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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


New member: My story

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New member: My story

Post  Emmie0986 on Tue Apr 19, 2011 4:24 am

Hi all,
My name is Emmie and I am twenty years old and was just diagnosed with vulvodynia about a month ago. I am writing this to put my story out there so that if anyone has gone through similar experiences they can relate and use my story as some support.

It all started when I met my boyfriend of about a year now (it took me a year to get a right diagnosis). I was perfectly fine all my life until about a week after I was first intimate with him. I was itchy and went to the doctor who diagnosed me with a yeast infection and prescribed me Diflucan. However, the itching did not stop after taking my medication so a week later I saw an OB/GYN to be tested for clamydia, gonorrhea,trich, yeast, and BV. It turns out I still had a yeat infection so once again they prescribed me diflucan, which didn't work. After this I started to have horrible bladder pains and urgency and urning of my urethra. I was then tested for herpes, which came back negative, and I was also told I may have IC (which to this day I might). Now by this time I feel disgusting for being tested for so many STDs but I refused to give up. I traveled from doctor to doctor and got 0 answers until I saw Dr. Nyerjesy's group in Philadelphia. They gave me gabepentin for my nerve endings and they also prescribed this MIRACLE CREAM!!! It is an antidepressant/muscle relaxer cream that instantly takes the itching and burning away. I have finally found some relief and can enjoy my love life now and also enjoy going out and not worrying about scratching constantly. If anyone needs some advice feel free to contact me. I hope that this helps and I am glad I have found a place for support and a place to share my year-long struggle with this disorder that takes forever to diagnose.

Emmie0986

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Re: New member: My story

Post  lolainslacks on Tue Apr 19, 2011 11:35 pm

I'm glad to hear you finally found a solution to your problem. What is the name of this miracle cream? It sounds amazing, I'd like to ask my gynecologist about it when I see her next.

lolainslacks

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Re: New member: My story

Post  Emmie0986 on Wed Apr 20, 2011 2:20 pm

My cream is amitriptyline/baclofen cream and I use it twice daily. It really works well and it can be used up to four times daily so if you feel itchy still after using it twice you can use more. I hope this helps!
-Emmie

Emmie0986

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Re: New member: My story

Post  lolainslacks on Wed Apr 20, 2011 2:45 pm

Thank you! I'll be sure to mention it to my gyn. So does this cream numb you? Does it make pressure and penetration less painful?

lolainslacks

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Re: New member: My story

Post  Zazu on Wed Apr 20, 2011 2:47 pm

You might also want to ask about a gabapentin/lidocaine compound cream. Some people have had great success with it.

Zazu

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Re: New member: My story

Post  Emmie0986 on Wed Apr 20, 2011 6:25 pm

The cream that I take doesn't numb but it makes the after effects of sex (a little pain and pressure) much less noticeable. You can still feel and enjoy penetration but it takes away all the itching and burning. And to Zazu, yea I heard the lidocaine works really well but if your anything like me stay for away from a mixed benadryl ointment. I almost was put on lidocaine but my doctor thought benadryl would work better but all it did was burn me really really bad.

Emmie0986

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Re: New member: My story

Post  Zazu on Wed Apr 20, 2011 7:02 pm

I personally also found that the gabapentin/lidocaine cream caused more irritation and didn't make penetration possible, but different things seem to work for everyone. I'm glad you've found something that works for you!

Zazu

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Re: New member: My story

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