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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 6

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

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Tampons or Pads??

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Tampons or Pads??

Post  Sebby (Admin) on Sat Apr 02, 2011 4:49 pm


Hi guys

I always get a flare up during my period. I do think it is linked to the pads. Even the boots cotton pads I tried caused so much rawness this week that I decided to try tampons.

Trouble was I was light so I do not think there was enough blood for them to go in easy enought so I felt sore!

I am going to try tampons again when I am at a heaveir flow next month

What do you guys use and do you have any tips?

Cheers

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Re: Tampons or Pads??

Post  Mouse on Sat Apr 02, 2011 8:17 pm

Hey there Miss,

I can use tampons but find when the flow is light it's kind of dry up there. I use compact tampax with the plastic applicator, they seem to slide in a bit easier and sometimes the cardboard ones have their teeth showing affraid

Was the soreness worse than the issues that pads cause?

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Re: Tampons or Pads??

Post  Sarah001 on Tue Apr 05, 2011 4:49 am

I use Tampax with the cardboard applicator if any because the plastic ones have trapped my skin a couple of times in the past, not what you need at any time never mind with V! I use panty liners for light days though as tampons completely drying out the vagina can lead to thrush and BV and of course pain! More pain should I say. One word of caution, anyone considering getting the Naturcare tampons because they're 100% cotton should be aware that alot of them have faulty applicators for some reason and you end up wasting a good half a box so I'd steer clear of those. Wink
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Re: Tampons or Pads??

Post  Aussie on Tue Apr 05, 2011 5:23 am

I use tampax compact also with plastic applicators I make sure I put a lot of lubricant on the applicator and try to stay away from them on light days. I find even cotton pads cause me irritation and that awful raw feeling, plus, I just don't feel clean.

A good brand I have found that is 100% cotton is "cottons" for pads and tampons, these pads cause less irritation than the others. The tampons don't have applicators though, I have used applicators from the tampax ones and put the cotton tampon inside, inpractical though because then you ahve to buy 2 brands.

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Re: Tampons or Pads??

Post  Sebby (Admin) on Thu Apr 07, 2011 6:48 pm


Thanks guys

I have bought the cottons tampons ready for the next period! I am going to perservere with tampons as pads are just rubbing me far to much.

I will deff just use panty liners on light days as using the tampons last time was too hard as I was too dry

I wasnt sure if I could use lube with them? I was worried it might effect their absorbency? What lube can I use?

Cheers me dears Smile

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Re: Tampons or Pads??

Post  Mouse on Thu Apr 07, 2011 7:14 pm

Hey Seb, just lube the applicator oh and use something natural. Do you use almond oil at all? What do you use on your homework project affraid ?

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Re: Tampons or Pads??

Post  Zazu on Fri Apr 08, 2011 6:23 pm

Has anyone tried Natracare tampons and pads? They're supposed to be really good in terms of all organic cotton, free of chemicals, etc. etc. If anyone uses pads theirs are the only ones I've found which use natural products and are free of absorbing chemicals, scents, and plastics.
The scary applicators with the teeth are definitely to be avoided Shocked
Has anyone tried the reusable menstrual cups (here it's the DivaCup)? I heard that the silicone is good for anyone with skin irritation because no one in the world is allergic to it, but the application process might not be so good for us ladies.

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Re: Tampons or Pads??

Post  Sebby (Admin) on Mon Apr 11, 2011 7:06 pm


Thats interesting I was advised to get silcone dilators/dildos instead of plastic as they do not irritate

I have had a look at that moon cup thing but it looks so odd lol and I think I would get into a bit of a mess! I mean how would I wash it out at work, in the shared loos!! Shocked

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tampons ?

Post  flashlight on Tue Apr 12, 2011 1:23 am

Shocked Shocked

I am amazed that anyone with v can use tampons. I find them excruciating. Maybe I am worse off than those of you who can use them. I have tried every now and again in summer, and have been so sorry. Even lathering them up with lidocaine doesn't help. If they're not soaking wet either going in or out, I practically need general anesthesia to manage.

It's pads for me. I am not aggravated by clothing, materials, soaps, etc...just concentrated urine (I never drink enough) and direct pressure...and, arousal. Which brings me to another question...which I will post separately.

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Re: Tampons or Pads??

Post  Sarah001 on Tue Apr 12, 2011 12:29 pm

Zazu I mentioned the Natracare tampons a bit further up this thread. I use the panty liners from that range on light days and they're ok but nothing to write home about in my opinion. I bought some sanitary pads but they're the really thick ones like the ones we had in the 80's so they rub even worse. I mostly use Bodyform pads because they don't have the nasty waxy top sheet that is filled with chemicals.
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Re: Tampons or Pads??

Post  Mouse on Wed Apr 13, 2011 9:55 am

Flashlight, I have generalised unprovoked V (as do some other ladies on the forum) so generally have no trouble with penetration. I just have/had crap burning pain all day every day.

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Re: Tampons or Pads??

Post  Zazu on Wed Apr 13, 2011 1:27 pm

I know those super thick pads by Natracare that you mean, Sarah001, but at my health food store they also have the thin kind. Maybe they only sell them some places? I've never heard of Bodyform but I'll have to look into it. Nothings exactly comfortable though, is it?

Flashlight, I think everyone's pain with this condition is individual: triggered by different things, experienced at different times, and in better/poorer stages of progression of the condition. One thing I'm pretty sure of is that every woman on this forum has reached 10/10 on the pain scale at some point(s).

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Re: Tampons or Pads??

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