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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Diagnosed Today, Skeptical

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Diagnosed Today, Skeptical

Post  itchyandscratchy on Mon Apr 11, 2011 1:30 pm

Hi all

I've been diagnosed with vulvodynia today after having suffered from multiple bouts of thrush for about two years, all of which tested positive for candida when I was tested (twice). I have the same sypmtoms that I always get with thrush, so I'm a bit skeptical that the test was completely accurate. I was treated with metronidazole (antibiotic) for bacterial vaginosis for the past week and showed no improvement. The rationale was that sometimes bacterial vaginosis doesn't show up in tests (but apparently thrush usually does).

So, firstly, I was wondering if my symptoms are similar to what all of you who have been diagnosed with vulvodynia experience. I get vaginal and anal itching (not always at the same time) and with this bout I've also experienced more general itching all over (bad enough to wake me up at night once!). As well itching there's a feeling of 'wrongness' down there, even before itching starts I can always tell when I have thrush. I also always experience various digestive discomfort symptoms at the same time (bloating and painful, foul smelling, wind, constipation or dirrhea etc.). My GP thinks that these symptoms are not related to thrush, she diagnosed them as IBS (which is kind of the vulvodynia of the gut really isn't it? in that it basically means it's not working properly, for some unkown reason).

Secondly I was wondering if any of you are familiar with candidiasis, if you've been formally or self diagnosed with it? My feeling is that I'm suffering with a systemic candida infection which is causing both my vaginal and intestinal symptoms, but as I'm not immunocompromised my doctor is hearing none of it. I do find that my intestinal symptoms improve if I follow the anti-candida diet.

Well, I'd really appreciate your thoughts on this, so please let me know what you think x

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Re: Diagnosed Today, Skeptical

Post  jules on Tue Apr 12, 2011 1:47 am

Hi, so sorry you are having such a rough time. I do not have any intestinal issues. I do not know if it is related to your yeast infections, but it would sure make sense. my vulvodynia started off w/ a possible UTI..then i took antibiotics, then thought i had yeast infections.. I had all the symptoms, but no positive tests for yeast. my doc treated me for months for yeast that i did not have. i had every cream and gel prescribed. they all burned and made my condition much worse. i went to several doctors (like we all do), then had a skin biopsy which was negative for a skin condition and then a specialist told me i had Vulvodynia. Vulvodynia seems to be connected to chronic yeast infections. i have had about 4 or 5 yeast infections w/in the past 6 months. i take a Diflucan or two and it improves. i'm sure the diet would be beneficial. it sure couldn't hurt. I have burning pain. i have had some itching, but it is rare. i do itch if i have a yeast infection. other women on the forum i'm sure can relate to a lot of your story. we seem to know more than the doctors know. so find a doctor who will listen. Good luck!

jules

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Re: Diagnosed Today, Skeptical

Post  itchyandscratchy on Wed Apr 13, 2011 1:01 pm

I'm certain they're related, they get worse and better together... On a pessary for thrush right now and the itching has subsided a bit, although it also burns like hell after application.

The reason I'm skeptical about the vulvodynia diagnosis is because I only experience itching, and usually in connection with diagnosed thrush, whereas it seems from what I've read that most women with vulvodynia experience deeper, muscular pain, rather than just surface itching.

I think what I'm dealing with is recurrent thrush and a possibly skin that's become sensitive to chemicals etc., together.

I wonder what the connection is really between candida and vulvodynia though. Hmm.
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Re: Diagnosed Today, Skeptical

Post  Zazu on Wed Apr 13, 2011 1:46 pm

For me the pain did start after a yeast infection- it's like a burning or searing pain when penetration is attempted, at the vaginal opening. If you take a q-tip and gently poke around the opening, from just inside the vagina to the lips, and you feel like you suddenly got stabbed by a needle somewhere/everywhere, you're probably a good candidate for a vulvar vestibulitis syndrome (also called provoked vestibulodynia) which is a subset or type of vulvodynia. Other women on this forum can probably speak to generalized vulvodynia better, but it's like a lot of irritation, burning, pressure, tingling I've even heard of, around the vulva area all the time/during flare ups (the pain is quite individual). Itchiness does happen with both but it's not the distinguishing feature.
Deep muscular pain is associated with other conditions (I'm assuming you mean deep as in more uterus/cervical) like endometriosis, uterine fibroids, cysts, etc.
All the talk about pelvic floor muscles is about treating the cause of the pain. The pelvic floor muscles get tight, and knotted, and misaligned which can cause/worsen vulvodynia, but isn't the main pain of the condition, if that makes sense. That said, I guess a lot of us probably get lower back pain and random muscle spasms and pain in hips/butt/thighs/groin areas, but that pain is usually labelled differently (as chronic pelvic pain, back pain, muscle inflammation, fibromyalgia, etc).
I hope that helps you decide whether vulvodynia is what you have or not. And everyone- correct me if I'm wrong about things- I'm speaking from what I've read and my personal experience!

Zazu

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Re: Diagnosed Today, Skeptical

Post  itchyandscratchy on Wed Apr 13, 2011 8:12 pm

Right, I see, I was under the impression from the talk of pelvic floor muscles that muscular pain was the main thing. I meant by 'deep' pain under the surface of the skin rather than on the surface, but it was quite confusing wording there. I do sometimes experience a feeling of pressure actually, but I have no idea if this is a usual thrush symptom or something separate. =s

I tried the q-tip test and I don't seem to have vulvar vestibulitis syndrome.

Thank god i found this forum anyway, my GP essentially just told my vagina might be irreparably broken and handed me a printout!

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Re: Diagnosed Today, Skeptical

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