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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


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Post  K9257 on Mon Apr 18, 2011 5:19 pm

I have been suffering with what was diagnosed as vulvodynia and and vestibulitis approximatley a month ago and have been suffering with the signs and symtoms for over a year now. I am 23 years old female.
It all started like I said over a year ago now with considerable swelling of the clitoris. I thought it was just a minor irritation and hoped that it would go away. Well i still to this day have the swelling. When I try to think about anything that was different in that time in my life.. all I come up with is that I went on birth control about 2 months prior to the swelling and other symptons. Yazmin is the birth control in which I tried.
at first doctors were telling me that I had bladder infections/yeast infections and I was treated multiple times, but with no relief. The symptoms that I have are: Painful intercourse, pain upon tampon insertion, swelling of the clitoris, general feeling of rawness and burning sensation almost all the time. I have a boyfriend of 7 years who knows that this is not all in my head because there was a time (a time in which I would give anything to have back) where I was normal. Right now, I have seen a specialist who has advised me to use Xylocaine on a cotton ball (which is a numbing gel) and insert it to where I have the pain. She advised me to do this every night and remove every morning and afterwards trying to stretch that area. I have an appointment to see her again in a few months and if I am not any better and still have the burning and rawness feelings than she is considering putting me on an antidepressant. Because I guess that has helped people in the past? I would love to hear any input regarding that.
I am really sad. I find it hard to be happy, and hard to do almost everything. I haven't been working since the end of december because I was finding it too difficult with everything else I was experiencing. pale
I also suffer from some other issues. I believe it is some kind of social anxiety disorder. I am extremley unconfident, shy and I am always overanalyzing myself. I have never really spoken to anyone about that except for with my boyfriend and my family. They think that its something that I can just change. But im really having a hard time. Embarassed


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Re: frustrated

Post  Sebby (Admin) on Mon Apr 18, 2011 7:16 pm

Welcome to our fourm and I hope you can find the support you need here.

Some women do find some relief with numbing gels. I would suggest a more holistic approach to treatment.

The antidepressants used also work as neuropathic pain killers. For some they work for others they need to try something else. I couldnt go on the antidepressants as I am already on Citalopram for anxiety so I asked for Pregabalin (an anticonvulsant that also works as a neuropathic pain killer)

I am also doing Pelvic Floor biofeedback from Dr Glazer his website for your information is www.vulvodynia.com

I have found the combination of treatments quite effective and have noticed much lower pain levels and fewer and shorter flare ups

Many of our members are undergoing some kind of Pelvic Floor therapy. The theory being that an unstable pelvic floor reduces blood flow and nutrients to the vuval area which prevents healing from a trigger cause (this can be injury, infection, hormones etc)

I too suffer with anxeity and dealing with pain as well as that is sooooo hard. I have felt many times that I simply do not have the strenght to carry on fighting..but I do and so can you

Out of interest have you heard of the book 'The Highly Sensitive Person'? If you google it you will come across the author's site Elaine N Aron. I am a hsp and I find that I over analyze and over feel everything...just something for you to look into.

Also a fantastic forum site for anxiety is No More Panic who have a social anxiety forum

Take Care and we are here for you


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Re: frustrated

Post  Joolibee on Mon Apr 18, 2011 9:15 pm

Hello and welcome to the forum. While we might all have slightly different symptoms, I'm sure we can all identify with what you are going through. It can be very difficult to remain positive when you are in constant pain in such an embarrassing place. I have been lucky enough to be able take a career break, otherwise I think I would have been on long term sick by now. I practice stretching, relaxation and breathing exercises at home. A couple of books that I have found helpful are "Heal Pelvic Pain" by Amy Stein and "Ending Female Pain" by Isa Herrerra. Both advocate similar forms of physical therapy and I have devised a programme based on my favourite bits of both. Another book I have found useful is "When Sex Hurts" by Andrew Goldstein et al. This looks at the possible causes of pelvic pain and advises on various treatments and how to get the best from doctors appointments. I know this all costs money - I have spent a small fortune - but it helps my mood when I feel I am doing something positive. I hope you manage to find the answer to your problems soon. Try to take it one day at a time. In the meantime, you are among friends here. Smile


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Re: frustrated

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