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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Sympathy/Empathy is now impossible

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Sympathy/Empathy is now impossible

Post  lolainslacks on Sun May 01, 2011 9:42 am

Does anyone else have this same problem?

Lately I have been finding it almost impossible to sympathise/empathise with anyone else about anything. And it's gotten to the point where I actually become furious with someone and start to resent them when they complain about something. I never verbalise any of my anger, I don't want to upset anyone, and I can't talk openly with everyone about my condition, so I keep my feelings to myself. But I feel like screaming at them. They have no idea how good they have it. They can lead normal lives, and have normal relationships, and they never have to worry about whether or not their partner will leave them because they can't have sex, or whether or not they're going to be alone forever. Their most intimate part doesn't burn and feel like it's ripping apart. My friends complain to me about boyfriend problems, and I feel like scratching their eyes out. My mother complains to me about work, I feel like slapping her. I can't handle other people anymore, because I am constantly comparing their lives to mine. And I feel incredibly resentful of everyone, because I can't help thinking they have no right to be upset about anything as they are not going through anything as painful as what I am. I know it's unfair of me, but I'm having a particularily rough time and it's just they way my mind is at the moment.

Anyway, my question is, do you guys have this problem? And if so, how do you deal with it?

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Re: Sympathy/Empathy is now impossible

Post  Mouse on Sun May 01, 2011 10:44 am

Hey there,

It's completely natural to be pissed off! It's so bloody unfair and it seems like no one understands. Except us! I feel like it's a trip to crazy town if I did try to explain. In saying that you need support. Do you have friends who do know what's happening? I have a couple who I tell it like it is. I also have a therapist who I unload everything to. That really helps! It's really hard to come to terms with something that makes no sense. Be gentle with yourself.

Take care =)


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Re: Sympathy/Empathy is now impossible

Post  noni on Sun May 01, 2011 11:10 am

Hey there,

Yes I can completely identify...but I also like to remind myself that EVERYONE is either going through their own personal hell or has gone through it or will be in the future.

I think theres some tough lessons we learn here on earth and everyone gets a unique experience with regards to that. Dunno if im making any sense....but thats what I believe.

Theres always a silver lining though. But when your down in the pits of misery its hard to see beyond any of it.

Sending love,

Noni
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Re: Sympathy/Empathy is now impossible

Post  Sebby (Admin) on Sun May 01, 2011 11:22 am


I can totally relate...

I often compare my life to others and just think its not fair and think why are you moaning...have my life!!!

I do try to tell myself that their problems are hurting them so I should try to extend some love rather than a smack lol

But you know what..I dont see anything wrong in feeling the way you are feeling. Its normal and I do think sometimes we just need to feel damn sorry for ourselves and extend that love to ourselves a bit more


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Re: Sympathy/Empathy is now impossible

Post  Sarah001 on Sun May 01, 2011 7:21 pm

Yes, me too, I've resented everyone moaning about their normal lives for years, way before the V because of other issues I have. Then I got V and realised previously I had alot less to moan about and feel resentful about and actually even when I feel like I'm at rock bottom life can and frequently does in my case get worse and throw even more shit my way so I try to feel positive about the things I can do and not worry about everyone else and their trivial or even serious moans. Does that make any sense to anyone except me? Laughing Although I was watching an advert earlier where a woman was moaning her skin was dry and found myself saying "I wish that was my biggest problem" at the TV! It's hard to deal with others when you feel so crap like we do and it's even harder I find when their lives are going brilliantly as seems to be the case with everyone around me right now! Lucky bastards!
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Re: Sympathy/Empathy is now impossible

Post  Aussie on Wed May 04, 2011 6:09 am

Yes I also get this feeling.

Wanting to slap friends that complain about skin problems or work problems. I think, I used to be like that, before I had anything serious to moan about. Now I don't moan about anything at all.

I also resent people wearing jeans I can't stand to look at them and wonder why they arn't walking around with their legs wide open, why it doesn't hurt?! I feel pretty bitter, on the bad days towards thoes who have progressed through physio to the point where they no longer have daily pain, I have been doing this for 7months and I am still $5000 poorer and not completely pain free....yet

I hope soon we will join thoes who only have boys and work problems to worry about.

You have to think though, at least we don't have cancer or no legs for example.....

Keep positive ladies Smile

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Re: Sympathy/Empathy is now impossible

Post  seagirl88 on Sat May 14, 2011 8:22 am

lolainslacks: I couldn't have put it better myself. You just expressed EXACTLY what I've been feeling and struggling with lately, and it makes me feel better to know that there are others out there who understand (even though I don't personally know any). This condition is awful beyond words, and it's impossible for someone who doesn't suffer from it to truly grasp just how much it affects our lives and our futures. The best thing we can do is to just keep fighting and stay strong.

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Re: Sympathy/Empathy is now impossible

Post  naomi on Mon May 16, 2011 12:16 pm

can completely relate!!

this condition has made me more determined and pig headed! yet at the same time weak, resentful, over emotional, angry, frustrated, and darn right f*cked off!!!

we are all in the same boat and will get progress!!!
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Re: Sympathy/Empathy is now impossible

Post  noni on Thu May 19, 2011 2:11 am

Yes I can share your sentiment Naomi. At times I am very resentful...and the why me syndrome kicks in.

There are just some things in life that defy logic and fairness. No woman deserves this crap condition.


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Re: Sympathy/Empathy is now impossible

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