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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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Just want to share my symptom...are yours the same?

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Just want to share my symptom...are yours the same?

Post  sleeplessnights on Thu Apr 21, 2011 12:37 pm

Hi again,
I read a lot of the post and I know I'm in the right spot. Do some of you get anxious,feel that maybe the were wrongly diagnosed all kinds of thing like that..I went through all the hoops with urology,neurology always neg testing....stil in pain..finally obgym said vulvodynia...Ok I beleive him and he is kind and really want to bring me back to a normal life again.

My symptoms to me feels like my urethra is always burning..and tissues around it , not so much the labia parts...if my urine is concentrated it burn to pee and it burns a lot for a good 15 minutes after...I get sharp jabs shooting here and there...when I'm really bad I had jabs in my butt...
In the morning things are somewhat calm down there but as the day progresses it get worse..
exercice is out of question for now..the more i walk the worse it is. Cant have anything rub me.

so are these symptoms like any of you girls...I just want some feedback so that I know I.\'m not going crazy and my head wounders everywhere.....
Thanks a bunch scratch

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Re: Just want to share my symptom...are yours the same?

Post  Sebby (Admin) on Thu Apr 21, 2011 7:31 pm

Hi hun

I can get pain just about anywhere within the vulval area.

it is mainly the Vestibule part but over the last 6 months or so I have developed stinging and tenderness around the urethra. It got so bad once I had to take a good look lol and it looked red (Im not sure if it was suppossed to be lol as I had never really looked at that part before) and when I touched the tissues it was soooo stingy! It kinda comes and goes. but of course anything rubbing the area when it is sore, makes it flare up. Im gonna ask at my vulval clinic appt about this


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Re: Just want to share my symptom...are yours the same?

Post  itchyandscratchy on Sun Apr 24, 2011 6:56 pm

I can relate your anxiety about the vulvodyina diagnosis. The problem is that the diagnosis is just a description of symptoms and doesn't indicate the cause, so we are always left wondering whether some underlying issue has been overlooked. I was sure when I was diagnosed that really I had a yeast infection, as I had exactly the same symptoms as when I had them many times before. However, the last test came back negative so it was diagnosed as vulvodynia. I've since read theories about candida (the cause of yeast infections) turning into its 'red form' and burrowing under the skin, continuing to cause irritation but leading to negative test results and I think this may be what's going on, as the symptoms still respond to antifungals (e.g. drinking cinnamon tea).

As to my symptoms: I get itching or burning pain (which increases with any kind of contact) around my vulva and anus. I also get lower abdominal pain and digestive discomfort at the same time usually. Sometimes I get the UTI-like symtoms around the urethra you describe when peeing also, it comes and goes.

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Re: Just want to share my symptom...are yours the same?

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