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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


SO SICK OF IT ALL

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SO SICK OF IT ALL

Post  Aussie on Wed Mar 30, 2011 4:36 am

Today I am in pieces, I keep having to fight off the tears. My first wedding anniversary is coming up and although I can now have sex without pain. It won’t be the same.

I think maybe I am just having one of those “feel sorry for myself” days but I am starting to notice when ever anyone complains about something “normal” eg a stomach bug, cold, sore toe, whatever…I feel like shouting in their face “at least you know that will go away, I don’t know If I will be stuck with this pain for the rest of my life” but I have to keep it secret, because they wouldn’t understand anyway.

I just feel like a huge bomb has been set off in my perfect life. I was so blissfully happy perfectly healthy just got a new job, just got married and then BANG someone decided to make me hurt, in the worst possible place.

I know it’s just because I am having a bad pain day but I am sick of the rollercoaster of “it’s not so bad – it could be much much worse” and “why has this happened to me, I don’t want my life to be like this, my relationship will go down the pan etc etc”

I just want to get off.

I feel like I am perhaps, wasting my time with doctors and treatments as I do not know anyone that has gained full relief from any treatment. The doctors don’t know enough and keep trying things but we all get caught up in the pain in the middle of it all. I actually feel like a lab rat sometimes.

Sorry to put a dampener on everyone’s day but I am hoping someone will have encouraging words for me today… I really need people that understand and don’t just pretend to. How do I get out of this frame of mind.? I am trying to fight the negative feelings today but just want to cry and give up and sleep. I am so tired of it all.


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Re: SO SICK OF IT ALL

Post  Sebby (Admin) on Wed Mar 30, 2011 7:27 am


Firstly *Hugz*

This is exactly how we get on a bad pain day, it is as if the pain penetrates into every part of the mind and every part of your life.

Sometimes If im having a bad day I just think "stuff it, i'll have a bad day" in other words I dont fight the feelings with endless positive thoughts I just have a good cry, wrap myself up in a blanket and curl up. Easier done if you dont have anything to do that day or any work but if you can do it then do it! Put on a dvd or listen to music and just rest!

Also if you do have to go out today try and focus on what is going on around you, to distract from what is going on within you. Notice the flowers, the people, focus on a converstaion etc have something wonderful to eat and drink and take one moment at a time.

Also what do you mean that you can have sex without pain but it wont be the same? Is it that you feel you have lost the sexual part of you? that it is always going to be shadowed by the thought "but what if it hurts today?"

You can work on getting your sexuality back but it will take some time. We are here for you every step of the way hun. Im off to work now but will check in when I get home








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Thank you

Post  Aussie on Wed Mar 30, 2011 9:24 am

Thank you Sebby, for your kind words, you made me smile.

I had to work today which meant I couldn't curl up in bed as much as I wanted to. I don't have bad days on weekends because although it's still there. I don't have to sit down....so I don't Smile

Really nice words and advice here, just reading through your message again. I think I will print it off to remind myself I am not the only one who has poo days.

You hit the nail on the head with the sex part. It won't be the same as this time last year because of everything we have been through this year. I just got angry that this had to happen and disrupt my perfect little blissfull bubble of a life where everything was wonderful. I have had a bad year in all though, lost two grandparents and a friend in the space of a few months. Ontop of the v. Sitting on that plane back to England for my Grandpa's funeral was a nightmare - at least I got to see him before he died though some people are not so lucky.

With the sex the anticipation of pain ruins it really and the fact I have to concentrate so hard on relaxing sometimes takes the enjoyment out of it, other times it's like I don't even have v and it's great. I am happy that I can finally do it now though at least for relationships sake if not my own pleasure (lol)

Poor Hubby, the countless tears he has had to put up with this year. I don't think he signed up for this, I was fine untill I got a yeast infection 2 months after we got married.

Meh, I guess people have it worse than me.

Claire


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Re: SO SICK OF IT ALL

Post  Sarah001 on Wed Mar 30, 2011 11:25 am

Bless you Claire, we all have days like that so don't feel bad for letting off some steam. And don't think you're not going to get better either, remember Isa Herrera said it's all part of the battle to believe you will recover and be positive. Also there are people who get complete relief and as you've come so far and can now have painfree sex most of the time I see no reason why you couldn't achieve that all the time. It's a temporary glitch in your marriage and what you should be celebrating is how well you've chosen and the fact your husband has stood by you through it and your marriage has to have reached a much deeper level than the physical for that to happen. We change over the years and good relationships are about so much more than just sex and you are one of the lucky ones to have found a partner who stands by you through thick and thin. So celebrate that and keep going with your treatment, soon enough you'll find relaxing that pesky pelvic floor is second nature! Practice makes permanent! Wink
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Thanks Sarah

Post  Aussie on Thu Mar 31, 2011 3:37 am

I emailed you but you didn't reply, hope everything is ok with you. Doing much better today. Thank you for making me feel positive about my relationship he isn't half bad really. I am just wondering if it is relaxing I need because when I do my stretches it burns/stings. I have only actually started feeling almost pain free since I STOPPED stretching so much. It seems that the skin gets irritated when I stretch it. I was wondering why I was not making so much progress untill I stopped doing it as often. On the days I do do it I have more pain than on the days I don't. wierd.

Thanks again for support x

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Re: SO SICK OF IT ALL

Post  noni on Thu Mar 31, 2011 4:20 am

Hey Aussie,

Dont fret, we have all been there. I get into my moods/low points at really bad pain days. And Sebby is right, the pain infiltrates all aspects of your mind and just takes over!

Hang in there, we care about you on here. So be good to yourself!

Love,
Noni
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Re: SO SICK OF IT ALL

Post  Sarah001 on Thu Mar 31, 2011 11:16 am

I've just rechecked and I haven't got an email from you Claire or I'd definitely have answered it, the last one I've got in my inbox is from March 24th. Are you sure it sent ok? Question
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Re: SO SICK OF IT ALL

Post  Aussie on Thu Mar 31, 2011 11:58 pm

yeah it sent fine. Oh well we will start again. I will email you with updates of my physio next Thursday x

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Re: SO SICK OF IT ALL

Post  Sarah001 on Fri Apr 01, 2011 11:58 am

Look forward to it, hopefully the email will reach me this time!
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Re: SO SICK OF IT ALL

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