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Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
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» Cured, cyst in foot
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» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
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» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


feeling really down this evening

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feeling really down this evening

Post  maryjane on Thu Mar 24, 2011 9:05 pm

Hi everyone

Just came on to just say I am feeling really down this evening. As I have said in my last post I have been really lucky and haven't had this dreadful pain for about 4 years but it has flared up again. I have started taking Amitriptilene which helped before but I know it will take a while. The pain is quite bad tonight and I suppose I am feeling sorry for myself but the thought of having this for another few months or more depresses me. I look around at everyone else and think how lucky they are and I ask why me. Sorry for being so negative but it is nice to be able to say how you feel to people who understand the pain Thanks for listening Sad

maryjane

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Re: feeling really down this evening

Post  Mouse on Thu Mar 24, 2011 10:00 pm

Hi Maryjane,

Feeling down is part of this crap! Don't beat yourself up you have every right to be mad and sad. Be gentle with yourself and just blob out for a while.

My focus became not letting the dips in confidence be too deep. That worked most of the time. My therapist will tell you (hahhaa if she could) that I had completely crazy times and would email her out of desperation. God I don't know how they do it.

Having someone to unload too takes the pressure off. I found my friends lack of understanding frustrating. People just don't understand unless it's happening to them. Have you got someone to unload to Maryjane. We are all here for you!

Take care
xx.

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Re: feeling really down this evening

Post  noni on Fri Mar 25, 2011 1:53 am

Hey Maryjane

We have all been there (some of us still there) just down in the dumps...i mean waaaay the fuck down!!! Read my post ``Feeling Really Low``...

I have a feeling you will be getting better soon, just be patient girl.

In the meantime, feel free to unloud here and know that we TRULY know where you are coming from! Today I walked out of my doctors waiting room after waiting 2 hours just to see my GP to get my blood work back!! I said F this.<

This is a beast that we are constantly fighting off. I have done a total 180 on my life. Changed my diet, clothing, activity level.

When I am stressed i just go on youtube and listen to zen meditation music, it helps me sometimes. Other times, I try to occupy my time with crafts, etc....to keep my mind off this crap condition.

Were here for you...

Your V sister,<
noni Smile

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Re: feeling really down this evening

Post  Sebby (Admin) on Sat Mar 26, 2011 5:49 pm


Hi Maryjane, can relate you how you feel hun. I have been feeling like a mad women over the last week or so! When I get like this I have to say to myself just take one day at a time.

If that is too much I just take one half hour or even one moment at a time and try to do something to take my mind off the feelings

Yes unloading on here, with a friend, family or therapist really does help. I been crying on and off for a couple of days, its pmt time again grrrrrrrrrrr

Keep strong and we are all here for you and understand how you feel


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Re: feeling really down this evening

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