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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


New member: My story

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New member: My story

Post  Emmie0986 on Tue Apr 19, 2011 4:24 am

Hi all,
My name is Emmie and I am twenty years old and was just diagnosed with vulvodynia about a month ago. I am writing this to put my story out there so that if anyone has gone through similar experiences they can relate and use my story as some support.

It all started when I met my boyfriend of about a year now (it took me a year to get a right diagnosis). I was perfectly fine all my life until about a week after I was first intimate with him. I was itchy and went to the doctor who diagnosed me with a yeast infection and prescribed me Diflucan. However, the itching did not stop after taking my medication so a week later I saw an OB/GYN to be tested for clamydia, gonorrhea,trich, yeast, and BV. It turns out I still had a yeat infection so once again they prescribed me diflucan, which didn't work. After this I started to have horrible bladder pains and urgency and urning of my urethra. I was then tested for herpes, which came back negative, and I was also told I may have IC (which to this day I might). Now by this time I feel disgusting for being tested for so many STDs but I refused to give up. I traveled from doctor to doctor and got 0 answers until I saw Dr. Nyerjesy's group in Philadelphia. They gave me gabepentin for my nerve endings and they also prescribed this MIRACLE CREAM!!! It is an antidepressant/muscle relaxer cream that instantly takes the itching and burning away. I have finally found some relief and can enjoy my love life now and also enjoy going out and not worrying about scratching constantly. If anyone needs some advice feel free to contact me. I hope that this helps and I am glad I have found a place for support and a place to share my year-long struggle with this disorder that takes forever to diagnose.

Emmie0986

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Re: New member: My story

Post  lolainslacks on Tue Apr 19, 2011 11:35 pm

I'm glad to hear you finally found a solution to your problem. What is the name of this miracle cream? It sounds amazing, I'd like to ask my gynecologist about it when I see her next.

lolainslacks

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Re: New member: My story

Post  Emmie0986 on Wed Apr 20, 2011 2:20 pm

My cream is amitriptyline/baclofen cream and I use it twice daily. It really works well and it can be used up to four times daily so if you feel itchy still after using it twice you can use more. I hope this helps!
-Emmie

Emmie0986

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Re: New member: My story

Post  lolainslacks on Wed Apr 20, 2011 2:45 pm

Thank you! I'll be sure to mention it to my gyn. So does this cream numb you? Does it make pressure and penetration less painful?

lolainslacks

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Re: New member: My story

Post  Zazu on Wed Apr 20, 2011 2:47 pm

You might also want to ask about a gabapentin/lidocaine compound cream. Some people have had great success with it.

Zazu

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Location : Canada

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Re: New member: My story

Post  Emmie0986 on Wed Apr 20, 2011 6:25 pm

The cream that I take doesn't numb but it makes the after effects of sex (a little pain and pressure) much less noticeable. You can still feel and enjoy penetration but it takes away all the itching and burning. And to Zazu, yea I heard the lidocaine works really well but if your anything like me stay for away from a mixed benadryl ointment. I almost was put on lidocaine but my doctor thought benadryl would work better but all it did was burn me really really bad.

Emmie0986

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Re: New member: My story

Post  Zazu on Wed Apr 20, 2011 7:02 pm

I personally also found that the gabapentin/lidocaine cream caused more irritation and didn't make penetration possible, but different things seem to work for everyone. I'm glad you've found something that works for you!

Zazu

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Re: New member: My story

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