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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Antihistamines?
+4
Sarah001
noni
Sebby (Admin)
coralburn
8 posters
Page 1 of 1
Antihistamines?
Hey everyone,
I know I read somewhere on this forum that antihistamines can help vulvodynia, but I couldn't find the post so I thought I'd ask here. Has anyone heard about antihistamines as a treatment for vulvodynia? I've been taking Benadryl for the last few nights to help me sleep and I noticed a pretty big decrease in pain. But I'm not sure if it was because of the Benadryl or if this is even something I should bring up to my doctor...
Coral
I know I read somewhere on this forum that antihistamines can help vulvodynia, but I couldn't find the post so I thought I'd ask here. Has anyone heard about antihistamines as a treatment for vulvodynia? I've been taking Benadryl for the last few nights to help me sleep and I noticed a pretty big decrease in pain. But I'm not sure if it was because of the Benadryl or if this is even something I should bring up to my doctor...
Coral
Re: Antihistamines?
I have to take antihistamines when I get hayfever. I take Citrizine. I dont remember it effecting my pain last year but I'll let you know this year as the hayfever season will soon be upon me!
Re: Antihistamines?
Hey Coral,
I am very heavy into the research aspect of all this...I have read of women taking either Atarax or Vistaril which are anti histamines I believe (not NSAIDS...not 100 percent sure)...but I have been told by pharmacists that this will make you extremely drowsy.
There was a study out somewhere on the internet where women took elavil in conjuction with atarax and saw a big diff in pain (but again, check with a doctor first!!! as i am NOT 100 percent sure!)
Again, I think the vulvodynia is the bodys response to some sort of trauma (atleast the brain perceives it so) and causes a chain reaction in the vulvar tissue....inflammation,swelling, release of anti histamines, leading to nerve compression or irritation...I dunno.
It would be cool if someone could look into this and provide us with more information. All I know is that if youre swollen down there, even a little, there has to be some inflamatory process at work!
Also, apparantley Elavil (Amitriptyline) has some anti histamine effects.
noni
I am very heavy into the research aspect of all this...I have read of women taking either Atarax or Vistaril which are anti histamines I believe (not NSAIDS...not 100 percent sure)...but I have been told by pharmacists that this will make you extremely drowsy.
There was a study out somewhere on the internet where women took elavil in conjuction with atarax and saw a big diff in pain (but again, check with a doctor first!!! as i am NOT 100 percent sure!)
Again, I think the vulvodynia is the bodys response to some sort of trauma (atleast the brain perceives it so) and causes a chain reaction in the vulvar tissue....inflammation,swelling, release of anti histamines, leading to nerve compression or irritation...I dunno.
It would be cool if someone could look into this and provide us with more information. All I know is that if youre swollen down there, even a little, there has to be some inflamatory process at work!
Also, apparantley Elavil (Amitriptyline) has some anti histamine effects.
noni
noni- Posts : 242
Join date : 2011-01-10
Age : 36
Location : Ontario
Re: Antihistamines?
I take anti-histamines daily all year round for allergies and have done for over 16 years and I can honestly say they aren't helping my V! I think they'd only help if the problem was allergy related.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Antihistamines
I was prescribed an antihistamine when first diagnosed with vestibylodynia. Tried it for a couple of months. It cleared up a mild case of hives but no noticeable improvement in the v pain. Then went on amitriptyline, which helped a bit and yes, it does also have antihistamine properties. I discovered this recently when I stopped the ami because it was no longer helping. Came out in hives something rotten. Turns out that I have an allergy to medication I have for another condition and the ami had been hiding it. Everyone is different though. The consultant I saw seemed to think antihistamine would help because the skin was so red. Maybe I should have given it longer. I presume it does work for some people.
Joolibee- Posts : 36
Join date : 2011-03-09
Location : France / UK
Re: Antihistamines?
I realize this thread is now a few years old but thought I'd respond just in case someone else might be interested. My Dr and I are still trying to figure out my cause. It's either bacterial or PFD related. I do notice that when I take meds like zrytec or benadryl (at night) the burning decreases immensely that next day. I have taken all possible allergens out of the equation so I am thinking the antihistamines are blocking the H1 receptor. I don't take them very often because I don't want it to interfere with possible treatments at this point.
Kathye10- Posts : 82
Join date : 2013-02-18
Location : Los Angeles
Re Antihistamines
Hey, I'd forgotten about this thread. Such a long time ago. Anyway, the doctor at my vulval pain clinic says that there is evidence that in some women, vulval pain has been shown to be linked to chronic idiopathic urticaria and as such can be treated with a high dose of antihistamine. It turns out that I probably have chronic idiopathic urticaria. At my last appointment, he asked me to scratch my arm and as usual, it came up in a red wheal. As a result, I trialled Fexofenadine at a high dose for 3 months. Unfortunately it did not work for me, it barely affected the urticaria. But if you notice an improvement when you take antihistamine, it might be worth you speaking with your doctor.
Joolibee- Posts : 36
Join date : 2011-03-09
Location : France / UK
Re: Antihistamines?
Hi Joolibee,
Wow, I've never heard of that condition. I will look into it. What has worked for you? (If anything)
Wow, I've never heard of that condition. I will look into it. What has worked for you? (If anything)
Kathye10- Posts : 82
Join date : 2013-02-18
Location : Los Angeles
Re: Antihistamines?
I also have chronic idiopathic urticaria and the anti-histamines help with that but not with my V. I've taken anti-histamines daily for over 18 years now so I think I've given them long enough to help.....
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Antihistamines?
It must depend on what causes the vulval pain. It seems , Sarah, that our vulval pain runs separately from our auto-immune conditions. Kathye...what has worked for me...good question. Gabapentin definitely helps and when I lived in France I was prescribed a benzodiazepine type medication, which helped a lot. Apart from that, I find that avoiding trousers, tights, leggings....errr, and sex,...oh, and sitting down, all help to avoid aggravating it :-( Of course it's difficult to completely avoid some things, but the pain has reduced since I gave up stressing about it. Today I've decided to put myself on a regime of warm / hot baths every day, to help relax my pelvic muscles...and I bought a book on Mindfulness, with a view to seriously embarking on meditation.
Joolibee- Posts : 36
Join date : 2011-03-09
Location : France / UK
Re: Antihistamines?
Coral they help me at times. While they don't take it away it seriously dulls down the pain at times. It's not a cure but it does help for me at least. I'd say its worth a try
Lms911- Posts : 30
Join date : 2013-11-07
Zyrtec
Zyrtec dulls the pain for me quite a bit. I discovered that by accident - took it in hopes it would help me sleep through the pain, and found that it lessened the pain as well as letting me sleep. It is my go-to during a flare.
KimiKat- Posts : 3
Join date : 2011-12-02
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer