Log in

I forgot my password

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Is a biopsy necessary for diagnosis?

View previous topic View next topic Go down

Is a biopsy necessary for diagnosis?

Post  lolainslacks on Fri Apr 22, 2011 8:25 pm

I'm curious, as I know that vulvodynia is what I have but I have not been diagnosed yet. Before I had my hymen removed, I was sure that that was what was causing my pain. However, I also suspected some form of vulvodynia, because I knew that I had pain even without penetration (sitting, tight clothes, etc). I lied to my gynecologist about this, because I knew that if she thought I had vulvodynia she would assume that that was my only problem, and she wouldn't want to give me the hymenectomy. And I knew that I needed my hymen removed. I was right, because it turns out my hymen was much thicker than it should have been and would not have broken naturally.

Anyway, now that it's gone, I can rule it out as a source of pain and I know that I have vulvodynia, but I am worried about all of the 'testing' they apparently have to do to rule out other things. I'm wondering, is it possible for a doctor to diagnose and treat you for vulvodynia without doing a biopsy? If I tell her my history in detail, and tell her about the 'cotton swab/q-tip test' I performed on myself, etc, can she diagnose and treat me after simply hearing this info? I am terrified of getting a biopsy, because I assume you would have to have it done awake, which either means scraping/slicing my vagina (OUCH) or giving me a vaginal anaesthetic (ALSO OUCH). I can't face the idea of any more pain there, I just want to be given the lidocaine cream and skip all of this stuff. After years and years of pain, I can't handle any more.

If I've had vulvar pain all of my life, which I have, surely this means that it can't be some form of cancer, and a biospy wouldn't be necessary?

lolainslacks

Posts : 115
Join date : 2011-04-18

View user profile

Back to top Go down

Re: Is a biopsy necessary for diagnosis?

Post  Sarah001 on Sat Apr 23, 2011 12:54 pm

I was like you and absolutely terrified of a biopsy, the day I first went to see the vulvar dermatologist I doped myself up on painkillers and was so nervous I was shaking but then she said it wouldn't be necessary when I got there! It really depends on who you see, what there is to see in the vulval area and what the symptoms are. If you have itching it might make them think one is a good idea and if you have areas that could be a skin condition that might too. I have some red inflamed skin but it didn't look classicly like any skin condition and I didn't have itching so the dermatologist left it alone. There's several women on here who have had biopsies done though who will be able to discuss them with you.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Is a biopsy necessary for diagnosis?

Post  lolainslacks on Sat Apr 23, 2011 1:20 pm

Thank you, that eases my mind a little. There is really nothing to see down there in my case. Everything LOOKS normal. There is no redness, no inflammation, no swelling of any kind. And I have no itching. I would have thought that a biopsy would only be necessary if they suspected cancer of some kind, but surely they would only consider that as an option if the pain came out of nowhere after years of pain free sex? Whereas I've had pain all my life.

lolainslacks

Posts : 115
Join date : 2011-04-18

View user profile

Back to top Go down

Re: Is a biopsy necessary for diagnosis?

Post  Sarah001 on Sat Apr 23, 2011 4:14 pm

I would think having pain all your life would make it much less likely you'll need a biopsy. Mine came on suddenly after years of no pain and I still didn't have a biopsy done, it depends alot on what they can see. If you can't see anything at all it's very unlikely they'll think a biopsy is necessary. It's not just cancer they biopsy for, some skin conditions like Lichen Sclerosus are diagnosed through biopsies but again there would be something to see and itching for that. I doubt you'll be offered a biopsy in your situation.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Is a biopsy necessary for diagnosis?

Post  noni on Wed Apr 27, 2011 11:24 am

I went to 3 seperate dermatologists...one was a vulvar specialist.

At each appointment the doctor would perform a physical examination of the area and never once did they suggest a biopsy. If on the surface your tissue appears within normal range they most likely wont biopsy...I guess because it causes more pain and they just dont see it fitt for the situation.

According to them, my tissue is normal (whatever that means...I guess mild redness and swelling is normal?????)

Anyways...

avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 29
Location : Ontario

View user profile

Back to top Go down

Re: Is a biopsy necessary for diagnosis?

Post  jules on Fri Apr 29, 2011 2:30 am

Hello, all i had was some mild redness and swelling. after months and months of trying to figure out what was wrong w/ me, the doc did do a biopsy to rule out cancer and a skin disorder. I think it's just part of the process of trying to identify what disorder a woman may have. It's ruling out all possibilities. but, may not be necessary.

jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: Is a biopsy necessary for diagnosis?

Post  noni on Wed May 11, 2011 12:56 am

Just to add....

alot of biopsies show, at most, inflammation.

So, what does that mean ??!! Is it from yeast or nerve irritation?

avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 29
Location : Ontario

View user profile

Back to top Go down

Re: Is a biopsy necessary for diagnosis?

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum