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    » What's next?
    Today at 10:07 am by amyhp

    » HELP!! Topical cream?
    Mon Apr 16, 2018 5:49 pm by Sad

    » Please tell me this can get better
    Sun Apr 15, 2018 11:31 am by amf329

    » Pressure to have sex.
    Sun Apr 15, 2018 2:00 am by Sad

    » Vulvodynia and other neurological diseases?
    Sat Apr 14, 2018 8:00 pm by wuhujen

    » I'M NEW - Do I listen to my gyno who I feel has it wrong?
    Sat Apr 14, 2018 7:57 pm by wuhujen

    » I wanted to share a resource that has made a huge difference for me
    Wed Apr 11, 2018 9:28 pm by amf329

    » Loneliness
    Wed Apr 11, 2018 11:36 am by sophiarp

    » I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
    Fri Apr 06, 2018 4:06 am by Warrior2010

    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25

    Hello!

    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 4

    I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

    Mon Mar 12, 2018 4:33 pm by totallycured

    Hi,

    Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

    Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

    Comments: 3

    Hi Im from Australia :)

    Sat Jan 08, 2011 1:08 am by emma

    Hi girls... I live in Australia.
    I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
    Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

    Comments: 35

    Somebody please help me...

    Fri Nov 24, 2017 8:05 am by Andlag

    Hey everyone,

    since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

    Comments: 14

    Lidocaine with condoms?

    Wed Mar 21, 2018 10:44 pm by AEM1

    Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
    Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

    Comments: 1

    Constant pain, I want to die.

    Fri Jun 02, 2017 4:29 am by Meggiemay

    I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

    For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

    Comments: 23

    Recently Diagnosed which has motivated my research study

    Tue Mar 06, 2018 4:54 pm by ebclose2free

    Hi everyone,

    My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

    Comments: 0

    MAY HAVE FOUND A CURE- PLEASE READ

    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    Dear all,

    Today has been the day I've been waiting for. The day something FINALLY makes sense.
    I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


    after having a vestibulectomy with no success, I decided to visit …

    Comments: 3

    New and desperate for advice

    Sat Mar 03, 2018 2:37 pm by srbry

    Hi everyone,

    I'm new here and was told to find a support group because this is all getting a bit much really...

    I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

    Comments: 3


    Pelvic ultrasounds

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    Pelvic ultrasounds

    Post  seagirl88 on Wed Mar 16, 2011 8:05 pm

    I know we've all experienced how absolutely excruciating having a pelvic exam can be, but I was wondering if any of you ladies have ever had a transvaginal pelvic ultrasound? I'm going to get one soon and I want to know if I should expect it to be much more painful than an internal exam (which is already the most painful thing EVER so I'm not sure how it could get any worse Shocked) I'm terrified, but my doc wants to get a look at my reproductive organs since I'm not getting my period anymore.

    seagirl88

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    Re: Pelvic ultrasounds

    Post  Mouse on Wed Mar 16, 2011 10:04 pm

    Hey there,

    I had an ovary scan last year I'm not sure if that's the same thing. I had to drink lots of water and the initial part was on my tummy the same as they do on pregnant woman. Then I was allowed to pee - thank God!!! The rest was no more invasive than a smear so of a similar size and I was allowed to insert that myself. I have generalised so have no trouble with insertion.

    Take some rescue remedy before you go or maybe get drunk affraid Kidding about that one of course! I found this clip on youtube which shows how it works. If you need insertion it looks like the head is fairly small only about half an inch. Can you tolerate that?

    I know someone with V who also has no periods. She's just turned 30 so hoping to crank that up to eventually be able to have a baby. Not sure how the sex part will happen but we're all doing baby steps I suppose.

    I hope this helps Smile

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    Re: Pelvic ultrasounds

    Post  Aussie on Thu Mar 17, 2011 3:35 am

    I had one at the start of all this to rule out anything serious (I think I would rather have something serious that they can treat anyway)

    but it really wasn't all that bad. I just told the nurse dong it about my sensitivity and she let me put it in myself there was heaps of lube on it. If your allergic to latex ask them to use a non latex glove i find it helps. Put it in yourself, the best way to relax the muscles I find is to push the thing your inserting away, do you understand what I am saying? bear down kind of - and as your doing that push it in slowly. They can use anesthetic gell too.

    I am sure you will be fine. Breathe through your tummy not your chest for about 6 breaths before, that will help relax also.

    Good luck Smile

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    Re: Pelvic ultrasounds

    Post  seagirl88 on Thu Mar 17, 2011 5:17 am

    Thanks for the replies guys. I'm glad that they have an anesthetic gel-- hopefully that helps.

    seagirl88

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    Re: Pelvic ultrasounds

    Post  Sebby (Admin) on Thu Mar 17, 2011 7:51 pm


    Asked the question on the fb group (linked to forum) and I got several responses...

    One member said that she found it helpful to be allowed to insert the instrument herself - maybe something you could ask
    Another didnt like it and found it difficult but got through it
    another said it was ok and not at all bad and just made sure the lady doing it knew about the V
    and another said it was better and easier than a smear

    Overall the majority were more positive accounts! Smile

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    Re: Pelvic ultrasounds

    Post  Mouse on Fri Mar 18, 2011 12:44 am

    Bloody hell I forgot to put the link up. I hope this helps.

    https://www.youtube.com/watch?v=Rdt6De4_2h4

    V.

    hmmmm I also realised that I've been signing myself as V. for years and that's the same abbreviation I use for this bullshit. I'm getting a new name!

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    Re: Pelvic ultrasounds

    Post  seagirl88 on Fri Mar 18, 2011 5:00 am

    Thanks Sebby for forwarding those responses to me, and thanks Mouse (or "V" Wink ) for the YouTube link. The picture of the ultrasound microphone thing looks terrifying though! We'll see how it goes...

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    Just got back

    Post  seagirl88 on Mon Mar 28, 2011 9:57 pm

    Well, I just got back from my ultrasound. The initial insertion of the wand was literally the most painful thing I have ever experienced. I think that even if I got shot the pain wouldn't compare to the pain I feel with my vulvodynia. I'm sure all of the results will come back normal, too. WHY WHY WHY do we have such horrific, unexplainable pain? It's getting harder to pretend to be happy and lead a normal life. I'm feeling pretty hopeless right now.

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    Re: Pelvic ultrasounds

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