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» Struggling
Yesterday at 3:19 am by doublej

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Wed Dec 13, 2017 5:17 pm by Katiej

» Amitriptyline Success and new-found love
Mon Dec 11, 2017 2:47 am by hannah22

» Went Away and Came Back
Sun Dec 10, 2017 8:48 pm by lindsey_taylor

» Somebody please help me...
Sat Dec 09, 2017 5:46 pm by PainBlogger

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 09, 2017 4:40 pm by mary jane

» 7 years later and life looks bleak :(
Thu Dec 07, 2017 12:37 am by sarisbaris

» Laser or Botox Injections for treating vulvodynia
Wed Dec 06, 2017 6:04 am by sarisbaris

» difficult to treat vaginal infections, un-understanding docotrs
Wed Dec 06, 2017 2:52 am by RainyShay77

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Hormones and Regular Periods

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Hormones and Regular Periods

Post  lisa98 on Sun Apr 24, 2011 2:25 am

My period is 6 weeks late. Ive had a pregnancy test (might have transferred things during outercourse) which was negative and Im waiting for some blood test results. I usually have a very regular period, but i thought id ask you ladies how regular your cycles are- as a kind of test of how 'normal' all our hormone levels are. Has anyone had their levels of testosterone and other sex hormones tested? I haven't done any research into the influence of hormones on this condition so I dont really know what Im talking about. I did read that female hormones affect joint pain because around ovulation they make the ligaments holding the pelvis and other bones together relax, which comes in handy for childbirth but can exacerbate conditions based on hypermobility or wonkyness of joints. Why do our bodies have to be so damned complicated? Anyway, fingers crossed god isnt playing cruel jokes on me and giving me forced celibacy for 5 years as well as an accidental pregnancy.

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Re: Hormones and Regular Periods

Post  Sarah001 on Sun Apr 24, 2011 12:51 pm

I wanted my hormones tested but the doctor refused, my periods have got alot closer together in the last 2 years but as my Mum was fully menopausal at 45 and I'm almost 38 now I suspect it's my hormones starting to decrease because of that. It's right before and during a period when the ligaments get looser, mine are loose all the time anyway but at that time my pelvic joints are alot worse and more prone to dislocation than at other times. Do you have hypermobile joints normally?
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Re: Hormones and Regular Periods

Post  itchyandscratchy on Mon Apr 25, 2011 9:57 pm

I feel like hormones might have some effect on my condition also, I notice the cyclic patterns, but my doctor seems skeptical. Think I'll ask again if I can get my hormone levels tested, I'd just like to be able to rule it out if nothing else. You'd think doctors would be willing to check up on and test everything when they don't know the cause of a condition, but too often they're resistant to ideas they didn't come up with.
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Re: Hormones and Regular Periods

Post  Zazu on Tue Apr 26, 2011 2:50 pm

In the book 'When Sex Hurts' by Dr. Goldstein(s) and a psychologist whose name I forget, he says there are three underlying causes of provoked vestibulodynia (VVS). The first is nerve-related, the second is pelvic-floor related and the third is hormonally related. The science behind the last one is pretty interesting. Apparently, when we are all tiny embryos, our vestibules develop from different tissue than the vaginal tissue (I think it's related to the urinary tract system). This different tissue actually relies on testosterone to remain healthy. If you have low levels of testosterone, it can throw the tissue into crisis. One major cause of this is the birth control pill which binds to active testosterone in the blood and deactivates it. Apparently those of us who started on the pill from a young age (I was 15) have an astronomically higher chance of developing VVS (something like 900 x more likely). I'm writing this from memory so don't quote me on it but that's the gist. The Dr. has had a lot of success with hormone modulating creams which increase testosterone in the vestibule but also supply estrogen in the surrounding vaginal tissue. Anyway it seems pretty conclusive that hormones affect V.

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Re: Hormones and Regular Periods

Post  Sarah001 on Tue Apr 26, 2011 7:01 pm

It's infuriating isn't it? I've seen quite a few posts from women who improved using testosterone and oestrogen cream mixed but they are all from the U.S and not a single one from the U.K. My doctor was very, very reluctant to give me even oestrogen cream and ended up giving me pessaries instead which didn't work. I know for a fact she'd never consider giving me testosterone cream! I also started on the pill at 15 but haven't been on it for about 6 years now. I've also seen alot of women who took Yasmin with V and VVS and that was the last pill I was on too.
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Re: Hormones and Regular Periods

Post  Zazu on Wed Apr 27, 2011 4:08 pm

Wow, I was on Yasmin too!!

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Re: Hormones and Regular Periods

Post  itchyandscratchy on Wed Apr 27, 2011 5:40 pm

Did a quick search for "low tesosterone in women" - this is the first result http://www.buzzle.com/articles/symptoms-of-low-testosterone-in-women.html

Pretty interesting, dryness and pain during sex are apparently symptoms of low tesosterone in women, but it sounds like the research is pretty cutting edge.

That book sounds really interesting Zazu, think I'll look into getting a copy.
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Re: Hormones and Regular Periods

Post  Sarah001 on Wed Apr 27, 2011 11:37 pm

My copy of that book is winging its way to me right now from Amazon! Another to add to the collection. Andrew Goldstein wrote the foreword in Amy Stein's Heal Pelvic Pain, I posted a link to it somewhere on here, can't remember where but if you find the link you can read what he thinks about treating V with physiotherapy. Or read it in Amy Stein's book of course if you have it!
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Re: Hormones and Regular Periods

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