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» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


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Post  K9257 on Mon Apr 18, 2011 5:19 pm

I have been suffering with what was diagnosed as vulvodynia and and vestibulitis approximatley a month ago and have been suffering with the signs and symtoms for over a year now. I am 23 years old female.
It all started like I said over a year ago now with considerable swelling of the clitoris. I thought it was just a minor irritation and hoped that it would go away. Well i still to this day have the swelling. When I try to think about anything that was different in that time in my life.. all I come up with is that I went on birth control about 2 months prior to the swelling and other symptons. Yazmin is the birth control in which I tried.
at first doctors were telling me that I had bladder infections/yeast infections and I was treated multiple times, but with no relief. The symptoms that I have are: Painful intercourse, pain upon tampon insertion, swelling of the clitoris, general feeling of rawness and burning sensation almost all the time. I have a boyfriend of 7 years who knows that this is not all in my head because there was a time (a time in which I would give anything to have back) where I was normal. Right now, I have seen a specialist who has advised me to use Xylocaine on a cotton ball (which is a numbing gel) and insert it to where I have the pain. She advised me to do this every night and remove every morning and afterwards trying to stretch that area. I have an appointment to see her again in a few months and if I am not any better and still have the burning and rawness feelings than she is considering putting me on an antidepressant. Because I guess that has helped people in the past? I would love to hear any input regarding that.
I am really sad. I find it hard to be happy, and hard to do almost everything. I haven't been working since the end of december because I was finding it too difficult with everything else I was experiencing. pale
I also suffer from some other issues. I believe it is some kind of social anxiety disorder. I am extremley unconfident, shy and I am always overanalyzing myself. I have never really spoken to anyone about that except for with my boyfriend and my family. They think that its something that I can just change. But im really having a hard time. Embarassed


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Re: frustrated

Post  Sebby (Admin) on Mon Apr 18, 2011 7:16 pm

Welcome to our fourm and I hope you can find the support you need here.

Some women do find some relief with numbing gels. I would suggest a more holistic approach to treatment.

The antidepressants used also work as neuropathic pain killers. For some they work for others they need to try something else. I couldnt go on the antidepressants as I am already on Citalopram for anxiety so I asked for Pregabalin (an anticonvulsant that also works as a neuropathic pain killer)

I am also doing Pelvic Floor biofeedback from Dr Glazer his website for your information is www.vulvodynia.com

I have found the combination of treatments quite effective and have noticed much lower pain levels and fewer and shorter flare ups

Many of our members are undergoing some kind of Pelvic Floor therapy. The theory being that an unstable pelvic floor reduces blood flow and nutrients to the vuval area which prevents healing from a trigger cause (this can be injury, infection, hormones etc)

I too suffer with anxeity and dealing with pain as well as that is sooooo hard. I have felt many times that I simply do not have the strenght to carry on fighting..but I do and so can you

Out of interest have you heard of the book 'The Highly Sensitive Person'? If you google it you will come across the author's site Elaine N Aron. I am a hsp and I find that I over analyze and over feel everything...just something for you to look into.

Also a fantastic forum site for anxiety is No More Panic who have a social anxiety forum

Take Care and we are here for you


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Re: frustrated

Post  Joolibee on Mon Apr 18, 2011 9:15 pm

Hello and welcome to the forum. While we might all have slightly different symptoms, I'm sure we can all identify with what you are going through. It can be very difficult to remain positive when you are in constant pain in such an embarrassing place. I have been lucky enough to be able take a career break, otherwise I think I would have been on long term sick by now. I practice stretching, relaxation and breathing exercises at home. A couple of books that I have found helpful are "Heal Pelvic Pain" by Amy Stein and "Ending Female Pain" by Isa Herrerra. Both advocate similar forms of physical therapy and I have devised a programme based on my favourite bits of both. Another book I have found useful is "When Sex Hurts" by Andrew Goldstein et al. This looks at the possible causes of pelvic pain and advises on various treatments and how to get the best from doctors appointments. I know this all costs money - I have spent a small fortune - but it helps my mood when I feel I am doing something positive. I hope you manage to find the answer to your problems soon. Try to take it one day at a time. In the meantime, you are among friends here. Smile


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