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    » Anyone been to see Dr.Claire Bailey in Birmingham?
    Tue Aug 15, 2017 6:36 pm by Kezz

    » Recently Diagnosed.... Help!
    Tue Aug 15, 2017 2:57 pm by amyhp

    » Vestibulectomy
    Sun Aug 13, 2017 9:54 am by infinitelywondering

    » Discomfort from my own liquids
    Sun Aug 13, 2017 4:27 am by Hopeitworks

    » Anyone else have burning on the front of thighs?
    Sun Aug 13, 2017 2:20 am by Hopeitworks

    » Partial Vestibulectomy
    Sun Aug 13, 2017 1:38 am by infinitelywondering

    » Anyone being treated by Drexel University???
    Sat Aug 12, 2017 8:50 pm by Hopeitworks

    » Post Vestibulectomy Pain !!!
    Sat Aug 12, 2017 8:00 pm by sj17

    » Pain management - what works for me
    Sat Aug 12, 2017 9:58 am by sj17

    Partial Vestibulectomy

    Mon Jul 31, 2017 6:44 pm by JGD13

    Hi all i am new here.
    I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
    After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

    Comments: 4

    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 3

    Anyone from the PNW?

    Sat Aug 05, 2017 7:54 am by jungleclover

    I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

    Comments: 0

    Constant pain, I want to die.

    Fri Jun 02, 2017 4:29 am by Meggiemay

    I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

    For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

    Comments: 22

    Newbie to the site

    Sun Jul 30, 2017 12:16 am by Ksa

    Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

    Comments: 1

    New to the site and just had a vestibulectomy

    Fri Aug 04, 2017 12:19 am by Hopeitworks

    Hello Everyone,

    I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

    Comments: 2

    Post Vestibulectomy

    Thu Aug 03, 2017 6:15 pm by infinitelywondering

    Heya,

    I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

    However, today I came home and have done the following things:

    -washed with warm water
    -applied manuka honey to the area
    -ensured I wash at least 3 times a day and dab the area dry gently
    -use frozen peas to stop the swelling

    As of now I am …

    Comments: 0

    can anyone recommend a good dermatologist in LA?

    Thu Jul 27, 2017 4:17 pm by saffron

    Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

    I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

    Comments: 3

    Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

    Sun Jul 30, 2017 1:03 am by Carolyn4

    Hi everyone,

    I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

    Comments: 0


    Pelvic ultrasounds

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    Pelvic ultrasounds

    Post  seagirl88 on Wed Mar 16, 2011 8:05 pm

    I know we've all experienced how absolutely excruciating having a pelvic exam can be, but I was wondering if any of you ladies have ever had a transvaginal pelvic ultrasound? I'm going to get one soon and I want to know if I should expect it to be much more painful than an internal exam (which is already the most painful thing EVER so I'm not sure how it could get any worse Shocked) I'm terrified, but my doc wants to get a look at my reproductive organs since I'm not getting my period anymore.

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    Re: Pelvic ultrasounds

    Post  Mouse on Wed Mar 16, 2011 10:04 pm

    Hey there,

    I had an ovary scan last year I'm not sure if that's the same thing. I had to drink lots of water and the initial part was on my tummy the same as they do on pregnant woman. Then I was allowed to pee - thank God!!! The rest was no more invasive than a smear so of a similar size and I was allowed to insert that myself. I have generalised so have no trouble with insertion.

    Take some rescue remedy before you go or maybe get drunk affraid Kidding about that one of course! I found this clip on youtube which shows how it works. If you need insertion it looks like the head is fairly small only about half an inch. Can you tolerate that?

    I know someone with V who also has no periods. She's just turned 30 so hoping to crank that up to eventually be able to have a baby. Not sure how the sex part will happen but we're all doing baby steps I suppose.

    I hope this helps Smile

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    Re: Pelvic ultrasounds

    Post  Aussie on Thu Mar 17, 2011 3:35 am

    I had one at the start of all this to rule out anything serious (I think I would rather have something serious that they can treat anyway)

    but it really wasn't all that bad. I just told the nurse dong it about my sensitivity and she let me put it in myself there was heaps of lube on it. If your allergic to latex ask them to use a non latex glove i find it helps. Put it in yourself, the best way to relax the muscles I find is to push the thing your inserting away, do you understand what I am saying? bear down kind of - and as your doing that push it in slowly. They can use anesthetic gell too.

    I am sure you will be fine. Breathe through your tummy not your chest for about 6 breaths before, that will help relax also.

    Good luck Smile

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    Re: Pelvic ultrasounds

    Post  seagirl88 on Thu Mar 17, 2011 5:17 am

    Thanks for the replies guys. I'm glad that they have an anesthetic gel-- hopefully that helps.

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    Re: Pelvic ultrasounds

    Post  Sebby (Admin) on Thu Mar 17, 2011 7:51 pm


    Asked the question on the fb group (linked to forum) and I got several responses...

    One member said that she found it helpful to be allowed to insert the instrument herself - maybe something you could ask
    Another didnt like it and found it difficult but got through it
    another said it was ok and not at all bad and just made sure the lady doing it knew about the V
    and another said it was better and easier than a smear

    Overall the majority were more positive accounts! Smile

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    Re: Pelvic ultrasounds

    Post  Mouse on Fri Mar 18, 2011 12:44 am

    Bloody hell I forgot to put the link up. I hope this helps.

    http://www.youtube.com/watch?v=Rdt6De4_2h4

    V.

    hmmmm I also realised that I've been signing myself as V. for years and that's the same abbreviation I use for this bullshit. I'm getting a new name!

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    Re: Pelvic ultrasounds

    Post  seagirl88 on Fri Mar 18, 2011 5:00 am

    Thanks Sebby for forwarding those responses to me, and thanks Mouse (or "V" Wink ) for the YouTube link. The picture of the ultrasound microphone thing looks terrifying though! We'll see how it goes...

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    Just got back

    Post  seagirl88 on Mon Mar 28, 2011 9:57 pm

    Well, I just got back from my ultrasound. The initial insertion of the wand was literally the most painful thing I have ever experienced. I think that even if I got shot the pain wouldn't compare to the pain I feel with my vulvodynia. I'm sure all of the results will come back normal, too. WHY WHY WHY do we have such horrific, unexplainable pain? It's getting harder to pretend to be happy and lead a normal life. I'm feeling pretty hopeless right now.

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    Re: Pelvic ultrasounds

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