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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


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Post  K9257 on Mon Apr 18, 2011 5:19 pm

I have been suffering with what was diagnosed as vulvodynia and and vestibulitis approximatley a month ago and have been suffering with the signs and symtoms for over a year now. I am 23 years old female.
It all started like I said over a year ago now with considerable swelling of the clitoris. I thought it was just a minor irritation and hoped that it would go away. Well i still to this day have the swelling. When I try to think about anything that was different in that time in my life.. all I come up with is that I went on birth control about 2 months prior to the swelling and other symptons. Yazmin is the birth control in which I tried.
at first doctors were telling me that I had bladder infections/yeast infections and I was treated multiple times, but with no relief. The symptoms that I have are: Painful intercourse, pain upon tampon insertion, swelling of the clitoris, general feeling of rawness and burning sensation almost all the time. I have a boyfriend of 7 years who knows that this is not all in my head because there was a time (a time in which I would give anything to have back) where I was normal. Right now, I have seen a specialist who has advised me to use Xylocaine on a cotton ball (which is a numbing gel) and insert it to where I have the pain. She advised me to do this every night and remove every morning and afterwards trying to stretch that area. I have an appointment to see her again in a few months and if I am not any better and still have the burning and rawness feelings than she is considering putting me on an antidepressant. Because I guess that has helped people in the past? I would love to hear any input regarding that.
I am really sad. I find it hard to be happy, and hard to do almost everything. I haven't been working since the end of december because I was finding it too difficult with everything else I was experiencing. pale
I also suffer from some other issues. I believe it is some kind of social anxiety disorder. I am extremley unconfident, shy and I am always overanalyzing myself. I have never really spoken to anyone about that except for with my boyfriend and my family. They think that its something that I can just change. But im really having a hard time. Embarassed


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Re: frustrated

Post  Sebby (Admin) on Mon Apr 18, 2011 7:16 pm

Welcome to our fourm and I hope you can find the support you need here.

Some women do find some relief with numbing gels. I would suggest a more holistic approach to treatment.

The antidepressants used also work as neuropathic pain killers. For some they work for others they need to try something else. I couldnt go on the antidepressants as I am already on Citalopram for anxiety so I asked for Pregabalin (an anticonvulsant that also works as a neuropathic pain killer)

I am also doing Pelvic Floor biofeedback from Dr Glazer his website for your information is www.vulvodynia.com

I have found the combination of treatments quite effective and have noticed much lower pain levels and fewer and shorter flare ups

Many of our members are undergoing some kind of Pelvic Floor therapy. The theory being that an unstable pelvic floor reduces blood flow and nutrients to the vuval area which prevents healing from a trigger cause (this can be injury, infection, hormones etc)

I too suffer with anxeity and dealing with pain as well as that is sooooo hard. I have felt many times that I simply do not have the strenght to carry on fighting..but I do and so can you

Out of interest have you heard of the book 'The Highly Sensitive Person'? If you google it you will come across the author's site Elaine N Aron. I am a hsp and I find that I over analyze and over feel everything...just something for you to look into.

Also a fantastic forum site for anxiety is No More Panic who have a social anxiety forum

Take Care and we are here for you


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Re: frustrated

Post  Joolibee on Mon Apr 18, 2011 9:15 pm

Hello and welcome to the forum. While we might all have slightly different symptoms, I'm sure we can all identify with what you are going through. It can be very difficult to remain positive when you are in constant pain in such an embarrassing place. I have been lucky enough to be able take a career break, otherwise I think I would have been on long term sick by now. I practice stretching, relaxation and breathing exercises at home. A couple of books that I have found helpful are "Heal Pelvic Pain" by Amy Stein and "Ending Female Pain" by Isa Herrerra. Both advocate similar forms of physical therapy and I have devised a programme based on my favourite bits of both. Another book I have found useful is "When Sex Hurts" by Andrew Goldstein et al. This looks at the possible causes of pelvic pain and advises on various treatments and how to get the best from doctors appointments. I know this all costs money - I have spent a small fortune - but it helps my mood when I feel I am doing something positive. I hope you manage to find the answer to your problems soon. Try to take it one day at a time. In the meantime, you are among friends here. Smile


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Re: frustrated

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