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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Is a biopsy necessary for diagnosis?

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Is a biopsy necessary for diagnosis?

Post  lolainslacks on Fri Apr 22, 2011 8:25 pm

I'm curious, as I know that vulvodynia is what I have but I have not been diagnosed yet. Before I had my hymen removed, I was sure that that was what was causing my pain. However, I also suspected some form of vulvodynia, because I knew that I had pain even without penetration (sitting, tight clothes, etc). I lied to my gynecologist about this, because I knew that if she thought I had vulvodynia she would assume that that was my only problem, and she wouldn't want to give me the hymenectomy. And I knew that I needed my hymen removed. I was right, because it turns out my hymen was much thicker than it should have been and would not have broken naturally.

Anyway, now that it's gone, I can rule it out as a source of pain and I know that I have vulvodynia, but I am worried about all of the 'testing' they apparently have to do to rule out other things. I'm wondering, is it possible for a doctor to diagnose and treat you for vulvodynia without doing a biopsy? If I tell her my history in detail, and tell her about the 'cotton swab/q-tip test' I performed on myself, etc, can she diagnose and treat me after simply hearing this info? I am terrified of getting a biopsy, because I assume you would have to have it done awake, which either means scraping/slicing my vagina (OUCH) or giving me a vaginal anaesthetic (ALSO OUCH). I can't face the idea of any more pain there, I just want to be given the lidocaine cream and skip all of this stuff. After years and years of pain, I can't handle any more.

If I've had vulvar pain all of my life, which I have, surely this means that it can't be some form of cancer, and a biospy wouldn't be necessary?

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Re: Is a biopsy necessary for diagnosis?

Post  Sarah001 on Sat Apr 23, 2011 12:54 pm

I was like you and absolutely terrified of a biopsy, the day I first went to see the vulvar dermatologist I doped myself up on painkillers and was so nervous I was shaking but then she said it wouldn't be necessary when I got there! It really depends on who you see, what there is to see in the vulval area and what the symptoms are. If you have itching it might make them think one is a good idea and if you have areas that could be a skin condition that might too. I have some red inflamed skin but it didn't look classicly like any skin condition and I didn't have itching so the dermatologist left it alone. There's several women on here who have had biopsies done though who will be able to discuss them with you.
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Re: Is a biopsy necessary for diagnosis?

Post  lolainslacks on Sat Apr 23, 2011 1:20 pm

Thank you, that eases my mind a little. There is really nothing to see down there in my case. Everything LOOKS normal. There is no redness, no inflammation, no swelling of any kind. And I have no itching. I would have thought that a biopsy would only be necessary if they suspected cancer of some kind, but surely they would only consider that as an option if the pain came out of nowhere after years of pain free sex? Whereas I've had pain all my life.

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Re: Is a biopsy necessary for diagnosis?

Post  Sarah001 on Sat Apr 23, 2011 4:14 pm

I would think having pain all your life would make it much less likely you'll need a biopsy. Mine came on suddenly after years of no pain and I still didn't have a biopsy done, it depends alot on what they can see. If you can't see anything at all it's very unlikely they'll think a biopsy is necessary. It's not just cancer they biopsy for, some skin conditions like Lichen Sclerosus are diagnosed through biopsies but again there would be something to see and itching for that. I doubt you'll be offered a biopsy in your situation.
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Re: Is a biopsy necessary for diagnosis?

Post  noni on Wed Apr 27, 2011 11:24 am

I went to 3 seperate dermatologists...one was a vulvar specialist.

At each appointment the doctor would perform a physical examination of the area and never once did they suggest a biopsy. If on the surface your tissue appears within normal range they most likely wont biopsy...I guess because it causes more pain and they just dont see it fitt for the situation.

According to them, my tissue is normal (whatever that means...I guess mild redness and swelling is normal?????)

Anyways...

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Re: Is a biopsy necessary for diagnosis?

Post  jules on Fri Apr 29, 2011 2:30 am

Hello, all i had was some mild redness and swelling. after months and months of trying to figure out what was wrong w/ me, the doc did do a biopsy to rule out cancer and a skin disorder. I think it's just part of the process of trying to identify what disorder a woman may have. It's ruling out all possibilities. but, may not be necessary.

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Re: Is a biopsy necessary for diagnosis?

Post  noni on Wed May 11, 2011 12:56 am

Just to add....

alot of biopsies show, at most, inflammation.

So, what does that mean ??!! Is it from yeast or nerve irritation?

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Re: Is a biopsy necessary for diagnosis?

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