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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 1


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 0


Sat Feb 10, 2018 12:18 am by rockylife


Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

feeling really down this evening

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feeling really down this evening

Post  maryjane on Thu Mar 24, 2011 9:05 pm

Hi everyone

Just came on to just say I am feeling really down this evening. As I have said in my last post I have been really lucky and haven't had this dreadful pain for about 4 years but it has flared up again. I have started taking Amitriptilene which helped before but I know it will take a while. The pain is quite bad tonight and I suppose I am feeling sorry for myself but the thought of having this for another few months or more depresses me. I look around at everyone else and think how lucky they are and I ask why me. Sorry for being so negative but it is nice to be able to say how you feel to people who understand the pain Thanks for listening Sad


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Re: feeling really down this evening

Post  Mouse on Thu Mar 24, 2011 10:00 pm

Hi Maryjane,

Feeling down is part of this crap! Don't beat yourself up you have every right to be mad and sad. Be gentle with yourself and just blob out for a while.

My focus became not letting the dips in confidence be too deep. That worked most of the time. My therapist will tell you (hahhaa if she could) that I had completely crazy times and would email her out of desperation. God I don't know how they do it.

Having someone to unload too takes the pressure off. I found my friends lack of understanding frustrating. People just don't understand unless it's happening to them. Have you got someone to unload to Maryjane. We are all here for you!

Take care


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Re: feeling really down this evening

Post  noni on Fri Mar 25, 2011 1:53 am

Hey Maryjane

We have all been there (some of us still there) just down in the dumps...i mean waaaay the fuck down!!! Read my post ``Feeling Really Low``...

I have a feeling you will be getting better soon, just be patient girl.

In the meantime, feel free to unloud here and know that we TRULY know where you are coming from! Today I walked out of my doctors waiting room after waiting 2 hours just to see my GP to get my blood work back!! I said F this.<

This is a beast that we are constantly fighting off. I have done a total 180 on my life. Changed my diet, clothing, activity level.

When I am stressed i just go on youtube and listen to zen meditation music, it helps me sometimes. Other times, I try to occupy my time with crafts, etc....to keep my mind off this crap condition.

Were here for you...

Your V sister,<
noni Smile


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Re: feeling really down this evening

Post  Sebby (Admin) on Sat Mar 26, 2011 5:49 pm

Hi Maryjane, can relate you how you feel hun. I have been feeling like a mad women over the last week or so! When I get like this I have to say to myself just take one day at a time.

If that is too much I just take one half hour or even one moment at a time and try to do something to take my mind off the feelings

Yes unloading on here, with a friend, family or therapist really does help. I been crying on and off for a couple of days, its pmt time again grrrrrrrrrrr

Keep strong and we are all here for you and understand how you feel


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Re: feeling really down this evening

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