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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


saw a women's health physio today - shes damn good

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saw a women's health physio today - shes damn good

Post  Aussie on Fri Mar 18, 2011 5:43 am

I was very impressed. I had been seeing a specialist down in Brisbane of my own accord not because of a referral - all my stupid doctors up until then believed vulvodynia did not exsist.

Anyway just wanted to share her opinion on what is going on in the hope it may help some of you who's practitioners may not be as forward thinking?

She insists that one treatment alonewont work because the other factors trigger it off. She suggested changing from Endep to Lyrica as there are fewer side effects on the higher doses. She picked up on every single trigger point through my hips glutes tummy inner thighs that the guy in Brisbane did, before I saw her I quizzed the hell out of her over the phone, she was spot on, she knows more than me, which surprised me alot! She thinks my right hip is contributing significantly to my problem I have my hip taped at the moment; she also did dry needling on it. best of all this women is 10 minutes from work as opposed to an hour and a half away once a month. Her advise is as follows:

Keep doing the yoga and stretching out the hip flexors and rotators soas muscles etc

Keep on with the internal massage and stretching but do only half the strength I would usually use and for half the time twice a day then work up to more (dilators seem to cause a warm sensation like I am using one of those warming lubricants so she said for now just use my thumb, my muscles are not too tight just have heaps of trigger points)

Use paw paw or another barrier cream to protect from even the irritation from my knickers

Consider TENS in addition to this to tackle the nerves from a different angle again

Lyrica not Endep ( I hve been on endep for about 3 months with little improvment)

I could always consider the possibility of botox down in Sydney she said this would allow the muscle to be frozen so I can continue to stretch and relax it and it doesn’t tense in response, because it can’t ( I don’t really like the sound of this) the idea is it holds for 3-6 months by which time you have relaxed it enough to normalize then when botox wears off continue with stretches to keep it soft. But it is worth thinking about.

I am full of hopefulness again. She is going to talk to my gp about changing my medication and work with the guy in Brisbane to maximize the effectiveness of therapy. Could this be it?! I hope and hope and hope and hope. I will let you know how I get on over the next few weeks.

have a great weekend everyone, hope the pain is not too bad. Thinking of you all.

Claire

Aussie

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Age : 28
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Re: saw a women's health physio today - shes damn good

Post  [Sara] on Fri Mar 18, 2011 10:05 pm

Glad things are looking up for you! Very Happy

There has to be a connection between hip/pelvic joints and vulvodynia/pelvic floor dysfunction. I get the worst pain in my sacrum, which makes it really difficult to get comfortable even when I try to go to sleep. What is dry needling and what all did she do? Sounds scary!

My p.t. does the taping method on me sometimes, too. The bad thing is that I am allergic to most adhesives and have to take the tape off after a few hours of tolerating the itch (and she wants me to leave it on till I see her the following week).

I have read about a lot of you ladies on antidepressants, I have tried twice and my body just does not mix well with those chemicals. I would rather deal with pain than become a suicidal, emotionless robot (that's what they make me feel like). Aren't they supposed to do the OPPOSITE of that? LOL! I keep thinking there has to be something else other than an ice pack and muscle relaxers to help deal with the pain, I can't really leave my house when I take muscle relaxers since they make me so drowsy.

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Re: saw a women's health physio today - shes damn good

Post  Sarah001 on Sat Mar 19, 2011 12:49 pm

There's a huge connection between the hips and pelvic joints, alot of the muscles affected by problems in those areas are very close to nerves that supply the vulva and of course the pelvic floor attaches to the pelvic bones so any problem with the pelvis is going to affect the pelvic floor. Dry needling is where they use needles directly into trigger points rather than the acupuncture meridian areas. The whole SI joint/back/hip connection is why I regularly drone on about getting the pelvis checked.
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