Vulvodynia Support
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» Hope to all my suffering ladies
Vibrators etc EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Vibrators etc EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Vibrators etc EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Vibrators etc EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Vibrators etc EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Vibrators etc EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Vibrators etc EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Vibrators etc EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Vibrators etc EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Vibrators etc

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Post  Sebby (Admin) Sat Mar 19, 2011 9:22 pm


Well due to the fact that I was to become sexual again most of you know what my new hobby has been! 3 x a week was the advice but its only been once this week as my bloody clit/uretha area was stinging!

I have a vibrator but to be honest I think its crap so I ordered the Magic Wand. This is a massager that suddenly become known as vibrator after many women got a bit bored of using it on their necks!

Well I have to say its Massive! well I guess it would be as its a massager but bloody hell I could probably hammer someone to death with it so no problems if I get broken into in the middle of the night. Or I could stand in the middle of my street holding it up and pretend to be the statue of liberty?

I switched it on to the low setting and bloody hell again..I wont have a clit left after this! I'll be doing it through several layers of clothing!

Im too scared to use it lol even though it came with lube with the caption 'super slippy slidy fun' on it

I might give it a go this evening but if I am clit-less by the morning i'll sue the ass off Haitichi!

Sebby (Admin)
Sebby (Admin)
Admin

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Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

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Post  Sarah001 Sat Mar 19, 2011 9:25 pm

Sounds lethal! I'm the same as you and vibrators leave me sore, I get why Dr Glazer thinks we should do this but on inflamed skin it's not really ideal is it? Perhaps you should mention this to him in one of your emails. And go steady with that massive vibe!!
Sarah001
Sarah001

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Age : 50
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Post  Mouse Sun Mar 20, 2011 12:19 am

Oh how funny!

Ok Dr Betty gets her ladies to use a cloth initially. Have you seen that. Almost like a folded face cloth. Give that a go!

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

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Post  Sebby (Admin) Sun Mar 20, 2011 8:36 am


Cloth with the Magic Wand or any vibrator? I think I will need a cloth!
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
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Age : 43
Location : London UK

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Post  Mouse Sun Mar 20, 2011 8:40 am

With the beast! You couldn't pack that thing for a holiday =)

Mouse

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Location : New Zealand

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Post  Aussie Wed May 25, 2011 2:51 am

I find a vibrator really helps me. Its tiny though and I cant use it on the days my clit hurts. I can put it inside though, it seems to relax the muscles. It also helps because I get scared when my hubby touches me before sex because I tighten up and expect pain, I know where hurts and where doesnt so I use it to get turned on before sex. Explaining to him where he can and cant touch on differnt days would be horrible for him.

Aussie

Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia

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Post  Sebby (Admin) Thu May 26, 2011 8:21 pm


I now just use a small one I had before..that bloody Magic Wand is far to intense for me! lol

I am so gonna have a browse in Ann Summers for a new one

I do think they are great for relaxing and find pleasure again, great idea too to use it before sex..
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
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Age : 43
Location : London UK

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Post  Mouse Fri May 27, 2011 8:01 am

Sweetheart look at the Lelo vibrators. That little baby I bought recently is fabulous! It does an amazing job! I can't control if there is pain afterwards and sometimes I get stuck in the arousal phase for a few days BUT multiple orgasms are almost worth it?

Mouse

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Location : New Zealand

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Post  Sarah001 Sun May 29, 2011 1:28 pm

I've been trying out the vibrator advice but my tablets seem to have stolen my ability to orgasm! At first I didn't know what the problem was but after talking to a few people on another site and then a pharmacist (online of course, I didn't go into a chemist and start ranting about orgasms! Embarassed Laughing ) she told me it's likely the Ami doing it and it has that effect on alot of people. Seems my vibrator days are over. Evil or Very Mad
Sarah001
Sarah001

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Post  noni Sun May 29, 2011 2:43 pm

I have read that Ami causes low libido and "sexual dysfunction"...

... how are you ladies able to use vibrators? I would think it would just bring on more pain...maybe not initially but soreness for days afterwards ??
noni
noni

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Post  Sarah001 Sun May 29, 2011 6:59 pm

Sexual Dysfunction, that's a laugh isn't it?! Yes, it is the Ami I'm sure, I was ok on a low dose but the higher the dose got the harder it became to orgasm until it's impossible. Never mind, I'm not currently in a relationship and my vibes can go in the back of the drawer for now. Low libido certainly makes it easier to have orgasms stolen!! Laughing
Sarah001
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Post  Sebby (Admin) Mon May 30, 2011 6:17 pm


Fanx mouse will soooo look them vibrators up! Multiple orgasms you say! Very Happy

I dont experience much soreness or pain at all as long as the vibrations are not too intense...I have had it when my cilt area has got sore but that was when I first started using them again...I think it got used to it now Embarassed



Sebby (Admin)
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Post  Mouse Tue May 31, 2011 7:06 am

Hahhaaa apparently that's the silver lining that comes with age. I'm just having a shite time with random symptoms atm. Kind of like when this kicked off. Weird creeping, pulling pain and fairly intense these days. More stress, more coffee, no meditation + the odd bit of sugar = more pain. GGGrrrrrrr Big pain day today.

Mouse

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