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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Another Newbie

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Another Newbie

Post  toobusy on Thu Mar 31, 2011 8:34 pm

I am 43 married with two children 6 & 7. Four years ago my husband and I left our regular jobs to run our own business. When we left our jobs we also left health insurance. Two years ago I was diagnossed with Fibromyalgia and hypothiroidism. Both are under control with mild medications. In Dec. I got a sinus infection which led to antibotics....2 rounds which of course led to a yeast infection. Then came bacterial infection, a UTI, another yeast infection, UTI and Yeast again! I finally kicked the yest and ensured no UTI with the Candida diet, Pro-B and Cranberry supplemnts. Thought I was in the clear...then this irritation that would not go away...and it got worse! Here I am in the process of being diagnossed with possible Vulvodynia.

This is crazy...one day I am going along and the next things are buring and I don't know what to think. I don't have time for this, not like anyone does. I am good dismissing pain once I know what it is but, this may be a bit more difficult!

Does anyone know of any herbal supplemnts or booster that could help? If I correctly understand this is an autoimmune disorder and is the fibromyalgia. Concerend with medical test and procedures without insuranse.

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Re: Another Newbie

Post  noni on Fri Apr 01, 2011 12:08 am

Hey toobusy!

Welcome!

So what is vulvodynia exactly? Good question!!!

Well, most believe that it can be due to any number of things, such as: skin condition, nerve irritation/entrapment, pelvic floor muscle issues, or re-current yeast that once treated pain never goes away.

I was diagnosed with neuropathic pain of the vulva...esentially nerve damage/irritation...which has caused other problems like severe muscle spasms, ie vaginismus.

In terms of natural approaches to the treatments...yea...I dunno...alot of us gals are on anti yeast and anti gluten diets...relaxation...accupuncture...meditation...physio for the floor muscles...

I cant really recommend anything natural per se...as it didnt do jack for me....Im on Elavil for the nerve pain 40mg, some of the lovely ladies on here take pregablin....

My appraoch is a combination of: meds, proper nutrition, sleep, and relaxation for my V.

Its really a crap shoot for this! Still, there is hope for relief. This thing strikes out of nowhere at any age it seems...its a bit of a mystery.

Have a looka round on the forum!

Cheers!
noni Smile



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Re: Another Newbie

Post  Sebby (Admin) on Sat Apr 02, 2011 4:21 pm

Hi toobusy and welcome to the forum

As noni says there are a number of theories on the causes of Vulvodynia.

As for natural medicine, I am currently doing pelvic floor bio-feedback and also use water spray and vaseline after unrination. I have had to look to conventional medicine for painkillers as I do not know of anything natural that would do the job.

Im currently on 300mg of Pregabalin and it helps to control flare ups. My flare ups coincide with my periods (the use of pads/tampons). They tried to stop my periods with Cerezette but I bled for 3 months on and off and still had pain and was too dry when they stopped

Other things that help are:

Wear only 100% cotton knickers/panties (im from uk so getting used to speaking in us terms lol)
Do not use any bubble baths etc, only let water touch your vulval area
Wash knickers/panties on high temp 60 or 90 degress with no detergent. If you feel you must use detergent then use non bio and give them an extra rinse. High temps are enough to kill any bacterias
I am cutting down on sugars and wheat (I see you have done the anti candida diet)
Get a foam doughnut cushion (with a hole in the middle) to sit on at home so there is no pressure on the vulvar

The term Vulvodynia simply means vulval pain and is what they tell you, you have after they cannot find a simply cause such as infection or skin disorder


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Re: Another Newbie

Post  Sebby (Admin) on Sat Apr 02, 2011 4:22 pm


Oops I pressed send before I wanted to!

Anyways, dont be afraid to come on here to vent your feelings and to get support

Take Care


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Thanks

Post  toobusy on Sun Apr 03, 2011 1:48 am

Thanks for the info ladies. I will keep searching and trying new treatments, will let you know what I find. By the way...officially got the diaganosis and doctor recommended a special physical therapist who specializes in treatment of vulvodynia and related problems. The Dr. says there are only a few in the country and we have one in NJ. Not sure how accurate that is but, I guess I have nothing to loose by calling. Anyone going to this type of physical therapist?

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Re: Another Newbie

Post  noni on Sun Apr 03, 2011 1:20 pm

Hey toobusy,

I will be trying this approach in time.

I know that mouse is doing some type of physio...you could ask her.

take care,
noni
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Re: Another Newbie

Post  Mouse on Sun Apr 03, 2011 7:49 pm

Hi toobusy and welcome!

I'm sorry you have found yourself having to join us but you are in good company. We are all searching for answers and being proactive about improving our health. Well most days, sometimes we just howl at the moon but that's ok as well.

Things that I believe have worked for me are - diet modification!!! I am sugar and gluten free, the gluten is because I have celiac disease but the sugar is to reduce acidity. I've had a huge improvement since I started that. I drink a lot of water, limit coffee and alcohol. I meditate, try to find as many natural feel good chemicals as I can, they are hard to find sometimes. I do PT and that has also made a huge difference, she does trigger point therapy and I also have acupuncture as I've annoyed some other nerves as well. I would think any womens health PT could help you. When you think about it there are a lot of reasons the pelvic floor gets irritated in women. I have a friend who has a torn muscle from childbirth and then there are prolapses and incontinence which can also be from childbirth or the pelvic floor becoming weaker with age. If you can't get into the one your Dr suggested have a look around for someone else.

I also think getting out in the sun, enjoying time with friends and family or trying to be social improves your mental health. Try for good sleep patterns so create an environment that helps you sleep well ie not too much stimulation before bedtime, low lights and good curtains etc.

Oh get a therapist! While this isn't in your head it's a hard condition to live with so unloading all the crap in a safe environment works wonders for most of us. In fact this would be number one on my list. My therapist helps me sort what seems like a huge mess into neat little compartments.

And I also believe that having sex if you can helps to heal. Check out Sarah's consult with Dr Glazer. I have generalised V so I can have sex without pain, well mostly - I have unprovoked pain all the time.

Ooops work time!

Good luck
Vicki

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Re: Another Newbie

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