Vulvodynia Support
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» Hope to all my suffering ladies
New here, been suffering for 9 months  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
New here, been suffering for 9 months  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
New here, been suffering for 9 months  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
New here, been suffering for 9 months  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
New here, been suffering for 9 months  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
New here, been suffering for 9 months  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
New here, been suffering for 9 months  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
New here, been suffering for 9 months  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
New here, been suffering for 9 months  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


New here, been suffering for 9 months

5 posters

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New here, been suffering for 9 months  Empty New here, been suffering for 9 months

Post  Aussie Tue Mar 15, 2011 4:44 am

Hello everyone,

looking for some advice but also want to share some success I have had recently. I will start with my story (in brief)

It all started 9 months ago following a series of yeast and bladder infections. I first found It hurt to insert a tampon and I figured it must be because my vagina is so red and sore from the yeast. I was treated each time I got an infection and it would go away for a few weeks then come back. After a month or so of this the redness and itching went down and I was just left with this pain…burning at attempted entry and aching in my vulva I couldn’t and still cant wear pants, tights are ok if I have them on for a short period, sitting is terribly painful. I eventually after being told it was in my head went to see a hypnotherapist who had treated me for depression – I thought, if anyone can fix this she can. No result. I knew if she couldn’t not help me then it was not psychosomatic.

I bounced from gyno to gyno for the next few months all of whom told me it was yeast or a nerve problem one told me I had HPV despite the excruciatingly painful smear test coming back normal and all tests under the sun negative. Its like they wanted it to be something they knew how to treat, I asked on several occasions about V. and they all said it was not possible, that these women have this condition for years…. I changed soap perfume etc etc….(you all know the drill) to no avail. I also developed bladder and clitoral pain, anal pain, fissures and hemorrhoids – was beginning to think I was cursed! Sex was excruciating and every time my husband and I tried it just ended in tears. Eventually I found a new GP a wonderful American man who sat patiently and listened while I cried my heart out in his office explaining what I had been though so far, and told me he would stick with me no matter what. He put me on amytriptelene 20mg for the burning pain that had spread to my hands and feet. This is now controlled extremely well but it has done nothing for the burning in the vulva. ( I wonder why it all started in the first place, starting to think the pain has seeped into my Central Nervous System) Out of pure curiosity I typed in to my internet browser www.vulvodynia.com.au and sure enough it came up with a website offering help.

I made my first appointment with Marek Jantos back in October, his method uses dilators and biofeedback, massage, relaxation etc…my progress was very very slow. I have a gyno now that understands and treats this condition – she asked me if I needed any information, I said “Believe me, I know more than the doctors…” I think it is appalling that we have to self treat and self help and the majority of doctors are in denial about this condition.

As of a few weeks ago I have just came back from an intensive therapy session in South Australia. 4 days of 2 hours a day – internal and external massage and trigger point work. By the 4th day I was 75 percent better. Sitting was still horrible and I could not wear jeans but I was getting somewhere. The hemorrhoids and fissures were holding me back though. It all makes sense now, the muscle tension, no wonder I cant poo properly my whole pelvic floor is knotted and tight…I can even feel the knots doing the trigger point work myself.
I feel I am finally on the way to something good. My pain has gone up about 20 percent since coming back from Adalaide but I think that is because I am not getting treatment every day ( I was actually walking around almost pain free I was extatic) The amytriptalene has reduced my bladder and clitoral pain, I noticed a difference within a few weeks. My wonderful GP has given me a cream to relax my anal sphincter so I can poo without pain or blood – so hopefully the fissure will heal within a few weeks. Best of all sex is feeling almost normal again (as long as we use the dilator first and I am turned on enough, plenty of lube (Sylk) etc.

I would like to share some advice that has helped me, for if you are suffering with pain with sex:

Relax with a warm bath (only on “no burn” days if you have them) no bubbles!
Practice with diolators. Internal and external massage the tight muscles glutes, inner thighs, tummy, back etc
Heaps of forplay not touching vulva (kissing etc)
I find it helpful to use a small vibrator on the lowest setting first – it seems to massage the pain away.

Also read Amy Steins book – Heal Pelvic Pain, the forword on this book is by Dr Goldstein, I heard he is pretty good in America?

I am looking for any advice on the following:

Reducing the pain with sitting – my specialist still can’t work out why this is a problem.
Reducing urine frequency – bladder training doesn’t seem to do the trick
Any ideas on pregnancy – c section or normal delivery?

