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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Antihistamines?

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Antihistamines?

Post  coralburn on Sun Mar 20, 2011 8:13 am

Hey everyone,

I know I read somewhere on this forum that antihistamines can help vulvodynia, but I couldn't find the post so I thought I'd ask here. Has anyone heard about antihistamines as a treatment for vulvodynia? I've been taking Benadryl for the last few nights to help me sleep and I noticed a pretty big decrease in pain. But I'm not sure if it was because of the Benadryl or if this is even something I should bring up to my doctor...

Coral

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Re: Antihistamines?

Post  Sebby (Admin) on Sun Mar 20, 2011 8:38 am


I have to take antihistamines when I get hayfever. I take Citrizine. I dont remember it effecting my pain last year but I'll let you know this year as the hayfever season will soon be upon me!

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Re: Antihistamines?

Post  noni on Sun Mar 20, 2011 1:28 pm

Hey Coral,

I am very heavy into the research aspect of all this...I have read of women taking either Atarax or Vistaril which are anti histamines I believe (not NSAIDS...not 100 percent sure)...but I have been told by pharmacists that this will make you extremely drowsy.

There was a study out somewhere on the internet where women took elavil in conjuction with atarax and saw a big diff in pain (but again, check with a doctor first!!! as i am NOT 100 percent sure!)

Again, I think the vulvodynia is the bodys response to some sort of trauma (atleast the brain perceives it so) and causes a chain reaction in the vulvar tissue....inflammation,swelling, release of anti histamines, leading to nerve compression or irritation...I dunno.

It would be cool if someone could look into this and provide us with more information. All I know is that if youre swollen down there, even a little, there has to be some inflamatory process at work!

Also, apparantley Elavil (Amitriptyline) has some anti histamine effects.

Smile noni
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Re: Antihistamines?

Post  Sarah001 on Mon Mar 21, 2011 9:32 pm

I take anti-histamines daily all year round for allergies and have done for over 16 years and I can honestly say they aren't helping my V! I think they'd only help if the problem was allergy related.
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Re: Antihistamines

Post  Joolibee on Tue Mar 22, 2011 11:42 am

I was prescribed an antihistamine when first diagnosed with vestibylodynia. Tried it for a couple of months. It cleared up a mild case of hives but no noticeable improvement in the v pain. Then went on amitriptyline, which helped a bit and yes, it does also have antihistamine properties. I discovered this recently when I stopped the ami because it was no longer helping. Came out in hives something rotten. Turns out that I have an allergy to medication I have for another condition and the ami had been hiding it. Everyone is different though. The consultant I saw seemed to think antihistamine would help because the skin was so red. Maybe I should have given it longer. I presume it does work for some people. Question

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Re: Antihistamines?

Post  Kathye10 on Mon May 06, 2013 5:18 pm

I realize this thread is now a few years old but thought I'd respond just in case someone else might be interested. My Dr and I are still trying to figure out my cause. It's either bacterial or PFD related. I do notice that when I take meds like zrytec or benadryl (at night) the burning decreases immensely that next day. I have taken all possible allergens out of the equation so I am thinking the antihistamines are blocking the H1 receptor. I don't take them very often because I don't want it to interfere with possible treatments at this point.
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Re Antihistamines

Post  Joolibee on Mon May 06, 2013 9:11 pm

Hey, I'd forgotten about this thread. Such a long time ago. Anyway, the doctor at my vulval pain clinic says that there is evidence that in some women, vulval pain has been shown to be linked to chronic idiopathic urticaria and as such can be treated with a high dose of antihistamine. It turns out that I probably have chronic idiopathic urticaria. At my last appointment, he asked me to scratch my arm and as usual, it came up in a red wheal. As a result, I trialled Fexofenadine at a high dose for 3 months. Unfortunately it did not work for me, it barely affected the urticaria. But if you notice an improvement when you take antihistamine, it might be worth you speaking with your doctor.

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Re: Antihistamines?

Post  Kathye10 on Tue May 07, 2013 12:20 am

Hi Joolibee,

Wow, I've never heard of that condition. I will look into it. What has worked for you? (If anything)
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Re: Antihistamines?

Post  Sarah001 on Tue May 07, 2013 5:45 pm

I also have chronic idiopathic urticaria and the anti-histamines help with that but not with my V. I've taken anti-histamines daily for over 18 years now so I think I've given them long enough to help..... Laughing
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Re: Antihistamines?

Post  Joolibee on Tue May 07, 2013 7:12 pm

It must depend on what causes the vulval pain. It seems , Sarah, that our vulval pain runs separately from our auto-immune conditions. Kathye...what has worked for me...good question. Gabapentin definitely helps and when I lived in France I was prescribed a benzodiazepine type medication, which helped a lot. Apart from that, I find that avoiding trousers, tights, leggings....errr, and sex,...oh, and sitting down, all help to avoid aggravating it :-( Of course it's difficult to completely avoid some things, but the pain has reduced since I gave up stressing about it. Today I've decided to put myself on a regime of warm / hot baths every day, to help relax my pelvic muscles...and I bought a book on Mindfulness, with a view to seriously embarking on meditation.

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Re: Antihistamines?

Post  Lms911 on Sun Jan 12, 2014 3:07 pm

Coral they help me at times. While they don't take it away it seriously dulls down the pain at times. It's not a cure but it does help for me at least. I'd say its worth a try Smile

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Zyrtec

Post  KimiKat on Sun Jan 12, 2014 11:06 pm

Zyrtec dulls the pain for me quite a bit. I discovered that by accident - took it in hopes it would help me sleep through the pain, and found that it lessened the pain as well as letting me sleep. It is my go-to during a flare.

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Re: Antihistamines?

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