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    Newly diagnosed

    Tue Oct 10, 2017 8:37 pm by Brevispink

    Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

    Comments: 7

    Recent "Poke" Pain - So Confused/Losing My Mind

    Thu Oct 12, 2017 9:26 am by kelseybeth23

    Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

    Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

    Comments: 5

    Does anyone else experience this?

    Sat Oct 14, 2017 5:21 pm by Angelmegs

    Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

    Comments: 0

    Post Full Vestibulectomy - 5 Years Later - Please Read

    Tue May 02, 2017 6:18 pm by jen007

    Hi All,

    It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

    For 4 years post …

    Comments: 4

    Do you ever worry that you're making it up?

    Fri May 27, 2016 6:50 am by Lucci

    Hello,

    I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

    A few years into treatment, I had the diagnosis of PTSD added on for …

    Comments: 7

    Clitoris Issues

    Tue Apr 28, 2015 8:17 pm by January

    I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

    Comments: 2

    Cured of Vulvodynia

    Wed Aug 17, 2016 1:39 am by angelique2016

    I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

    Comments: 10

    Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

    Sun Jul 30, 2017 1:03 am by Carolyn4

    Hi everyone,

    I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

    Comments: 1

    Partial Vestibulectomy

    Mon Jul 31, 2017 6:44 pm by JGD13

    Hi all i am new here.
    I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
    After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

    Comments: 6


    Pelvic ultrasounds

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    Pelvic ultrasounds

    Post  seagirl88 on Wed Mar 16, 2011 8:05 pm

    I know we've all experienced how absolutely excruciating having a pelvic exam can be, but I was wondering if any of you ladies have ever had a transvaginal pelvic ultrasound? I'm going to get one soon and I want to know if I should expect it to be much more painful than an internal exam (which is already the most painful thing EVER so I'm not sure how it could get any worse Shocked) I'm terrified, but my doc wants to get a look at my reproductive organs since I'm not getting my period anymore.

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    Re: Pelvic ultrasounds

    Post  Mouse on Wed Mar 16, 2011 10:04 pm

    Hey there,

    I had an ovary scan last year I'm not sure if that's the same thing. I had to drink lots of water and the initial part was on my tummy the same as they do on pregnant woman. Then I was allowed to pee - thank God!!! The rest was no more invasive than a smear so of a similar size and I was allowed to insert that myself. I have generalised so have no trouble with insertion.

    Take some rescue remedy before you go or maybe get drunk affraid Kidding about that one of course! I found this clip on youtube which shows how it works. If you need insertion it looks like the head is fairly small only about half an inch. Can you tolerate that?

    I know someone with V who also has no periods. She's just turned 30 so hoping to crank that up to eventually be able to have a baby. Not sure how the sex part will happen but we're all doing baby steps I suppose.

    I hope this helps Smile

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    Re: Pelvic ultrasounds

    Post  Aussie on Thu Mar 17, 2011 3:35 am

    I had one at the start of all this to rule out anything serious (I think I would rather have something serious that they can treat anyway)

    but it really wasn't all that bad. I just told the nurse dong it about my sensitivity and she let me put it in myself there was heaps of lube on it. If your allergic to latex ask them to use a non latex glove i find it helps. Put it in yourself, the best way to relax the muscles I find is to push the thing your inserting away, do you understand what I am saying? bear down kind of - and as your doing that push it in slowly. They can use anesthetic gell too.

    I am sure you will be fine. Breathe through your tummy not your chest for about 6 breaths before, that will help relax also.

    Good luck Smile

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    Re: Pelvic ultrasounds

    Post  seagirl88 on Thu Mar 17, 2011 5:17 am

    Thanks for the replies guys. I'm glad that they have an anesthetic gel-- hopefully that helps.

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    Re: Pelvic ultrasounds

    Post  Sebby (Admin) on Thu Mar 17, 2011 7:51 pm


    Asked the question on the fb group (linked to forum) and I got several responses...

    One member said that she found it helpful to be allowed to insert the instrument herself - maybe something you could ask
    Another didnt like it and found it difficult but got through it
    another said it was ok and not at all bad and just made sure the lady doing it knew about the V
    and another said it was better and easier than a smear

    Overall the majority were more positive accounts! Smile

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    Re: Pelvic ultrasounds

    Post  Mouse on Fri Mar 18, 2011 12:44 am

    Bloody hell I forgot to put the link up. I hope this helps.

    http://www.youtube.com/watch?v=Rdt6De4_2h4

    V.

    hmmmm I also realised that I've been signing myself as V. for years and that's the same abbreviation I use for this bullshit. I'm getting a new name!

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    Re: Pelvic ultrasounds

    Post  seagirl88 on Fri Mar 18, 2011 5:00 am

    Thanks Sebby for forwarding those responses to me, and thanks Mouse (or "V" Wink ) for the YouTube link. The picture of the ultrasound microphone thing looks terrifying though! We'll see how it goes...

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    Just got back

    Post  seagirl88 on Mon Mar 28, 2011 9:57 pm

    Well, I just got back from my ultrasound. The initial insertion of the wand was literally the most painful thing I have ever experienced. I think that even if I got shot the pain wouldn't compare to the pain I feel with my vulvodynia. I'm sure all of the results will come back normal, too. WHY WHY WHY do we have such horrific, unexplainable pain? It's getting harder to pretend to be happy and lead a normal life. I'm feeling pretty hopeless right now.

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    Re: Pelvic ultrasounds

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