What does everyone think about Dr Goldstein’s theory about v. only being a symptom ie (yes you have pain in the vulva but we don’t know why) rather than a condition in itself? Could this be why I have only progressed so far with PT could there be other contributing factors, contraceptive pill, nerve endings etc

Sorry for the long post, any advice greatly appreciated and if anyone wants more info on the therapy I am undertaking please ask.

Claire

Aussie

Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia

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Post  Sarah001 Tue Mar 15, 2011 12:52 pm

Hi and welcome to the forum. I can't believe someone else has finally posted about the burning elsewhere, mine is also in my feet and I find foot massage helps both areas. I'm so glad (not that you've got it) that someone else has mentioned this, I've been feeling like a bit of a freak because of my feet! And your massage proves it's pelvic floor problems, and the muscles around the pelvis too, which is what mine is I'm sure. The piles (can't spell hem, hemo oh you know!) and fissures also support the pelvic floor theory too. When the pelvic floor gets really tight it can lead to outlet constipation which means your body makes stools fine but can't relax to pass them. Can I suggest magnesium to you, get magnesium oxide and take 500mg to 1000mg a day depending on how much you need and it really softens stools which will help let the fissures heal. Also a dab of vaseline will make the skin more elastic. I have seen posts about wheatgrass cream for fissures but as I don't have any I don't know if it works or not.

Marek Jantos is suppsed to be really good, I've seen sites about him too. And I've got Amy Stein's Heal Pelvic Pain which makes sense and I also bought Ending Female Pain by Isa Herrera which is similar.

It's fantastic you were almost painfree after massage, it proves you can get better and it also confirms for me that my hypermobile SI joints that my physio has said are the source of this really can be. Are you doing the massage at home now? I use a foam roller and tennis balls on my external knots (got them everywhere) and press into the internal ones either with my fingers or a dilator. I have some very, very sore tight muscles just inside the vaginal opening which are proving difficult to release. One thing to bear in mind is the muscles get tight and knotty because they are being overworked, that means releasing them takes away the function they were providing so you need to replace them with the correct muscles. I'd guess you have a weak local system (transversus abs, multifidus and pelvic floor) like I do and the external muscles are trying to stabilise in place of those. Releasing them will only become permanent if they no longer have to hang on for dear life!

When you say pain with sitting, where is the pain? I have problems sitting mainly due to my pelvic joints and the areas they affect. Urinary urgency should decrease as the pelvic floor normalises, if it's tight and weak it should ease once it's strong and flexible. I used to have urninary urgency but it's not so much of a problem now, if you get an overwhelming urge to pee my physio's advice was tighten the pelvic floor until the feeling passes then make your way to the loo.

The delivery question I can't answer really as I don't have kids but alot of women feel better after a vaginal delivery because it stretches the muscles out.

As for the theory of vulvodynia only being a description of symptoms I totally agree with Andrew Goldstein and so does my GP! It doesn't tell us what's the cause of it and how to treat it, it's just like the way doctors lump all back problems that aren't disc related into headings like "pseudo sciatica" which isn't a diagnosis at all!

I'm so pleased you've joined the forum as you sound so similar to me with all your knots in and around the pelvis and I really do think you can beat this.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Post  noni Tue Mar 15, 2011 2:06 pm

Hey there,

I also want to thank you for mentioning that your hands and feet burn...I have noticed that sometimes my hands appear to look scalded....without explanation!!!

Welcome to the forum!

Noni
noni
noni

Posts : 242
Join date : 2011-01-10
Age : 36
Location : Ontario

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Post  Aussie Wed Mar 16, 2011 4:07 am

Sarah,

Thank God someone else feet burn- Shoes are a nightmare sometimes - at least I live in a hot place and can get away with wearing sandles / strappy heals for work to let my feet breath a little. If you are not on Endep / Elavail (sorry, spelling) already It has really helped that bit for me, I would recommend it if you really cant stand the burning feet.

I forgot to mention I do take magnesium oxide and use Epsom salts (also magnesium) in the bath. I do do the massage at home now, but not as often as I should - I feel like my entire life has been taken over by managing my condition i want to leave time for me... I simply couldn't fit in all of Amy Steins stretches into my day with a full time job. Yoga is fantastic though - has literally cured my back pain, eases the mind and alot of the poses relax the pelvic floor.
I have noticed my hips have really started loosing up too, which can only be a good thing.

Could you please explain the following?

"One thing to bear in mind is the muscles get tight and knotty because they are being overworked, that means releasing them takes away the function they were providing so you need to replace them with the correct muscles. I'd guess you have a weak local system (transversus abs, multifidus and pelvic floor) like I do and the external muscles are trying to stabilise in place of those. Releasing them will only become permanent if they no longer have to hang on for dear life!"

