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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
G String Knickers
+3
naomi
Sebby (Admin)
nadja
7 posters
Page 1 of 1
G String Knickers
Okay I have been thinking anyone worn these knickers before they got this condition? I'm just wondering if maybe it contributed to us getting it???
It could have damaged the nerves and that's how we ended up with it- including stress and infections....
I have been SOOOOO Bad the last few weeks I can bearly sit. It's in both the anus and vulva and it's giving me stichy pains all around front and dull pains bottom base of spine!!! I thought I would brave it and go for a run but it didn't help much. I just always want to lie on my bed and rub the discomfort away.... I am so SICK of it!!!!
It could have damaged the nerves and that's how we ended up with it- including stress and infections....
I have been SOOOOO Bad the last few weeks I can bearly sit. It's in both the anus and vulva and it's giving me stichy pains all around front and dull pains bottom base of spine!!! I thought I would brave it and go for a run but it didn't help much. I just always want to lie on my bed and rub the discomfort away.... I am so SICK of it!!!!
nadja- Posts : 12
Join date : 2011-01-11
Location : Banbury, Oxfordshire
Re: G String Knickers
I used to wear em when I was younger..then I just thought oh these are uncomfortable lol and that was before I got Vulvodynia!
I dont think they contributed to it tho..I don't get Vulvodynia pains around the anus but I do get a very tender coccyx (tail bone)when it hurts I cant sit back and when my vulva hurts I cant sit front! I should just float! and guess what its called! coccydynia!! Yes I must be collecting all illnesses ending in dynia lol
I think the tail bone pain comes from my tendency to sit back when I have vulva pain..oh we cant win can we!
My advice is when you can lie down..lie down! Anything to give you some relief its what I do
I hope this flare up calms down soon for you
xx
Re: G String Knickers
not for me, uti infections and continual yeast infections (both brought on by sex) caused mine. If i hadn't have gone near any evil willies id be fine today!!! should have been a nun!!
naomi- Moderator
- Posts : 262
Join date : 2010-04-09
Location : Cheltenham
Re: G String Knickers
Evil willies! Lmao!
Yes indeed they are! With regards to my ex the evilness must have drained from his heart into his willy! bitter? me? loool!
Re: G String Knickers
Hi Nadja,
Have you been tested for genital herpes, if your bottom and tail bone is very sore also then you may have this disease and not vulvodynia, been there done all that, sorry lovely, get the tests done for it, hope you get better soon.
Have you been tested for genital herpes, if your bottom and tail bone is very sore also then you may have this disease and not vulvodynia, been there done all that, sorry lovely, get the tests done for it, hope you get better soon.
angelique- Posts : 9
Join date : 2011-02-01
Location : Melbourne Australia
Re: G String Knickers
Genital herpes? no it's not that as this came about since I was diagnosed with Vulvadynia/ Vestibulitis. What happened when you found out it was genital herpes? Is it cured now?
nadja- Posts : 12
Join date : 2011-01-11
Location : Banbury, Oxfordshire
Re: G String Knickers
No I dont have gential herpes in this area, but your symptoms sound more like it rather than vulvodynia.
angelique- Posts : 9
Join date : 2011-02-01
Location : Melbourne Australia
Re: G String Knickers
Pain around the anus is also part of Vulvodynia..
"The pain in unprovoked vulvodynia is not always restricted to the vulval area (area of skin on the outside of the vagina) and some women get pain elsewhere. This can be around the inside of the thighs, upper legs and even around the anus (back passage) and urethra (where you pass urine). Some women also have pain when they empty their bowels"
This quote is from the Vulval Pain Society website
Re: G String Knickers
I also have pain around the tailbone and bottom itchy raw feeling some days its in my bottom some days its round the front some days its all over. I suffered from coccdynia when i was about 10 they put it down to a bad fall I had. It went away after about a year of sitting on a hard book in the car or a hard chair. Then 12 years later I get vulvodynia and the tail bone pain comes back....iI also have pain with bowl movments. I am currently using a cream that relaxes the anal sphincter which makes pooing more pleaseant
some times I think doctors just like to name things so it sounds like they know whats going on. I am so over this pain today...
Claire
some times I think doctors just like to name things so it sounds like they know whats going on. I am so over this pain today...
Claire
Aussie- Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia
Re: G String Knickers
Let's not forget the pelvic floor attaches to the coccyx so a coccyx fall would easily set off the PF which can easily set of V.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: G String Knickers
yeah I get that but the fall was when i was 10 and had no symptoms between that resolving and v starting. I am sure there is a conneciton somewhere but doesn't explain why i was pain free for 12 years
Aussie- Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer