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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Is a biopsy necessary for diagnosis?

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Is a biopsy necessary for diagnosis?

Post  lolainslacks on Fri Apr 22, 2011 8:25 pm

I'm curious, as I know that vulvodynia is what I have but I have not been diagnosed yet. Before I had my hymen removed, I was sure that that was what was causing my pain. However, I also suspected some form of vulvodynia, because I knew that I had pain even without penetration (sitting, tight clothes, etc). I lied to my gynecologist about this, because I knew that if she thought I had vulvodynia she would assume that that was my only problem, and she wouldn't want to give me the hymenectomy. And I knew that I needed my hymen removed. I was right, because it turns out my hymen was much thicker than it should have been and would not have broken naturally.

Anyway, now that it's gone, I can rule it out as a source of pain and I know that I have vulvodynia, but I am worried about all of the 'testing' they apparently have to do to rule out other things. I'm wondering, is it possible for a doctor to diagnose and treat you for vulvodynia without doing a biopsy? If I tell her my history in detail, and tell her about the 'cotton swab/q-tip test' I performed on myself, etc, can she diagnose and treat me after simply hearing this info? I am terrified of getting a biopsy, because I assume you would have to have it done awake, which either means scraping/slicing my vagina (OUCH) or giving me a vaginal anaesthetic (ALSO OUCH). I can't face the idea of any more pain there, I just want to be given the lidocaine cream and skip all of this stuff. After years and years of pain, I can't handle any more.

If I've had vulvar pain all of my life, which I have, surely this means that it can't be some form of cancer, and a biospy wouldn't be necessary?

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Re: Is a biopsy necessary for diagnosis?

Post  Sarah001 on Sat Apr 23, 2011 12:54 pm

I was like you and absolutely terrified of a biopsy, the day I first went to see the vulvar dermatologist I doped myself up on painkillers and was so nervous I was shaking but then she said it wouldn't be necessary when I got there! It really depends on who you see, what there is to see in the vulval area and what the symptoms are. If you have itching it might make them think one is a good idea and if you have areas that could be a skin condition that might too. I have some red inflamed skin but it didn't look classicly like any skin condition and I didn't have itching so the dermatologist left it alone. There's several women on here who have had biopsies done though who will be able to discuss them with you.
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Re: Is a biopsy necessary for diagnosis?

Post  lolainslacks on Sat Apr 23, 2011 1:20 pm

Thank you, that eases my mind a little. There is really nothing to see down there in my case. Everything LOOKS normal. There is no redness, no inflammation, no swelling of any kind. And I have no itching. I would have thought that a biopsy would only be necessary if they suspected cancer of some kind, but surely they would only consider that as an option if the pain came out of nowhere after years of pain free sex? Whereas I've had pain all my life.

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Re: Is a biopsy necessary for diagnosis?

Post  Sarah001 on Sat Apr 23, 2011 4:14 pm

I would think having pain all your life would make it much less likely you'll need a biopsy. Mine came on suddenly after years of no pain and I still didn't have a biopsy done, it depends alot on what they can see. If you can't see anything at all it's very unlikely they'll think a biopsy is necessary. It's not just cancer they biopsy for, some skin conditions like Lichen Sclerosus are diagnosed through biopsies but again there would be something to see and itching for that. I doubt you'll be offered a biopsy in your situation.
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Re: Is a biopsy necessary for diagnosis?

Post  noni on Wed Apr 27, 2011 11:24 am

I went to 3 seperate dermatologists...one was a vulvar specialist.

At each appointment the doctor would perform a physical examination of the area and never once did they suggest a biopsy. If on the surface your tissue appears within normal range they most likely wont biopsy...I guess because it causes more pain and they just dont see it fitt for the situation.

According to them, my tissue is normal (whatever that means...I guess mild redness and swelling is normal?????)

Anyways...

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Re: Is a biopsy necessary for diagnosis?

Post  jules on Fri Apr 29, 2011 2:30 am

Hello, all i had was some mild redness and swelling. after months and months of trying to figure out what was wrong w/ me, the doc did do a biopsy to rule out cancer and a skin disorder. I think it's just part of the process of trying to identify what disorder a woman may have. It's ruling out all possibilities. but, may not be necessary.

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Re: Is a biopsy necessary for diagnosis?

Post  noni on Wed May 11, 2011 12:56 am

Just to add....

alot of biopsies show, at most, inflammation.

So, what does that mean ??!! Is it from yeast or nerve irritation?

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Re: Is a biopsy necessary for diagnosis?

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