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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Transversus Abs and Pelvic Floor

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Transversus Abs and Pelvic Floor

Post  Sarah001 on Tue May 10, 2011 6:38 pm

The co-contraction between the pelvic floor and Transversus Abs keeps cropping up in conversation and I know I personally would like to know how to avoid the pelvic floor while strengthening the much needed (in my case anyway) TA so after mulling it over for months and discussing it here and elsewhere with no firm answer I have emailed Isa Herrera at her PT clinic and will post what she says as soon as she gets back to me, let's have this sorted out once and for all!
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Re: Transversus Abs and Pelvic Floor

Post  Aussie on Tue May 17, 2011 3:03 am

Would love to know, please post!! xx

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Re: Transversus Abs and Pelvic Floor

Post  Sarah001 on Tue May 17, 2011 10:36 am

I'm desperate to know how to do this but a week later and Isa herrera hasn't answered me yet. I know the email reached her clinic as I received a confirmation email from someone there who said he would forward the email onto Isa so I've sent him another email just asking if Isa has read it yet. I also tried to find an email address for Amy Stein to ask her the same thing but can't find an email address anywhere for her so that didn't work out. I can't think of anyone else to ask. I'll let you know if Isa does answer at any point. On a birth site I found an article saying pregnant women should learn to tighten the TrA and relax the pelvic floor to help with pushing but again it didn't say exactly how to do this! Just a few hints would be helpful.....
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Re: Transversus Abs and Pelvic Floor

Post  Sarah001 on Mon Jun 06, 2011 1:18 pm

Well it's nearly a month now since I emailed Isa Herrera and despite me chasing it up and being told by her assistant my query would be read that day (couple of weeks ago) and he'd make sure it went on top of the pile of mail for her she still hasn't answered so it doesn't look like she will. Anyone else who also would like to know the answer to this, feel free to email her, maybe she'll reply if enough of us ask the question.
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Re: Transversus Abs and Pelvic Floor

Post  Sarah001 on Tue Jun 14, 2011 11:31 am

I'm still trying to get the hang of this, I usually do it wrong and end up with pelvic floor contraction too which leaves me with worse symptoms for the rest of the day but have managed it about 3 times in total. I can't do the contraction followed by pelvic floor drop or I let go of the TrAb contraction too so I'm having to try and learn to do it without any PF right from the word go but I'm finding it very difficult!
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Re: Transversus Abs and Pelvic Floor

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