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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

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Vibrators etc

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Vibrators etc

Post  Sebby (Admin) on Sat Mar 19, 2011 9:22 pm


Well due to the fact that I was to become sexual again most of you know what my new hobby has been! 3 x a week was the advice but its only been once this week as my bloody clit/uretha area was stinging!

I have a vibrator but to be honest I think its crap so I ordered the Magic Wand. This is a massager that suddenly become known as vibrator after many women got a bit bored of using it on their necks!

Well I have to say its Massive! well I guess it would be as its a massager but bloody hell I could probably hammer someone to death with it so no problems if I get broken into in the middle of the night. Or I could stand in the middle of my street holding it up and pretend to be the statue of liberty?

I switched it on to the low setting and bloody hell again..I wont have a clit left after this! I'll be doing it through several layers of clothing!

Im too scared to use it lol even though it came with lube with the caption 'super slippy slidy fun' on it

I might give it a go this evening but if I am clit-less by the morning i'll sue the ass off Haitichi!


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Re: Vibrators etc

Post  Sarah001 on Sat Mar 19, 2011 9:25 pm

Sounds lethal! I'm the same as you and vibrators leave me sore, I get why Dr Glazer thinks we should do this but on inflamed skin it's not really ideal is it? Perhaps you should mention this to him in one of your emails. And go steady with that massive vibe!!
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Re: Vibrators etc

Post  Mouse on Sun Mar 20, 2011 12:19 am

Oh how funny!

Ok Dr Betty gets her ladies to use a cloth initially. Have you seen that. Almost like a folded face cloth. Give that a go!

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Re: Vibrators etc

Post  Sebby (Admin) on Sun Mar 20, 2011 8:36 am


Cloth with the Magic Wand or any vibrator? I think I will need a cloth!

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Re: Vibrators etc

Post  Mouse on Sun Mar 20, 2011 8:40 am

With the beast! You couldn't pack that thing for a holiday =)

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Re: Vibrators etc

Post  Aussie on Wed May 25, 2011 2:51 am

I find a vibrator really helps me. Its tiny though and I cant use it on the days my clit hurts. I can put it inside though, it seems to relax the muscles. It also helps because I get scared when my hubby touches me before sex because I tighten up and expect pain, I know where hurts and where doesnt so I use it to get turned on before sex. Explaining to him where he can and cant touch on differnt days would be horrible for him.

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Re: Vibrators etc

Post  Sebby (Admin) on Thu May 26, 2011 8:21 pm


I now just use a small one I had before..that bloody Magic Wand is far to intense for me! lol

I am so gonna have a browse in Ann Summers for a new one

I do think they are great for relaxing and find pleasure again, great idea too to use it before sex..

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Re: Vibrators etc

Post  Mouse on Fri May 27, 2011 8:01 am

Sweetheart look at the Lelo vibrators. That little baby I bought recently is fabulous! It does an amazing job! I can't control if there is pain afterwards and sometimes I get stuck in the arousal phase for a few days BUT multiple orgasms are almost worth it?

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Re: Vibrators etc

Post  Sarah001 on Sun May 29, 2011 1:28 pm

I've been trying out the vibrator advice but my tablets seem to have stolen my ability to orgasm! At first I didn't know what the problem was but after talking to a few people on another site and then a pharmacist (online of course, I didn't go into a chemist and start ranting about orgasms! Embarassed Laughing ) she told me it's likely the Ami doing it and it has that effect on alot of people. Seems my vibrator days are over. Evil or Very Mad
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Re: Vibrators etc

Post  noni on Sun May 29, 2011 2:43 pm

I have read that Ami causes low libido and "sexual dysfunction"...

... how are you ladies able to use vibrators? I would think it would just bring on more pain...maybe not initially but soreness for days afterwards ??
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Re: Vibrators etc

Post  Sarah001 on Sun May 29, 2011 6:59 pm

Sexual Dysfunction, that's a laugh isn't it?! Yes, it is the Ami I'm sure, I was ok on a low dose but the higher the dose got the harder it became to orgasm until it's impossible. Never mind, I'm not currently in a relationship and my vibes can go in the back of the drawer for now. Low libido certainly makes it easier to have orgasms stolen!! Laughing
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Re: Vibrators etc

Post  Sebby (Admin) on Mon May 30, 2011 6:17 pm


Fanx mouse will soooo look them vibrators up! Multiple orgasms you say! Very Happy

I dont experience much soreness or pain at all as long as the vibrations are not too intense...I have had it when my cilt area has got sore but that was when I first started using them again...I think it got used to it now Embarassed




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Re: Vibrators etc

Post  Mouse on Tue May 31, 2011 7:06 am

Hahhaaa apparently that's the silver lining that comes with age. I'm just having a shite time with random symptoms atm. Kind of like when this kicked off. Weird creeping, pulling pain and fairly intense these days. More stress, more coffee, no meditation + the odd bit of sugar = more pain. GGGrrrrrrr Big pain day today.

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Re: Vibrators etc

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