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Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

How do you use lidocaine gel?

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How do you use lidocaine gel?

Post  lolainslacks on Wed Apr 27, 2011 8:41 pm

Sorry to be posting so much, I know I jusk asked a question about lidocaine gel, but I have another important one. How do you use it? I'm having a slight panic, becase I was looking up some info online and I saw a question on Yahoo Answers about using it during sex and there were a lot of people saying that you CANNOT put it inside the vagina. Is this true? Because my pain is not external, it is just inside the entrance, and that is where I need to apply the gel when I get it tomorrow. It didn't occur to me until now that you might only be supposed to use it externally.

Please can someone tell me it's okay to use internally? If not I am totally fucked.


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Re: How do you use lidocaine gel?

Post  Sarah001 on Wed Apr 27, 2011 11:31 pm

Personally I didn't get on with it but there are lots of ladies on www.vulvarvestibulitisrelief.com who have used it and lots of them were advised to soak a cotton ball and insert it just inside the vaginal entrance so I think you'll be fine using it there. For VVS it goes around the vaginal opening before sex so I really don't see a problem at all.

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Re: How do you use lidocaine gel?

Post  lolainslacks on Thu Apr 28, 2011 12:31 am

Thank you. Since reading that info I've asked around and people are saying it's okay if it gets inide you. I just had a little panic because I thought I had completely misunderstood how to use it.


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Re: How do you use lidocaine gel?

Post  noni on Mon May 23, 2011 11:49 pm

Hey lovely ladies,

I was prescibed Xylocaine (same thing as Lidocaine, I guess) but I do not have vulvar vestibulitis...instead, generalized dysesthetic vulvodynia. But anyways...Im scared to try it.

I have heard it can sting and reading here it seems only VV sufferers use it to numb the pain from sex (???) Still not sure.

What would be the advantage of putting this, down there? Isnt it only temporary anyways?

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Re: How do you use lidocaine gel?

Post  lolainslacks on Tue May 24, 2011 11:54 am

I'm not sure about the differences between what I suffer from and what you suffer from, and I'm not sure how my lidocaine differs from yours, so I can't say for certain, but I would definately recommend trying it at least. It stings a little at first, it's like a mild burning sensation, but it's really not that bad. And then after five minutes you should be numbed. Not completely though. For me, I'm not aware of feeling numb at all, but when I use my dilators or insert my fingers (both of which are usually agony) there is no burning or pain of any sort.

However, I know that my experiences with lidocaine do not match those of other women. For some women it makes the burning worse, and for some it does nothing at all. It depends on your individual body. I'm sorry I can't be more helpful. Good luck.


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Re: How do you use lidocaine gel?

Post  Sebby (Admin) on Thu May 26, 2011 8:15 pm

I recently tried it during a flare up (wow I dont like the few minutes of burning!) but I didnt feel numb!

How much are you using? I think I didnt use enough. I just put it around the entrance. I only used about 2 centimetres of gel..prob not enough...Hmmmm ?? Rolling Eyes


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Re: How do you use lidocaine gel?

Post  lolainslacks on Thu May 26, 2011 11:09 pm

Mine comes in an 11ml syringe, and I use half each time, sometimes more. I spend a minute rubbing it into the hard to reach 'crevices' where my pain is located, making sure everything is well coated. So basically I squirt most of it in/around the entrace, then push it where it needs to be. You do have to use a lot, I think.

The numbness isn't an obvious numbness, like the kind you feel after being at the dentist. For me it's just a relief of pain on contact. My vagina feels normal, but when I touch it there's no burning.


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Re: How do you use lidocaine gel?

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