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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


New member: My story

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New member: My story

Post  Emmie0986 on Tue Apr 19, 2011 4:24 am

Hi all,
My name is Emmie and I am twenty years old and was just diagnosed with vulvodynia about a month ago. I am writing this to put my story out there so that if anyone has gone through similar experiences they can relate and use my story as some support.

It all started when I met my boyfriend of about a year now (it took me a year to get a right diagnosis). I was perfectly fine all my life until about a week after I was first intimate with him. I was itchy and went to the doctor who diagnosed me with a yeast infection and prescribed me Diflucan. However, the itching did not stop after taking my medication so a week later I saw an OB/GYN to be tested for clamydia, gonorrhea,trich, yeast, and BV. It turns out I still had a yeat infection so once again they prescribed me diflucan, which didn't work. After this I started to have horrible bladder pains and urgency and urning of my urethra. I was then tested for herpes, which came back negative, and I was also told I may have IC (which to this day I might). Now by this time I feel disgusting for being tested for so many STDs but I refused to give up. I traveled from doctor to doctor and got 0 answers until I saw Dr. Nyerjesy's group in Philadelphia. They gave me gabepentin for my nerve endings and they also prescribed this MIRACLE CREAM!!! It is an antidepressant/muscle relaxer cream that instantly takes the itching and burning away. I have finally found some relief and can enjoy my love life now and also enjoy going out and not worrying about scratching constantly. If anyone needs some advice feel free to contact me. I hope that this helps and I am glad I have found a place for support and a place to share my year-long struggle with this disorder that takes forever to diagnose.

Emmie0986

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Re: New member: My story

Post  lolainslacks on Tue Apr 19, 2011 11:35 pm

I'm glad to hear you finally found a solution to your problem. What is the name of this miracle cream? It sounds amazing, I'd like to ask my gynecologist about it when I see her next.

lolainslacks

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Re: New member: My story

Post  Emmie0986 on Wed Apr 20, 2011 2:20 pm

My cream is amitriptyline/baclofen cream and I use it twice daily. It really works well and it can be used up to four times daily so if you feel itchy still after using it twice you can use more. I hope this helps!
-Emmie

Emmie0986

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Re: New member: My story

Post  lolainslacks on Wed Apr 20, 2011 2:45 pm

Thank you! I'll be sure to mention it to my gyn. So does this cream numb you? Does it make pressure and penetration less painful?

lolainslacks

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Re: New member: My story

Post  Zazu on Wed Apr 20, 2011 2:47 pm

You might also want to ask about a gabapentin/lidocaine compound cream. Some people have had great success with it.

Zazu

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Re: New member: My story

Post  Emmie0986 on Wed Apr 20, 2011 6:25 pm

The cream that I take doesn't numb but it makes the after effects of sex (a little pain and pressure) much less noticeable. You can still feel and enjoy penetration but it takes away all the itching and burning. And to Zazu, yea I heard the lidocaine works really well but if your anything like me stay for away from a mixed benadryl ointment. I almost was put on lidocaine but my doctor thought benadryl would work better but all it did was burn me really really bad.

Emmie0986

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Re: New member: My story

Post  Zazu on Wed Apr 20, 2011 7:02 pm

I personally also found that the gabapentin/lidocaine cream caused more irritation and didn't make penetration possible, but different things seem to work for everyone. I'm glad you've found something that works for you!

Zazu

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Re: New member: My story

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