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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Vulvodynia aggravated by allergies

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Vulvodynia aggravated by allergies

Post  ceebee on Mon May 16, 2011 6:39 am

I used to had mildly painful/uncomfortable intercourse, which would leave me quite sore (raw) for a few days after. Over about 10 years it got more & more painful but was still manageable (just..cringe cringe), I thought it was just me. Then I had my first child & the bottom dropped out. Sex with my husband was now so excruciating painful that we could hardly do it at all and on the rare occasion that we did it took ages to recover & I felt like I had been split in half & began to resent my husband & became very depressed.
I was diagnosed with vulvodynia & went on the diet, had physio, cut out chemicals in laundry & shower, and used a glass dilator to stretch the opening on my vagina. Nothing worked & this all just caused me more pain & made me more depressed & I pretty much gave up for a few years.
Then I was reading an article that some people with this condition have allergies & I had one of those 'Ah Ha...I wonder?' moments. I always have hay fever, often have skin rashes & hives, am sensitive to some food and recently my skin always felt itchy and sensitive to touch. Rub my skin for a few seconds and it was actually painful. All this had got progressively worse at exactly the same rate as the vulvodynia. I began taking Fexofenadine 180mg tablets (the ones for itchy skin/hives) and within a week a lot of the itchyness & rawness around the outside of my vagina had calmed down, then had a relapse but kept up the antihistamine and things improved a lot. After a few weeks we gave sex go & although slightly uncomfortable/painful on penetration, after a few mins it was fine. I also used a zinc oxide healing barrier cream (called Sudocrem in Australia usually for nappy rash) sparingly after sex just in case.

Its not a cure but for me it has got rid of something that was making it worse. I still have it and some days it hurts more than others but its so much better than it was.

ceebee

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Re: Vulvodynia aggravated by allergies

Post  Sarah001 on Mon May 16, 2011 11:31 am

I'm on fexofenadine for hives too, it doesn't make a bit of difference to my V though unfortunately. I started in a similar way though with mild pain during sex which then snowballed into constant severe pain. I haven't had children but I know for some women it actually improves the situation. I assume your physio sessions found tight muscles as you've used a dilator? Could it have been done too fast? If we do things that keep causing pain our muscles never settle because they tense when they expect pain.
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Re: Vulvodynia aggravated by allergies

Post  Sebby (Admin) on Mon May 16, 2011 8:54 pm


I have always had sensitive skin as well as terrible hayfever. I too had always had midly painful intercourse and then ended up with constant pain just over 2years ago.

Even before the constant pain I could only use non biological soap powder, special soap from dr, no bubble baths etc

I am seeing a vulval dermatologist tomorrow so will be discussing all this with her

Thanks for the info.. have written the name of your medicine down to ask about it Smile


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