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    Somebody please help me...

    Fri Nov 24, 2017 8:05 am by Andlag

    Hey everyone,

    since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

    Comments: 11

    7 years later and life looks bleak :(

    Wed Dec 06, 2017 2:50 am by RainyShay77

    So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

    Comments: 4

    Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

    Mon Nov 20, 2017 8:15 pm by WVR00

    Hello,
    Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

    Comments: 1

    Amitriptyline given for vulvodyina pain

    Tue Oct 24, 2017 2:46 pm by katycrawford

    Hi there,

    After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

    Comments: 3

    New diagnosis, any advice whilst I wait for a specialist

    Wed Oct 25, 2017 1:47 pm by Julesyjules

    Hi,

    I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

    After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

    Comments: 1

    Vulvodynia help

    Tue Nov 14, 2017 4:27 pm by Katiej

    Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

    Comments: 3

    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 4

    Newly diagnosed

    Tue Oct 10, 2017 8:37 pm by Brevispink

    Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

    Comments: 9

    Recent "Poke" Pain - So Confused/Losing My Mind

    Thu Oct 12, 2017 9:26 am by kelseybeth23

    Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

    Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

    Comments: 5


    My Vulva hates me!!!!

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    My Vulva hates me!!!!

    Post  Sebby (Admin) on Sat Dec 05, 2009 10:37 pm

    I have had Vulvodynia for over 18 months now. Although I can see warning signs previous to this after reading "The Vulvodynia Survival Guide" by Howard I Glazer. Throughout my late teenage years and 20's I had frequent yeast infections and often found sexual intercourse initially painfull at the start of penetration and generally had sensitive skin.
    Then 18 months ago the pain started, burning, soreness, rawness. I thought I had a bad case of Thrush again so got some Canesten and an oral pill. I went to the doctor after it would not go away and had a swab done which did not show any infections. Not really knowing what to do with me he continued to give me more creams, cream after cream...yeast infection creams,steriod creams,anti bacterial creams.
    I was then sent to a GP with special interet in Gynae issues (yeah whats that?, well let me tell you... a cheap way for the nhs to try and treat you without sending you to a hospital consultant!). Again swabs and no infection, I got told I probably had some sort of allergy. So I changed my sanitary protection to 'Natracare products', only used "Dermo Lotion" when showering myself, 100% cotton knickers etc. That particalr doctor then wrote to my own GP saying I probably needed counselling because I cried during the examination. Of course I did...It Hurt!!
    I was also at the time in a relationship and sex was becoming a problem. I could have intercourse only rarely and had to rely on other forms of sexual pleasure without intercourse. Me and my boyfriend eventually split up, mainly for other reasons...(he was an asshole!! lol)
    Well I was then sent to another GP with special interests! This time in Dermotology who had never heard of such a problem and was too embarresed to examine me.....she was a doctor and a woman and she was scared of my Vulva! Well to be honest Im scared of my Vulva!! In the end I begged my GP (I have sinced moved my GP after my old one told me there was nothing more they could do for me) to send me to a Hospital Consultant Gynaecologist. It took over a year on the NHS to be finally sent to a Hospital Specialist.
    I was privillaged enough to be referred to a private hosptial as an NHS patient. The doctor was very sympathetic and I did feel understood. He figured It maybe my hormones so put me on Cerezette (a mini progestrone only pill which can also stop your periods and stop ovulation) I bled for 3 months! and once my periods stopped the pain just continued.
    It was during this period that I came across the term Vulvodynia on the internet and came across Dr Howard Glazer's website "www.vulvodynia.com and his book "The Vulvodynia Survival Guide" When I read up on this condition it sounded like exactly like what I was going through. I have asked at least 3 GP's I have seen if they have heard of the contition and all are clueless, but as the book explains this is quite a normal experience, but why? the reaseach in America has been going on since the 1980's!!.
    The book has given me some hope that I can get help with this condition but at the same time as there are so many different approaches, different explanations on why Vulvodynia strikes and most UK docotors dont seem to have ever heard of it I feel simultaneously hopeless.
    Well I have now in the last month come off the Cerezette and am waiting to see another Gynae at an NHS Hospital as the private hospital have now stopped seeing NHS patients oh joy now I have to see another doctor and start at the beginging again! I see her next Tuesday and I am hoping she has actually heard of this condition and will have some idea of what she can do to help me!
    Firstly the hardest part I find living with Vulvodynia is obviously the pain, sitting down is difficult, buying trousers that are comfortable, walking, and just coping day to day when I get a bad flare up. Secondly I am single again and too be honest this conditon has really put me off even looking for a boyfriend. So Im sorry if I sound down Im a bit nervous about this weeks appointment and well Im hoping this site will give you girls some support and myself some support. Please join.....

    Sebby. xxxx
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    Sebby (Admin)
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    Posts : 750
    Join date : 2009-12-03
    Age : 36
    Location : London UK

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