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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Just want to share my symptom...are yours the same?

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Just want to share my symptom...are yours the same?

Post  sleeplessnights on Thu Apr 21, 2011 12:37 pm

Hi again,
I read a lot of the post and I know I'm in the right spot. Do some of you get anxious,feel that maybe the were wrongly diagnosed all kinds of thing like that..I went through all the hoops with urology,neurology always neg testing....stil in pain..finally obgym said vulvodynia...Ok I beleive him and he is kind and really want to bring me back to a normal life again.

My symptoms to me feels like my urethra is always burning..and tissues around it , not so much the labia parts...if my urine is concentrated it burn to pee and it burns a lot for a good 15 minutes after...I get sharp jabs shooting here and there...when I'm really bad I had jabs in my butt...
In the morning things are somewhat calm down there but as the day progresses it get worse..
exercice is out of question for now..the more i walk the worse it is. Cant have anything rub me.

so are these symptoms like any of you girls...I just want some feedback so that I know I.\'m not going crazy and my head wounders everywhere.....
Thanks a bunch scratch

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Re: Just want to share my symptom...are yours the same?

Post  Sebby (Admin) on Thu Apr 21, 2011 7:31 pm

Hi hun

I can get pain just about anywhere within the vulval area.

it is mainly the Vestibule part but over the last 6 months or so I have developed stinging and tenderness around the urethra. It got so bad once I had to take a good look lol and it looked red (Im not sure if it was suppossed to be lol as I had never really looked at that part before) and when I touched the tissues it was soooo stingy! It kinda comes and goes. but of course anything rubbing the area when it is sore, makes it flare up. Im gonna ask at my vulval clinic appt about this


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Re: Just want to share my symptom...are yours the same?

Post  itchyandscratchy on Sun Apr 24, 2011 6:56 pm

I can relate your anxiety about the vulvodyina diagnosis. The problem is that the diagnosis is just a description of symptoms and doesn't indicate the cause, so we are always left wondering whether some underlying issue has been overlooked. I was sure when I was diagnosed that really I had a yeast infection, as I had exactly the same symptoms as when I had them many times before. However, the last test came back negative so it was diagnosed as vulvodynia. I've since read theories about candida (the cause of yeast infections) turning into its 'red form' and burrowing under the skin, continuing to cause irritation but leading to negative test results and I think this may be what's going on, as the symptoms still respond to antifungals (e.g. drinking cinnamon tea).

As to my symptoms: I get itching or burning pain (which increases with any kind of contact) around my vulva and anus. I also get lower abdominal pain and digestive discomfort at the same time usually. Sometimes I get the UTI-like symtoms around the urethra you describe when peeing also, it comes and goes.

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Re: Just want to share my symptom...are yours the same?

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