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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Diagnosed Today, Skeptical

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Diagnosed Today, Skeptical

Post  itchyandscratchy on Mon Apr 11, 2011 1:30 pm

Hi all

I've been diagnosed with vulvodynia today after having suffered from multiple bouts of thrush for about two years, all of which tested positive for candida when I was tested (twice). I have the same sypmtoms that I always get with thrush, so I'm a bit skeptical that the test was completely accurate. I was treated with metronidazole (antibiotic) for bacterial vaginosis for the past week and showed no improvement. The rationale was that sometimes bacterial vaginosis doesn't show up in tests (but apparently thrush usually does).

So, firstly, I was wondering if my symptoms are similar to what all of you who have been diagnosed with vulvodynia experience. I get vaginal and anal itching (not always at the same time) and with this bout I've also experienced more general itching all over (bad enough to wake me up at night once!). As well itching there's a feeling of 'wrongness' down there, even before itching starts I can always tell when I have thrush. I also always experience various digestive discomfort symptoms at the same time (bloating and painful, foul smelling, wind, constipation or dirrhea etc.). My GP thinks that these symptoms are not related to thrush, she diagnosed them as IBS (which is kind of the vulvodynia of the gut really isn't it? in that it basically means it's not working properly, for some unkown reason).

Secondly I was wondering if any of you are familiar with candidiasis, if you've been formally or self diagnosed with it? My feeling is that I'm suffering with a systemic candida infection which is causing both my vaginal and intestinal symptoms, but as I'm not immunocompromised my doctor is hearing none of it. I do find that my intestinal symptoms improve if I follow the anti-candida diet.

Well, I'd really appreciate your thoughts on this, so please let me know what you think x

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Re: Diagnosed Today, Skeptical

Post  jules on Tue Apr 12, 2011 1:47 am

Hi, so sorry you are having such a rough time. I do not have any intestinal issues. I do not know if it is related to your yeast infections, but it would sure make sense. my vulvodynia started off w/ a possible UTI..then i took antibiotics, then thought i had yeast infections.. I had all the symptoms, but no positive tests for yeast. my doc treated me for months for yeast that i did not have. i had every cream and gel prescribed. they all burned and made my condition much worse. i went to several doctors (like we all do), then had a skin biopsy which was negative for a skin condition and then a specialist told me i had Vulvodynia. Vulvodynia seems to be connected to chronic yeast infections. i have had about 4 or 5 yeast infections w/in the past 6 months. i take a Diflucan or two and it improves. i'm sure the diet would be beneficial. it sure couldn't hurt. I have burning pain. i have had some itching, but it is rare. i do itch if i have a yeast infection. other women on the forum i'm sure can relate to a lot of your story. we seem to know more than the doctors know. so find a doctor who will listen. Good luck!

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Re: Diagnosed Today, Skeptical

Post  itchyandscratchy on Wed Apr 13, 2011 1:01 pm

I'm certain they're related, they get worse and better together... On a pessary for thrush right now and the itching has subsided a bit, although it also burns like hell after application.

The reason I'm skeptical about the vulvodynia diagnosis is because I only experience itching, and usually in connection with diagnosed thrush, whereas it seems from what I've read that most women with vulvodynia experience deeper, muscular pain, rather than just surface itching.

I think what I'm dealing with is recurrent thrush and a possibly skin that's become sensitive to chemicals etc., together.

I wonder what the connection is really between candida and vulvodynia though. Hmm.
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Re: Diagnosed Today, Skeptical

Post  Zazu on Wed Apr 13, 2011 1:46 pm

For me the pain did start after a yeast infection- it's like a burning or searing pain when penetration is attempted, at the vaginal opening. If you take a q-tip and gently poke around the opening, from just inside the vagina to the lips, and you feel like you suddenly got stabbed by a needle somewhere/everywhere, you're probably a good candidate for a vulvar vestibulitis syndrome (also called provoked vestibulodynia) which is a subset or type of vulvodynia. Other women on this forum can probably speak to generalized vulvodynia better, but it's like a lot of irritation, burning, pressure, tingling I've even heard of, around the vulva area all the time/during flare ups (the pain is quite individual). Itchiness does happen with both but it's not the distinguishing feature.
Deep muscular pain is associated with other conditions (I'm assuming you mean deep as in more uterus/cervical) like endometriosis, uterine fibroids, cysts, etc.
All the talk about pelvic floor muscles is about treating the cause of the pain. The pelvic floor muscles get tight, and knotted, and misaligned which can cause/worsen vulvodynia, but isn't the main pain of the condition, if that makes sense. That said, I guess a lot of us probably get lower back pain and random muscle spasms and pain in hips/butt/thighs/groin areas, but that pain is usually labelled differently (as chronic pelvic pain, back pain, muscle inflammation, fibromyalgia, etc).
I hope that helps you decide whether vulvodynia is what you have or not. And everyone- correct me if I'm wrong about things- I'm speaking from what I've read and my personal experience!

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Re: Diagnosed Today, Skeptical

Post  itchyandscratchy on Wed Apr 13, 2011 8:12 pm

Right, I see, I was under the impression from the talk of pelvic floor muscles that muscular pain was the main thing. I meant by 'deep' pain under the surface of the skin rather than on the surface, but it was quite confusing wording there. I do sometimes experience a feeling of pressure actually, but I have no idea if this is a usual thrush symptom or something separate. =s

I tried the q-tip test and I don't seem to have vulvar vestibulitis syndrome.

Thank god i found this forum anyway, my GP essentially just told my vagina might be irreparably broken and handed me a printout!

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Re: Diagnosed Today, Skeptical

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