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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

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From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

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6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Yeast Infections and Vulvodynia

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Yeast Infections and Vulvodynia

Post  Sebby (Admin) on Wed May 05, 2010 9:17 pm

http://www.obgyn.net/pelvic-pain/pelvic-pain.asp?page=/pelvic-pain/articles/yeast_infections_candida_allergy_vulvodynia

http://ezinearticles.com/?Vulvodynia-and-Candida&id=3834455

http://yeastfreeliving.com/

http://www.yeastinfectionadvisor.com/vaginalyeastinfection.html

http://www.empowher.com/news/2008/10/01/laura-lehrhaupt-unlocking-mysteries-vulvodynia-and-candida

Hi All, here are some links I found after a couple of members bringing up the issue of chronic yeast infection. As well as our first male member!

I havent had much time to read through all these articles (i have to get up early to see gynea so have just done a quick google!) so I am not indorsing the use of any of the products or medications suggested as i havnt tried them myself.

Hope these are useful, I will definately be looking into this seriously as I have had chronic yeast infections in past.

Take care all

Sebby
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Re: Yeast Infections and Vulvodynia

Post  itchyandscratchy on Mon Apr 11, 2011 1:50 pm

Thanks for this post I've been suffering from chronic yeast infections for two years and just today been iformed that my current symptoms are nothing to do with any kind of infection because the last test result came back negative. I may take some of this info to my GP the next time I go (and there will be a next time lol).
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Re: Yeast Infections and Vulvodynia

Post  Sebby (Admin) on Mon Apr 11, 2011 6:56 pm


Your welcome

A few of us are also doing a yeast free diet (well I have cut down not totally yeast free!)




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Re: Yeast Infections and Vulvodynia

Post  itchyandscratchy on Mon Apr 11, 2011 9:03 pm

Yeah, it's a very difficult diet to follow, and difficult to explain to people as well as it isn't a well known condition.
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Re: Yeast Infections and Vulvodynia

Post  EmmaAte on Fri May 20, 2011 8:54 pm

itchyandscratchy wrote:Yeah, it's a very difficult diet to follow, and difficult to explain to people as well as it isn't a well known condition.

It's difficult but I followed it strictly for a few weeks. Didn't notice one iota of difference so I started adding things back into my diet. Still didn't notice a big correlation. I think I would have worried about it's benefits if I hadn't given the diet it's fair shot however, it was an expensive experiment! I did make a few "life style" changes that seem to have been beneficial -- no more caffeine! Yay! And no more milk. I like almond milk and I've discovered that it's an excellent as a milk replacement in recipes too.

Good luck to you! Keep a food diary to document your success.
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Re: Yeast Infections and Vulvodynia

Post  itchyandscratchy on Tue May 24, 2011 7:38 pm

I have been following the diet (mostly...) for a couple of months have noticed a lot of improvement, but ultimately I'm hoping to cure this condition in such a way that I don't have to stick to a crazy-strict diet at all times, it's not practical and it depresses me.
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Re: Yeast Infections and Vulvodynia

Post  Aussie on Wed May 25, 2011 6:28 am

I still firmly believe this is all connected to yeast, or at least the creams we use to treat yeast. This all started for me with 4 infections in 3 months after alot of sex and bubble bath on our honeymoon. I still get infections every couple of months. Currently on Nizoral and then Difflucan long term. With the Nizoral I have no burn or itch just that deep ache that feels muscular, perhaps I am onto something.

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Re: Yeast Infections and Vulvodynia

Post  Sebby (Admin) on Thu May 26, 2011 7:17 pm


I know most women who end up with Vuvlodynia do have a history of yeast infections or urine infections. They are not sure though if it is the infection that sets off the vulvodynia or the creams used to treat it.

I wont use creams anymore...no way I would take the oral pill and I have done when needed.

The muscular thing is intresting tho as I have experienced that...Im so wondering if that is something to do with the pelvic floor muscle????


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Re: Yeast Infections and Vulvodynia

Post  Aussie on Fri May 27, 2011 2:31 am

Thats right Sebby, it's the pelvic floor muscles, they are all knotted. It is the same pain you get when you have been standing for ages and get a sore back or sholders from hunching over. Or sometimes like period pain. In fact when I get my period I can feel 'period pain' all over my vulva, all the muscles just cramping up. Warm baths are wonderful things Smile but so far so good, no/limited rawness.

Does anyone else get the rawness near their bottom hole?

