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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Diagnosed Today, Skeptical

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Diagnosed Today, Skeptical

Post  itchyandscratchy on Mon Apr 11, 2011 1:30 pm

Hi all

I've been diagnosed with vulvodynia today after having suffered from multiple bouts of thrush for about two years, all of which tested positive for candida when I was tested (twice). I have the same sypmtoms that I always get with thrush, so I'm a bit skeptical that the test was completely accurate. I was treated with metronidazole (antibiotic) for bacterial vaginosis for the past week and showed no improvement. The rationale was that sometimes bacterial vaginosis doesn't show up in tests (but apparently thrush usually does).

So, firstly, I was wondering if my symptoms are similar to what all of you who have been diagnosed with vulvodynia experience. I get vaginal and anal itching (not always at the same time) and with this bout I've also experienced more general itching all over (bad enough to wake me up at night once!). As well itching there's a feeling of 'wrongness' down there, even before itching starts I can always tell when I have thrush. I also always experience various digestive discomfort symptoms at the same time (bloating and painful, foul smelling, wind, constipation or dirrhea etc.). My GP thinks that these symptoms are not related to thrush, she diagnosed them as IBS (which is kind of the vulvodynia of the gut really isn't it? in that it basically means it's not working properly, for some unkown reason).

Secondly I was wondering if any of you are familiar with candidiasis, if you've been formally or self diagnosed with it? My feeling is that I'm suffering with a systemic candida infection which is causing both my vaginal and intestinal symptoms, but as I'm not immunocompromised my doctor is hearing none of it. I do find that my intestinal symptoms improve if I follow the anti-candida diet.

Well, I'd really appreciate your thoughts on this, so please let me know what you think x

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Re: Diagnosed Today, Skeptical

Post  jules on Tue Apr 12, 2011 1:47 am

Hi, so sorry you are having such a rough time. I do not have any intestinal issues. I do not know if it is related to your yeast infections, but it would sure make sense. my vulvodynia started off w/ a possible UTI..then i took antibiotics, then thought i had yeast infections.. I had all the symptoms, but no positive tests for yeast. my doc treated me for months for yeast that i did not have. i had every cream and gel prescribed. they all burned and made my condition much worse. i went to several doctors (like we all do), then had a skin biopsy which was negative for a skin condition and then a specialist told me i had Vulvodynia. Vulvodynia seems to be connected to chronic yeast infections. i have had about 4 or 5 yeast infections w/in the past 6 months. i take a Diflucan or two and it improves. i'm sure the diet would be beneficial. it sure couldn't hurt. I have burning pain. i have had some itching, but it is rare. i do itch if i have a yeast infection. other women on the forum i'm sure can relate to a lot of your story. we seem to know more than the doctors know. so find a doctor who will listen. Good luck!

jules

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Re: Diagnosed Today, Skeptical

Post  itchyandscratchy on Wed Apr 13, 2011 1:01 pm

I'm certain they're related, they get worse and better together... On a pessary for thrush right now and the itching has subsided a bit, although it also burns like hell after application.

The reason I'm skeptical about the vulvodynia diagnosis is because I only experience itching, and usually in connection with diagnosed thrush, whereas it seems from what I've read that most women with vulvodynia experience deeper, muscular pain, rather than just surface itching.

I think what I'm dealing with is recurrent thrush and a possibly skin that's become sensitive to chemicals etc., together.

I wonder what the connection is really between candida and vulvodynia though. Hmm.
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Re: Diagnosed Today, Skeptical

Post  Zazu on Wed Apr 13, 2011 1:46 pm

For me the pain did start after a yeast infection- it's like a burning or searing pain when penetration is attempted, at the vaginal opening. If you take a q-tip and gently poke around the opening, from just inside the vagina to the lips, and you feel like you suddenly got stabbed by a needle somewhere/everywhere, you're probably a good candidate for a vulvar vestibulitis syndrome (also called provoked vestibulodynia) which is a subset or type of vulvodynia. Other women on this forum can probably speak to generalized vulvodynia better, but it's like a lot of irritation, burning, pressure, tingling I've even heard of, around the vulva area all the time/during flare ups (the pain is quite individual). Itchiness does happen with both but it's not the distinguishing feature.
Deep muscular pain is associated with other conditions (I'm assuming you mean deep as in more uterus/cervical) like endometriosis, uterine fibroids, cysts, etc.
All the talk about pelvic floor muscles is about treating the cause of the pain. The pelvic floor muscles get tight, and knotted, and misaligned which can cause/worsen vulvodynia, but isn't the main pain of the condition, if that makes sense. That said, I guess a lot of us probably get lower back pain and random muscle spasms and pain in hips/butt/thighs/groin areas, but that pain is usually labelled differently (as chronic pelvic pain, back pain, muscle inflammation, fibromyalgia, etc).
I hope that helps you decide whether vulvodynia is what you have or not. And everyone- correct me if I'm wrong about things- I'm speaking from what I've read and my personal experience!

Zazu

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Re: Diagnosed Today, Skeptical

Post  itchyandscratchy on Wed Apr 13, 2011 8:12 pm

Right, I see, I was under the impression from the talk of pelvic floor muscles that muscular pain was the main thing. I meant by 'deep' pain under the surface of the skin rather than on the surface, but it was quite confusing wording there. I do sometimes experience a feeling of pressure actually, but I have no idea if this is a usual thrush symptom or something separate. =s

I tried the q-tip test and I don't seem to have vulvar vestibulitis syndrome.

Thank god i found this forum anyway, my GP essentially just told my vagina might be irreparably broken and handed me a printout!

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Re: Diagnosed Today, Skeptical

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