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Looking for a friend IRL; LA/OC
Tue Jul 18, 2017 2:51 am by crypticcalico
Hello!
I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.
I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.
Comments: 1
Constant pain, I want to die.
Fri Jun 02, 2017 4:29 am by Meggiemay
I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.
For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …
For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …
Comments: 20
Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV
Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.
As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.
I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.
I have moved on from the support world and found a career that allowed
Me to bring my …
I was a leader when there was no help, no forums etc.
As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.
I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.
I have moved on from the support world and found a career that allowed
Me to bring my …
Comments: 0
Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?
Tue Jul 04, 2017 9:01 am by Tired89
Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …
Comments: 2
Clitoris Issues
Tue Apr 28, 2015 8:17 pm by January
I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …
Comments: 1
New member
Sat Mar 18, 2017 7:37 pm by Lisa1627
Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …
Comments: 12
Post Full Vestibulectomy - 5 Years Later - Please Read
Tue May 02, 2017 6:18 pm by jen007
Hi All,
It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.
For 4 years post …
It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.
For 4 years post …
Comments: 3
Recovered from Vulvodynia
Thu May 04, 2017 9:42 pm by chancesunny
Hey everyone,
Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!
I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …
Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!
I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …
Comments: 2
Vulvo-what?!?
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Vulvo-what?!?
banzai on Thu Apr 28, 2011 11:36 pm
There are a few things I never thought I would be doing in my life. Writing on a vulvodynia support forum is definitely one of them! Too be honest, I have learned way too much about the female anatomy then I think I ever really needed to know and have said the word vulva more times in the last 6 months than all of the women I know combined have probably said in their lifetimes. But here I am, writing and hoping to learn more and share what I can.
I will spare you the long version of my story here. Perhaps I will post it in the other forum as I am curious as to how many other women have had similar experiences and symptoms as mine. I just wanted to say hello and introduce myself as a fellow sufferer. This whole experience has been surreal, but the fact that there are others out there going through the same thing, sharing their stories, and offering support is a reassuring. I look forward to exploring this site more.
I will spare you the long version of my story here. Perhaps I will post it in the other forum as I am curious as to how many other women have had similar experiences and symptoms as mine. I just wanted to say hello and introduce myself as a fellow sufferer. This whole experience has been surreal, but the fact that there are others out there going through the same thing, sharing their stories, and offering support is a reassuring. I look forward to exploring this site more.
banzai- Posts : 4
Join date : 2011-04-28 
Re: Vulvo-what?!?
noni on Fri Apr 29, 2011 3:41 am
Hey Banzai,
Yeah before this saga began I had never in my life heard of vulvodynia...and rarely said the word vulva!
Well, hope to read your story soon...I imagine its similar to many already posted.
Welcome and be generous with e-hugs... *hugs*
Sending love,
Noni
Yeah before this saga began I had never in my life heard of vulvodynia...and rarely said the word vulva!
Well, hope to read your story soon...I imagine its similar to many already posted.
Welcome and be generous with e-hugs... *hugs*
Sending love,
Noni
noni- Posts : 242
Join date : 2011-01-10
Age : 29
Location : Ontario -
Re: Vulvo-what?!?
sleeplessnights on Fri Apr 29, 2011 4:43 am
welcome to the group...this is a nice place to share stories, get ideas that we exchange. The members are fabulous and helpfull but specialy caring...welcome
sleeplessnights- Posts : 10
Join date : 2011-04-18 -
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» Looking for a friend IRL; LA/OC
» Constant pain, I want to die.
» What is Vulvodynia?
» Anyone else get this from yeast infections? (new member)
» Owner of vulvodyniSuppoet.com
» anyone from southern california in here?
» Surgery Success - Still early days, but going well so far!
» Provoked Vestibulodynia - VIRGIN - PLEASE READ - DESPERATE!!