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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


feeling really down this evening

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feeling really down this evening

Post  maryjane on Thu Mar 24, 2011 9:05 pm

Hi everyone

Just came on to just say I am feeling really down this evening. As I have said in my last post I have been really lucky and haven't had this dreadful pain for about 4 years but it has flared up again. I have started taking Amitriptilene which helped before but I know it will take a while. The pain is quite bad tonight and I suppose I am feeling sorry for myself but the thought of having this for another few months or more depresses me. I look around at everyone else and think how lucky they are and I ask why me. Sorry for being so negative but it is nice to be able to say how you feel to people who understand the pain Thanks for listening Sad

maryjane

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Re: feeling really down this evening

Post  Mouse on Thu Mar 24, 2011 10:00 pm

Hi Maryjane,

Feeling down is part of this crap! Don't beat yourself up you have every right to be mad and sad. Be gentle with yourself and just blob out for a while.

My focus became not letting the dips in confidence be too deep. That worked most of the time. My therapist will tell you (hahhaa if she could) that I had completely crazy times and would email her out of desperation. God I don't know how they do it.

Having someone to unload too takes the pressure off. I found my friends lack of understanding frustrating. People just don't understand unless it's happening to them. Have you got someone to unload to Maryjane. We are all here for you!

Take care
xx.

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Re: feeling really down this evening

Post  noni on Fri Mar 25, 2011 1:53 am

Hey Maryjane

We have all been there (some of us still there) just down in the dumps...i mean waaaay the fuck down!!! Read my post ``Feeling Really Low``...

I have a feeling you will be getting better soon, just be patient girl.

In the meantime, feel free to unloud here and know that we TRULY know where you are coming from! Today I walked out of my doctors waiting room after waiting 2 hours just to see my GP to get my blood work back!! I said F this.<

This is a beast that we are constantly fighting off. I have done a total 180 on my life. Changed my diet, clothing, activity level.

When I am stressed i just go on youtube and listen to zen meditation music, it helps me sometimes. Other times, I try to occupy my time with crafts, etc....to keep my mind off this crap condition.

Were here for you...

Your V sister,<
noni Smile

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Re: feeling really down this evening

Post  Sebby (Admin) on Sat Mar 26, 2011 5:49 pm


Hi Maryjane, can relate you how you feel hun. I have been feeling like a mad women over the last week or so! When I get like this I have to say to myself just take one day at a time.

If that is too much I just take one half hour or even one moment at a time and try to do something to take my mind off the feelings

Yes unloading on here, with a friend, family or therapist really does help. I been crying on and off for a couple of days, its pmt time again grrrrrrrrrrr

Keep strong and we are all here for you and understand how you feel


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Re: feeling really down this evening

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