Log in

I forgot my password

Latest topics
Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


Another Newbie

View previous topic View next topic Go down

Another Newbie

Post  toobusy on Thu Mar 31, 2011 8:34 pm

I am 43 married with two children 6 & 7. Four years ago my husband and I left our regular jobs to run our own business. When we left our jobs we also left health insurance. Two years ago I was diagnossed with Fibromyalgia and hypothiroidism. Both are under control with mild medications. In Dec. I got a sinus infection which led to antibotics....2 rounds which of course led to a yeast infection. Then came bacterial infection, a UTI, another yeast infection, UTI and Yeast again! I finally kicked the yest and ensured no UTI with the Candida diet, Pro-B and Cranberry supplemnts. Thought I was in the clear...then this irritation that would not go away...and it got worse! Here I am in the process of being diagnossed with possible Vulvodynia.

This is crazy...one day I am going along and the next things are buring and I don't know what to think. I don't have time for this, not like anyone does. I am good dismissing pain once I know what it is but, this may be a bit more difficult!

Does anyone know of any herbal supplemnts or booster that could help? If I correctly understand this is an autoimmune disorder and is the fibromyalgia. Concerend with medical test and procedures without insuranse.

toobusy

Posts : 2
Join date : 2011-03-31

View user profile

Back to top Go down

Re: Another Newbie

Post  noni on Fri Apr 01, 2011 12:08 am

Hey toobusy!

Welcome!

So what is vulvodynia exactly? Good question!!!

Well, most believe that it can be due to any number of things, such as: skin condition, nerve irritation/entrapment, pelvic floor muscle issues, or re-current yeast that once treated pain never goes away.

I was diagnosed with neuropathic pain of the vulva...esentially nerve damage/irritation...which has caused other problems like severe muscle spasms, ie vaginismus.

In terms of natural approaches to the treatments...yea...I dunno...alot of us gals are on anti yeast and anti gluten diets...relaxation...accupuncture...meditation...physio for the floor muscles...

I cant really recommend anything natural per se...as it didnt do jack for me....Im on Elavil for the nerve pain 40mg, some of the lovely ladies on here take pregablin....

My appraoch is a combination of: meds, proper nutrition, sleep, and relaxation for my V.

Its really a crap shoot for this! Still, there is hope for relief. This thing strikes out of nowhere at any age it seems...its a bit of a mystery.

Have a looka round on the forum!

Cheers!
noni Smile



avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 29
Location : Ontario

View user profile

Back to top Go down

Re: Another Newbie

Post  Sebby (Admin) on Sat Apr 02, 2011 4:21 pm

Hi toobusy and welcome to the forum

As noni says there are a number of theories on the causes of Vulvodynia.

As for natural medicine, I am currently doing pelvic floor bio-feedback and also use water spray and vaseline after unrination. I have had to look to conventional medicine for painkillers as I do not know of anything natural that would do the job.

Im currently on 300mg of Pregabalin and it helps to control flare ups. My flare ups coincide with my periods (the use of pads/tampons). They tried to stop my periods with Cerezette but I bled for 3 months on and off and still had pain and was too dry when they stopped

Other things that help are:

Wear only 100% cotton knickers/panties (im from uk so getting used to speaking in us terms lol)
Do not use any bubble baths etc, only let water touch your vulval area
Wash knickers/panties on high temp 60 or 90 degress with no detergent. If you feel you must use detergent then use non bio and give them an extra rinse. High temps are enough to kill any bacterias
I am cutting down on sugars and wheat (I see you have done the anti candida diet)
Get a foam doughnut cushion (with a hole in the middle) to sit on at home so there is no pressure on the vulvar

The term Vulvodynia simply means vulval pain and is what they tell you, you have after they cannot find a simply cause such as infection or skin disorder


_________________
Sebby
XxX

admin@vulvodyniasupportforum.com
avatar
Sebby (Admin)
Admin

Posts : 749
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Another Newbie

Post  Sebby (Admin) on Sat Apr 02, 2011 4:22 pm


Oops I pressed send before I wanted to!

Anyways, dont be afraid to come on here to vent your feelings and to get support

Take Care


_________________
Sebby
XxX

admin@vulvodyniasupportforum.com
avatar
Sebby (Admin)
Admin

Posts : 749
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Thanks

Post  toobusy on Sun Apr 03, 2011 1:48 am

Thanks for the info ladies. I will keep searching and trying new treatments, will let you know what I find. By the way...officially got the diaganosis and doctor recommended a special physical therapist who specializes in treatment of vulvodynia and related problems. The Dr. says there are only a few in the country and we have one in NJ. Not sure how accurate that is but, I guess I have nothing to loose by calling. Anyone going to this type of physical therapist?

toobusy

Posts : 2
Join date : 2011-03-31

View user profile

Back to top Go down

Re: Another Newbie

Post  noni on Sun Apr 03, 2011 1:20 pm

Hey toobusy,

I will be trying this approach in time.

I know that mouse is doing some type of physio...you could ask her.

take care,
noni
avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 29
Location : Ontario

View user profile

Back to top Go down

Re: Another Newbie

Post  Mouse on Sun Apr 03, 2011 7:49 pm

Hi toobusy and welcome!

I'm sorry you have found yourself having to join us but you are in good company. We are all searching for answers and being proactive about improving our health. Well most days, sometimes we just howl at the moon but that's ok as well.

Things that I believe have worked for me are - diet modification!!! I am sugar and gluten free, the gluten is because I have celiac disease but the sugar is to reduce acidity. I've had a huge improvement since I started that. I drink a lot of water, limit coffee and alcohol. I meditate, try to find as many natural feel good chemicals as I can, they are hard to find sometimes. I do PT and that has also made a huge difference, she does trigger point therapy and I also have acupuncture as I've annoyed some other nerves as well. I would think any womens health PT could help you. When you think about it there are a lot of reasons the pelvic floor gets irritated in women. I have a friend who has a torn muscle from childbirth and then there are prolapses and incontinence which can also be from childbirth or the pelvic floor becoming weaker with age. If you can't get into the one your Dr suggested have a look around for someone else.

I also think getting out in the sun, enjoying time with friends and family or trying to be social improves your mental health. Try for good sleep patterns so create an environment that helps you sleep well ie not too much stimulation before bedtime, low lights and good curtains etc.

Oh get a therapist! While this isn't in your head it's a hard condition to live with so unloading all the crap in a safe environment works wonders for most of us. In fact this would be number one on my list. My therapist helps me sort what seems like a huge mess into neat little compartments.

And I also believe that having sex if you can helps to heal. Check out Sarah's consult with Dr Glazer. I have generalised V so I can have sex without pain, well mostly - I have unprovoked pain all the time.

Ooops work time!

Good luck
Vicki

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

View user profile

Back to top Go down

Re: Another Newbie

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum