Log in

I forgot my password

Latest topics
» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Ureathra and clitoral pain

Go down

Ureathra and clitoral pain

Post  Aussie on Wed Apr 20, 2011 4:47 am

Hi Guys,

Since I came back from Adalaide I have not suffered with this except from once because Marek desensitised the trigger points around the ureathra and bladder neck.

It has come back in full force with that horrible burning heavy bladder feeling and frequency it feels like someone is trying to stick a tooth pick up my wee hole Sad

Any tips to get rid of this? I don't see my physio for another week and I am not game enough to get my husband to try and get to those trigger points it is way more sensitive than the ones in the vagina.

Help...it hurts too much to bear.

Aussie

Posts : 227
Join date : 2011-03-15
Age : 29
Location : Queensland, Australia

View user profile

Back to top Go down

Re: Ureathra and clitoral pain

Post  Zazu on Wed Apr 20, 2011 2:35 pm

Hi hon,
I'm so sorry to hear that you're hurting so much. It sounds like at least a urinary tract infection ... sounds like you should see a doc or even go to emerg. Is there burning when you go, and horrible pressure after? Have you had this before? If so, you might want to investigate interstitial cystitis.
Hope it gets figured out asap!

Zazu

Posts : 64
Join date : 2011-04-05
Location : Canada

View user profile

Back to top Go down

Re: Ureathra and clitoral pain

Post  Sarah001 on Wed Apr 20, 2011 8:15 pm

I had that exact pain when my V first started, I used to describe it as a knitting needle in the urethra though. I don't know what to say about the trigger points though as I've not had mine done there. Do you think switching from relaxing to strengthening has set this off? Was it too soon to start the strengthening after all?
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Ureathra and clitoral pain

Post  Aussie on Tue May 10, 2011 6:34 am

no I have had this one on and off for a while. Seems to coninside with my period. I have not changed the approach I am not doing strengthening yet. Hope you are well Sarah

Aussie

Posts : 227
Join date : 2011-03-15
Age : 29
Location : Queensland, Australia

View user profile

Back to top Go down

Re: Ureathra and clitoral pain

Post  Sarah001 on Tue May 10, 2011 11:53 am

Apologies I thought you'd switched to strengthening with a different PT. I'm still trying to get back to physio myself and want my physio to start helping me relearn how to use the deep stabilisers functionally so I'll update when I finally get there! Do you have very stingy painful areas either side of the urethra? I have those and have no idea what to do with them, I went through a phase of thinking they were the skene's glands but I'm not sure if they are now.
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Ureathra and clitoral pain

Post  Aussie on Thu May 12, 2011 11:12 pm

Hi Sarah,

Those stingy points either side of your urethra will be the trigger points there. I have got my Husband releasing them now for me in between physio appointments. I went to physio yesterday and she said my trigger points were releasing so quickly and asked what I had been doing. I told her my Husband was doing the trigger points and internal massage daily for me. She said KEEP GOING it's working. Smile Get your physio to get some lidocane on the urethra even put it inside and then do the trigger point work. Trust me if you haven’t had these touched before do not try and do it without lidocane, it is murder. After a while you won't need to use the lidocane and they should start releasing slowly.

Best of luck! xxx

Aussie

Posts : 227
Join date : 2011-03-15
Age : 29
Location : Queensland, Australia

View user profile

Back to top Go down

Re: Ureathra and clitoral pain

Post  Sarah001 on Mon May 16, 2011 11:17 am

Thanks for that, is your huband doing a press and hold technique on your trigger points or a massage method? I've got horrible pain in the superficial pelvic floor muscles which causes stinging, nerve pain, aching and soreness when they are pressed but they don't seem to be releasing very well (tightening up immediately afterwards because of my loose SI joints is more like it). Oddly my left side feels really tight but the right side isn't at all, exactly the same thing I have going on with my external muscles around the pelvis too.
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Ureathra and clitoral pain

Post  Aussie on Tue May 17, 2011 1:19 am

Same with me, one side is worse than the other. Mine seem to tighten up immediately after but not to the extent they were prior to the trigger point work.

My Husband uses press and hold, but on the real sore ones he might give a bit of a massage. I am in tears sometimes with the ureathra ones but it is working. I know when I get to physio and she has a feel, they release quicker each time but it is getting them to not tighten up again in the first place that I am struggeling with.

I saw an SI Belt in my physio's office last time I may ask her about it. On the plus side I am on my period and no ureathra or bladder pain! that is a first. Hubby must be doing something right. Poor thing, feel so bad for him.

Hope you are having a pain free day Sarah xxx

Aussie

Posts : 227
Join date : 2011-03-15
Age : 29
Location : Queensland, Australia

View user profile

Back to top Go down

help

Post  annaCA on Sat Jun 04, 2011 8:50 pm

Did you find any temporary things that helped with the heavy bladder feeling? I thought I had a UTI, but the test came back negative and I don't have pain while peeing. It is quite uncomfortable and I am also about to have my period.

annaCA

Posts : 8
Join date : 2011-05-16

View user profile

Back to top Go down

Anna

Post  Aussie on Sat Jun 04, 2011 9:59 pm

hi Anna, my bladder pain always comes around my period too. As for the clitoral and ureathra pain, i tried coming off lyrica and not had pain there since. It is still sensitive to touch but i have not had provoked pain there in 20 days and counting. To relieve bladder pain hot water bottle is best and avoid trigger foods. i recently went0to urogyne and she has given me oxytrol patch to relieve spazms in bladder causing pain and frequency. It has helped with both. Bladder was only holding 200ml before i thought i was going to burst. Now holding 350 and only been two days. Good luck x

Aussie

Posts : 227
Join date : 2011-03-15
Age : 29
Location : Queensland, Australia

View user profile

Back to top Go down

Re: Ureathra and clitoral pain

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum