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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

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New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Ureathra and clitoral pain

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Ureathra and clitoral pain

Post  Aussie on Wed Apr 20, 2011 4:47 am

Hi Guys,

Since I came back from Adalaide I have not suffered with this except from once because Marek desensitised the trigger points around the ureathra and bladder neck.

It has come back in full force with that horrible burning heavy bladder feeling and frequency it feels like someone is trying to stick a tooth pick up my wee hole Sad

Any tips to get rid of this? I don't see my physio for another week and I am not game enough to get my husband to try and get to those trigger points it is way more sensitive than the ones in the vagina.

Help...it hurts too much to bear.

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Re: Ureathra and clitoral pain

Post  Zazu on Wed Apr 20, 2011 2:35 pm

Hi hon,
I'm so sorry to hear that you're hurting so much. It sounds like at least a urinary tract infection ... sounds like you should see a doc or even go to emerg. Is there burning when you go, and horrible pressure after? Have you had this before? If so, you might want to investigate interstitial cystitis.
Hope it gets figured out asap!

Zazu

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Re: Ureathra and clitoral pain

Post  Sarah001 on Wed Apr 20, 2011 8:15 pm

I had that exact pain when my V first started, I used to describe it as a knitting needle in the urethra though. I don't know what to say about the trigger points though as I've not had mine done there. Do you think switching from relaxing to strengthening has set this off? Was it too soon to start the strengthening after all?
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Re: Ureathra and clitoral pain

Post  Aussie on Tue May 10, 2011 6:34 am

no I have had this one on and off for a while. Seems to coninside with my period. I have not changed the approach I am not doing strengthening yet. Hope you are well Sarah

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Re: Ureathra and clitoral pain

Post  Sarah001 on Tue May 10, 2011 11:53 am

Apologies I thought you'd switched to strengthening with a different PT. I'm still trying to get back to physio myself and want my physio to start helping me relearn how to use the deep stabilisers functionally so I'll update when I finally get there! Do you have very stingy painful areas either side of the urethra? I have those and have no idea what to do with them, I went through a phase of thinking they were the skene's glands but I'm not sure if they are now.
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Re: Ureathra and clitoral pain

Post  Aussie on Thu May 12, 2011 11:12 pm

Hi Sarah,

Those stingy points either side of your urethra will be the trigger points there. I have got my Husband releasing them now for me in between physio appointments. I went to physio yesterday and she said my trigger points were releasing so quickly and asked what I had been doing. I told her my Husband was doing the trigger points and internal massage daily for me. She said KEEP GOING it's working. Smile Get your physio to get some lidocane on the urethra even put it inside and then do the trigger point work. Trust me if you haven’t had these touched before do not try and do it without lidocane, it is murder. After a while you won't need to use the lidocane and they should start releasing slowly.

Best of luck! xxx

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Re: Ureathra and clitoral pain

Post  Sarah001 on Mon May 16, 2011 11:17 am

Thanks for that, is your huband doing a press and hold technique on your trigger points or a massage method? I've got horrible pain in the superficial pelvic floor muscles which causes stinging, nerve pain, aching and soreness when they are pressed but they don't seem to be releasing very well (tightening up immediately afterwards because of my loose SI joints is more like it). Oddly my left side feels really tight but the right side isn't at all, exactly the same thing I have going on with my external muscles around the pelvis too.
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Re: Ureathra and clitoral pain

Post  Aussie on Tue May 17, 2011 1:19 am

Same with me, one side is worse than the other. Mine seem to tighten up immediately after but not to the extent they were prior to the trigger point work.

My Husband uses press and hold, but on the real sore ones he might give a bit of a massage. I am in tears sometimes with the ureathra ones but it is working. I know when I get to physio and she has a feel, they release quicker each time but it is getting them to not tighten up again in the first place that I am struggeling with.

I saw an SI Belt in my physio's office last time I may ask her about it. On the plus side I am on my period and no ureathra or bladder pain! that is a first. Hubby must be doing something right. Poor thing, feel so bad for him.

Hope you are having a pain free day Sarah xxx

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help

Post  annaCA on Sat Jun 04, 2011 8:50 pm

Did you find any temporary things that helped with the heavy bladder feeling? I thought I had a UTI, but the test came back negative and I don't have pain while peeing. It is quite uncomfortable and I am also about to have my period.

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Anna

Post  Aussie on Sat Jun 04, 2011 9:59 pm

hi Anna, my bladder pain always comes around my period too. As for the clitoral and ureathra pain, i tried coming off lyrica and not had pain there since. It is still sensitive to touch but i have not had provoked pain there in 20 days and counting. To relieve bladder pain hot water bottle is best and avoid trigger foods. i recently went0to urogyne and she has given me oxytrol patch to relieve spazms in bladder causing pain and frequency. It has helped with both. Bladder was only holding 200ml before i thought i was going to burst. Now holding 350 and only been two days. Good luck x

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