Log in

I forgot my password

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Sympathy/Empathy is now impossible

View previous topic View next topic Go down

Sympathy/Empathy is now impossible

Post  lolainslacks on Sun May 01, 2011 9:42 am

Does anyone else have this same problem?

Lately I have been finding it almost impossible to sympathise/empathise with anyone else about anything. And it's gotten to the point where I actually become furious with someone and start to resent them when they complain about something. I never verbalise any of my anger, I don't want to upset anyone, and I can't talk openly with everyone about my condition, so I keep my feelings to myself. But I feel like screaming at them. They have no idea how good they have it. They can lead normal lives, and have normal relationships, and they never have to worry about whether or not their partner will leave them because they can't have sex, or whether or not they're going to be alone forever. Their most intimate part doesn't burn and feel like it's ripping apart. My friends complain to me about boyfriend problems, and I feel like scratching their eyes out. My mother complains to me about work, I feel like slapping her. I can't handle other people anymore, because I am constantly comparing their lives to mine. And I feel incredibly resentful of everyone, because I can't help thinking they have no right to be upset about anything as they are not going through anything as painful as what I am. I know it's unfair of me, but I'm having a particularily rough time and it's just they way my mind is at the moment.

Anyway, my question is, do you guys have this problem? And if so, how do you deal with it?

lolainslacks

Posts : 115
Join date : 2011-04-18

View user profile

Back to top Go down

Re: Sympathy/Empathy is now impossible

Post  Mouse on Sun May 01, 2011 10:44 am

Hey there,

It's completely natural to be pissed off! It's so bloody unfair and it seems like no one understands. Except us! I feel like it's a trip to crazy town if I did try to explain. In saying that you need support. Do you have friends who do know what's happening? I have a couple who I tell it like it is. I also have a therapist who I unload everything to. That really helps! It's really hard to come to terms with something that makes no sense. Be gentle with yourself.

Take care =)


Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

View user profile

Back to top Go down

Re: Sympathy/Empathy is now impossible

Post  noni on Sun May 01, 2011 11:10 am

Hey there,

Yes I can completely identify...but I also like to remind myself that EVERYONE is either going through their own personal hell or has gone through it or will be in the future.

I think theres some tough lessons we learn here on earth and everyone gets a unique experience with regards to that. Dunno if im making any sense....but thats what I believe.

Theres always a silver lining though. But when your down in the pits of misery its hard to see beyond any of it.

Sending love,

Noni
avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 30
Location : Ontario

View user profile

Back to top Go down

Re: Sympathy/Empathy is now impossible

Post  Sebby (Admin) on Sun May 01, 2011 11:22 am


I can totally relate...

I often compare my life to others and just think its not fair and think why are you moaning...have my life!!!

I do try to tell myself that their problems are hurting them so I should try to extend some love rather than a smack lol

But you know what..I dont see anything wrong in feeling the way you are feeling. Its normal and I do think sometimes we just need to feel damn sorry for ourselves and extend that love to ourselves a bit more


_________________
Sebby
XxX

admin@vulvodyniasupportforum.com
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Sympathy/Empathy is now impossible

Post  Sarah001 on Sun May 01, 2011 7:21 pm

Yes, me too, I've resented everyone moaning about their normal lives for years, way before the V because of other issues I have. Then I got V and realised previously I had alot less to moan about and feel resentful about and actually even when I feel like I'm at rock bottom life can and frequently does in my case get worse and throw even more shit my way so I try to feel positive about the things I can do and not worry about everyone else and their trivial or even serious moans. Does that make any sense to anyone except me? Laughing Although I was watching an advert earlier where a woman was moaning her skin was dry and found myself saying "I wish that was my biggest problem" at the TV! It's hard to deal with others when you feel so crap like we do and it's even harder I find when their lives are going brilliantly as seems to be the case with everyone around me right now! Lucky bastards!
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Sympathy/Empathy is now impossible

Post  Aussie on Wed May 04, 2011 6:09 am

Yes I also get this feeling.

Wanting to slap friends that complain about skin problems or work problems. I think, I used to be like that, before I had anything serious to moan about. Now I don't moan about anything at all.

I also resent people wearing jeans I can't stand to look at them and wonder why they arn't walking around with their legs wide open, why it doesn't hurt?! I feel pretty bitter, on the bad days towards thoes who have progressed through physio to the point where they no longer have daily pain, I have been doing this for 7months and I am still $5000 poorer and not completely pain free....yet

I hope soon we will join thoes who only have boys and work problems to worry about.

You have to think though, at least we don't have cancer or no legs for example.....

Keep positive ladies Smile

Aussie

Posts : 227
Join date : 2011-03-15
Age : 28
Location : Queensland, Australia

View user profile

Back to top Go down

Re: Sympathy/Empathy is now impossible

Post  seagirl88 on Sat May 14, 2011 8:22 am

lolainslacks: I couldn't have put it better myself. You just expressed EXACTLY what I've been feeling and struggling with lately, and it makes me feel better to know that there are others out there who understand (even though I don't personally know any). This condition is awful beyond words, and it's impossible for someone who doesn't suffer from it to truly grasp just how much it affects our lives and our futures. The best thing we can do is to just keep fighting and stay strong.

seagirl88

Posts : 14
Join date : 2011-03-14
Age : 29
Location : Washington, USA

View user profile

Back to top Go down

Re: Sympathy/Empathy is now impossible

Post  naomi on Mon May 16, 2011 12:16 pm

can completely relate!!

this condition has made me more determined and pig headed! yet at the same time weak, resentful, over emotional, angry, frustrated, and darn right f*cked off!!!

we are all in the same boat and will get progress!!!
avatar
naomi
Moderator

Posts : 262
Join date : 2010-04-09
Location : Cheltenham

View user profile

Back to top Go down

Re: Sympathy/Empathy is now impossible

Post  noni on Thu May 19, 2011 2:11 am

Yes I can share your sentiment Naomi. At times I am very resentful...and the why me syndrome kicks in.

There are just some things in life that defy logic and fairness. No woman deserves this crap condition.


avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 30
Location : Ontario

View user profile

Back to top Go down

Re: Sympathy/Empathy is now impossible

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum