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    » Vestibulectomy
    Yesterday at 12:39 pm by Hopeitworks

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    Tue Aug 15, 2017 6:36 pm by Kezz

    » Recently Diagnosed.... Help!
    Tue Aug 15, 2017 2:57 pm by amyhp

    » Discomfort from my own liquids
    Sun Aug 13, 2017 4:27 am by Hopeitworks

    » Anyone else have burning on the front of thighs?
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    » Partial Vestibulectomy
    Sun Aug 13, 2017 1:38 am by infinitelywondering

    » Anyone being treated by Drexel University???
    Sat Aug 12, 2017 8:50 pm by Hopeitworks

    » Post Vestibulectomy Pain !!!
    Sat Aug 12, 2017 8:00 pm by sj17

    » Pain management - what works for me
    Sat Aug 12, 2017 9:58 am by sj17

    Partial Vestibulectomy

    Mon Jul 31, 2017 6:44 pm by JGD13

    Hi all i am new here.
    I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
    After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

    Comments: 4

    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 3

    Anyone from the PNW?

    Sat Aug 05, 2017 7:54 am by jungleclover

    I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

    Comments: 0

    Constant pain, I want to die.

    Fri Jun 02, 2017 4:29 am by Meggiemay

    I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

    For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

    Comments: 22

    Newbie to the site

    Sun Jul 30, 2017 12:16 am by Ksa

    Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

    Comments: 1

    New to the site and just had a vestibulectomy

    Fri Aug 04, 2017 12:19 am by Hopeitworks

    Hello Everyone,

    I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

    Comments: 2

    Post Vestibulectomy

    Thu Aug 03, 2017 6:15 pm by infinitelywondering

    Heya,

    I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

    However, today I came home and have done the following things:

    -washed with warm water
    -applied manuka honey to the area
    -ensured I wash at least 3 times a day and dab the area dry gently
    -use frozen peas to stop the swelling

    As of now I am …

    Comments: 0

    can anyone recommend a good dermatologist in LA?

    Thu Jul 27, 2017 4:17 pm by saffron

    Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

    I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

    Comments: 3

    Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

    Sun Jul 30, 2017 1:03 am by Carolyn4

    Hi everyone,

    I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

    Comments: 0


    My Vulva hates me!!!!

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    My Vulva hates me!!!!

    Post  Sebby (Admin) on Sat Dec 05, 2009 10:37 pm

    I have had Vulvodynia for over 18 months now. Although I can see warning signs previous to this after reading "The Vulvodynia Survival Guide" by Howard I Glazer. Throughout my late teenage years and 20's I had frequent yeast infections and often found sexual intercourse initially painfull at the start of penetration and generally had sensitive skin.
    Then 18 months ago the pain started, burning, soreness, rawness. I thought I had a bad case of Thrush again so got some Canesten and an oral pill. I went to the doctor after it would not go away and had a swab done which did not show any infections. Not really knowing what to do with me he continued to give me more creams, cream after cream...yeast infection creams,steriod creams,anti bacterial creams.
    I was then sent to a GP with special interet in Gynae issues (yeah whats that?, well let me tell you... a cheap way for the nhs to try and treat you without sending you to a hospital consultant!). Again swabs and no infection, I got told I probably had some sort of allergy. So I changed my sanitary protection to 'Natracare products', only used "Dermo Lotion" when showering myself, 100% cotton knickers etc. That particalr doctor then wrote to my own GP saying I probably needed counselling because I cried during the examination. Of course I did...It Hurt!!
    I was also at the time in a relationship and sex was becoming a problem. I could have intercourse only rarely and had to rely on other forms of sexual pleasure without intercourse. Me and my boyfriend eventually split up, mainly for other reasons...(he was an asshole!! lol)
    Well I was then sent to another GP with special interests! This time in Dermotology who had never heard of such a problem and was too embarresed to examine me.....she was a doctor and a woman and she was scared of my Vulva! Well to be honest Im scared of my Vulva!! In the end I begged my GP (I have sinced moved my GP after my old one told me there was nothing more they could do for me) to send me to a Hospital Consultant Gynaecologist. It took over a year on the NHS to be finally sent to a Hospital Specialist.
    I was privillaged enough to be referred to a private hosptial as an NHS patient. The doctor was very sympathetic and I did feel understood. He figured It maybe my hormones so put me on Cerezette (a mini progestrone only pill which can also stop your periods and stop ovulation) I bled for 3 months! and once my periods stopped the pain just continued.
    It was during this period that I came across the term Vulvodynia on the internet and came across Dr Howard Glazer's website "www.vulvodynia.com and his book "The Vulvodynia Survival Guide" When I read up on this condition it sounded like exactly like what I was going through. I have asked at least 3 GP's I have seen if they have heard of the contition and all are clueless, but as the book explains this is quite a normal experience, but why? the reaseach in America has been going on since the 1980's!!.
    The book has given me some hope that I can get help with this condition but at the same time as there are so many different approaches, different explanations on why Vulvodynia strikes and most UK docotors dont seem to have ever heard of it I feel simultaneously hopeless.
    Well I have now in the last month come off the Cerezette and am waiting to see another Gynae at an NHS Hospital as the private hospital have now stopped seeing NHS patients oh joy now I have to see another doctor and start at the beginging again! I see her next Tuesday and I am hoping she has actually heard of this condition and will have some idea of what she can do to help me!
    Firstly the hardest part I find living with Vulvodynia is obviously the pain, sitting down is difficult, buying trousers that are comfortable, walking, and just coping day to day when I get a bad flare up. Secondly I am single again and too be honest this conditon has really put me off even looking for a boyfriend. So Im sorry if I sound down Im a bit nervous about this weeks appointment and well Im hoping this site will give you girls some support and myself some support. Please join.....

    Sebby. xxxx
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    Sebby (Admin)
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    Posts : 750
    Join date : 2009-12-03
    Age : 36
    Location : London UK

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