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Re: Yeast Infections and Vulvodynia

Post  noni on Fri May 27, 2011 8:49 pm

@Aussie: rectal pain comes with the Vulvodynia package.
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Re: Yeast Infections and Vulvodynia

Post  Mouse on Fri May 27, 2011 9:56 pm

Hey there, I get pain in my bum hole =\ hahhaa nice description. Sometimes it's part of the achey stabby pudendal nerve scenario and other times it's more irritation. I'm guessing that's from using different loo paper or maybe laundry liquid. Soap doesn't generally irritate me at all BUT it could be that also.

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not so sure- about yeast infection adviser

Post  Melissa777 on Sun Jul 10, 2011 8:22 pm

you know this is all theory until its proven- this is my opinion anyway.

See here is what I did- i contacted the Lady of the yeastinfectionadviser.com page
the "expert on yeast"
and while she constantly reminded me I owed her money $30 ever 1/2 hour or $1 a min afterwards
I started to feel- maybe she is in this for the money

I did buy her packet-i read it to its entirty- all of it.
I even gave it to my GYN who I talked into giving me an RX for diflucan
initally i was supposed to take 200 mg a day every day for a month
and I started this- by the 6th day, my tongue became pale- NOT white coated- it wasnt yeast in my mouth
I started to feel "crazy" yes this amount of diflucan did this to me
all the while- before this i had been on the candida diet for 5 months or so- and doing natural yeast cleansers like candi gone, coconut oil, undeclynic acid, using dr mccombs yeast cleansing theory

anyow Im NOT convinced yeast is the problem
not only have I had yeast cultures
I have had specific DNA candida cultures
as well as the GEN PAP (twice) which tests for many strains of yeast

Oh and i even did boric acid for 1 and 1/2 months- which is what left me in this condition- totally irritated my skin
my internal med doc thinks it gave me what may be like a chemical burn

so i think what im trying to say "red yeast" or intercellular yeast is an interesting theory
but until someone proves to me this is yeast related- im no longer convinced
especially when diflucan and other natural antifungals have done nothing for me-
nor other people on here

it is frustrating that the lady who formed the yeast infection adviser page wont give out info for free
when information really shouldnt be paid for
she will charge you for everything
and you really get little free info on her site
so this makes me skeptical

yes i think she should charge for her packet
but to give someone advice- NO i dont think she should charge
and she shouldnt try and convince us that we need to talk our doctors into giving us antifungals when they can do more harm then good
I hope you all know these antifungals can create resistance of fungal infections just like overuse of antibiotics can
so people- be careful
I ended up only taking the diflucan for 16 days
because when i saw my healthcare pract here- he said Melissa you dont have yeast, and really you need to get off this stuff before it does more harm then good!

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Re: Yeast Infections and Vulvodynia

Post  hoping on Sat Dec 17, 2011 9:21 am

Aussie wrote:Thats right Sebby, it's the pelvic floor muscles, they are all knotted. It is the same pain you get when you have been standing for ages and get a sore back or sholders from hunching over. Or sometimes like period pain. In fact when I get my period I can feel 'period pain' all over my vulva, all the muscles just cramping up. Warm baths are wonderful things Smile but so far so good, no/limited rawness.

Does anyone else get the rawness near their bottom hole?

Aussie - you've got me thinking - I've always had quite long periods and use tampons. By then end of them, my internal muscles are really tired and sore - I'm going to try the moon cup, although nervous - I had a test run the other day and although eays to put in, the pain to take out was pretty horrendous. Might take a few test runs.

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Re: Yeast Infections and Vulvodynia

Post  Sarah001 on Sun Dec 18, 2011 8:11 pm

Funny you should mention that hoping, I find the vaginal sensor to the biofeedback machine a bit painful to insert but agony to remove and it's because my pelvic floor muscles have clamped round it and won't relax. It might be an idea to get your pelvic floor checked out.
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Yep long history of yeast

Post  pollysobreperez on Tue Mar 13, 2012 6:50 pm

I am also convinced its related either to yeast or to yeast treatment, however I never use clotrimazole and it has still come back!!

What we really need is one of the gynaecologists or dermatologists to get it (sorry)

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Re: Yeast Infections and Vulvodynia

Post  Gizzy on Mon Oct 01, 2012 4:13 pm

Yeah i always get yeast infections and urine infections so i do think maybe its to do with Vulvodynia.It's horrible when i do get these problems on top of Vulvodynia because the pain amplifies! Sad
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