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Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

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Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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Vulvodynia aggravated by allergies

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Vulvodynia aggravated by allergies

Post  ceebee on Mon May 16, 2011 6:39 am

I used to had mildly painful/uncomfortable intercourse, which would leave me quite sore (raw) for a few days after. Over about 10 years it got more & more painful but was still manageable (just..cringe cringe), I thought it was just me. Then I had my first child & the bottom dropped out. Sex with my husband was now so excruciating painful that we could hardly do it at all and on the rare occasion that we did it took ages to recover & I felt like I had been split in half & began to resent my husband & became very depressed.
I was diagnosed with vulvodynia & went on the diet, had physio, cut out chemicals in laundry & shower, and used a glass dilator to stretch the opening on my vagina. Nothing worked & this all just caused me more pain & made me more depressed & I pretty much gave up for a few years.
Then I was reading an article that some people with this condition have allergies & I had one of those 'Ah Ha...I wonder?' moments. I always have hay fever, often have skin rashes & hives, am sensitive to some food and recently my skin always felt itchy and sensitive to touch. Rub my skin for a few seconds and it was actually painful. All this had got progressively worse at exactly the same rate as the vulvodynia. I began taking Fexofenadine 180mg tablets (the ones for itchy skin/hives) and within a week a lot of the itchyness & rawness around the outside of my vagina had calmed down, then had a relapse but kept up the antihistamine and things improved a lot. After a few weeks we gave sex go & although slightly uncomfortable/painful on penetration, after a few mins it was fine. I also used a zinc oxide healing barrier cream (called Sudocrem in Australia usually for nappy rash) sparingly after sex just in case.

Its not a cure but for me it has got rid of something that was making it worse. I still have it and some days it hurts more than others but its so much better than it was.


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Re: Vulvodynia aggravated by allergies

Post  Sarah001 on Mon May 16, 2011 11:31 am

I'm on fexofenadine for hives too, it doesn't make a bit of difference to my V though unfortunately. I started in a similar way though with mild pain during sex which then snowballed into constant severe pain. I haven't had children but I know for some women it actually improves the situation. I assume your physio sessions found tight muscles as you've used a dilator? Could it have been done too fast? If we do things that keep causing pain our muscles never settle because they tense when they expect pain.

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Re: Vulvodynia aggravated by allergies

Post  Sebby (Admin) on Mon May 16, 2011 8:54 pm

I have always had sensitive skin as well as terrible hayfever. I too had always had midly painful intercourse and then ended up with constant pain just over 2years ago.

Even before the constant pain I could only use non biological soap powder, special soap from dr, no bubble baths etc

I am seeing a vulval dermatologist tomorrow so will be discussing all this with her

Thanks for the info.. have written the name of your medicine down to ask about it Smile


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Re: Vulvodynia aggravated by allergies

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