I am not sure what you mean by that. Do you mean i have week abs so need to streghten them while not tensing my pelvic floor? I kite surf this does alot for the abs, they are pretty good actually but I find it hard not to tense pelvic floor when doing a situp etc, try to avoid them. I am lucky I have a naturally slim figure so not working out isn't so bad. (allot of us v suffers seem to have small frames?)

Where abouts are you in the world? I would like to see your physio if they understand this. Anyone I have seen doesn't have a clue. Seems we may be behind here in Aus. With the tightening of pelvic floor so as not to pee, I am a bit scared of that. According to Amy Steins book unless my pain goes down by 50% or more I am not ready to start strengthening yet?

The pain when sitting is right on my vulva (labia i suppose) it feels like I have been sat on my foot too long or my arms fallen asleep - but down there, not numb though, that dull tingling feeling you get. Or sometimes its just plain raw, then I stand up and the feeling goes off a bit. A special cushion would be embarrassing I work as a receptionist, I don’t want the clients seeing that. I can’t believe more of us don’t suffer with the sitting so much. Even Marek cant work out why it is still such a problem.

I totally get what your saying about doctors lumping diagnosis’s together. It's like they want to sound like they know what they are talking about by inventing words when really we would rather they just say "I am sorry I don't know".

I would like to talk on email if you want to. What is your email address?

Noni – my hands don’t change appearance but its interesting to know another person also suffers from the burning there, Marek thinks its muscular, my osteopath thinks it’s the central nervous system playing up. Either way it’s not nice. I hope you are having a “good pain day” such a sad situation hey, I was a perfectly happy healthy 22 year old as of 9 months ago. I miss my life.

Aussie

Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia

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Post  Mouse Wed Mar 16, 2011 7:37 am

Hi there and welcome, I'm at the bottom of the world as well.

I'm really pleased you are making such great progress!

If you need a cushion you should get one! You can always say it's for lower back or pelvic pain. That would shut most people up.

I used to get twitching, my GP said that was the body's reaction to pain ie being on full alert flight or fight reflex.

My V started after surgery. It's my belief that the intrusion triggered a nerve pain ie the pudendal nerve, this in turn caused the pelvic floor muscles to react to the pain by tightening up and doing an unhappy dance. I had trouble sitting for about the first six months, I don't any longer but then I sit back onto my tailbone now and that has triggered my sciatic nerve ggrrr!!! In fact one night last week I had pain in my ovaries (mid cycle is becoming a chore), pain in my stomach (gluten), pain in my hooha and sciatic pain down the back of my leg yaaaayyyy!!! In saying that my pain has reduced significantly since I started physio and cut sugar out of my diet. I already do a GF diet.

Maybe have a look at your diet in the short term, sugar is acidic and yeast is bad for most things.

Sebby had a video consult with Howard Glazer a couple of weeks ago, look that discussion up it's really interesting!

I hope you continue making such good progress. Oww we are on FB as well, it's completely private and doesn't post to your wall phewwww!!! Email Sebby if you would like to join and she will add you.

Cheers Vicki

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

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Post  Sarah001 Wed Mar 16, 2011 10:21 am

Hi again Claire,
What I mean about the muscles is if your local system gets weak the muscles of the global system tense up in an attempt to take over. It's not the job of those muscles really to do the work of the local system and as they also have to mobilise arms and legs etc they get overworked and full of knots. To correct it you have to establish what muscles are weak and need strengthening, it's usually quite predictable and the local system is the first to look at as it stabilises the pelvis and spine. Pelvic floors frequently get tight if the Transversus Abs and Multifidus aren't working enough/early enough/at all. Sit ups are a big no with pelvic floor dysfunction so avoid doing them and they also target mostly the Rectus Abs which tend to be more dominant that the more important Transversus Abs anyway. The thing to remember is muscles don't spasm for no reason, either the person is subconsciously tensing them all the time or they're picking up the slack for something that isn't working.

I already take 50mg of Ami along with Pregabalin too but it doesn't help my feet much. I get burning that feels mostly like it's in the balls of my feet but sometimes in the arches as well. I think Amy Stein touches on it in her book and says alot of her patients report foot pain etc has gone once they sort out the pelvic floor so whether it's a nerve being irritated by the PF or muscular hopefully it should go. I'm in the UK which answers the question about where my physio is from! Also it means sandals aren't a possibility for me right now!

I try to do a fair amount of "navel to spine" contractions and try my best not to tense the pelvic floor while I do it, it takes some doing but it's under "tight abs" in Heal Pelvic Pain. That's the type of exercise you need for the Transversus Abs, not sit ups! Learning not to tense the pelvic floor through daily life is important too, I find my brain goes for the pelvic floor when it should be hitting the Transversus Abs and frequently have to stop what I'm doing and consciously switch the contraction from one to the other.

I think we all have sitting trouble going on the posts I've seen, I don't use a cushion as the only type suitable is really the doughnut cushion and that would put too much stress on my SI joints so I'm like you and just have to grin and bear it! I'm surprised your therapists are puzzled by the sitting, after all we ladies do sit on the area that's painful so it's going to hurt. No mystery there. Also we put pressure on the pelvic floor when we sit too so that's another reason.

I was trying to follow Amy Stein's advice of getting my pain down by 50% before doing any strengthening but it just wasn't working for me, it will work for some people but for me and my hypermobility problems I couldn't get the tension out without losing control of the pelvis which immediately brought the tension right back. I'm now following the advice of my physio and doing bits of strengthening where I need it and I've joined Sebby on the Glazer Protocol to see if strengthening the pelvic floor will help it relax in my case. Some therapists believe it should be massaged and relaxed first and others believe strengthening it will let it relax naturally. Kind of depends what else you have going on I think. I find the pelvic floor tensing to stop urgency works brilliantly and then I let it relax again before going to the loo. The reason that advice is given is if the urgency is allowed to go unchecked it can progress into urge incontinence as the woman attempts to make it to a bathroom and stop peeing at the same time. Using that method has pretty much stopped the urgency I had going on, I only get it now if I've got a really, really full bladder.

When you're exercising it's a good idea to use navel to spine contractions to help stabilise the pelvis and spine, it should also help balance up the local system too. My physio is just a Women's Health one but has seen a number of women with V over the decades she's been practising, she has so far always found them all to have pelvic floor spasm or pelvic floor weakness and laxity (either can cause V apparently).

Anyway that's a bit of a long post there so I'll stop rambling!

Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Post  Sebby (Admin) Wed Mar 16, 2011 9:54 pm


Welcome to the forum and im glad your PT treatment is working!

Im currently doing biofeedback home traning.

As for the sitting thing that was what I was wondering today. I am going to get myself a foam doughnut cushion. Gonna have a look online as it takes the pressure off the vulvar. I dont think it will be possible to sit normally unless the pain greatly reduced

I haven't got the heal pelvic pain book, im wondering if its the same as the ending female pain book? I will google it. I think I recently got confused and thought they were the same book? I blame the pregabalin for my brain! Shocked

Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

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Post  Aussie Thu Mar 17, 2011 2:09 am

Sarah,
Do you think it would be worth seeing if I can find a womens health physio? Perhaps I am doing the wrong teqnique. Perhaps it's nerves? I don't know. I dont even know how I got into this mess. I am in terrible pain today. Drank last night, had wonderful pain free sex with my husband. Perhaps I was a enjoying a little too much because I am suffering today. Sad

Aussie

Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia

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Post  Aussie Thu Mar 17, 2011 2:14 am

Mouse,

What type of physio are you using, and what teqniques are they using? Sarah is making me question if I have the rong teqnique for me as I have only progressed so far I don't touch acid or sugar anyway. Apart from the wine last night...silly girl. Hope your pain is not too bad today. Today is a struggle for me. Want to burst into tears. I cried last night alot.

What are the doctors like in NZ? I havn't found many good ones here.

Aussie

Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia

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Post  Aussie Thu Mar 17, 2011 3:30 am

I think there are a few female pain books. Sarah mentioned another good one that is simalar to Amy Steins in this thread but I can't remember the name off the top of my head.

how long have you been sufferning for? My brain is tired from all the researching, worrying and thinking.

Aussie

Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia

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Post  Sebby (Admin) Thu Mar 17, 2011 7:40 pm


I have had full blown constant pain for over 2 years now..prob nearly 2 and a half now! Im losing track of time. But I have had VVS since I was a teenager and first tried to insert a tampon. Penetration has always been painful and has effected my relationships. I can't even imagine years of pain free sex!
Sebby (Admin)
Sebby (Admin)
Admin

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Join date : 2009-12-03
Age : 43
Location : London UK

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Post  noni Fri Mar 18, 2011 12:52 am

Hey there ladies,

I really enjoyed the beautiful day/weather in my city today....had a nice walk after work. Anyways...oh right vulvodynia *cringes*.....

...I suspect that some of us (not everyone, i know that vulvodynia strikes us differently) initially had an inflammatory response in the vulvar area that eventually caused some pelvic floor muscle weakness and spasms...which could have compressed the pudendal nerve causing further pain and irritation.

Anyways...just throwing that out there! My pain was initially the vulva and then one night I felt the pain creep to the perineum and rectal area. My pain somedays feels like hemrhoids plus vulvodynia...grrr WHY?????


take care all.
noni
noni

Posts : 242
Join date : 2011-01-10
Age : 36
Location : Ontario

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Post  Mouse Fri Mar 18, 2011 1:34 am

Hi Claire,

I'm having trigger point physio. I can't release my pelvic floor. Well I think I have but the lady with her hand up there begs to differ. So I've been working on that. I've found also that I tense up my whole body now. Like everything wants to get in on the action. I haven't had physio for a few weeks now because she is away. It's a real bugger because I just want to get on with it.

Since I aggravated my sciatic nerve she also works on that. Acupuncture on the ass is not much fun. I'm supposed to do squats to relieve that but for the life of me never remember. I'm much better with my pelvic floor exercises.

I found a fabulous vulval pain specialist quite by accident through the vulval clinic at National Womens in Auckland (I live 4 hours drive away). I've only seen her once, she diagnosed me and reassured me I wasn't crazy phewwww! I don't feel the need to go back. I just email her with my progress and any questions. She recommended Ami then Gabapenten and biofeedback. I didn't get on very well with the drugs so I'm committed to becoming healthy on my own. Trying to get my brain to think happy thoughts works most of the time. Meditation, sitting in the sun, becoming more social, eating and sleeping well, destressing and therapy are my goals. Hmmm also on the list is walking my dog on the beach, I'm not so great at following that one through.

As mentioned in Sarah's consult being affectionate and finding ways to have "outercourse" with your hubby are beneficial. I posted an article about that a few weeks back. Dr Glazers view is to keep blood flowing to the area. Being well stimulated also. You don't have to have penetrative sex to have a good time. In fact physiologically women are designed to enjoy sex without penetration. Oh and if you want to follow his protocol start doing some DIY!!! That's a good way to bring sexy back. Naomi and I call it wanking although we're quite immature. The grown up word is pretty hideous affraid

When you have pain after sex can you pinpoint why that is? Not enough lube? Those bloody muscles having the last say? Or does the lube burn? I've been trying some different ones. I can't use KY and have just kicked coconut oil to the kerb. I bought some almond oil this week.

I hope you are having a happier day today. I've figured out .... grrrr that my moody blues are mid cycle. In fact last month I sent an SOS to my therapist, this month I figured out the reason before I started whining to her Smile Do you keep a diary? You may find your sad times are working around your cycle. Sebby mentioned an online pain diary. I have one in PDF form I got from the Secret Suffering website, let me know if you would like it. My therapist suggested I do it so we had something to gauge any progress by. It details food, alcohol, medication, sleep, sexual activity and pain fluctuations so a very handy tool.

Have you googled for a womens physio? What does your gyny say about that? Some of the other girls from Oz have mentioned really good vulval clinics and I think someone also said there was an initial group meeting. It would be cool having a support network in real time also.

Take care
Vicki

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

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Post  Mouse Fri Mar 18, 2011 1:37 am

Hey Noni,

I'm glad you are enjoying some sun. It's a lovely day here as well.

I think it's the pudendal nerve that started this which is why stress can aggravate it. So the nerve kicks off for whatever reason and the pelvic floor reacts to protect it. Bastard!

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

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New here, been suffering for 9 months  Empty Hey Viki

Post  Aussie Fri Mar 18, 2011 6:07 am

Thankyou for your reply.

I posted in the support and advice section about my appointment with a womens physio today. She was fantastic. I am not going to type it all out again so just read it on there. I tense up my whole body also the tension seems to have spread from my vagina through to the rest of my vulva and up and down my body. I will be trying Lyrica instead of the Endep soon once I can get into see my doc.

I do use a vibrator as of recently. I find using on very low setting relaxes pelvic floor. I use before sex also to 'warm me up' because I associate Jon with pain now, I dont realy like him touching me with his hands much down there and he is a little freaked out about it also, because he has to do my trigger point work - not pleasant Sad poor guy, this all started 2 months into our marriage. Perfectly pain free prior I don't think he knows what has hit him. So supportive though I am thankful for that.

The guy I am seing in Brisbane is following pretty close to glazers protocol he has done training with him in NY, think they are friends or something. If you wanted I guess Australia is closer. perhaps he would be worth talking to?

Could you please give me the pdf for the pain diary I can pm you my email? The burning after sex seems to be skin irritation. I use sylk only and no latex.

I like your :get better: Plan, it is similar to mine, lots of happy hormones etc

Have a great weekend ( my spelling is terrible in this no time to spell check getting to nock off work early!)

Claire

Aussie

Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia

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