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Do you ever worry that you're making it up?
Fri May 27, 2016 6:50 am by Lucci
Hello,
I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.
A few years into treatment, I had the diagnosis of PTSD added on for …
I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.
A few years into treatment, I had the diagnosis of PTSD added on for …
Comments: 7
Clitoris Issues
Tue Apr 28, 2015 8:17 pm by January
I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …
Comments: 2
Cured of Vulvodynia
Wed Aug 17, 2016 1:39 am by angelique2016
I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …
Comments: 10
Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?
Sun Jul 30, 2017 1:03 am by Carolyn4
Hi everyone,
I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission. I control it with acupuncture and herbs, and some cranial sacral therapy. I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section. My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …
I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission. I control it with acupuncture and herbs, and some cranial sacral therapy. I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section. My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …
Comments: 1
Partial Vestibulectomy
Mon Jul 31, 2017 6:44 pm by JGD13
Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …
Comments: 6
Post Vestibulectomy
Thu Aug 03, 2017 6:15 pm by infinitelywondering
Heya,
I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there
However, today I came home and have done the following things:
-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling
As of now I am …
I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there
However, today I came home and have done the following things:
-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling
As of now I am …
Comments: 1
New w/ Secondary Provoked Vestibuldynia
Wed Apr 26, 2017 11:46 pm by Birdy
Hi everyone,
I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not. My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics. Ever since the yeast …
I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not. My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics. Ever since the yeast …
Comments: 3
Anyone from the PNW?
Sat Aug 05, 2017 7:54 am by jungleclover
I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …
Comments: 0
Constant pain, I want to die.
Fri Jun 02, 2017 4:29 am by Meggiemay
I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.
For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …
For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …
Comments: 22
Vulvo-what?!?
Vulvo-what?!?
banzai on Thu Apr 28, 2011 11:36 pm
There are a few things I never thought I would be doing in my life. Writing on a vulvodynia support forum is definitely one of them! Too be honest, I have learned way too much about the female anatomy then I think I ever really needed to know and have said the word vulva more times in the last 6 months than all of the women I know combined have probably said in their lifetimes. But here I am, writing and hoping to learn more and share what I can.
I will spare you the long version of my story here. Perhaps I will post it in the other forum as I am curious as to how many other women have had similar experiences and symptoms as mine. I just wanted to say hello and introduce myself as a fellow sufferer. This whole experience has been surreal, but the fact that there are others out there going through the same thing, sharing their stories, and offering support is a reassuring. I look forward to exploring this site more.
I will spare you the long version of my story here. Perhaps I will post it in the other forum as I am curious as to how many other women have had similar experiences and symptoms as mine. I just wanted to say hello and introduce myself as a fellow sufferer. This whole experience has been surreal, but the fact that there are others out there going through the same thing, sharing their stories, and offering support is a reassuring. I look forward to exploring this site more.
banzai- Posts : 4
Join date : 2011-04-28 
Re: Vulvo-what?!?
noni on Fri Apr 29, 2011 3:41 am
Hey Banzai,
Yeah before this saga began I had never in my life heard of vulvodynia...and rarely said the word vulva!
Well, hope to read your story soon...I imagine its similar to many already posted.
Welcome and be generous with e-hugs... *hugs*
Sending love,
Noni
Yeah before this saga began I had never in my life heard of vulvodynia...and rarely said the word vulva!
Well, hope to read your story soon...I imagine its similar to many already posted.
Welcome and be generous with e-hugs... *hugs*
Sending love,
Noni
noni- Posts : 242
Join date : 2011-01-10
Age : 30
Location : Ontario -
Re: Vulvo-what?!?
sleeplessnights on Fri Apr 29, 2011 4:43 am
welcome to the group...this is a nice place to share stories, get ideas that we exchange. The members are fabulous and helpfull but specialy caring...welcome
sleeplessnights- Posts : 10
Join date : 2011-04-18 -
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» A Sulphate Allergy - My Story of Provoked Vestibulodynia
» Do you ever worry that you're making it up?
» interesting link on how we may be suffering from a low grade, undetectable yeast infection
» Freaking out because I don't think surgery worked HELP!!!!
» Is Purdenal nerve entrapment the cause of vulvodynia?
» Clitoris Issues
» vestibulectomy success
» Anyone with Vulvodynia and tingling feeling in clitoris? Plus vestibulctomy success