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» Please tell me this can get better
Today at 2:10 am by anon99

» Acupuncture advice please
Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


saw a women's health physio today - shes damn good

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saw a women's health physio today - shes damn good

Post  Aussie on Fri Mar 18, 2011 5:43 am

I was very impressed. I had been seeing a specialist down in Brisbane of my own accord not because of a referral - all my stupid doctors up until then believed vulvodynia did not exsist.

Anyway just wanted to share her opinion on what is going on in the hope it may help some of you who's practitioners may not be as forward thinking?

She insists that one treatment alonewont work because the other factors trigger it off. She suggested changing from Endep to Lyrica as there are fewer side effects on the higher doses. She picked up on every single trigger point through my hips glutes tummy inner thighs that the guy in Brisbane did, before I saw her I quizzed the hell out of her over the phone, she was spot on, she knows more than me, which surprised me alot! She thinks my right hip is contributing significantly to my problem I have my hip taped at the moment; she also did dry needling on it. best of all this women is 10 minutes from work as opposed to an hour and a half away once a month. Her advise is as follows:

Keep doing the yoga and stretching out the hip flexors and rotators soas muscles etc

Keep on with the internal massage and stretching but do only half the strength I would usually use and for half the time twice a day then work up to more (dilators seem to cause a warm sensation like I am using one of those warming lubricants so she said for now just use my thumb, my muscles are not too tight just have heaps of trigger points)

Use paw paw or another barrier cream to protect from even the irritation from my knickers

Consider TENS in addition to this to tackle the nerves from a different angle again

Lyrica not Endep ( I hve been on endep for about 3 months with little improvment)

I could always consider the possibility of botox down in Sydney she said this would allow the muscle to be frozen so I can continue to stretch and relax it and it doesn’t tense in response, because it can’t ( I don’t really like the sound of this) the idea is it holds for 3-6 months by which time you have relaxed it enough to normalize then when botox wears off continue with stretches to keep it soft. But it is worth thinking about.

I am full of hopefulness again. She is going to talk to my gp about changing my medication and work with the guy in Brisbane to maximize the effectiveness of therapy. Could this be it?! I hope and hope and hope and hope. I will let you know how I get on over the next few weeks.

have a great weekend everyone, hope the pain is not too bad. Thinking of you all.

Claire

Aussie

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Re: saw a women's health physio today - shes damn good

Post  [Sara] on Fri Mar 18, 2011 10:05 pm

Glad things are looking up for you! Very Happy

There has to be a connection between hip/pelvic joints and vulvodynia/pelvic floor dysfunction. I get the worst pain in my sacrum, which makes it really difficult to get comfortable even when I try to go to sleep. What is dry needling and what all did she do? Sounds scary!

My p.t. does the taping method on me sometimes, too. The bad thing is that I am allergic to most adhesives and have to take the tape off after a few hours of tolerating the itch (and she wants me to leave it on till I see her the following week).

I have read about a lot of you ladies on antidepressants, I have tried twice and my body just does not mix well with those chemicals. I would rather deal with pain than become a suicidal, emotionless robot (that's what they make me feel like). Aren't they supposed to do the OPPOSITE of that? LOL! I keep thinking there has to be something else other than an ice pack and muscle relaxers to help deal with the pain, I can't really leave my house when I take muscle relaxers since they make me so drowsy.

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Re: saw a women's health physio today - shes damn good

Post  Sarah001 on Sat Mar 19, 2011 12:49 pm

There's a huge connection between the hips and pelvic joints, alot of the muscles affected by problems in those areas are very close to nerves that supply the vulva and of course the pelvic floor attaches to the pelvic bones so any problem with the pelvis is going to affect the pelvic floor. Dry needling is where they use needles directly into trigger points rather than the acupuncture meridian areas. The whole SI joint/back/hip connection is why I regularly drone on about getting the pelvis checked.
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