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» I think I've developed vulvodynia?? Please help!
Yesterday at 9:10 pm by Necromeowncer

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:38 pm by Mel T

» New w/ Secondary Provoked Vestibuldynia
Sun Oct 22, 2017 3:47 am by Birdy

» Newly diagnosed
Sat Oct 21, 2017 9:50 pm by sarisbaris

» Prednisone Injections?
Wed Oct 18, 2017 5:07 am by sarisbaris

» Has anyone had continued success with gabapentin or Botox injections?
Wed Oct 18, 2017 4:47 am by sarisbaris

» Recent "Poke" Pain - So Confused/Losing My Mind
Wed Oct 18, 2017 2:37 am by sarisbaris

» What is Vulvodynia?
Tue Oct 17, 2017 11:57 pm by Jenjen

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Mon Oct 16, 2017 2:22 am by Sagewoman

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Just want to share my symptom...are yours the same?

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Just want to share my symptom...are yours the same?

Post  sleeplessnights on Thu Apr 21, 2011 12:37 pm

Hi again,
I read a lot of the post and I know I'm in the right spot. Do some of you get anxious,feel that maybe the were wrongly diagnosed all kinds of thing like that..I went through all the hoops with urology,neurology always neg testing....stil in pain..finally obgym said vulvodynia...Ok I beleive him and he is kind and really want to bring me back to a normal life again.

My symptoms to me feels like my urethra is always burning..and tissues around it , not so much the labia parts...if my urine is concentrated it burn to pee and it burns a lot for a good 15 minutes after...I get sharp jabs shooting here and there...when I'm really bad I had jabs in my butt...
In the morning things are somewhat calm down there but as the day progresses it get worse..
exercice is out of question for now..the more i walk the worse it is. Cant have anything rub me.

so are these symptoms like any of you girls...I just want some feedback so that I know I.\'m not going crazy and my head wounders everywhere.....
Thanks a bunch scratch
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Re: Just want to share my symptom...are yours the same?

Post  Sebby (Admin) on Thu Apr 21, 2011 7:31 pm


Hi hun

I can get pain just about anywhere within the vulval area.

it is mainly the Vestibule part but over the last 6 months or so I have developed stinging and tenderness around the urethra. It got so bad once I had to take a good look lol and it looked red (Im not sure if it was suppossed to be lol as I had never really looked at that part before) and when I touched the tissues it was soooo stingy! It kinda comes and goes. but of course anything rubbing the area when it is sore, makes it flare up. Im gonna ask at my vulval clinic appt about this


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Re: Just want to share my symptom...are yours the same?

Post  itchyandscratchy on Sun Apr 24, 2011 6:56 pm

I can relate your anxiety about the vulvodyina diagnosis. The problem is that the diagnosis is just a description of symptoms and doesn't indicate the cause, so we are always left wondering whether some underlying issue has been overlooked. I was sure when I was diagnosed that really I had a yeast infection, as I had exactly the same symptoms as when I had them many times before. However, the last test came back negative so it was diagnosed as vulvodynia. I've since read theories about candida (the cause of yeast infections) turning into its 'red form' and burrowing under the skin, continuing to cause irritation but leading to negative test results and I think this may be what's going on, as the symptoms still respond to antifungals (e.g. drinking cinnamon tea).

As to my symptoms: I get itching or burning pain (which increases with any kind of contact) around my vulva and anus. I also get lower abdominal pain and digestive discomfort at the same time usually. Sometimes I get the UTI-like symtoms around the urethra you describe when peeing also, it comes and goes.
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Re: Just want to share my symptom...are yours the same?

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