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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

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» Recently Diagnosed.... Help!
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» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

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» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

Vulvodynia aggravated by allergies

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Vulvodynia aggravated by allergies

Post  ceebee on Mon May 16, 2011 6:39 am

I used to had mildly painful/uncomfortable intercourse, which would leave me quite sore (raw) for a few days after. Over about 10 years it got more & more painful but was still manageable (just..cringe cringe), I thought it was just me. Then I had my first child & the bottom dropped out. Sex with my husband was now so excruciating painful that we could hardly do it at all and on the rare occasion that we did it took ages to recover & I felt like I had been split in half & began to resent my husband & became very depressed.
I was diagnosed with vulvodynia & went on the diet, had physio, cut out chemicals in laundry & shower, and used a glass dilator to stretch the opening on my vagina. Nothing worked & this all just caused me more pain & made me more depressed & I pretty much gave up for a few years.
Then I was reading an article that some people with this condition have allergies & I had one of those 'Ah Ha...I wonder?' moments. I always have hay fever, often have skin rashes & hives, am sensitive to some food and recently my skin always felt itchy and sensitive to touch. Rub my skin for a few seconds and it was actually painful. All this had got progressively worse at exactly the same rate as the vulvodynia. I began taking Fexofenadine 180mg tablets (the ones for itchy skin/hives) and within a week a lot of the itchyness & rawness around the outside of my vagina had calmed down, then had a relapse but kept up the antihistamine and things improved a lot. After a few weeks we gave sex go & although slightly uncomfortable/painful on penetration, after a few mins it was fine. I also used a zinc oxide healing barrier cream (called Sudocrem in Australia usually for nappy rash) sparingly after sex just in case.

Its not a cure but for me it has got rid of something that was making it worse. I still have it and some days it hurts more than others but its so much better than it was.


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Re: Vulvodynia aggravated by allergies

Post  Sarah001 on Mon May 16, 2011 11:31 am

I'm on fexofenadine for hives too, it doesn't make a bit of difference to my V though unfortunately. I started in a similar way though with mild pain during sex which then snowballed into constant severe pain. I haven't had children but I know for some women it actually improves the situation. I assume your physio sessions found tight muscles as you've used a dilator? Could it have been done too fast? If we do things that keep causing pain our muscles never settle because they tense when they expect pain.

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Re: Vulvodynia aggravated by allergies

Post  Sebby (Admin) on Mon May 16, 2011 8:54 pm

I have always had sensitive skin as well as terrible hayfever. I too had always had midly painful intercourse and then ended up with constant pain just over 2years ago.

Even before the constant pain I could only use non biological soap powder, special soap from dr, no bubble baths etc

I am seeing a vulval dermatologist tomorrow so will be discussing all this with her

Thanks for the info.. have written the name of your medicine down to ask about it Smile


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Re: Vulvodynia aggravated by allergies

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