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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Sympathy/Empathy is now impossible

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Sympathy/Empathy is now impossible

Post  lolainslacks on Sun May 01, 2011 9:42 am

Does anyone else have this same problem?

Lately I have been finding it almost impossible to sympathise/empathise with anyone else about anything. And it's gotten to the point where I actually become furious with someone and start to resent them when they complain about something. I never verbalise any of my anger, I don't want to upset anyone, and I can't talk openly with everyone about my condition, so I keep my feelings to myself. But I feel like screaming at them. They have no idea how good they have it. They can lead normal lives, and have normal relationships, and they never have to worry about whether or not their partner will leave them because they can't have sex, or whether or not they're going to be alone forever. Their most intimate part doesn't burn and feel like it's ripping apart. My friends complain to me about boyfriend problems, and I feel like scratching their eyes out. My mother complains to me about work, I feel like slapping her. I can't handle other people anymore, because I am constantly comparing their lives to mine. And I feel incredibly resentful of everyone, because I can't help thinking they have no right to be upset about anything as they are not going through anything as painful as what I am. I know it's unfair of me, but I'm having a particularily rough time and it's just they way my mind is at the moment.

Anyway, my question is, do you guys have this problem? And if so, how do you deal with it?

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Re: Sympathy/Empathy is now impossible

Post  Mouse on Sun May 01, 2011 10:44 am

Hey there,

It's completely natural to be pissed off! It's so bloody unfair and it seems like no one understands. Except us! I feel like it's a trip to crazy town if I did try to explain. In saying that you need support. Do you have friends who do know what's happening? I have a couple who I tell it like it is. I also have a therapist who I unload everything to. That really helps! It's really hard to come to terms with something that makes no sense. Be gentle with yourself.

Take care =)


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Re: Sympathy/Empathy is now impossible

Post  noni on Sun May 01, 2011 11:10 am

Hey there,

Yes I can completely identify...but I also like to remind myself that EVERYONE is either going through their own personal hell or has gone through it or will be in the future.

I think theres some tough lessons we learn here on earth and everyone gets a unique experience with regards to that. Dunno if im making any sense....but thats what I believe.

Theres always a silver lining though. But when your down in the pits of misery its hard to see beyond any of it.

Sending love,

Noni
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Re: Sympathy/Empathy is now impossible

Post  Sebby (Admin) on Sun May 01, 2011 11:22 am


I can totally relate...

I often compare my life to others and just think its not fair and think why are you moaning...have my life!!!

I do try to tell myself that their problems are hurting them so I should try to extend some love rather than a smack lol

But you know what..I dont see anything wrong in feeling the way you are feeling. Its normal and I do think sometimes we just need to feel damn sorry for ourselves and extend that love to ourselves a bit more


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Re: Sympathy/Empathy is now impossible

Post  Sarah001 on Sun May 01, 2011 7:21 pm

Yes, me too, I've resented everyone moaning about their normal lives for years, way before the V because of other issues I have. Then I got V and realised previously I had alot less to moan about and feel resentful about and actually even when I feel like I'm at rock bottom life can and frequently does in my case get worse and throw even more shit my way so I try to feel positive about the things I can do and not worry about everyone else and their trivial or even serious moans. Does that make any sense to anyone except me? Laughing Although I was watching an advert earlier where a woman was moaning her skin was dry and found myself saying "I wish that was my biggest problem" at the TV! It's hard to deal with others when you feel so crap like we do and it's even harder I find when their lives are going brilliantly as seems to be the case with everyone around me right now! Lucky bastards!
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Re: Sympathy/Empathy is now impossible

Post  Aussie on Wed May 04, 2011 6:09 am

Yes I also get this feeling.

Wanting to slap friends that complain about skin problems or work problems. I think, I used to be like that, before I had anything serious to moan about. Now I don't moan about anything at all.

I also resent people wearing jeans I can't stand to look at them and wonder why they arn't walking around with their legs wide open, why it doesn't hurt?! I feel pretty bitter, on the bad days towards thoes who have progressed through physio to the point where they no longer have daily pain, I have been doing this for 7months and I am still $5000 poorer and not completely pain free....yet

I hope soon we will join thoes who only have boys and work problems to worry about.

You have to think though, at least we don't have cancer or no legs for example.....

Keep positive ladies Smile

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Re: Sympathy/Empathy is now impossible

Post  seagirl88 on Sat May 14, 2011 8:22 am

lolainslacks: I couldn't have put it better myself. You just expressed EXACTLY what I've been feeling and struggling with lately, and it makes me feel better to know that there are others out there who understand (even though I don't personally know any). This condition is awful beyond words, and it's impossible for someone who doesn't suffer from it to truly grasp just how much it affects our lives and our futures. The best thing we can do is to just keep fighting and stay strong.

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Re: Sympathy/Empathy is now impossible

Post  naomi on Mon May 16, 2011 12:16 pm

can completely relate!!

this condition has made me more determined and pig headed! yet at the same time weak, resentful, over emotional, angry, frustrated, and darn right f*cked off!!!

we are all in the same boat and will get progress!!!
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Re: Sympathy/Empathy is now impossible

Post  noni on Thu May 19, 2011 2:11 am

Yes I can share your sentiment Naomi. At times I am very resentful...and the why me syndrome kicks in.

There are just some things in life that defy logic and fairness. No woman deserves this crap condition.


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Re: Sympathy/Empathy is now impossible

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