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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

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Antihistamines?

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Antihistamines?

Post  coralburn on Sun Mar 20, 2011 8:13 am

Hey everyone,

I know I read somewhere on this forum that antihistamines can help vulvodynia, but I couldn't find the post so I thought I'd ask here. Has anyone heard about antihistamines as a treatment for vulvodynia? I've been taking Benadryl for the last few nights to help me sleep and I noticed a pretty big decrease in pain. But I'm not sure if it was because of the Benadryl or if this is even something I should bring up to my doctor...

Coral

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Re: Antihistamines?

Post  Sebby (Admin) on Sun Mar 20, 2011 8:38 am


I have to take antihistamines when I get hayfever. I take Citrizine. I dont remember it effecting my pain last year but I'll let you know this year as the hayfever season will soon be upon me!

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Re: Antihistamines?

Post  noni on Sun Mar 20, 2011 1:28 pm

Hey Coral,

I am very heavy into the research aspect of all this...I have read of women taking either Atarax or Vistaril which are anti histamines I believe (not NSAIDS...not 100 percent sure)...but I have been told by pharmacists that this will make you extremely drowsy.

There was a study out somewhere on the internet where women took elavil in conjuction with atarax and saw a big diff in pain (but again, check with a doctor first!!! as i am NOT 100 percent sure!)

Again, I think the vulvodynia is the bodys response to some sort of trauma (atleast the brain perceives it so) and causes a chain reaction in the vulvar tissue....inflammation,swelling, release of anti histamines, leading to nerve compression or irritation...I dunno.

It would be cool if someone could look into this and provide us with more information. All I know is that if youre swollen down there, even a little, there has to be some inflamatory process at work!

Also, apparantley Elavil (Amitriptyline) has some anti histamine effects.

Smile noni
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Re: Antihistamines?

Post  Sarah001 on Mon Mar 21, 2011 9:32 pm

I take anti-histamines daily all year round for allergies and have done for over 16 years and I can honestly say they aren't helping my V! I think they'd only help if the problem was allergy related.
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Re: Antihistamines

Post  Joolibee on Tue Mar 22, 2011 11:42 am

I was prescribed an antihistamine when first diagnosed with vestibylodynia. Tried it for a couple of months. It cleared up a mild case of hives but no noticeable improvement in the v pain. Then went on amitriptyline, which helped a bit and yes, it does also have antihistamine properties. I discovered this recently when I stopped the ami because it was no longer helping. Came out in hives something rotten. Turns out that I have an allergy to medication I have for another condition and the ami had been hiding it. Everyone is different though. The consultant I saw seemed to think antihistamine would help because the skin was so red. Maybe I should have given it longer. I presume it does work for some people. Question

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Re: Antihistamines?

Post  Kathye10 on Mon May 06, 2013 5:18 pm

I realize this thread is now a few years old but thought I'd respond just in case someone else might be interested. My Dr and I are still trying to figure out my cause. It's either bacterial or PFD related. I do notice that when I take meds like zrytec or benadryl (at night) the burning decreases immensely that next day. I have taken all possible allergens out of the equation so I am thinking the antihistamines are blocking the H1 receptor. I don't take them very often because I don't want it to interfere with possible treatments at this point.
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Re Antihistamines

Post  Joolibee on Mon May 06, 2013 9:11 pm

Hey, I'd forgotten about this thread. Such a long time ago. Anyway, the doctor at my vulval pain clinic says that there is evidence that in some women, vulval pain has been shown to be linked to chronic idiopathic urticaria and as such can be treated with a high dose of antihistamine. It turns out that I probably have chronic idiopathic urticaria. At my last appointment, he asked me to scratch my arm and as usual, it came up in a red wheal. As a result, I trialled Fexofenadine at a high dose for 3 months. Unfortunately it did not work for me, it barely affected the urticaria. But if you notice an improvement when you take antihistamine, it might be worth you speaking with your doctor.

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Re: Antihistamines?

Post  Kathye10 on Tue May 07, 2013 12:20 am

Hi Joolibee,

Wow, I've never heard of that condition. I will look into it. What has worked for you? (If anything)
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Re: Antihistamines?

Post  Sarah001 on Tue May 07, 2013 5:45 pm

I also have chronic idiopathic urticaria and the anti-histamines help with that but not with my V. I've taken anti-histamines daily for over 18 years now so I think I've given them long enough to help..... Laughing
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Re: Antihistamines?

Post  Joolibee on Tue May 07, 2013 7:12 pm

It must depend on what causes the vulval pain. It seems , Sarah, that our vulval pain runs separately from our auto-immune conditions. Kathye...what has worked for me...good question. Gabapentin definitely helps and when I lived in France I was prescribed a benzodiazepine type medication, which helped a lot. Apart from that, I find that avoiding trousers, tights, leggings....errr, and sex,...oh, and sitting down, all help to avoid aggravating it :-( Of course it's difficult to completely avoid some things, but the pain has reduced since I gave up stressing about it. Today I've decided to put myself on a regime of warm / hot baths every day, to help relax my pelvic muscles...and I bought a book on Mindfulness, with a view to seriously embarking on meditation.

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Re: Antihistamines?

Post  Lms911 on Sun Jan 12, 2014 3:07 pm

Coral they help me at times. While they don't take it away it seriously dulls down the pain at times. It's not a cure but it does help for me at least. I'd say its worth a try Smile

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Zyrtec

Post  KimiKat on Sun Jan 12, 2014 11:06 pm

Zyrtec dulls the pain for me quite a bit. I discovered that by accident - took it in hopes it would help me sleep through the pain, and found that it lessened the pain as well as letting me sleep. It is my go-to during a flare.

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Re: Antihistamines?

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