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» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» What's next?
Sat Apr 14, 2018 4:28 pm by sally_jane

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Antihistamines?

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Antihistamines?

Post  coralburn on Sun Mar 20, 2011 8:13 am

Hey everyone,

I know I read somewhere on this forum that antihistamines can help vulvodynia, but I couldn't find the post so I thought I'd ask here. Has anyone heard about antihistamines as a treatment for vulvodynia? I've been taking Benadryl for the last few nights to help me sleep and I noticed a pretty big decrease in pain. But I'm not sure if it was because of the Benadryl or if this is even something I should bring up to my doctor...

Coral

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Re: Antihistamines?

Post  Sebby (Admin) on Sun Mar 20, 2011 8:38 am


I have to take antihistamines when I get hayfever. I take Citrizine. I dont remember it effecting my pain last year but I'll let you know this year as the hayfever season will soon be upon me!

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Re: Antihistamines?

Post  noni on Sun Mar 20, 2011 1:28 pm

Hey Coral,

I am very heavy into the research aspect of all this...I have read of women taking either Atarax or Vistaril which are anti histamines I believe (not NSAIDS...not 100 percent sure)...but I have been told by pharmacists that this will make you extremely drowsy.

There was a study out somewhere on the internet where women took elavil in conjuction with atarax and saw a big diff in pain (but again, check with a doctor first!!! as i am NOT 100 percent sure!)

Again, I think the vulvodynia is the bodys response to some sort of trauma (atleast the brain perceives it so) and causes a chain reaction in the vulvar tissue....inflammation,swelling, release of anti histamines, leading to nerve compression or irritation...I dunno.

It would be cool if someone could look into this and provide us with more information. All I know is that if youre swollen down there, even a little, there has to be some inflamatory process at work!

Also, apparantley Elavil (Amitriptyline) has some anti histamine effects.

Smile noni
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Re: Antihistamines?

Post  Sarah001 on Mon Mar 21, 2011 9:32 pm

I take anti-histamines daily all year round for allergies and have done for over 16 years and I can honestly say they aren't helping my V! I think they'd only help if the problem was allergy related.
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Re: Antihistamines

Post  Joolibee on Tue Mar 22, 2011 11:42 am

I was prescribed an antihistamine when first diagnosed with vestibylodynia. Tried it for a couple of months. It cleared up a mild case of hives but no noticeable improvement in the v pain. Then went on amitriptyline, which helped a bit and yes, it does also have antihistamine properties. I discovered this recently when I stopped the ami because it was no longer helping. Came out in hives something rotten. Turns out that I have an allergy to medication I have for another condition and the ami had been hiding it. Everyone is different though. The consultant I saw seemed to think antihistamine would help because the skin was so red. Maybe I should have given it longer. I presume it does work for some people. Question

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Re: Antihistamines?

Post  Kathye10 on Mon May 06, 2013 5:18 pm

I realize this thread is now a few years old but thought I'd respond just in case someone else might be interested. My Dr and I are still trying to figure out my cause. It's either bacterial or PFD related. I do notice that when I take meds like zrytec or benadryl (at night) the burning decreases immensely that next day. I have taken all possible allergens out of the equation so I am thinking the antihistamines are blocking the H1 receptor. I don't take them very often because I don't want it to interfere with possible treatments at this point.
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Re Antihistamines

Post  Joolibee on Mon May 06, 2013 9:11 pm

Hey, I'd forgotten about this thread. Such a long time ago. Anyway, the doctor at my vulval pain clinic says that there is evidence that in some women, vulval pain has been shown to be linked to chronic idiopathic urticaria and as such can be treated with a high dose of antihistamine. It turns out that I probably have chronic idiopathic urticaria. At my last appointment, he asked me to scratch my arm and as usual, it came up in a red wheal. As a result, I trialled Fexofenadine at a high dose for 3 months. Unfortunately it did not work for me, it barely affected the urticaria. But if you notice an improvement when you take antihistamine, it might be worth you speaking with your doctor.

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Re: Antihistamines?

Post  Kathye10 on Tue May 07, 2013 12:20 am

Hi Joolibee,

Wow, I've never heard of that condition. I will look into it. What has worked for you? (If anything)
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Re: Antihistamines?

Post  Sarah001 on Tue May 07, 2013 5:45 pm

I also have chronic idiopathic urticaria and the anti-histamines help with that but not with my V. I've taken anti-histamines daily for over 18 years now so I think I've given them long enough to help..... Laughing
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Re: Antihistamines?

Post  Joolibee on Tue May 07, 2013 7:12 pm

It must depend on what causes the vulval pain. It seems , Sarah, that our vulval pain runs separately from our auto-immune conditions. Kathye...what has worked for me...good question. Gabapentin definitely helps and when I lived in France I was prescribed a benzodiazepine type medication, which helped a lot. Apart from that, I find that avoiding trousers, tights, leggings....errr, and sex,...oh, and sitting down, all help to avoid aggravating it :-( Of course it's difficult to completely avoid some things, but the pain has reduced since I gave up stressing about it. Today I've decided to put myself on a regime of warm / hot baths every day, to help relax my pelvic muscles...and I bought a book on Mindfulness, with a view to seriously embarking on meditation.

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Re: Antihistamines?

Post  Lms911 on Sun Jan 12, 2014 3:07 pm

Coral they help me at times. While they don't take it away it seriously dulls down the pain at times. It's not a cure but it does help for me at least. I'd say its worth a try Smile

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Zyrtec

Post  KimiKat on Sun Jan 12, 2014 11:06 pm

Zyrtec dulls the pain for me quite a bit. I discovered that by accident - took it in hopes it would help me sleep through the pain, and found that it lessened the pain as well as letting me sleep. It is my go-to during a flare.

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Re: Antihistamines?

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