Log in

I forgot my password

Latest topics
I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


sitting at the computer in pain

Go down

sitting at the computer in pain

Post  maryjane on Wed Mar 30, 2011 7:35 pm

Hi everyone

I am sitting here at the computer and the pain is quite bad burning and tingling. I have put a brave face on at work today trying to look like I am normal like everyone else. I think why me and then read everyone elses story on the forum and think at least there are people here who I can relate to and I am not on my own The pain started about two weeks ago after almost 3 year break so I am hoping that it goes soon and I will feel normal again. I forgot what the pain was like when I was pain free, but I know there are worse illnesses out there so for the moment I will grin and bear it!!

maryjane

Posts : 3
Join date : 2011-03-13

View user profile

Back to top Go down

Re: sitting at the computer in pain

Post  noni on Thu Mar 31, 2011 4:11 am

Hey Maryjane,

We have all been there...in utter, horrific pain and still maintaining appearances.

I just want to reach out and give you a hug! God bless you for your courage.

How is Elavil coming along? You said you went off the meds and have started up.

I am on 40 mg at the moment and I am wondering if I will need to be for the rest of my life...in order to lead a productive life and be able to function and take care of myself.

I get scared at times...worrying about my future with this condition. The doctor told me I have neuropathic pain in my vulva...does it just ever go away? Or is it something one has to manage to live with until one dies?

I wish there were doctors who could actually care enough to help us!!! Not just do studies and poke and prod us...but show empathy and provide us with a kernel of faith/hope for our lives and futures.

Why do we have to suffer so much ??? We lose our self esteem, sexuality, physical capability, mental well being in all this....and for what???? Why????

Im frustrated tonight, can you tell ?

I think more needs to be done about this! This is utterly un acceptable in my opinion, that we have so little support in the medical community and in society in general.

Take care ladies...you are in my thoughts.

Noni
avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 30
Location : Ontario

View user profile

Back to top Go down

Re: sitting at the computer in pain

Post  Aussie on Thu Mar 31, 2011 6:18 am

I agree with you Noni and thanks for your post to my little rant yesterday. You say you have been told you have neuropathic pain in vulva. That's what I was told. Refused to believe that was the only problem. Have you tried PT? - I am so frustrated with the medical industry also, I don't think they care enough about us and because they can't 'see' the pain they think it's not that bad.

Maryjane, I work at a computer also and have bee keeping up appearances as best I can for the past 9 months . I told my boss. I have told my boss what the deal is ( i told him about 3 months into it), he is extremely understanding and is happy for me to go to physio appointments during the day as they cant be done outside of work hours. Perhaps approach your boss and explain the situation ( you don't have to go into detail) I was dreading it but so glad I did because my work was begining to get affected. Now he knows there is so much less pressure because he can understand why I am not performing at my best.

Thinking of you both x

Aussie

Posts : 230
Join date : 2011-03-15
Age : 29
Location : Queensland, Australia

View user profile

Back to top Go down

Re: sitting at the computer in pain

Post  noni on Thu Mar 31, 2011 12:33 pm

Hey Aussie,

I have not yet attempted physio as I am worried it may just irritate me even more. I dont know what to do anymore...Im scared everything will cause me pain. I know this is not a healthy attitude!

Aussie, you have guts to have told your boss...I dont know if I am there yet...I get very anxious at the thought of clueing people into my condition...maybe in time.

Take care ladies,
Noni

avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 30
Location : Ontario

View user profile

Back to top Go down

Re: sitting at the computer in pain

Post  Sebby (Admin) on Thu Mar 31, 2011 7:42 pm


Hi Mary Jane

My thoughts are with you as I too am sitting hear with terrible soreness and stinging due to the sanitary pad! I am going to brave tampons tomorrow as I cant stand this anymore.

I have bought myself a doughnut cushion to use at home and its great cos It takes the pressure off the vulvar. I got mine off amazon a foam one with a washable cover.

Im not yet brave enough to get one for work cos I just dunno what Id say to people! I have a soft cushion at work but its not a doughnut one.


_________________
Sebby
XxX

admin@vulvodyniasupportforum.com
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: sitting at the computer in pain

Post  Aussie on Fri Apr 01, 2011 1:38 am

ah, pads are the worst! even cotton ones cause me irritation. I use tampons with applicators and put like half a bottle of lube on them, they go in fine, It seems to hurt afterwards on my lighter days. Heavy days I can hardly feel the tampon.

Maryjane, Physical Therapy has done alot for me. I can now have sex without pain. As for sitting, jeans, pads, daily pain - unchanged. But it's worth a shot. Seriously think about telling your boss. This thing wont go away overnight at atleast making him/her aware takes some of the pressure off you.

x

Aussie

Posts : 230
Join date : 2011-03-15
Age : 29
Location : Queensland, Australia

View user profile

Back to top Go down

Re: sitting at the computer in pain

Post  Sarah001 on Fri Apr 01, 2011 12:02 pm

The strange thing about having SI and back problems is you get used to sitting being very painful, I do minimal amounts of sitting because of this. You can get Occupational Therapists to assess your work area and there are sit/stand computer desks where you can raise it up and stand some of the time if that helps. Some people get on with doughnut cushions which often come with a cover so they're not obvious unless someone makes a point of feeling them. If you're sneaky you could get an inflatable neck cushion, one of those shaped like a U, and use that to keep your vulva off the seat too. The good thing about the inflatable one is it can be deflated and hidden in your bag if you wanted to in between use.
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 45
Location : UK

View user profile

Back to top Go down

Re: sitting at the computer in pain

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum