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» Vestibulectomy today and no pain
Today at 3:28 pm by Dsrt16

» vestibulectomy success
Yesterday at 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Yesterday at 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Yesterday at 12:01 am by Jgreen81

» Vulvodynia help
Wed Nov 15, 2017 1:04 pm by ekaterina1996

» FACEBOOK VULVODYNIA SUPPORT GROUP (SECRET)
Tue Nov 14, 2017 9:53 pm by Dsrt16

» Needing some reassurance
Sun Nov 12, 2017 3:04 pm by Nicmay

» Vulvodynia burning mouth and bladder discomfort
Fri Nov 10, 2017 7:26 pm by Zbrown

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Ureathra and clitoral pain

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Ureathra and clitoral pain

Post  Aussie on Wed Apr 20, 2011 4:47 am

Hi Guys,

Since I came back from Adalaide I have not suffered with this except from once because Marek desensitised the trigger points around the ureathra and bladder neck.

It has come back in full force with that horrible burning heavy bladder feeling and frequency it feels like someone is trying to stick a tooth pick up my wee hole Sad

Any tips to get rid of this? I don't see my physio for another week and I am not game enough to get my husband to try and get to those trigger points it is way more sensitive than the ones in the vagina.

Help...it hurts too much to bear.

Aussie

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Re: Ureathra and clitoral pain

Post  Zazu on Wed Apr 20, 2011 2:35 pm

Hi hon,
I'm so sorry to hear that you're hurting so much. It sounds like at least a urinary tract infection ... sounds like you should see a doc or even go to emerg. Is there burning when you go, and horrible pressure after? Have you had this before? If so, you might want to investigate interstitial cystitis.
Hope it gets figured out asap!

Zazu

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Re: Ureathra and clitoral pain

Post  Sarah001 on Wed Apr 20, 2011 8:15 pm

I had that exact pain when my V first started, I used to describe it as a knitting needle in the urethra though. I don't know what to say about the trigger points though as I've not had mine done there. Do you think switching from relaxing to strengthening has set this off? Was it too soon to start the strengthening after all?
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Re: Ureathra and clitoral pain

Post  Aussie on Tue May 10, 2011 6:34 am

no I have had this one on and off for a while. Seems to coninside with my period. I have not changed the approach I am not doing strengthening yet. Hope you are well Sarah

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Re: Ureathra and clitoral pain

Post  Sarah001 on Tue May 10, 2011 11:53 am

Apologies I thought you'd switched to strengthening with a different PT. I'm still trying to get back to physio myself and want my physio to start helping me relearn how to use the deep stabilisers functionally so I'll update when I finally get there! Do you have very stingy painful areas either side of the urethra? I have those and have no idea what to do with them, I went through a phase of thinking they were the skene's glands but I'm not sure if they are now.
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Re: Ureathra and clitoral pain

Post  Aussie on Thu May 12, 2011 11:12 pm

Hi Sarah,

Those stingy points either side of your urethra will be the trigger points there. I have got my Husband releasing them now for me in between physio appointments. I went to physio yesterday and she said my trigger points were releasing so quickly and asked what I had been doing. I told her my Husband was doing the trigger points and internal massage daily for me. She said KEEP GOING it's working. Smile Get your physio to get some lidocane on the urethra even put it inside and then do the trigger point work. Trust me if you haven’t had these touched before do not try and do it without lidocane, it is murder. After a while you won't need to use the lidocane and they should start releasing slowly.

Best of luck! xxx

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Re: Ureathra and clitoral pain

Post  Sarah001 on Mon May 16, 2011 11:17 am

Thanks for that, is your huband doing a press and hold technique on your trigger points or a massage method? I've got horrible pain in the superficial pelvic floor muscles which causes stinging, nerve pain, aching and soreness when they are pressed but they don't seem to be releasing very well (tightening up immediately afterwards because of my loose SI joints is more like it). Oddly my left side feels really tight but the right side isn't at all, exactly the same thing I have going on with my external muscles around the pelvis too.
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Re: Ureathra and clitoral pain

Post  Aussie on Tue May 17, 2011 1:19 am

Same with me, one side is worse than the other. Mine seem to tighten up immediately after but not to the extent they were prior to the trigger point work.

My Husband uses press and hold, but on the real sore ones he might give a bit of a massage. I am in tears sometimes with the ureathra ones but it is working. I know when I get to physio and she has a feel, they release quicker each time but it is getting them to not tighten up again in the first place that I am struggeling with.

I saw an SI Belt in my physio's office last time I may ask her about it. On the plus side I am on my period and no ureathra or bladder pain! that is a first. Hubby must be doing something right. Poor thing, feel so bad for him.

Hope you are having a pain free day Sarah xxx

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help

Post  annaCA on Sat Jun 04, 2011 8:50 pm

Did you find any temporary things that helped with the heavy bladder feeling? I thought I had a UTI, but the test came back negative and I don't have pain while peeing. It is quite uncomfortable and I am also about to have my period.

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Anna

Post  Aussie on Sat Jun 04, 2011 9:59 pm

hi Anna, my bladder pain always comes around my period too. As for the clitoral and ureathra pain, i tried coming off lyrica and not had pain there since. It is still sensitive to touch but i have not had provoked pain there in 20 days and counting. To relieve bladder pain hot water bottle is best and avoid trigger foods. i recently went0to urogyne and she has given me oxytrol patch to relieve spazms in bladder causing pain and frequency. It has helped with both. Bladder was only holding 200ml before i thought i was going to burst. Now holding 350 and only been two days. Good luck x

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Re: Ureathra and clitoral pain

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