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Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Vulval Specialist Appointment

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Vulval Specialist Appointment

Post  Guest on Fri Mar 11, 2011 7:34 pm

Hi all. Had my appointment with my gynacologist last week and vulval specialist this week. Both are convinced this is allergy related as i am so swollen and very itchy. She said that the skin isnt inflamed! Had oral steroids for 5 days which bought the swelling down so much, now just slightly swollen and very itchy! Got strong antihistomines which make me groggy so not sure wether i will keep taking those! Got to go back in 6 weeks, she said about getting me alergy tested. Was a really positive appointment, she didnt seem to think i had vulvodynia but said she sees lots of women with it and they do get better. Very Happy

Was advised to use non purfume, non chemical, loo roll and sanitry towels which i managed to find all in waitrose, think this has helped alot! She also said use nothing but water. (Cant beleive i hadnt thought of this!)

Was reading alot on the internet this afternoon and came accross a website which had casestudies and people that have got better it said about a supplement called oral calcium citrate which stops the urine irritating vulval skin and another website where somebody was cured by using vitaclenz which is for cleansing the body of parasites and candida that can live in the body, so have just ordered both! Laughing Lets see if that helps!

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Re: Vulval Specialist Appointment

Post  Sebby (Admin) on Sat Mar 12, 2011 5:09 pm


Glad you felt positive about your appointment Smile

I have been told to spray the vulvar with water everytime I urinate so it doesnt irritate the skin. I also apply vaseline as a barrier to rubbing. This routine has really helped

Since having this I have only ever washed the vulval area with water only. No sitting in a bath with soap!

I am also cutting out sugar and wheat in order to combat yeast. Other good anti yeast things are Caprylic acid, ginger, coconut, garlic and acidophylis (bio active good bacterias)

Also just drinking lots of water can cut the oxylates in your urine by 80%!


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Re: Vulval Specialist Appointment

Post  Guest on Sat Mar 12, 2011 5:50 pm

Doing the diet thing too! (well trying) Missing coffee the most! Just been to a kids birthday party and had cake too! sooo hard but really going to try it for a couple of weeks and be really good.

Have been rinsing after weeing with luke warm water from a cup will try the spray.

Thanks for all the info Sebby.




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Re: Vulval Specialist Appointment

Post  Guest on Sat Mar 12, 2011 5:52 pm

Am too scared to try anything else down there, even vaseline! The vulval specialist has given me this waxy stuff to mix with water to wash with and im too scared to use that too! Everytime i try anything it blows up like a balloon!

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Re: Vulval Specialist Appointment

Post  Sarah001 on Sat Mar 12, 2011 9:32 pm

I've used vaseline alot during the last year but there are two schools of thought about oily products down there, some doctors believe they protect the skin from rubbing and urine and others say don't use them as they clog the glands and stop normal secretions. It's down to what works for you though. If you have an allergy situation going on I'd probably say don't use anything just in case!
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Re: Vulval Specialist Appointment

Post  Guest on Sun Mar 13, 2011 5:04 pm

Thank you for all the info Very Happy

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Re: Vulval Specialist Appointment

Post  noni on Sun Mar 13, 2011 5:14 pm

Hey Joanne,

Thank you so much for your update!

I have also considered if my problem is allergy related...I think all us ladies need to get allergy tested!!!

Have you ever noticed that some days, for no apparent reason, you puff up down there? Is it hormones or what is it???
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Re: Vulval Specialist Appointment

Post  Guest on Sun Mar 13, 2011 5:27 pm

I only swell up when people give me new creams to try! She thinks i have built up a sencitivity to everything. This all started for me after leaving a tampon in and had really strong antibiotics, she thinks mine could be an allergic reaction to something in the antibiotics or the tampon itself! She also said that all the steroid creams i have been given to try has made it worse! She thinks i only have pain because of the swelling and said it can take time for it all to go down.

I was 90 percent better in January until i tried another steroid cream which blew me up again and still swollen! It is the itching and swelling that is just unbearable! Feels really dry too!

Definitey think allergy testing would be a really good idea.

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Re: Vulval Specialist Appointment

Post  Sarah001 on Mon Mar 14, 2011 8:07 pm

I've been back to see my vulvar specialist today and it was a bit of a wasted journey, she just told me to stick with the Pregabalin for now and see if my GP can up it over the next 3 months before I go back. That was it. I'm sure mine isn't allergy related though as I already take alot of anti-histamines for other allergies which ought to control the problem if that was the case.
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Re: Vulval Specialist Appointment

Post  noni on Mon Mar 14, 2011 10:13 pm

Hey Joanne,

Its interesting you should mention the dryness...I think it could be from all the cream...initially with my Vulvodynia I looked pretty normal down there minus the red, swollen look...but after using hydrocortisone for waaaay too long and waaay too much application my skin looks different.

So Im very suspicious of creams these days. And after reading sarahs post about her bubble bath, im convinced im super paranoid about anything coming into contact with that area. Im glad sarah enjoyed the bubbles, but I almost had a panic attack reading the title!
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Re: Vulval Specialist Appointment

Post  Guest on Tue Mar 15, 2011 7:56 am

Hi Noni.

How long have you been suffering with tihis? Have you been diagnosed with V?

The swelling is the only thing that causes me pain and discomfort, other than some itching. Seen two people that have said its not V. 3 people seem to think that one of the antibiotics i was given through a drip can cause this side effect of swelling of the mouth lips or those lips! The creams have definitely not helped! The skin is not red i am just swollen! Just bizare! Where it was so swollen and gone down a bit im kind of left with a bit of excess skin which is uncomfortable! Dont find speculum examinations painful and had sex before it all blew up again 4 weeks ago from another cream!

What is with these people that keep giving steroid creams to try Evil or Very Mad

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Re: Vulval Specialist Appointment

Post  Sebby (Admin) on Wed Mar 16, 2011 9:44 pm


Hi Joanne your posts are coming up as Guest, which is baffling me as Guests cannot post! I cannot find your old profile under the Administration panel either..very spooky.. have you deleted your membership maybe by mistake after the last post as this can be the only explanation?

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