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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

Comments: 0

Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3


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Post  K9257 on Mon Apr 18, 2011 5:19 pm

I have been suffering with what was diagnosed as vulvodynia and and vestibulitis approximatley a month ago and have been suffering with the signs and symtoms for over a year now. I am 23 years old female.
It all started like I said over a year ago now with considerable swelling of the clitoris. I thought it was just a minor irritation and hoped that it would go away. Well i still to this day have the swelling. When I try to think about anything that was different in that time in my life.. all I come up with is that I went on birth control about 2 months prior to the swelling and other symptons. Yazmin is the birth control in which I tried.
at first doctors were telling me that I had bladder infections/yeast infections and I was treated multiple times, but with no relief. The symptoms that I have are: Painful intercourse, pain upon tampon insertion, swelling of the clitoris, general feeling of rawness and burning sensation almost all the time. I have a boyfriend of 7 years who knows that this is not all in my head because there was a time (a time in which I would give anything to have back) where I was normal. Right now, I have seen a specialist who has advised me to use Xylocaine on a cotton ball (which is a numbing gel) and insert it to where I have the pain. She advised me to do this every night and remove every morning and afterwards trying to stretch that area. I have an appointment to see her again in a few months and if I am not any better and still have the burning and rawness feelings than she is considering putting me on an antidepressant. Because I guess that has helped people in the past? I would love to hear any input regarding that.
I am really sad. I find it hard to be happy, and hard to do almost everything. I haven't been working since the end of december because I was finding it too difficult with everything else I was experiencing. pale
I also suffer from some other issues. I believe it is some kind of social anxiety disorder. I am extremley unconfident, shy and I am always overanalyzing myself. I have never really spoken to anyone about that except for with my boyfriend and my family. They think that its something that I can just change. But im really having a hard time. Embarassed


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Re: frustrated

Post  Sebby (Admin) on Mon Apr 18, 2011 7:16 pm

Welcome to our fourm and I hope you can find the support you need here.

Some women do find some relief with numbing gels. I would suggest a more holistic approach to treatment.

The antidepressants used also work as neuropathic pain killers. For some they work for others they need to try something else. I couldnt go on the antidepressants as I am already on Citalopram for anxiety so I asked for Pregabalin (an anticonvulsant that also works as a neuropathic pain killer)

I am also doing Pelvic Floor biofeedback from Dr Glazer his website for your information is www.vulvodynia.com

I have found the combination of treatments quite effective and have noticed much lower pain levels and fewer and shorter flare ups

Many of our members are undergoing some kind of Pelvic Floor therapy. The theory being that an unstable pelvic floor reduces blood flow and nutrients to the vuval area which prevents healing from a trigger cause (this can be injury, infection, hormones etc)

I too suffer with anxeity and dealing with pain as well as that is sooooo hard. I have felt many times that I simply do not have the strenght to carry on fighting..but I do and so can you

Out of interest have you heard of the book 'The Highly Sensitive Person'? If you google it you will come across the author's site Elaine N Aron. I am a hsp and I find that I over analyze and over feel everything...just something for you to look into.

Also a fantastic forum site for anxiety is No More Panic who have a social anxiety forum

Take Care and we are here for you


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Re: frustrated

Post  Joolibee on Mon Apr 18, 2011 9:15 pm

Hello and welcome to the forum. While we might all have slightly different symptoms, I'm sure we can all identify with what you are going through. It can be very difficult to remain positive when you are in constant pain in such an embarrassing place. I have been lucky enough to be able take a career break, otherwise I think I would have been on long term sick by now. I practice stretching, relaxation and breathing exercises at home. A couple of books that I have found helpful are "Heal Pelvic Pain" by Amy Stein and "Ending Female Pain" by Isa Herrerra. Both advocate similar forms of physical therapy and I have devised a programme based on my favourite bits of both. Another book I have found useful is "When Sex Hurts" by Andrew Goldstein et al. This looks at the possible causes of pelvic pain and advises on various treatments and how to get the best from doctors appointments. I know this all costs money - I have spent a small fortune - but it helps my mood when I feel I am doing something positive. I hope you manage to find the answer to your problems soon. Try to take it one day at a time. In the meantime, you are among friends here. Smile


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