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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Vulval Specialist Appointment

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Vulval Specialist Appointment

Post  Guest on Fri Mar 11, 2011 7:34 pm

Hi all. Had my appointment with my gynacologist last week and vulval specialist this week. Both are convinced this is allergy related as i am so swollen and very itchy. She said that the skin isnt inflamed! Had oral steroids for 5 days which bought the swelling down so much, now just slightly swollen and very itchy! Got strong antihistomines which make me groggy so not sure wether i will keep taking those! Got to go back in 6 weeks, she said about getting me alergy tested. Was a really positive appointment, she didnt seem to think i had vulvodynia but said she sees lots of women with it and they do get better. Very Happy

Was advised to use non purfume, non chemical, loo roll and sanitry towels which i managed to find all in waitrose, think this has helped alot! She also said use nothing but water. (Cant beleive i hadnt thought of this!)

Was reading alot on the internet this afternoon and came accross a website which had casestudies and people that have got better it said about a supplement called oral calcium citrate which stops the urine irritating vulval skin and another website where somebody was cured by using vitaclenz which is for cleansing the body of parasites and candida that can live in the body, so have just ordered both! Laughing Lets see if that helps!

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Re: Vulval Specialist Appointment

Post  Sebby (Admin) on Sat Mar 12, 2011 5:09 pm


Glad you felt positive about your appointment Smile

I have been told to spray the vulvar with water everytime I urinate so it doesnt irritate the skin. I also apply vaseline as a barrier to rubbing. This routine has really helped

Since having this I have only ever washed the vulval area with water only. No sitting in a bath with soap!

I am also cutting out sugar and wheat in order to combat yeast. Other good anti yeast things are Caprylic acid, ginger, coconut, garlic and acidophylis (bio active good bacterias)

Also just drinking lots of water can cut the oxylates in your urine by 80%!


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Re: Vulval Specialist Appointment

Post  Guest on Sat Mar 12, 2011 5:50 pm

Doing the diet thing too! (well trying) Missing coffee the most! Just been to a kids birthday party and had cake too! sooo hard but really going to try it for a couple of weeks and be really good.

Have been rinsing after weeing with luke warm water from a cup will try the spray.

Thanks for all the info Sebby.




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Re: Vulval Specialist Appointment

Post  Guest on Sat Mar 12, 2011 5:52 pm

Am too scared to try anything else down there, even vaseline! The vulval specialist has given me this waxy stuff to mix with water to wash with and im too scared to use that too! Everytime i try anything it blows up like a balloon!

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Re: Vulval Specialist Appointment

Post  Sarah001 on Sat Mar 12, 2011 9:32 pm

I've used vaseline alot during the last year but there are two schools of thought about oily products down there, some doctors believe they protect the skin from rubbing and urine and others say don't use them as they clog the glands and stop normal secretions. It's down to what works for you though. If you have an allergy situation going on I'd probably say don't use anything just in case!
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Re: Vulval Specialist Appointment

Post  Guest on Sun Mar 13, 2011 5:04 pm

Thank you for all the info Very Happy

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Re: Vulval Specialist Appointment

Post  noni on Sun Mar 13, 2011 5:14 pm

Hey Joanne,

Thank you so much for your update!

I have also considered if my problem is allergy related...I think all us ladies need to get allergy tested!!!

Have you ever noticed that some days, for no apparent reason, you puff up down there? Is it hormones or what is it???
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Re: Vulval Specialist Appointment

Post  Guest on Sun Mar 13, 2011 5:27 pm

I only swell up when people give me new creams to try! She thinks i have built up a sencitivity to everything. This all started for me after leaving a tampon in and had really strong antibiotics, she thinks mine could be an allergic reaction to something in the antibiotics or the tampon itself! She also said that all the steroid creams i have been given to try has made it worse! She thinks i only have pain because of the swelling and said it can take time for it all to go down.

I was 90 percent better in January until i tried another steroid cream which blew me up again and still swollen! It is the itching and swelling that is just unbearable! Feels really dry too!

Definitey think allergy testing would be a really good idea.

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Re: Vulval Specialist Appointment

Post  Sarah001 on Mon Mar 14, 2011 8:07 pm

I've been back to see my vulvar specialist today and it was a bit of a wasted journey, she just told me to stick with the Pregabalin for now and see if my GP can up it over the next 3 months before I go back. That was it. I'm sure mine isn't allergy related though as I already take alot of anti-histamines for other allergies which ought to control the problem if that was the case.
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Re: Vulval Specialist Appointment

Post  noni on Mon Mar 14, 2011 10:13 pm

Hey Joanne,

Its interesting you should mention the dryness...I think it could be from all the cream...initially with my Vulvodynia I looked pretty normal down there minus the red, swollen look...but after using hydrocortisone for waaaay too long and waaay too much application my skin looks different.

So Im very suspicious of creams these days. And after reading sarahs post about her bubble bath, im convinced im super paranoid about anything coming into contact with that area. Im glad sarah enjoyed the bubbles, but I almost had a panic attack reading the title!
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Re: Vulval Specialist Appointment

Post  Guest on Tue Mar 15, 2011 7:56 am

Hi Noni.

How long have you been suffering with tihis? Have you been diagnosed with V?

The swelling is the only thing that causes me pain and discomfort, other than some itching. Seen two people that have said its not V. 3 people seem to think that one of the antibiotics i was given through a drip can cause this side effect of swelling of the mouth lips or those lips! The creams have definitely not helped! The skin is not red i am just swollen! Just bizare! Where it was so swollen and gone down a bit im kind of left with a bit of excess skin which is uncomfortable! Dont find speculum examinations painful and had sex before it all blew up again 4 weeks ago from another cream!

What is with these people that keep giving steroid creams to try Evil or Very Mad

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Re: Vulval Specialist Appointment

Post  Sebby (Admin) on Wed Mar 16, 2011 9:44 pm


Hi Joanne your posts are coming up as Guest, which is baffling me as Guests cannot post! I cannot find your old profile under the Administration panel either..very spooky.. have you deleted your membership maybe by mistake after the last post as this can be the only explanation?

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