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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Trying something different

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Trying something different

Post  Sassymel on Sat May 07, 2011 7:49 am

Hi,

I'm also a newbie to this forum! And glad to have found it. I need some spirit lifting Wink I've had Vulvadynia nearly 3 years and am so determined that it won't become 4. To be honest, I think I have this condition milder than many of the women on here. It used to be so much worse for me, but I do think I'm getting somewhere with it. The hardest part for me is the difficulty to have sex with my fiance. I love him like mad and it's so tough not being able to express that in every way...and knowing how good it was before I got this!

I see a specialist fairly regularly rather than a doctor. I was originally going to the doctor for reoccurant thrush and I'm so glad she realised whatever I had was outside of her knowledge and referred me on. I'm lucky because here in NZ my treatment, through the sexual health clinic, is heavily subsidised by the government. I feel really lucky because as I understand it that's not the case for ever country. My specialist is excellent and I have full faith in her. I've been on Nortryptoline almost from the begining but my dosage has dropped now. I used to wonder if if it was doing anything, but looking back at how painful it used to be and how it's not as bad as that now, I realise that it must be doing something!

I also see a physio and am happy with how that's going. She's taught me a number of exercises to help relax the pelvic area and my muscles. She's also got me doing vibrator work and a diaphram that I'm slowely moving up in size with. It all felt a bit awkward at first, but I'm determined to see change so I got over that.

My next step will be going to see a psycologist. I think both myself and my fiance should go, because this isn't only a physical thing and this doesn't only affect me. Our minds play such a big part on our health and having V can create a lot of frustration, sadness and the rest, as you all know, and I think it'd help to talk to someone professional about it. So it can't make things worse and I'm willing to pay what it takes (hopefully it's not too much haha) to get into a better head space. Because although I know things are improving it's such a slow process and it gets me down... My fiance is really supportive and happy to come with me. He wants me feeling better as much as I do.

My gosh, sorry, this is a novel. It's just so good to be able to talk to people in a similar position as I am. Sometimes I feel so alone in my plight!

Sassymel

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Re: Trying something different

Post  noni on Sat May 07, 2011 10:25 am

Hello and welcome !


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noni

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Re: Trying something different

Post  Mouse on Sat May 07, 2011 9:17 pm

Kia ora Mel!

I'm also in NZ. I'm glad you have found an amazing specialist. It seems to be luck of the draw in this world. I have one in Auckland who is pretty fab. Although I'm also taking this thing by the scruff of the neck. I've taken responsibility for my healing and have attacked it from all sides.

A psychologist is a great step to take. I see a sex therapist, she has several clients with this shizzer specific knowledge really helps. This thing really does your head in so unloading all the crap is essential. It's great that your partner is so supportive and willing to participate. I didn't take my hubby initially and now it's become my therapy really. You may be able to get funded therapy through your GP?

I do physio as well, no drugs though I couldn't make those work for me. My pelvic floor locks up sometimes, strange how tension shows up there. I meditate and have made significant dietary changes. I try to do anything that gives me endorphins. Yes smiling and even laughing do that! Singing is even better. I love singing but it's usually restricted to "home alone", in the car or when I'm bladdered Embarassed

We are all different so don't get caught up with comparisons. Any version of this is absolute crap. Silent illnesses and particularly ones that affect our lives so greatly are bloody unfair. It sounds like you are being really proactive in your recovery, that's fabulous!

Take care and be gentle with yourself.
V. grrrr it pisses me off that the signature I've used for decades is now the symbol of evil!!!

Mouse

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Re: Trying something different

Post  Sassymel on Sun May 08, 2011 2:18 am

Thanks Mouse. Great to hear all of that. Yeah I'm in Hamilton and yes I'll inquire at my GP about therapy funding, I hadn't thought of that! Yeah I think something that annoys me the most is that each of us are such different cases and there is no such thing as one size fits all! Not only do I want to get through this, I want every woman out there suffering to get through it...and it frustrates me no end that everything is such trial and error...

What kind of diatry changes have you mde? I've read so many theories...and I don't want to drastically change my diet if it's not worth it...but I'm making a real effort to reduce yeast, acid and sugar intake. Which really sucks as I enjoy beer, wine and baking! Sad But rather than eliminating completly I'm just doing as much as I can to replace it with something else when it suits. I'm not much of a drinker anyway so I tell myself that that helps...who knows though!

I've picked up my exercise (also to increase the happy endorphines) and have been doing yoga to help with relaxation and flexability. I was doing a bit of belly dancing for a while too and that's supposed to help with muscle tention in that area and learning to control muscles separately so I try to keep those moves up too when I'm doing mundain things like the dishes Wink

Trying to tackle it all "holistically" Wink

Sassymel

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Re: Trying something different

Post  Mouse on Mon May 09, 2011 12:49 am

Mel it sounds like you are doing some great work! It makes sense to me to look at everything you put in and do to your body.

I'm gluten free but that's because I'm lucky enough to have an auto immune disease. I'm now sugar free also which was quite an adjustment! It really works for me though. I think that if burning pain is an issure reducing acid foods is worth a shot. I hit the chocolate hard at Easter and had a major relapse, it was also period time so everything went wonky.

I'm really keen to start pilates. I used to do yoga and really enjoyed that.

We are on FB if you want to join. It's a private group, just email sebby and she will hook you up Smile

Mouse

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Re: Trying something different

Post  Aussie on Tue May 10, 2011 6:49 am

Vicki,

Not sure if pilates is such a good idea. I always used to do it before v and my specialist said that it is a bad bad idea for people with v as we have a hard enough time relaxing the pelvic floor. Alot of the moves in pilates increases ab tension and when you tense your abs you kind of cant help doing your pelvic floor... my tummy's gone to pot since i stopped pilates....so occasionaly I do a work out, and boy does my v flare the next day...it is not worth it, trust me.

Mel,

your approach sounds similar to mine and Vicki's I wish Aus medicare would help out with the costs of physio, your lucky over there. I get 5 sessions subsidised a year....I have used them all in 5 weeks. I have never heared of such a costly condition, even mum with all her medical things pays less than me a month for drugs/physio/massage etc. Keep going with it, it works! I too have come so far with the help of physio. Sex is now pain free almost all the time, mayabe a little burn afterwards but mostly great...I just can't go too wild (haha). So you will get there. My problem is I still have pain wearing jeans and even when I am wearning nothing, but sex, is pain free...in fact it is the only time other than sleeping I do not feel pain, go figure?!

Claire

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Re: Trying something different

Post  Mouse on Tue May 10, 2011 7:07 am

Thanks hon, I was going to ask my physio first. There are some pilates instructors who work alongside physios. My pelvic floor locks up as it is. Hey I'm probably too lazy anyway!

Mouse

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Re: Trying something different

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