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» Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia
Yesterday at 8:15 pm by WVR00

» What helped (and practically cured) my Vulvodynia
Yesterday at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Yesterday at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 0

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4


feeling really down this evening

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feeling really down this evening

Post  maryjane on Thu Mar 24, 2011 9:05 pm

Hi everyone

Just came on to just say I am feeling really down this evening. As I have said in my last post I have been really lucky and haven't had this dreadful pain for about 4 years but it has flared up again. I have started taking Amitriptilene which helped before but I know it will take a while. The pain is quite bad tonight and I suppose I am feeling sorry for myself but the thought of having this for another few months or more depresses me. I look around at everyone else and think how lucky they are and I ask why me. Sorry for being so negative but it is nice to be able to say how you feel to people who understand the pain Thanks for listening Sad

maryjane

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Re: feeling really down this evening

Post  Mouse on Thu Mar 24, 2011 10:00 pm

Hi Maryjane,

Feeling down is part of this crap! Don't beat yourself up you have every right to be mad and sad. Be gentle with yourself and just blob out for a while.

My focus became not letting the dips in confidence be too deep. That worked most of the time. My therapist will tell you (hahhaa if she could) that I had completely crazy times and would email her out of desperation. God I don't know how they do it.

Having someone to unload too takes the pressure off. I found my friends lack of understanding frustrating. People just don't understand unless it's happening to them. Have you got someone to unload to Maryjane. We are all here for you!

Take care
xx.

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Re: feeling really down this evening

Post  noni on Fri Mar 25, 2011 1:53 am

Hey Maryjane

We have all been there (some of us still there) just down in the dumps...i mean waaaay the fuck down!!! Read my post ``Feeling Really Low``...

I have a feeling you will be getting better soon, just be patient girl.

In the meantime, feel free to unloud here and know that we TRULY know where you are coming from! Today I walked out of my doctors waiting room after waiting 2 hours just to see my GP to get my blood work back!! I said F this.<

This is a beast that we are constantly fighting off. I have done a total 180 on my life. Changed my diet, clothing, activity level.

When I am stressed i just go on youtube and listen to zen meditation music, it helps me sometimes. Other times, I try to occupy my time with crafts, etc....to keep my mind off this crap condition.

Were here for you...

Your V sister,<
noni Smile

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Re: feeling really down this evening

Post  Sebby (Admin) on Sat Mar 26, 2011 5:49 pm


Hi Maryjane, can relate you how you feel hun. I have been feeling like a mad women over the last week or so! When I get like this I have to say to myself just take one day at a time.

If that is too much I just take one half hour or even one moment at a time and try to do something to take my mind off the feelings

Yes unloading on here, with a friend, family or therapist really does help. I been crying on and off for a couple of days, its pmt time again grrrrrrrrrrr

Keep strong and we are all here for you and understand how you feel


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Re: feeling really down this evening

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