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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Diagnosed Today, Skeptical

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Diagnosed Today, Skeptical

Post  itchyandscratchy on Mon Apr 11, 2011 1:30 pm

Hi all

I've been diagnosed with vulvodynia today after having suffered from multiple bouts of thrush for about two years, all of which tested positive for candida when I was tested (twice). I have the same sypmtoms that I always get with thrush, so I'm a bit skeptical that the test was completely accurate. I was treated with metronidazole (antibiotic) for bacterial vaginosis for the past week and showed no improvement. The rationale was that sometimes bacterial vaginosis doesn't show up in tests (but apparently thrush usually does).

So, firstly, I was wondering if my symptoms are similar to what all of you who have been diagnosed with vulvodynia experience. I get vaginal and anal itching (not always at the same time) and with this bout I've also experienced more general itching all over (bad enough to wake me up at night once!). As well itching there's a feeling of 'wrongness' down there, even before itching starts I can always tell when I have thrush. I also always experience various digestive discomfort symptoms at the same time (bloating and painful, foul smelling, wind, constipation or dirrhea etc.). My GP thinks that these symptoms are not related to thrush, she diagnosed them as IBS (which is kind of the vulvodynia of the gut really isn't it? in that it basically means it's not working properly, for some unkown reason).

Secondly I was wondering if any of you are familiar with candidiasis, if you've been formally or self diagnosed with it? My feeling is that I'm suffering with a systemic candida infection which is causing both my vaginal and intestinal symptoms, but as I'm not immunocompromised my doctor is hearing none of it. I do find that my intestinal symptoms improve if I follow the anti-candida diet.

Well, I'd really appreciate your thoughts on this, so please let me know what you think x

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Re: Diagnosed Today, Skeptical

Post  jules on Tue Apr 12, 2011 1:47 am

Hi, so sorry you are having such a rough time. I do not have any intestinal issues. I do not know if it is related to your yeast infections, but it would sure make sense. my vulvodynia started off w/ a possible UTI..then i took antibiotics, then thought i had yeast infections.. I had all the symptoms, but no positive tests for yeast. my doc treated me for months for yeast that i did not have. i had every cream and gel prescribed. they all burned and made my condition much worse. i went to several doctors (like we all do), then had a skin biopsy which was negative for a skin condition and then a specialist told me i had Vulvodynia. Vulvodynia seems to be connected to chronic yeast infections. i have had about 4 or 5 yeast infections w/in the past 6 months. i take a Diflucan or two and it improves. i'm sure the diet would be beneficial. it sure couldn't hurt. I have burning pain. i have had some itching, but it is rare. i do itch if i have a yeast infection. other women on the forum i'm sure can relate to a lot of your story. we seem to know more than the doctors know. so find a doctor who will listen. Good luck!

jules

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Re: Diagnosed Today, Skeptical

Post  itchyandscratchy on Wed Apr 13, 2011 1:01 pm

I'm certain they're related, they get worse and better together... On a pessary for thrush right now and the itching has subsided a bit, although it also burns like hell after application.

The reason I'm skeptical about the vulvodynia diagnosis is because I only experience itching, and usually in connection with diagnosed thrush, whereas it seems from what I've read that most women with vulvodynia experience deeper, muscular pain, rather than just surface itching.

I think what I'm dealing with is recurrent thrush and a possibly skin that's become sensitive to chemicals etc., together.

I wonder what the connection is really between candida and vulvodynia though. Hmm.
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Re: Diagnosed Today, Skeptical

Post  Zazu on Wed Apr 13, 2011 1:46 pm

For me the pain did start after a yeast infection- it's like a burning or searing pain when penetration is attempted, at the vaginal opening. If you take a q-tip and gently poke around the opening, from just inside the vagina to the lips, and you feel like you suddenly got stabbed by a needle somewhere/everywhere, you're probably a good candidate for a vulvar vestibulitis syndrome (also called provoked vestibulodynia) which is a subset or type of vulvodynia. Other women on this forum can probably speak to generalized vulvodynia better, but it's like a lot of irritation, burning, pressure, tingling I've even heard of, around the vulva area all the time/during flare ups (the pain is quite individual). Itchiness does happen with both but it's not the distinguishing feature.
Deep muscular pain is associated with other conditions (I'm assuming you mean deep as in more uterus/cervical) like endometriosis, uterine fibroids, cysts, etc.
All the talk about pelvic floor muscles is about treating the cause of the pain. The pelvic floor muscles get tight, and knotted, and misaligned which can cause/worsen vulvodynia, but isn't the main pain of the condition, if that makes sense. That said, I guess a lot of us probably get lower back pain and random muscle spasms and pain in hips/butt/thighs/groin areas, but that pain is usually labelled differently (as chronic pelvic pain, back pain, muscle inflammation, fibromyalgia, etc).
I hope that helps you decide whether vulvodynia is what you have or not. And everyone- correct me if I'm wrong about things- I'm speaking from what I've read and my personal experience!

Zazu

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Re: Diagnosed Today, Skeptical

Post  itchyandscratchy on Wed Apr 13, 2011 8:12 pm

Right, I see, I was under the impression from the talk of pelvic floor muscles that muscular pain was the main thing. I meant by 'deep' pain under the surface of the skin rather than on the surface, but it was quite confusing wording there. I do sometimes experience a feeling of pressure actually, but I have no idea if this is a usual thrush symptom or something separate. =s

I tried the q-tip test and I don't seem to have vulvar vestibulitis syndrome.

Thank god i found this forum anyway, my GP essentially just told my vagina might be irreparably broken and handed me a printout!

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Re: Diagnosed Today, Skeptical

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