Log in

I forgot my password

Latest topics
» Vulvodynia is a secret
Today at 1:59 am by ryn207

» does anyone else have nocturnal itching?
Yesterday at 4:57 pm by aspaceodyssey

» Pressure to have sex.
Yesterday at 4:30 pm by aspaceodyssey

» Looking for a friend..... and new problems
Thu Jan 18, 2018 5:08 pm by PainBlogger

» Can you guys tell me your experiences with diflucan/Fluconazole?
Thu Jan 18, 2018 3:07 pm by RainyShay77

» Vestibulectomy today and no pain
Thu Jan 18, 2018 4:53 am by Sandra4372

» Reviews on Amy Stein's Book and Methods
Thu Jan 18, 2018 4:51 am by Sandra4372

» Dilator Discount Code
Thu Jan 18, 2018 4:48 am by Sandra4372

» Why don't more women know about pelvic pt?
Thu Jan 18, 2018 4:39 am by Sandra4372

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Is a biopsy necessary for diagnosis?

View previous topic View next topic Go down

Is a biopsy necessary for diagnosis?

Post  lolainslacks on Fri Apr 22, 2011 8:25 pm

I'm curious, as I know that vulvodynia is what I have but I have not been diagnosed yet. Before I had my hymen removed, I was sure that that was what was causing my pain. However, I also suspected some form of vulvodynia, because I knew that I had pain even without penetration (sitting, tight clothes, etc). I lied to my gynecologist about this, because I knew that if she thought I had vulvodynia she would assume that that was my only problem, and she wouldn't want to give me the hymenectomy. And I knew that I needed my hymen removed. I was right, because it turns out my hymen was much thicker than it should have been and would not have broken naturally.

Anyway, now that it's gone, I can rule it out as a source of pain and I know that I have vulvodynia, but I am worried about all of the 'testing' they apparently have to do to rule out other things. I'm wondering, is it possible for a doctor to diagnose and treat you for vulvodynia without doing a biopsy? If I tell her my history in detail, and tell her about the 'cotton swab/q-tip test' I performed on myself, etc, can she diagnose and treat me after simply hearing this info? I am terrified of getting a biopsy, because I assume you would have to have it done awake, which either means scraping/slicing my vagina (OUCH) or giving me a vaginal anaesthetic (ALSO OUCH). I can't face the idea of any more pain there, I just want to be given the lidocaine cream and skip all of this stuff. After years and years of pain, I can't handle any more.

If I've had vulvar pain all of my life, which I have, surely this means that it can't be some form of cancer, and a biospy wouldn't be necessary?

lolainslacks

Posts : 115
Join date : 2011-04-18

View user profile

Back to top Go down

Re: Is a biopsy necessary for diagnosis?

Post  Sarah001 on Sat Apr 23, 2011 12:54 pm

I was like you and absolutely terrified of a biopsy, the day I first went to see the vulvar dermatologist I doped myself up on painkillers and was so nervous I was shaking but then she said it wouldn't be necessary when I got there! It really depends on who you see, what there is to see in the vulval area and what the symptoms are. If you have itching it might make them think one is a good idea and if you have areas that could be a skin condition that might too. I have some red inflamed skin but it didn't look classicly like any skin condition and I didn't have itching so the dermatologist left it alone. There's several women on here who have had biopsies done though who will be able to discuss them with you.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Is a biopsy necessary for diagnosis?

Post  lolainslacks on Sat Apr 23, 2011 1:20 pm

Thank you, that eases my mind a little. There is really nothing to see down there in my case. Everything LOOKS normal. There is no redness, no inflammation, no swelling of any kind. And I have no itching. I would have thought that a biopsy would only be necessary if they suspected cancer of some kind, but surely they would only consider that as an option if the pain came out of nowhere after years of pain free sex? Whereas I've had pain all my life.

lolainslacks

Posts : 115
Join date : 2011-04-18

View user profile

Back to top Go down

Re: Is a biopsy necessary for diagnosis?

Post  Sarah001 on Sat Apr 23, 2011 4:14 pm

I would think having pain all your life would make it much less likely you'll need a biopsy. Mine came on suddenly after years of no pain and I still didn't have a biopsy done, it depends alot on what they can see. If you can't see anything at all it's very unlikely they'll think a biopsy is necessary. It's not just cancer they biopsy for, some skin conditions like Lichen Sclerosus are diagnosed through biopsies but again there would be something to see and itching for that. I doubt you'll be offered a biopsy in your situation.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Is a biopsy necessary for diagnosis?

Post  noni on Wed Apr 27, 2011 11:24 am

I went to 3 seperate dermatologists...one was a vulvar specialist.

At each appointment the doctor would perform a physical examination of the area and never once did they suggest a biopsy. If on the surface your tissue appears within normal range they most likely wont biopsy...I guess because it causes more pain and they just dont see it fitt for the situation.

According to them, my tissue is normal (whatever that means...I guess mild redness and swelling is normal?????)

Anyways...

avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 30
Location : Ontario

View user profile

Back to top Go down

Re: Is a biopsy necessary for diagnosis?

Post  jules on Fri Apr 29, 2011 2:30 am

Hello, all i had was some mild redness and swelling. after months and months of trying to figure out what was wrong w/ me, the doc did do a biopsy to rule out cancer and a skin disorder. I think it's just part of the process of trying to identify what disorder a woman may have. It's ruling out all possibilities. but, may not be necessary.

jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: Is a biopsy necessary for diagnosis?

Post  noni on Wed May 11, 2011 12:56 am

Just to add....

alot of biopsies show, at most, inflammation.

So, what does that mean ??!! Is it from yeast or nerve irritation?

avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 30
Location : Ontario

View user profile

Back to top Go down

Re: Is a biopsy necessary for diagnosis?

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum