroids for 5 days which bought the swelling down so much, now just slightly swollen and very itchy! Got strong antihistomines which make me groggy so not sure wether i will keep taking those! Got to go back in 6 weeks, she said about getting me alergy tested. Was a really positive appointment, she didnt seem to think i had vulvodynia but said she sees lots of women with it and they do get better. Very Happy

Was advised to use non purfume, non chemical, loo roll and sanitry towels which i managed to find all in waitrose, think this has helped alot! She also said use nothing but water. (Cant beleive i hadnt thought of this!)

Was reading alot on the internet this afternoon and came accross a website which had casestudies and people that have got better it said about a supplement called oral calcium citrate which stops the urine irritating vulval skin and another website where somebody was cured by using vitaclenz which is for cleansing the body of parasites and candida that can live in the body, so have just ordered both! Laughing Lets see if that helps!

Guest
Guest


Back to top Go down

Re: Vulval Specialist Appointment

Post  Sebby (Admin) on Sat Mar 12, 2011 5:09 pm


Glad you felt positive about your appointment Smile

I have been told to spray the vulvar with water everytime I urinate so it doesnt irritate the skin. I also apply vaseline as a barrier to rubbing. This routine has really helped

Since having this I have only ever washed the vulval area with water only. No sitting in a bath with soap!

I am also cutting out sugar and wheat in order to combat yeast. Other good anti yeast things are Caprylic acid, ginger, coconut, garlic and acidophylis (bio active good bacterias)

Also just drinking lots of water can cut the oxylates in your urine by 80%!


_________________
Sebby
XxX

admin@vulvodyniasupportforum.com
avatar
Sebby (Admin)
Admin

Posts : 749
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Vulval Specialist Appointment

Post  Guest on Sat Mar 12, 2011 5:50 pm

Doing the diet thing too! (well trying) Missing coffee the most! Just been to a kids birthday party and had cake too! sooo hard but really going to try it for a couple of weeks and be really good.

Have been rinsing after weeing with luke warm water from a cup will try the spray.

Thanks for all the info Sebby.




Guest
Guest


Back to top Go down

Re: Vulval Specialist Appointment

Post  Guest on Sat Mar 12, 2011 5:52 pm

Am too scared to try anything else down there, even vaseline! The vulval specialist has given me this waxy stuff to mix with water to wash with and im too scared to use that too! Everytime i try anything it blows up like a balloon!

Guest
Guest


Back to top Go down

Re: Vulval Specialist Appointment

Post  Sarah001 on Sat Mar 12, 2011 9:32 pm

I've used vaseline alot during the last year but there are two schools of thought about oily products down there, some doctors believe they protect the skin from rubbing and urine and others say don't use them as they clog the glands and stop normal secretions. It's down to what works for you though. If you have an allergy situation going on I'd probably say don't use anything just in case!
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Vulval Specialist Appointment

Post  Guest on Sun Mar 13, 2011 5:04 pm

Thank you for all the info Very Happy

Guest
Guest


Back to top Go down

Re: Vulval Specialist Appointment

Post  noni on Sun Mar 13, 2011 5:14 pm

Hey Joanne,

Thank you so much for your update!

I have also considered if my problem is allergy related...I think all us ladies need to get allergy tested!!!

Have you ever noticed that some days, for no apparent reason, you puff up down there? Is it hormones or what is it???
avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 29
Location : Ontario

View user profile

Back to top Go down

Re: Vulval Specialist Appointment

Post  Guest on Sun Mar 13, 2011 5:27 pm

I only swell up when people give me new creams to try! She thinks i have built up a sencitivity to everything. This all started for me after leaving a tampon in and had really strong antibiotics, she thinks mine could be an allergic reaction to something in the antibiotics or the tampon itself! She also said that all the steroid creams i have been given to try has made it worse! She thinks i only have pain because of the swelling and said it can take time for it all to go down.

I was 90 percent better in January until i tried another steroid cream which blew me up again and still swollen! It is the itching and swelling that is just unbearable! Feels really dry too!

Definitey think allergy testing would be a really good idea.

Guest
Guest


Back to top Go down

Re: Vulval Specialist Appointment

Post  Sarah001 on Mon Mar 14, 2011 8:07 pm

I've been back to see my vulvar specialist today and it was a bit of a wasted journey, she just told me to stick with the Pregabalin for now and see if my GP can up it over the next 3 months before I go back. That was it. I'm sure mine isn't allergy related though as I already take alot of anti-histamines for other allergies which ought to control the problem if that was the case.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Vulval Specialist Appointment

Post  noni on Mon Mar 14, 2011 10:13 pm

Hey Joanne,

Its interesting you should mention the dryness...I think it could be from all the cream...initially with my Vulvodynia I looked pretty normal down there minus the red, swollen look...but after using hydrocortisone for waaaay too long and waaay too much application my skin looks different.

So Im very suspicious of creams these days. And after reading sarahs post about her bubble bath, im convinced im super paranoid about anything coming into contact with that area. Im glad sarah enjoyed the bubbles, but I almost had a panic attack reading the title!
avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 29
Location : Ontario

View user profile

Back to top Go down

Re: Vulval Specialist Appointment

Post  Guest on Tue Mar 15, 2011 7:56 am

Hi Noni.

How long have you been suffering with tihis? Have you been diagnosed with V?

The swelling is the only thing that causes me pain and discomfort, other than some itching. Seen two people that have said its not V. 3 people seem to think that one of the antibiotics i was given through a drip can cause this side effect of swelling of the mouth lips or those lips! The creams have definitely not helped! The skin is not red i am just swollen! Just bizare! Where it was so swollen and gone down a bit im kind of left with a bit of excess skin which is uncomfortable! Dont find speculum examinations painful and had sex before it all blew up again 4 weeks ago from another cream!

What is with these people that keep giving steroid creams to try Evil or Very Mad

Guest
Guest


Back to top Go down

Re: Vulval Specialist Appointment

Post  Sebby (Admin) on Wed Mar 16, 2011 9:44 pm


Hi Joanne your posts are coming up as Guest, which is baffling me as Guests cannot post! I cannot find your old profile under the Administration panel either..very spooky.. have you deleted your membership maybe by mistake after the last post as this can be the only explanation?

_________________
Sebby
XxX

admin@vulvodyniasupportforum.com
avatar
Sebby (Admin)
Admin

Posts : 749
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Vulval Specialist Appointment

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum