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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


saw a women's health physio today - shes damn good

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saw a women's health physio today - shes damn good

Post  Aussie on Fri Mar 18, 2011 5:43 am

I was very impressed. I had been seeing a specialist down in Brisbane of my own accord not because of a referral - all my stupid doctors up until then believed vulvodynia did not exsist.

Anyway just wanted to share her opinion on what is going on in the hope it may help some of you who's practitioners may not be as forward thinking?

She insists that one treatment alonewont work because the other factors trigger it off. She suggested changing from Endep to Lyrica as there are fewer side effects on the higher doses. She picked up on every single trigger point through my hips glutes tummy inner thighs that the guy in Brisbane did, before I saw her I quizzed the hell out of her over the phone, she was spot on, she knows more than me, which surprised me alot! She thinks my right hip is contributing significantly to my problem I have my hip taped at the moment; she also did dry needling on it. best of all this women is 10 minutes from work as opposed to an hour and a half away once a month. Her advise is as follows:

Keep doing the yoga and stretching out the hip flexors and rotators soas muscles etc

Keep on with the internal massage and stretching but do only half the strength I would usually use and for half the time twice a day then work up to more (dilators seem to cause a warm sensation like I am using one of those warming lubricants so she said for now just use my thumb, my muscles are not too tight just have heaps of trigger points)

Use paw paw or another barrier cream to protect from even the irritation from my knickers

Consider TENS in addition to this to tackle the nerves from a different angle again

Lyrica not Endep ( I hve been on endep for about 3 months with little improvment)

I could always consider the possibility of botox down in Sydney she said this would allow the muscle to be frozen so I can continue to stretch and relax it and it doesn’t tense in response, because it can’t ( I don’t really like the sound of this) the idea is it holds for 3-6 months by which time you have relaxed it enough to normalize then when botox wears off continue with stretches to keep it soft. But it is worth thinking about.

I am full of hopefulness again. She is going to talk to my gp about changing my medication and work with the guy in Brisbane to maximize the effectiveness of therapy. Could this be it?! I hope and hope and hope and hope. I will let you know how I get on over the next few weeks.

have a great weekend everyone, hope the pain is not too bad. Thinking of you all.

Claire

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Age : 28
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Re: saw a women's health physio today - shes damn good

Post  [Sara] on Fri Mar 18, 2011 10:05 pm

Glad things are looking up for you! Very Happy

There has to be a connection between hip/pelvic joints and vulvodynia/pelvic floor dysfunction. I get the worst pain in my sacrum, which makes it really difficult to get comfortable even when I try to go to sleep. What is dry needling and what all did she do? Sounds scary!

My p.t. does the taping method on me sometimes, too. The bad thing is that I am allergic to most adhesives and have to take the tape off after a few hours of tolerating the itch (and she wants me to leave it on till I see her the following week).

I have read about a lot of you ladies on antidepressants, I have tried twice and my body just does not mix well with those chemicals. I would rather deal with pain than become a suicidal, emotionless robot (that's what they make me feel like). Aren't they supposed to do the OPPOSITE of that? LOL! I keep thinking there has to be something else other than an ice pack and muscle relaxers to help deal with the pain, I can't really leave my house when I take muscle relaxers since they make me so drowsy.

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Re: saw a women's health physio today - shes damn good

Post  Sarah001 on Sat Mar 19, 2011 12:49 pm

There's a huge connection between the hips and pelvic joints, alot of the muscles affected by problems in those areas are very close to nerves that supply the vulva and of course the pelvic floor attaches to the pelvic bones so any problem with the pelvis is going to affect the pelvic floor. Dry needling is where they use needles directly into trigger points rather than the acupuncture meridian areas. The whole SI joint/back/hip connection is why I regularly drone on about getting the pelvis checked.
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