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    » Lichen Sclerosus
    Yesterday at 2:47 am by ryn207

    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    » my rock bottom, psychological effects of vulvodynia, I told him he can leave me
    Wed Feb 14, 2018 6:43 am by renegade_magdalena

    » Some interesting information about nerve pain in general
    Wed Feb 14, 2018 3:58 am by Athena

    » Sore after using dilator for first time in a year
    Wed Feb 14, 2018 3:45 am by Athena

    » What helped me
    Wed Feb 14, 2018 3:38 am by Athena

    Wed Feb 14, 2018 3:33 am by Athena

    » Coping with Vulvodynia
    Tue Feb 13, 2018 3:55 pm by NaughtyNanny

    » Newby not sure where to turn
    Tue Feb 13, 2018 2:10 pm by sarisbaris


    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    Dear all,

    Today has been the day I've been waiting for. The day something FINALLY makes sense.
    I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

    after having a vestibulectomy with no success, I decided to visit …

    Comments: 0


    Sat Feb 10, 2018 12:18 am by rockylife


    Comments: 2

    Newby not sure where to turn

    Thu Feb 01, 2018 3:32 pm by Cerjo87

    Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

    Comments: 4

    Looking for a friend..... and new problems

    Sat Jan 06, 2018 11:38 pm by infinitelywondering

    Hi everyone,

    I hope you're doing well.

    I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

    6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

    Comments: 8

    Newbie to the site

    Sun Jul 30, 2017 12:16 am by Ksa

    Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

    Comments: 4

    Vulvodynia from #metoo media coverage

    Thu Jan 25, 2018 9:01 pm by dooleyhornberg

    I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

    Comments: 0

    So frustrating!!

    Thu Jan 04, 2018 1:15 am by Hannah77

    Well I'm back in pain after 7 years of pain free days.
    I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

    Comments: 3

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 4

    Amitriptyline given for vulvodyina pain

    Tue Oct 24, 2017 2:46 pm by katycrawford

    Hi there,

    After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

    Comments: 11

    My Vulva hates me!!!!

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    My Vulva hates me!!!!

    Post  Sebby (Admin) on Sat Dec 05, 2009 10:37 pm

    I have had Vulvodynia for over 18 months now. Although I can see warning signs previous to this after reading "The Vulvodynia Survival Guide" by Howard I Glazer. Throughout my late teenage years and 20's I had frequent yeast infections and often found sexual intercourse initially painfull at the start of penetration and generally had sensitive skin.
    Then 18 months ago the pain started, burning, soreness, rawness. I thought I had a bad case of Thrush again so got some Canesten and an oral pill. I went to the doctor after it would not go away and had a swab done which did not show any infections. Not really knowing what to do with me he continued to give me more creams, cream after cream...yeast infection creams,steriod creams,anti bacterial creams.
    I was then sent to a GP with special interet in Gynae issues (yeah whats that?, well let me tell you... a cheap way for the nhs to try and treat you without sending you to a hospital consultant!). Again swabs and no infection, I got told I probably had some sort of allergy. So I changed my sanitary protection to 'Natracare products', only used "Dermo Lotion" when showering myself, 100% cotton knickers etc. That particalr doctor then wrote to my own GP saying I probably needed counselling because I cried during the examination. Of course I did...It Hurt!!
    I was also at the time in a relationship and sex was becoming a problem. I could have intercourse only rarely and had to rely on other forms of sexual pleasure without intercourse. Me and my boyfriend eventually split up, mainly for other reasons...(he was an asshole!! lol)
    Well I was then sent to another GP with special interests! This time in Dermotology who had never heard of such a problem and was too embarresed to examine me.....she was a doctor and a woman and she was scared of my Vulva! Well to be honest Im scared of my Vulva!! In the end I begged my GP (I have sinced moved my GP after my old one told me there was nothing more they could do for me) to send me to a Hospital Consultant Gynaecologist. It took over a year on the NHS to be finally sent to a Hospital Specialist.
    I was privillaged enough to be referred to a private hosptial as an NHS patient. The doctor was very sympathetic and I did feel understood. He figured It maybe my hormones so put me on Cerezette (a mini progestrone only pill which can also stop your periods and stop ovulation) I bled for 3 months! and once my periods stopped the pain just continued.
    It was during this period that I came across the term Vulvodynia on the internet and came across Dr Howard Glazer's website "www.vulvodynia.com and his book "The Vulvodynia Survival Guide" When I read up on this condition it sounded like exactly like what I was going through. I have asked at least 3 GP's I have seen if they have heard of the contition and all are clueless, but as the book explains this is quite a normal experience, but why? the reaseach in America has been going on since the 1980's!!.
    The book has given me some hope that I can get help with this condition but at the same time as there are so many different approaches, different explanations on why Vulvodynia strikes and most UK docotors dont seem to have ever heard of it I feel simultaneously hopeless.
    Well I have now in the last month come off the Cerezette and am waiting to see another Gynae at an NHS Hospital as the private hospital have now stopped seeing NHS patients oh joy now I have to see another doctor and start at the beginging again! I see her next Tuesday and I am hoping she has actually heard of this condition and will have some idea of what she can do to help me!
    Firstly the hardest part I find living with Vulvodynia is obviously the pain, sitting down is difficult, buying trousers that are comfortable, walking, and just coping day to day when I get a bad flare up. Secondly I am single again and too be honest this conditon has really put me off even looking for a boyfriend. So Im sorry if I sound down Im a bit nervous about this weeks appointment and well Im hoping this site will give you girls some support and myself some support. Please join.....

    Sebby. xxxx
    Sebby (Admin)

    Posts : 750
    Join date : 2009-12-03
    Age : 37
    Location : London UK

    View user profile http://vulvodyniasupport.forumotion.net

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