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» I think I've developed vulvodynia?? Please help!
Yesterday at 9:10 pm by Necromeowncer

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:38 pm by Mel T

» New w/ Secondary Provoked Vestibuldynia
Sun Oct 22, 2017 3:47 am by Birdy

» Newly diagnosed
Sat Oct 21, 2017 9:50 pm by sarisbaris

» Prednisone Injections?
Wed Oct 18, 2017 5:07 am by sarisbaris

» Has anyone had continued success with gabapentin or Botox injections?
Wed Oct 18, 2017 4:47 am by sarisbaris

» Recent "Poke" Pain - So Confused/Losing My Mind
Wed Oct 18, 2017 2:37 am by sarisbaris

» What is Vulvodynia?
Tue Oct 17, 2017 11:57 pm by Jenjen

Mon Oct 16, 2017 2:22 am by Sagewoman

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


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Post  K9257 on Mon Apr 18, 2011 5:19 pm

I have been suffering with what was diagnosed as vulvodynia and and vestibulitis approximatley a month ago and have been suffering with the signs and symtoms for over a year now. I am 23 years old female.
It all started like I said over a year ago now with considerable swelling of the clitoris. I thought it was just a minor irritation and hoped that it would go away. Well i still to this day have the swelling. When I try to think about anything that was different in that time in my life.. all I come up with is that I went on birth control about 2 months prior to the swelling and other symptons. Yazmin is the birth control in which I tried.
at first doctors were telling me that I had bladder infections/yeast infections and I was treated multiple times, but with no relief. The symptoms that I have are: Painful intercourse, pain upon tampon insertion, swelling of the clitoris, general feeling of rawness and burning sensation almost all the time. I have a boyfriend of 7 years who knows that this is not all in my head because there was a time (a time in which I would give anything to have back) where I was normal. Right now, I have seen a specialist who has advised me to use Xylocaine on a cotton ball (which is a numbing gel) and insert it to where I have the pain. She advised me to do this every night and remove every morning and afterwards trying to stretch that area. I have an appointment to see her again in a few months and if I am not any better and still have the burning and rawness feelings than she is considering putting me on an antidepressant. Because I guess that has helped people in the past? I would love to hear any input regarding that.
I am really sad. I find it hard to be happy, and hard to do almost everything. I haven't been working since the end of december because I was finding it too difficult with everything else I was experiencing. pale
I also suffer from some other issues. I believe it is some kind of social anxiety disorder. I am extremley unconfident, shy and I am always overanalyzing myself. I have never really spoken to anyone about that except for with my boyfriend and my family. They think that its something that I can just change. But im really having a hard time. Embarassed


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Re: frustrated

Post  Sebby (Admin) on Mon Apr 18, 2011 7:16 pm

Welcome to our fourm and I hope you can find the support you need here.

Some women do find some relief with numbing gels. I would suggest a more holistic approach to treatment.

The antidepressants used also work as neuropathic pain killers. For some they work for others they need to try something else. I couldnt go on the antidepressants as I am already on Citalopram for anxiety so I asked for Pregabalin (an anticonvulsant that also works as a neuropathic pain killer)

I am also doing Pelvic Floor biofeedback from Dr Glazer his website for your information is www.vulvodynia.com

I have found the combination of treatments quite effective and have noticed much lower pain levels and fewer and shorter flare ups

Many of our members are undergoing some kind of Pelvic Floor therapy. The theory being that an unstable pelvic floor reduces blood flow and nutrients to the vuval area which prevents healing from a trigger cause (this can be injury, infection, hormones etc)

I too suffer with anxeity and dealing with pain as well as that is sooooo hard. I have felt many times that I simply do not have the strenght to carry on fighting..but I do and so can you

Out of interest have you heard of the book 'The Highly Sensitive Person'? If you google it you will come across the author's site Elaine N Aron. I am a hsp and I find that I over analyze and over feel everything...just something for you to look into.

Also a fantastic forum site for anxiety is No More Panic who have a social anxiety forum

Take Care and we are here for you


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Re: frustrated

Post  Joolibee on Mon Apr 18, 2011 9:15 pm

Hello and welcome to the forum. While we might all have slightly different symptoms, I'm sure we can all identify with what you are going through. It can be very difficult to remain positive when you are in constant pain in such an embarrassing place. I have been lucky enough to be able take a career break, otherwise I think I would have been on long term sick by now. I practice stretching, relaxation and breathing exercises at home. A couple of books that I have found helpful are "Heal Pelvic Pain" by Amy Stein and "Ending Female Pain" by Isa Herrerra. Both advocate similar forms of physical therapy and I have devised a programme based on my favourite bits of both. Another book I have found useful is "When Sex Hurts" by Andrew Goldstein et al. This looks at the possible causes of pelvic pain and advises on various treatments and how to get the best from doctors appointments. I know this all costs money - I have spent a small fortune - but it helps my mood when I feel I am doing something positive. I hope you manage to find the answer to your problems soon. Try to take it one day at a time. In the meantime, you are among friends here. Smile


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Re: frustrated

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