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» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Tampons or Pads??

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Tampons or Pads??

Post  Sebby (Admin) on Sat Apr 02, 2011 4:49 pm


Hi guys

I always get a flare up during my period. I do think it is linked to the pads. Even the boots cotton pads I tried caused so much rawness this week that I decided to try tampons.

Trouble was I was light so I do not think there was enough blood for them to go in easy enought so I felt sore!

I am going to try tampons again when I am at a heaveir flow next month

What do you guys use and do you have any tips?

Cheers

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Re: Tampons or Pads??

Post  Mouse on Sat Apr 02, 2011 8:17 pm

Hey there Miss,

I can use tampons but find when the flow is light it's kind of dry up there. I use compact tampax with the plastic applicator, they seem to slide in a bit easier and sometimes the cardboard ones have their teeth showing affraid

Was the soreness worse than the issues that pads cause?

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Re: Tampons or Pads??

Post  Sarah001 on Tue Apr 05, 2011 4:49 am

I use Tampax with the cardboard applicator if any because the plastic ones have trapped my skin a couple of times in the past, not what you need at any time never mind with V! I use panty liners for light days though as tampons completely drying out the vagina can lead to thrush and BV and of course pain! More pain should I say. One word of caution, anyone considering getting the Naturcare tampons because they're 100% cotton should be aware that alot of them have faulty applicators for some reason and you end up wasting a good half a box so I'd steer clear of those. Wink
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Re: Tampons or Pads??

Post  Aussie on Tue Apr 05, 2011 5:23 am

I use tampax compact also with plastic applicators I make sure I put a lot of lubricant on the applicator and try to stay away from them on light days. I find even cotton pads cause me irritation and that awful raw feeling, plus, I just don't feel clean.

A good brand I have found that is 100% cotton is "cottons" for pads and tampons, these pads cause less irritation than the others. The tampons don't have applicators though, I have used applicators from the tampax ones and put the cotton tampon inside, inpractical though because then you ahve to buy 2 brands.

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Re: Tampons or Pads??

Post  Sebby (Admin) on Thu Apr 07, 2011 6:48 pm


Thanks guys

I have bought the cottons tampons ready for the next period! I am going to perservere with tampons as pads are just rubbing me far to much.

I will deff just use panty liners on light days as using the tampons last time was too hard as I was too dry

I wasnt sure if I could use lube with them? I was worried it might effect their absorbency? What lube can I use?

Cheers me dears Smile

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Re: Tampons or Pads??

Post  Mouse on Thu Apr 07, 2011 7:14 pm

Hey Seb, just lube the applicator oh and use something natural. Do you use almond oil at all? What do you use on your homework project affraid ?

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Re: Tampons or Pads??

Post  Zazu on Fri Apr 08, 2011 6:23 pm

Has anyone tried Natracare tampons and pads? They're supposed to be really good in terms of all organic cotton, free of chemicals, etc. etc. If anyone uses pads theirs are the only ones I've found which use natural products and are free of absorbing chemicals, scents, and plastics.
The scary applicators with the teeth are definitely to be avoided Shocked
Has anyone tried the reusable menstrual cups (here it's the DivaCup)? I heard that the silicone is good for anyone with skin irritation because no one in the world is allergic to it, but the application process might not be so good for us ladies.

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Re: Tampons or Pads??

Post  Sebby (Admin) on Mon Apr 11, 2011 7:06 pm


Thats interesting I was advised to get silcone dilators/dildos instead of plastic as they do not irritate

I have had a look at that moon cup thing but it looks so odd lol and I think I would get into a bit of a mess! I mean how would I wash it out at work, in the shared loos!! Shocked

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tampons ?

Post  flashlight on Tue Apr 12, 2011 1:23 am

Shocked Shocked

I am amazed that anyone with v can use tampons. I find them excruciating. Maybe I am worse off than those of you who can use them. I have tried every now and again in summer, and have been so sorry. Even lathering them up with lidocaine doesn't help. If they're not soaking wet either going in or out, I practically need general anesthesia to manage.

It's pads for me. I am not aggravated by clothing, materials, soaps, etc...just concentrated urine (I never drink enough) and direct pressure...and, arousal. Which brings me to another question...which I will post separately.

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Re: Tampons or Pads??

Post  Sarah001 on Tue Apr 12, 2011 12:29 pm

Zazu I mentioned the Natracare tampons a bit further up this thread. I use the panty liners from that range on light days and they're ok but nothing to write home about in my opinion. I bought some sanitary pads but they're the really thick ones like the ones we had in the 80's so they rub even worse. I mostly use Bodyform pads because they don't have the nasty waxy top sheet that is filled with chemicals.
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Re: Tampons or Pads??

Post  Mouse on Wed Apr 13, 2011 9:55 am

Flashlight, I have generalised unprovoked V (as do some other ladies on the forum) so generally have no trouble with penetration. I just have/had crap burning pain all day every day.

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Re: Tampons or Pads??

Post  Zazu on Wed Apr 13, 2011 1:27 pm

I know those super thick pads by Natracare that you mean, Sarah001, but at my health food store they also have the thin kind. Maybe they only sell them some places? I've never heard of Bodyform but I'll have to look into it. Nothings exactly comfortable though, is it?

Flashlight, I think everyone's pain with this condition is individual: triggered by different things, experienced at different times, and in better/poorer stages of progression of the condition. One thing I'm pretty sure of is that every woman on this forum has reached 10/10 on the pain scale at some point(s).

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Re: Tampons or Pads??

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