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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

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you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Yeast Infections and Vulvodynia

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Yeast Infections and Vulvodynia

Post  Sebby (Admin) on Wed May 05, 2010 9:17 pm

http://www.obgyn.net/pelvic-pain/pelvic-pain.asp?page=/pelvic-pain/articles/yeast_infections_candida_allergy_vulvodynia

http://ezinearticles.com/?Vulvodynia-and-Candida&id=3834455

http://yeastfreeliving.com/

http://www.yeastinfectionadvisor.com/vaginalyeastinfection.html

http://www.empowher.com/news/2008/10/01/laura-lehrhaupt-unlocking-mysteries-vulvodynia-and-candida

Hi All, here are some links I found after a couple of members bringing up the issue of chronic yeast infection. As well as our first male member!

I havent had much time to read through all these articles (i have to get up early to see gynea so have just done a quick google!) so I am not indorsing the use of any of the products or medications suggested as i havnt tried them myself.

Hope these are useful, I will definately be looking into this seriously as I have had chronic yeast infections in past.

Take care all

Sebby
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Re: Yeast Infections and Vulvodynia

Post  itchyandscratchy on Mon Apr 11, 2011 1:50 pm

Thanks for this post I've been suffering from chronic yeast infections for two years and just today been iformed that my current symptoms are nothing to do with any kind of infection because the last test result came back negative. I may take some of this info to my GP the next time I go (and there will be a next time lol).
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Re: Yeast Infections and Vulvodynia

Post  Sebby (Admin) on Mon Apr 11, 2011 6:56 pm


Your welcome

A few of us are also doing a yeast free diet (well I have cut down not totally yeast free!)




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Re: Yeast Infections and Vulvodynia

Post  itchyandscratchy on Mon Apr 11, 2011 9:03 pm

Yeah, it's a very difficult diet to follow, and difficult to explain to people as well as it isn't a well known condition.
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Re: Yeast Infections and Vulvodynia

Post  EmmaAte on Fri May 20, 2011 8:54 pm

itchyandscratchy wrote:Yeah, it's a very difficult diet to follow, and difficult to explain to people as well as it isn't a well known condition.

It's difficult but I followed it strictly for a few weeks. Didn't notice one iota of difference so I started adding things back into my diet. Still didn't notice a big correlation. I think I would have worried about it's benefits if I hadn't given the diet it's fair shot however, it was an expensive experiment! I did make a few "life style" changes that seem to have been beneficial -- no more caffeine! Yay! And no more milk. I like almond milk and I've discovered that it's an excellent as a milk replacement in recipes too.

Good luck to you! Keep a food diary to document your success.
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Re: Yeast Infections and Vulvodynia

Post  itchyandscratchy on Tue May 24, 2011 7:38 pm

I have been following the diet (mostly...) for a couple of months have noticed a lot of improvement, but ultimately I'm hoping to cure this condition in such a way that I don't have to stick to a crazy-strict diet at all times, it's not practical and it depresses me.
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Re: Yeast Infections and Vulvodynia

Post  Aussie on Wed May 25, 2011 6:28 am

I still firmly believe this is all connected to yeast, or at least the creams we use to treat yeast. This all started for me with 4 infections in 3 months after alot of sex and bubble bath on our honeymoon. I still get infections every couple of months. Currently on Nizoral and then Difflucan long term. With the Nizoral I have no burn or itch just that deep ache that feels muscular, perhaps I am onto something.

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Re: Yeast Infections and Vulvodynia

Post  Sebby (Admin) on Thu May 26, 2011 7:17 pm


I know most women who end up with Vuvlodynia do have a history of yeast infections or urine infections. They are not sure though if it is the infection that sets off the vulvodynia or the creams used to treat it.

I wont use creams anymore...no way I would take the oral pill and I have done when needed.

The muscular thing is intresting tho as I have experienced that...Im so wondering if that is something to do with the pelvic floor muscle????


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Re: Yeast Infections and Vulvodynia

Post  Aussie on Fri May 27, 2011 2:31 am

Thats right Sebby, it's the pelvic floor muscles, they are all knotted. It is the same pain you get when you have been standing for ages and get a sore back or sholders from hunching over. Or sometimes like period pain. In fact when I get my period I can feel 'period pain' all over my vulva, all the muscles just cramping up. Warm baths are wonderful things Smile but so far so good, no/limited rawness.

Does anyone else get the rawness near their bottom hole?

