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» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


saw a women's health physio today - shes damn good

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saw a women's health physio today - shes damn good

Post  Aussie on Fri Mar 18, 2011 5:43 am

I was very impressed. I had been seeing a specialist down in Brisbane of my own accord not because of a referral - all my stupid doctors up until then believed vulvodynia did not exsist.

Anyway just wanted to share her opinion on what is going on in the hope it may help some of you who's practitioners may not be as forward thinking?

She insists that one treatment alonewont work because the other factors trigger it off. She suggested changing from Endep to Lyrica as there are fewer side effects on the higher doses. She picked up on every single trigger point through my hips glutes tummy inner thighs that the guy in Brisbane did, before I saw her I quizzed the hell out of her over the phone, she was spot on, she knows more than me, which surprised me alot! She thinks my right hip is contributing significantly to my problem I have my hip taped at the moment; she also did dry needling on it. best of all this women is 10 minutes from work as opposed to an hour and a half away once a month. Her advise is as follows:

Keep doing the yoga and stretching out the hip flexors and rotators soas muscles etc

Keep on with the internal massage and stretching but do only half the strength I would usually use and for half the time twice a day then work up to more (dilators seem to cause a warm sensation like I am using one of those warming lubricants so she said for now just use my thumb, my muscles are not too tight just have heaps of trigger points)

Use paw paw or another barrier cream to protect from even the irritation from my knickers

Consider TENS in addition to this to tackle the nerves from a different angle again

Lyrica not Endep ( I hve been on endep for about 3 months with little improvment)

I could always consider the possibility of botox down in Sydney she said this would allow the muscle to be frozen so I can continue to stretch and relax it and it doesn’t tense in response, because it can’t ( I don’t really like the sound of this) the idea is it holds for 3-6 months by which time you have relaxed it enough to normalize then when botox wears off continue with stretches to keep it soft. But it is worth thinking about.

I am full of hopefulness again. She is going to talk to my gp about changing my medication and work with the guy in Brisbane to maximize the effectiveness of therapy. Could this be it?! I hope and hope and hope and hope. I will let you know how I get on over the next few weeks.

have a great weekend everyone, hope the pain is not too bad. Thinking of you all.

Claire

Aussie

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Re: saw a women's health physio today - shes damn good

Post  [Sara] on Fri Mar 18, 2011 10:05 pm

Glad things are looking up for you! Very Happy

There has to be a connection between hip/pelvic joints and vulvodynia/pelvic floor dysfunction. I get the worst pain in my sacrum, which makes it really difficult to get comfortable even when I try to go to sleep. What is dry needling and what all did she do? Sounds scary!

My p.t. does the taping method on me sometimes, too. The bad thing is that I am allergic to most adhesives and have to take the tape off after a few hours of tolerating the itch (and she wants me to leave it on till I see her the following week).

I have read about a lot of you ladies on antidepressants, I have tried twice and my body just does not mix well with those chemicals. I would rather deal with pain than become a suicidal, emotionless robot (that's what they make me feel like). Aren't they supposed to do the OPPOSITE of that? LOL! I keep thinking there has to be something else other than an ice pack and muscle relaxers to help deal with the pain, I can't really leave my house when I take muscle relaxers since they make me so drowsy.

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Re: saw a women's health physio today - shes damn good

Post  Sarah001 on Sat Mar 19, 2011 12:49 pm

There's a huge connection between the hips and pelvic joints, alot of the muscles affected by problems in those areas are very close to nerves that supply the vulva and of course the pelvic floor attaches to the pelvic bones so any problem with the pelvis is going to affect the pelvic floor. Dry needling is where they use needles directly into trigger points rather than the acupuncture meridian areas. The whole SI joint/back/hip connection is why I regularly drone on about getting the pelvis checked.
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