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Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Antihistamines?

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Antihistamines?

Post  coralburn on Sun Mar 20, 2011 8:13 am

Hey everyone,

I know I read somewhere on this forum that antihistamines can help vulvodynia, but I couldn't find the post so I thought I'd ask here. Has anyone heard about antihistamines as a treatment for vulvodynia? I've been taking Benadryl for the last few nights to help me sleep and I noticed a pretty big decrease in pain. But I'm not sure if it was because of the Benadryl or if this is even something I should bring up to my doctor...

Coral

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Re: Antihistamines?

Post  Sebby (Admin) on Sun Mar 20, 2011 8:38 am


I have to take antihistamines when I get hayfever. I take Citrizine. I dont remember it effecting my pain last year but I'll let you know this year as the hayfever season will soon be upon me!

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Re: Antihistamines?

Post  noni on Sun Mar 20, 2011 1:28 pm

Hey Coral,

I am very heavy into the research aspect of all this...I have read of women taking either Atarax or Vistaril which are anti histamines I believe (not NSAIDS...not 100 percent sure)...but I have been told by pharmacists that this will make you extremely drowsy.

There was a study out somewhere on the internet where women took elavil in conjuction with atarax and saw a big diff in pain (but again, check with a doctor first!!! as i am NOT 100 percent sure!)

Again, I think the vulvodynia is the bodys response to some sort of trauma (atleast the brain perceives it so) and causes a chain reaction in the vulvar tissue....inflammation,swelling, release of anti histamines, leading to nerve compression or irritation...I dunno.

It would be cool if someone could look into this and provide us with more information. All I know is that if youre swollen down there, even a little, there has to be some inflamatory process at work!

Also, apparantley Elavil (Amitriptyline) has some anti histamine effects.

Smile noni
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Re: Antihistamines?

Post  Sarah001 on Mon Mar 21, 2011 9:32 pm

I take anti-histamines daily all year round for allergies and have done for over 16 years and I can honestly say they aren't helping my V! I think they'd only help if the problem was allergy related.
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Re: Antihistamines

Post  Joolibee on Tue Mar 22, 2011 11:42 am

I was prescribed an antihistamine when first diagnosed with vestibylodynia. Tried it for a couple of months. It cleared up a mild case of hives but no noticeable improvement in the v pain. Then went on amitriptyline, which helped a bit and yes, it does also have antihistamine properties. I discovered this recently when I stopped the ami because it was no longer helping. Came out in hives something rotten. Turns out that I have an allergy to medication I have for another condition and the ami had been hiding it. Everyone is different though. The consultant I saw seemed to think antihistamine would help because the skin was so red. Maybe I should have given it longer. I presume it does work for some people. Question

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Re: Antihistamines?

Post  Kathye10 on Mon May 06, 2013 5:18 pm

I realize this thread is now a few years old but thought I'd respond just in case someone else might be interested. My Dr and I are still trying to figure out my cause. It's either bacterial or PFD related. I do notice that when I take meds like zrytec or benadryl (at night) the burning decreases immensely that next day. I have taken all possible allergens out of the equation so I am thinking the antihistamines are blocking the H1 receptor. I don't take them very often because I don't want it to interfere with possible treatments at this point.
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Re Antihistamines

Post  Joolibee on Mon May 06, 2013 9:11 pm

Hey, I'd forgotten about this thread. Such a long time ago. Anyway, the doctor at my vulval pain clinic says that there is evidence that in some women, vulval pain has been shown to be linked to chronic idiopathic urticaria and as such can be treated with a high dose of antihistamine. It turns out that I probably have chronic idiopathic urticaria. At my last appointment, he asked me to scratch my arm and as usual, it came up in a red wheal. As a result, I trialled Fexofenadine at a high dose for 3 months. Unfortunately it did not work for me, it barely affected the urticaria. But if you notice an improvement when you take antihistamine, it might be worth you speaking with your doctor.

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Re: Antihistamines?

Post  Kathye10 on Tue May 07, 2013 12:20 am

Hi Joolibee,

Wow, I've never heard of that condition. I will look into it. What has worked for you? (If anything)
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Re: Antihistamines?

Post  Sarah001 on Tue May 07, 2013 5:45 pm

I also have chronic idiopathic urticaria and the anti-histamines help with that but not with my V. I've taken anti-histamines daily for over 18 years now so I think I've given them long enough to help..... Laughing
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Re: Antihistamines?

Post  Joolibee on Tue May 07, 2013 7:12 pm

It must depend on what causes the vulval pain. It seems , Sarah, that our vulval pain runs separately from our auto-immune conditions. Kathye...what has worked for me...good question. Gabapentin definitely helps and when I lived in France I was prescribed a benzodiazepine type medication, which helped a lot. Apart from that, I find that avoiding trousers, tights, leggings....errr, and sex,...oh, and sitting down, all help to avoid aggravating it :-( Of course it's difficult to completely avoid some things, but the pain has reduced since I gave up stressing about it. Today I've decided to put myself on a regime of warm / hot baths every day, to help relax my pelvic muscles...and I bought a book on Mindfulness, with a view to seriously embarking on meditation.

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Re: Antihistamines?

Post  Lms911 on Sun Jan 12, 2014 3:07 pm

Coral they help me at times. While they don't take it away it seriously dulls down the pain at times. It's not a cure but it does help for me at least. I'd say its worth a try Smile

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Zyrtec

Post  KimiKat on Sun Jan 12, 2014 11:06 pm

Zyrtec dulls the pain for me quite a bit. I discovered that by accident - took it in hopes it would help me sleep through the pain, and found that it lessened the pain as well as letting me sleep. It is my go-to during a flare.

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Re: Antihistamines?

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