Vulvodynia Support
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» Hope to all my suffering ladies
Diagnosed Today, Skeptical EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Diagnosed Today, Skeptical EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Diagnosed Today, Skeptical EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Diagnosed Today, Skeptical EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Diagnosed Today, Skeptical EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Diagnosed Today, Skeptical EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Diagnosed Today, Skeptical EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Diagnosed Today, Skeptical EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Diagnosed Today, Skeptical EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Diagnosed Today, Skeptical

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Post  itchyandscratchy Mon Apr 11, 2011 1:30 pm

Hi all

I've been diagnosed with vulvodynia today after having suffered from multiple bouts of thrush for about two years, all of which tested positive for candida when I was tested (twice). I have the same sypmtoms that I always get with thrush, so I'm a bit skeptical that the test was completely accurate. I was treated with metronidazole (antibiotic) for bacterial vaginosis for the past week and showed no improvement. The rationale was that sometimes bacterial vaginosis doesn't show up in tests (but apparently thrush usually does).

So, firstly, I was wondering if my symptoms are similar to what all of you who have been diagnosed with vulvodynia experience. I get vaginal and anal itching (not always at the same time) and with this bout I've also experienced more general itching all over (bad enough to wake me up at night once!). As well itching there's a feeling of 'wrongness' down there, even before itching starts I can always tell when I have thrush. I also always experience various digestive discomfort symptoms at the same time (bloating and painful, foul smelling, wind, constipation or dirrhea etc.). My GP thinks that these symptoms are not related to thrush, she diagnosed them as IBS (which is kind of the vulvodynia of the gut really isn't it? in that it basically means it's not working properly, for some unkown reason).

Secondly I was wondering if any of you are familiar with candidiasis, if you've been formally or self diagnosed with it? My feeling is that I'm suffering with a systemic candida infection which is causing both my vaginal and intestinal symptoms, but as I'm not immunocompromised my doctor is hearing none of it. I do find that my intestinal symptoms improve if I follow the anti-candida diet.

Well, I'd really appreciate your thoughts on this, so please let me know what you think x

itchyandscratchy
itchyandscratchy

Posts : 36
Join date : 2011-04-11
Age : 34
Location : UK

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Post  jules Tue Apr 12, 2011 1:47 am

Hi, so sorry you are having such a rough time. I do not have any intestinal issues. I do not know if it is related to your yeast infections, but it would sure make sense. my vulvodynia started off w/ a possible UTI..then i took antibiotics, then thought i had yeast infections.. I had all the symptoms, but no positive tests for yeast. my doc treated me for months for yeast that i did not have. i had every cream and gel prescribed. they all burned and made my condition much worse. i went to several doctors (like we all do), then had a skin biopsy which was negative for a skin condition and then a specialist told me i had Vulvodynia. Vulvodynia seems to be connected to chronic yeast infections. i have had about 4 or 5 yeast infections w/in the past 6 months. i take a Diflucan or two and it improves. i'm sure the diet would be beneficial. it sure couldn't hurt. I have burning pain. i have had some itching, but it is rare. i do itch if i have a yeast infection. other women on the forum i'm sure can relate to a lot of your story. we seem to know more than the doctors know. so find a doctor who will listen. Good luck!

jules

Posts : 225
Join date : 2010-03-17

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Post  itchyandscratchy Wed Apr 13, 2011 1:01 pm

I'm certain they're related, they get worse and better together... On a pessary for thrush right now and the itching has subsided a bit, although it also burns like hell after application.

The reason I'm skeptical about the vulvodynia diagnosis is because I only experience itching, and usually in connection with diagnosed thrush, whereas it seems from what I've read that most women with vulvodynia experience deeper, muscular pain, rather than just surface itching.

I think what I'm dealing with is recurrent thrush and a possibly skin that's become sensitive to chemicals etc., together.

I wonder what the connection is really between candida and vulvodynia though. Hmm.
itchyandscratchy
itchyandscratchy

Posts : 36
Join date : 2011-04-11
Age : 34
Location : UK

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Post  Zazu Wed Apr 13, 2011 1:46 pm

For me the pain did start after a yeast infection- it's like a burning or searing pain when penetration is attempted, at the vaginal opening. If you take a q-tip and gently poke around the opening, from just inside the vagina to the lips, and you feel like you suddenly got stabbed by a needle somewhere/everywhere, you're probably a good candidate for a vulvar vestibulitis syndrome (also called provoked vestibulodynia) which is a subset or type of vulvodynia. Other women on this forum can probably speak to generalized vulvodynia better, but it's like a lot of irritation, burning, pressure, tingling I've even heard of, around the vulva area all the time/during flare ups (the pain is quite individual). Itchiness does happen with both but it's not the distinguishing feature.
Deep muscular pain is associated with other conditions (I'm assuming you mean deep as in more uterus/cervical) like endometriosis, uterine fibroids, cysts, etc.
All the talk about pelvic floor muscles is about treating the cause of the pain. The pelvic floor muscles get tight, and knotted, and misaligned which can cause/worsen vulvodynia, but isn't the main pain of the condition, if that makes sense. That said, I guess a lot of us probably get lower back pain and random muscle spasms and pain in hips/butt/thighs/groin areas, but that pain is usually labelled differently (as chronic pelvic pain, back pain, muscle inflammation, fibromyalgia, etc).
I hope that helps you decide whether vulvodynia is what you have or not. And everyone- correct me if I'm wrong about things- I'm speaking from what I've read and my personal experience!

Zazu

Posts : 64
Join date : 2011-04-05
Location : Canada

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Post  itchyandscratchy Wed Apr 13, 2011 8:12 pm

Right, I see, I was under the impression from the talk of pelvic floor muscles that muscular pain was the main thing. I meant by 'deep' pain under the surface of the skin rather than on the surface, but it was quite confusing wording there. I do sometimes experience a feeling of pressure actually, but I have no idea if this is a usual thrush symptom or something separate. =s

I tried the q-tip test and I don't seem to have vulvar vestibulitis syndrome.

Thank god i found this forum anyway, my GP essentially just told my vagina might be irreparably broken and handed me a printout!

itchyandscratchy
itchyandscratchy

Posts : 36
Join date : 2011-04-11
Age : 34
Location : UK

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