Vulvodynia Support
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» Hope to all my suffering ladies
saw a women's health physio today - shes damn good EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
saw a women's health physio today - shes damn good EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
saw a women's health physio today - shes damn good EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
saw a women's health physio today - shes damn good EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
saw a women's health physio today - shes damn good EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
saw a women's health physio today - shes damn good EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
saw a women's health physio today - shes damn good EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
saw a women's health physio today - shes damn good EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
saw a women's health physio today - shes damn good EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


saw a women's health physio today - shes damn good

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Post  Aussie Fri Mar 18, 2011 5:43 am

I was very impressed. I had been seeing a specialist down in Brisbane of my own accord not because of a referral - all my stupid doctors up until then believed vulvodynia did not exsist.

Anyway just wanted to share her opinion on what is going on in the hope it may help some of you who's practitioners may not be as forward thinking?

She insists that one treatment alonewont work because the other factors trigger it off. She suggested changing from Endep to Lyrica as there are fewer side effects on the higher doses. She picked up on every single trigger point through my hips glutes tummy inner thighs that the guy in Brisbane did, before I saw her I quizzed the hell out of her over the phone, she was spot on, she knows more than me, which surprised me alot! She thinks my right hip is contributing significantly to my problem I have my hip taped at the moment; she also did dry needling on it. best of all this women is 10 minutes from work as opposed to an hour and a half away once a month. Her advise is as follows:

Keep doing the yoga and stretching out the hip flexors and rotators soas muscles etc

Keep on with the internal massage and stretching but do only half the strength I would usually use and for half the time twice a day then work up to more (dilators seem to cause a warm sensation like I am using one of those warming lubricants so she said for now just use my thumb, my muscles are not too tight just have heaps of trigger points)

Use paw paw or another barrier cream to protect from even the irritation from my knickers

Consider TENS in addition to this to tackle the nerves from a different angle again

Lyrica not Endep ( I hve been on endep for about 3 months with little improvment)

I could always consider the possibility of botox down in Sydney she said this would allow the muscle to be frozen so I can continue to stretch and relax it and it doesn’t tense in response, because it can’t ( I don’t really like the sound of this) the idea is it holds for 3-6 months by which time you have relaxed it enough to normalize then when botox wears off continue with stretches to keep it soft. But it is worth thinking about.

I am full of hopefulness again. She is going to talk to my gp about changing my medication and work with the guy in Brisbane to maximize the effectiveness of therapy. Could this be it?! I hope and hope and hope and hope. I will let you know how I get on over the next few weeks.

have a great weekend everyone, hope the pain is not too bad. Thinking of you all.

Claire

Aussie

Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia

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Post  [Sara] Fri Mar 18, 2011 10:05 pm

Glad things are looking up for you! Very Happy

There has to be a connection between hip/pelvic joints and vulvodynia/pelvic floor dysfunction. I get the worst pain in my sacrum, which makes it really difficult to get comfortable even when I try to go to sleep. What is dry needling and what all did she do? Sounds scary!

My p.t. does the taping method on me sometimes, too. The bad thing is that I am allergic to most adhesives and have to take the tape off after a few hours of tolerating the itch (and she wants me to leave it on till I see her the following week).

I have read about a lot of you ladies on antidepressants, I have tried twice and my body just does not mix well with those chemicals. I would rather deal with pain than become a suicidal, emotionless robot (that's what they make me feel like). Aren't they supposed to do the OPPOSITE of that? LOL! I keep thinking there has to be something else other than an ice pack and muscle relaxers to help deal with the pain, I can't really leave my house when I take muscle relaxers since they make me so drowsy.

[Sara]

Posts : 26
Join date : 2011-01-01

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Post  Sarah001 Sat Mar 19, 2011 12:49 pm

There's a huge connection between the hips and pelvic joints, alot of the muscles affected by problems in those areas are very close to nerves that supply the vulva and of course the pelvic floor attaches to the pelvic bones so any problem with the pelvis is going to affect the pelvic floor. Dry needling is where they use needles directly into trigger points rather than the acupuncture meridian areas. The whole SI joint/back/hip connection is why I regularly drone on about getting the pelvis checked.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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