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Re: Yeast Infections and Vulvodynia

Post  noni on Fri May 27, 2011 8:49 pm

@Aussie: rectal pain comes with the Vulvodynia package.
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Re: Yeast Infections and Vulvodynia

Post  Mouse on Fri May 27, 2011 9:56 pm

Hey there, I get pain in my bum hole =\ hahhaa nice description. Sometimes it's part of the achey stabby pudendal nerve scenario and other times it's more irritation. I'm guessing that's from using different loo paper or maybe laundry liquid. Soap doesn't generally irritate me at all BUT it could be that also.

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not so sure- about yeast infection adviser

Post  Melissa777 on Sun Jul 10, 2011 8:22 pm

you know this is all theory until its proven- this is my opinion anyway.

See here is what I did- i contacted the Lady of the yeastinfectionadviser.com page
the "expert on yeast"
and while she constantly reminded me I owed her money $30 ever 1/2 hour or $1 a min afterwards
I started to feel- maybe she is in this for the money

I did buy her packet-i read it to its entirty- all of it.
I even gave it to my GYN who I talked into giving me an RX for diflucan
initally i was supposed to take 200 mg a day every day for a month
and I started this- by the 6th day, my tongue became pale- NOT white coated- it wasnt yeast in my mouth
I started to feel "crazy" yes this amount of diflucan did this to me
all the while- before this i had been on the candida diet for 5 months or so- and doing natural yeast cleansers like candi gone, coconut oil, undeclynic acid, using dr mccombs yeast cleansing theory

anyow Im NOT convinced yeast is the problem
not only have I had yeast cultures
I have had specific DNA candida cultures
as well as the GEN PAP (twice) which tests for many strains of yeast

Oh and i even did boric acid for 1 and 1/2 months- which is what left me in this condition- totally irritated my skin
my internal med doc thinks it gave me what may be like a chemical burn

so i think what im trying to say "red yeast" or intercellular yeast is an interesting theory
but until someone proves to me this is yeast related- im no longer convinced
especially when diflucan and other natural antifungals have done nothing for me-
nor other people on here

it is frustrating that the lady who formed the yeast infection adviser page wont give out info for free
when information really shouldnt be paid for
she will charge you for everything
and you really get little free info on her site
so this makes me skeptical

yes i think she should charge for her packet
but to give someone advice- NO i dont think she should charge
and she shouldnt try and convince us that we need to talk our doctors into giving us antifungals when they can do more harm then good
I hope you all know these antifungals can create resistance of fungal infections just like overuse of antibiotics can
so people- be careful
I ended up only taking the diflucan for 16 days
because when i saw my healthcare pract here- he said Melissa you dont have yeast, and really you need to get off this stuff before it does more harm then good!

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Re: Yeast Infections and Vulvodynia

Post  hoping on Sat Dec 17, 2011 9:21 am

Aussie wrote:Thats right Sebby, it's the pelvic floor muscles, they are all knotted. It is the same pain you get when you have been standing for ages and get a sore back or sholders from hunching over. Or sometimes like period pain. In fact when I get my period I can feel 'period pain' all over my vulva, all the muscles just cramping up. Warm baths are wonderful things Smile but so far so good, no/limited rawness.

Does anyone else get the rawness near their bottom hole?

Aussie - you've got me thinking - I've always had quite long periods and use tampons. By then end of them, my internal muscles are really tired and sore - I'm going to try the moon cup, although nervous - I had a test run the other day and although eays to put in, the pain to take out was pretty horrendous. Might take a few test runs.

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Re: Yeast Infections and Vulvodynia

Post  Sarah001 on Sun Dec 18, 2011 8:11 pm

Funny you should mention that hoping, I find the vaginal sensor to the biofeedback machine a bit painful to insert but agony to remove and it's because my pelvic floor muscles have clamped round it and won't relax. It might be an idea to get your pelvic floor checked out.
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Yep long history of yeast

Post  pollysobreperez on Tue Mar 13, 2012 6:50 pm

I am also convinced its related either to yeast or to yeast treatment, however I never use clotrimazole and it has still come back!!

What we really need is one of the gynaecologists or dermatologists to get it (sorry)

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Re: Yeast Infections and Vulvodynia

Post  Gizzy on Mon Oct 01, 2012 4:13 pm

Yeah i always get yeast infections and urine infections so i do think maybe its to do with Vulvodynia.It's horrible when i do get these problems on top of Vulvodynia because the pain amplifies! Sad
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Re: Yeast Infections and Vulvodynia

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