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    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 1

    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25


    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 8

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 1

    What has been helping ME (much less pain over time!!)

    Wed May 16, 2018 3:43 am by leoscc

    Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

    1. I …

    Comments: 0

    I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

    Mon Mar 12, 2018 4:33 pm by totallycured


    Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

    Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

    Comments: 4

    Condoms Less Painful?

    Mon May 07, 2018 3:35 am by stillinpain

    I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

    Comments: 0

    Will there be an end?

    Fri Apr 27, 2018 12:06 am by Krista2828

    I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

    I am in my 20's.. it shouldn't be this way.

    Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

    Comments: 6

    you can be healed so easy and quite fast.

    Thu Apr 26, 2018 11:46 pm by pussycat

    Hello everyone,
    i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

    Comments: 4

    Hi Im from Australia :)

    Sat Jan 08, 2011 1:08 am by emma

    Hi girls... I live in Australia.
    I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
    Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

    Comments: 35

    My Vulva hates me!!!!

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    My Vulva hates me!!!!

    Post  Sebby (Admin) on Sat Dec 05, 2009 10:37 pm

    I have had Vulvodynia for over 18 months now. Although I can see warning signs previous to this after reading "The Vulvodynia Survival Guide" by Howard I Glazer. Throughout my late teenage years and 20's I had frequent yeast infections and often found sexual intercourse initially painfull at the start of penetration and generally had sensitive skin.
    Then 18 months ago the pain started, burning, soreness, rawness. I thought I had a bad case of Thrush again so got some Canesten and an oral pill. I went to the doctor after it would not go away and had a swab done which did not show any infections. Not really knowing what to do with me he continued to give me more creams, cream after cream...yeast infection creams,steriod creams,anti bacterial creams.
    I was then sent to a GP with special interet in Gynae issues (yeah whats that?, well let me tell you... a cheap way for the nhs to try and treat you without sending you to a hospital consultant!). Again swabs and no infection, I got told I probably had some sort of allergy. So I changed my sanitary protection to 'Natracare products', only used "Dermo Lotion" when showering myself, 100% cotton knickers etc. That particalr doctor then wrote to my own GP saying I probably needed counselling because I cried during the examination. Of course I did...It Hurt!!
    I was also at the time in a relationship and sex was becoming a problem. I could have intercourse only rarely and had to rely on other forms of sexual pleasure without intercourse. Me and my boyfriend eventually split up, mainly for other reasons...(he was an asshole!! lol)
    Well I was then sent to another GP with special interests! This time in Dermotology who had never heard of such a problem and was too embarresed to examine me.....she was a doctor and a woman and she was scared of my Vulva! Well to be honest Im scared of my Vulva!! In the end I begged my GP (I have sinced moved my GP after my old one told me there was nothing more they could do for me) to send me to a Hospital Consultant Gynaecologist. It took over a year on the NHS to be finally sent to a Hospital Specialist.
    I was privillaged enough to be referred to a private hosptial as an NHS patient. The doctor was very sympathetic and I did feel understood. He figured It maybe my hormones so put me on Cerezette (a mini progestrone only pill which can also stop your periods and stop ovulation) I bled for 3 months! and once my periods stopped the pain just continued.
    It was during this period that I came across the term Vulvodynia on the internet and came across Dr Howard Glazer's website "www.vulvodynia.com and his book "The Vulvodynia Survival Guide" When I read up on this condition it sounded like exactly like what I was going through. I have asked at least 3 GP's I have seen if they have heard of the contition and all are clueless, but as the book explains this is quite a normal experience, but why? the reaseach in America has been going on since the 1980's!!.
    The book has given me some hope that I can get help with this condition but at the same time as there are so many different approaches, different explanations on why Vulvodynia strikes and most UK docotors dont seem to have ever heard of it I feel simultaneously hopeless.
    Well I have now in the last month come off the Cerezette and am waiting to see another Gynae at an NHS Hospital as the private hospital have now stopped seeing NHS patients oh joy now I have to see another doctor and start at the beginging again! I see her next Tuesday and I am hoping she has actually heard of this condition and will have some idea of what she can do to help me!
    Firstly the hardest part I find living with Vulvodynia is obviously the pain, sitting down is difficult, buying trousers that are comfortable, walking, and just coping day to day when I get a bad flare up. Secondly I am single again and too be honest this conditon has really put me off even looking for a boyfriend. So Im sorry if I sound down Im a bit nervous about this weeks appointment and well Im hoping this site will give you girls some support and myself some support. Please join.....

    Sebby. xxxx
    Sebby (Admin)

    Posts : 750
    Join date : 2009-12-03
    Age : 37
    Location : London UK

    View user profile http://vulvodyniasupport.forumotion.net

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