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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Ureathra and clitoral pain

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Ureathra and clitoral pain

Post  Aussie on Wed Apr 20, 2011 4:47 am

Hi Guys,

Since I came back from Adalaide I have not suffered with this except from once because Marek desensitised the trigger points around the ureathra and bladder neck.

It has come back in full force with that horrible burning heavy bladder feeling and frequency it feels like someone is trying to stick a tooth pick up my wee hole Sad

Any tips to get rid of this? I don't see my physio for another week and I am not game enough to get my husband to try and get to those trigger points it is way more sensitive than the ones in the vagina.

Help...it hurts too much to bear.

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Re: Ureathra and clitoral pain

Post  Zazu on Wed Apr 20, 2011 2:35 pm

Hi hon,
I'm so sorry to hear that you're hurting so much. It sounds like at least a urinary tract infection ... sounds like you should see a doc or even go to emerg. Is there burning when you go, and horrible pressure after? Have you had this before? If so, you might want to investigate interstitial cystitis.
Hope it gets figured out asap!

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Re: Ureathra and clitoral pain

Post  Sarah001 on Wed Apr 20, 2011 8:15 pm

I had that exact pain when my V first started, I used to describe it as a knitting needle in the urethra though. I don't know what to say about the trigger points though as I've not had mine done there. Do you think switching from relaxing to strengthening has set this off? Was it too soon to start the strengthening after all?
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Re: Ureathra and clitoral pain

Post  Aussie on Tue May 10, 2011 6:34 am

no I have had this one on and off for a while. Seems to coninside with my period. I have not changed the approach I am not doing strengthening yet. Hope you are well Sarah

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Re: Ureathra and clitoral pain

Post  Sarah001 on Tue May 10, 2011 11:53 am

Apologies I thought you'd switched to strengthening with a different PT. I'm still trying to get back to physio myself and want my physio to start helping me relearn how to use the deep stabilisers functionally so I'll update when I finally get there! Do you have very stingy painful areas either side of the urethra? I have those and have no idea what to do with them, I went through a phase of thinking they were the skene's glands but I'm not sure if they are now.
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Re: Ureathra and clitoral pain

Post  Aussie on Thu May 12, 2011 11:12 pm

Hi Sarah,

Those stingy points either side of your urethra will be the trigger points there. I have got my Husband releasing them now for me in between physio appointments. I went to physio yesterday and she said my trigger points were releasing so quickly and asked what I had been doing. I told her my Husband was doing the trigger points and internal massage daily for me. She said KEEP GOING it's working. Smile Get your physio to get some lidocane on the urethra even put it inside and then do the trigger point work. Trust me if you haven’t had these touched before do not try and do it without lidocane, it is murder. After a while you won't need to use the lidocane and they should start releasing slowly.

Best of luck! xxx

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Re: Ureathra and clitoral pain

Post  Sarah001 on Mon May 16, 2011 11:17 am

Thanks for that, is your huband doing a press and hold technique on your trigger points or a massage method? I've got horrible pain in the superficial pelvic floor muscles which causes stinging, nerve pain, aching and soreness when they are pressed but they don't seem to be releasing very well (tightening up immediately afterwards because of my loose SI joints is more like it). Oddly my left side feels really tight but the right side isn't at all, exactly the same thing I have going on with my external muscles around the pelvis too.
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Re: Ureathra and clitoral pain

Post  Aussie on Tue May 17, 2011 1:19 am

Same with me, one side is worse than the other. Mine seem to tighten up immediately after but not to the extent they were prior to the trigger point work.

My Husband uses press and hold, but on the real sore ones he might give a bit of a massage. I am in tears sometimes with the ureathra ones but it is working. I know when I get to physio and she has a feel, they release quicker each time but it is getting them to not tighten up again in the first place that I am struggeling with.

I saw an SI Belt in my physio's office last time I may ask her about it. On the plus side I am on my period and no ureathra or bladder pain! that is a first. Hubby must be doing something right. Poor thing, feel so bad for him.

Hope you are having a pain free day Sarah xxx

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help

Post  annaCA on Sat Jun 04, 2011 8:50 pm

Did you find any temporary things that helped with the heavy bladder feeling? I thought I had a UTI, but the test came back negative and I don't have pain while peeing. It is quite uncomfortable and I am also about to have my period.

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Anna

Post  Aussie on Sat Jun 04, 2011 9:59 pm

hi Anna, my bladder pain always comes around my period too. As for the clitoral and ureathra pain, i tried coming off lyrica and not had pain there since. It is still sensitive to touch but i have not had provoked pain there in 20 days and counting. To relieve bladder pain hot water bottle is best and avoid trigger foods. i recently went0to urogyne and she has given me oxytrol patch to relieve spazms in bladder causing pain and frequency. It has helped with both. Bladder was only holding 200ml before i thought i was going to burst. Now holding 350 and only been two days. Good luck x

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Re: Ureathra and clitoral pain

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