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» I think I've developed vulvodynia?? Please help!
Yesterday at 9:10 pm by Necromeowncer

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:38 pm by Mel T

» New w/ Secondary Provoked Vestibuldynia
Sun Oct 22, 2017 3:47 am by Birdy

» Newly diagnosed
Sat Oct 21, 2017 9:50 pm by sarisbaris

» Prednisone Injections?
Wed Oct 18, 2017 5:07 am by sarisbaris

» Has anyone had continued success with gabapentin or Botox injections?
Wed Oct 18, 2017 4:47 am by sarisbaris

» Recent "Poke" Pain - So Confused/Losing My Mind
Wed Oct 18, 2017 2:37 am by sarisbaris

» What is Vulvodynia?
Tue Oct 17, 2017 11:57 pm by Jenjen

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Mon Oct 16, 2017 2:22 am by Sagewoman

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Vibrators etc

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Vibrators etc

Post  Sebby (Admin) on Sat Mar 19, 2011 9:22 pm


Well due to the fact that I was to become sexual again most of you know what my new hobby has been! 3 x a week was the advice but its only been once this week as my bloody clit/uretha area was stinging!

I have a vibrator but to be honest I think its crap so I ordered the Magic Wand. This is a massager that suddenly become known as vibrator after many women got a bit bored of using it on their necks!

Well I have to say its Massive! well I guess it would be as its a massager but bloody hell I could probably hammer someone to death with it so no problems if I get broken into in the middle of the night. Or I could stand in the middle of my street holding it up and pretend to be the statue of liberty?

I switched it on to the low setting and bloody hell again..I wont have a clit left after this! I'll be doing it through several layers of clothing!

Im too scared to use it lol even though it came with lube with the caption 'super slippy slidy fun' on it

I might give it a go this evening but if I am clit-less by the morning i'll sue the ass off Haitichi!


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Re: Vibrators etc

Post  Sarah001 on Sat Mar 19, 2011 9:25 pm

Sounds lethal! I'm the same as you and vibrators leave me sore, I get why Dr Glazer thinks we should do this but on inflamed skin it's not really ideal is it? Perhaps you should mention this to him in one of your emails. And go steady with that massive vibe!!
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Re: Vibrators etc

Post  Mouse on Sun Mar 20, 2011 12:19 am

Oh how funny!

Ok Dr Betty gets her ladies to use a cloth initially. Have you seen that. Almost like a folded face cloth. Give that a go!

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Re: Vibrators etc

Post  Sebby (Admin) on Sun Mar 20, 2011 8:36 am


Cloth with the Magic Wand or any vibrator? I think I will need a cloth!

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Re: Vibrators etc

Post  Mouse on Sun Mar 20, 2011 8:40 am

With the beast! You couldn't pack that thing for a holiday =)

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Re: Vibrators etc

Post  Aussie on Wed May 25, 2011 2:51 am

I find a vibrator really helps me. Its tiny though and I cant use it on the days my clit hurts. I can put it inside though, it seems to relax the muscles. It also helps because I get scared when my hubby touches me before sex because I tighten up and expect pain, I know where hurts and where doesnt so I use it to get turned on before sex. Explaining to him where he can and cant touch on differnt days would be horrible for him.

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Re: Vibrators etc

Post  Sebby (Admin) on Thu May 26, 2011 8:21 pm


I now just use a small one I had before..that bloody Magic Wand is far to intense for me! lol

I am so gonna have a browse in Ann Summers for a new one

I do think they are great for relaxing and find pleasure again, great idea too to use it before sex..

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Re: Vibrators etc

Post  Mouse on Fri May 27, 2011 8:01 am

Sweetheart look at the Lelo vibrators. That little baby I bought recently is fabulous! It does an amazing job! I can't control if there is pain afterwards and sometimes I get stuck in the arousal phase for a few days BUT multiple orgasms are almost worth it?

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Re: Vibrators etc

Post  Sarah001 on Sun May 29, 2011 1:28 pm

I've been trying out the vibrator advice but my tablets seem to have stolen my ability to orgasm! At first I didn't know what the problem was but after talking to a few people on another site and then a pharmacist (online of course, I didn't go into a chemist and start ranting about orgasms! Embarassed Laughing ) she told me it's likely the Ami doing it and it has that effect on alot of people. Seems my vibrator days are over. Evil or Very Mad
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Re: Vibrators etc

Post  noni on Sun May 29, 2011 2:43 pm

I have read that Ami causes low libido and "sexual dysfunction"...

... how are you ladies able to use vibrators? I would think it would just bring on more pain...maybe not initially but soreness for days afterwards ??
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Re: Vibrators etc

Post  Sarah001 on Sun May 29, 2011 6:59 pm

Sexual Dysfunction, that's a laugh isn't it?! Yes, it is the Ami I'm sure, I was ok on a low dose but the higher the dose got the harder it became to orgasm until it's impossible. Never mind, I'm not currently in a relationship and my vibes can go in the back of the drawer for now. Low libido certainly makes it easier to have orgasms stolen!! Laughing
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Re: Vibrators etc

Post  Sebby (Admin) on Mon May 30, 2011 6:17 pm


Fanx mouse will soooo look them vibrators up! Multiple orgasms you say! Very Happy

I dont experience much soreness or pain at all as long as the vibrations are not too intense...I have had it when my cilt area has got sore but that was when I first started using them again...I think it got used to it now Embarassed




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Re: Vibrators etc

Post  Mouse on Tue May 31, 2011 7:06 am

Hahhaaa apparently that's the silver lining that comes with age. I'm just having a shite time with random symptoms atm. Kind of like when this kicked off. Weird creeping, pulling pain and fairly intense these days. More stress, more coffee, no meditation + the odd bit of sugar = more pain. GGGrrrrrrr Big pain day today.

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Re: Vibrators etc

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