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» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


New member: My story

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New member: My story

Post  Emmie0986 on Tue Apr 19, 2011 4:24 am

Hi all,
My name is Emmie and I am twenty years old and was just diagnosed with vulvodynia about a month ago. I am writing this to put my story out there so that if anyone has gone through similar experiences they can relate and use my story as some support.

It all started when I met my boyfriend of about a year now (it took me a year to get a right diagnosis). I was perfectly fine all my life until about a week after I was first intimate with him. I was itchy and went to the doctor who diagnosed me with a yeast infection and prescribed me Diflucan. However, the itching did not stop after taking my medication so a week later I saw an OB/GYN to be tested for clamydia, gonorrhea,trich, yeast, and BV. It turns out I still had a yeat infection so once again they prescribed me diflucan, which didn't work. After this I started to have horrible bladder pains and urgency and urning of my urethra. I was then tested for herpes, which came back negative, and I was also told I may have IC (which to this day I might). Now by this time I feel disgusting for being tested for so many STDs but I refused to give up. I traveled from doctor to doctor and got 0 answers until I saw Dr. Nyerjesy's group in Philadelphia. They gave me gabepentin for my nerve endings and they also prescribed this MIRACLE CREAM!!! It is an antidepressant/muscle relaxer cream that instantly takes the itching and burning away. I have finally found some relief and can enjoy my love life now and also enjoy going out and not worrying about scratching constantly. If anyone needs some advice feel free to contact me. I hope that this helps and I am glad I have found a place for support and a place to share my year-long struggle with this disorder that takes forever to diagnose.

Emmie0986

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Re: New member: My story

Post  lolainslacks on Tue Apr 19, 2011 11:35 pm

I'm glad to hear you finally found a solution to your problem. What is the name of this miracle cream? It sounds amazing, I'd like to ask my gynecologist about it when I see her next.

lolainslacks

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Re: New member: My story

Post  Emmie0986 on Wed Apr 20, 2011 2:20 pm

My cream is amitriptyline/baclofen cream and I use it twice daily. It really works well and it can be used up to four times daily so if you feel itchy still after using it twice you can use more. I hope this helps!
-Emmie

Emmie0986

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Re: New member: My story

Post  lolainslacks on Wed Apr 20, 2011 2:45 pm

Thank you! I'll be sure to mention it to my gyn. So does this cream numb you? Does it make pressure and penetration less painful?

lolainslacks

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Re: New member: My story

Post  Zazu on Wed Apr 20, 2011 2:47 pm

You might also want to ask about a gabapentin/lidocaine compound cream. Some people have had great success with it.

Zazu

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Re: New member: My story

Post  Emmie0986 on Wed Apr 20, 2011 6:25 pm

The cream that I take doesn't numb but it makes the after effects of sex (a little pain and pressure) much less noticeable. You can still feel and enjoy penetration but it takes away all the itching and burning. And to Zazu, yea I heard the lidocaine works really well but if your anything like me stay for away from a mixed benadryl ointment. I almost was put on lidocaine but my doctor thought benadryl would work better but all it did was burn me really really bad.

Emmie0986

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Re: New member: My story

Post  Zazu on Wed Apr 20, 2011 7:02 pm

I personally also found that the gabapentin/lidocaine cream caused more irritation and didn't make penetration possible, but different things seem to work for everyone. I'm glad you've found something that works for you!

Zazu

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Re: New member: My story

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