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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

The pain comes and goes

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The pain comes and goes

Post  EmmaAte on Fri May 20, 2011 10:15 pm

I'm so glad you set up this forum! It's a relief to hear that my story doesn't differ much from other VV sufferers. My only difference is this -- I was diagnosed with vulvodynia in 2007 but I'd been experiencing pain for about 2 years previously. I was also married to an abusive jerk -- I assumed that my vulvodynia was psychosomatic. Fast forward a few years. I moved out, got divorced, started a new job, a new relationship (with the sweetest most wonderful guy I'd ever met) and suddenly, sex did not hurt AT ALL. My symptoms disappeared slowly because I didn't really notice their absence until I had sex for the first time in a while. It was an awesome period for about a year and a half.

Then, it felt like I got a yeast infection. I bought some monistat to curb symptoms until I could get to a doctor (I was out of town). It didn't help. Neither did the diflucan prescribed to me a week later. I was so uncomfortably itchy that I couldn't concentrate or sleep. I went back to the doctor and got a clean bill of health. So, I started alternative treatments -- yeast-free diet, genetian violet, yogurt, probiotics, and I started exercising. The pain did diminish but it still hurt after working out, or if I walked around too long, wore tight clothing, and definitely if I tried to have sex. In addition, I started having UTI symptoms. My visit to a gyno didn't answer any questions and instead, led me to a urologist who tentatively diagnosed me with interstitial cystitis. bleh.

I read somewhere online that noni and calcium citrate supplements have helped some people. I've been using them for a couple months now and honestly, honestly -- up until a couple days ago I've been able to have sex without pain. The one catch, I've discovered, is that I have to shower with cold water afterwards or else I suffer for the next couple days. I don't know why this is. And most frustrating part -- why did I have a year and a half reprieve? What was I doing right??? Has anyone else had this type of remission?


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Re: The pain comes and goes

Post  noni on Sat May 21, 2011 3:27 am

Hey there,

yes I have heard of women being is "remission" for years and then wham they get hit by V again.


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Re: The pain comes and goes

Post  Sebby (Admin) on Sat May 21, 2011 6:50 pm

Firstly welcome to our forum Smile

I got constant vulval pain just over 2 years ago now and have only noticed remission a couple of times for a month or so. Im not entirely sure why but it does seem that the pain has a mind of its own!

I have read about Calcium Citrate, with regards to oxylates in the diet but am trying so many things right now that I think if I add anything else to the mix I'll get proper confused!

Im wondering also if the pain with sex diminishes a bit when we meet someone new? I mean all those hormones and feel good chemicals have gotta have some kind of effect! Maybe the trick is to fight to keep that "new person" spark throughout the relationship..like go on dates again or dare I say it..role play? lol


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Re: The pain comes and goes

Post  Sarah001 on Sun May 22, 2011 1:08 pm

I read something the other day about oxalates and it recommended potassium citrate rather than calcium citrate, I don't recall the whys and explanations but it might be worth a google if you think oxalates are your problem.

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Re: The pain comes and goes

Post  Mouse on Mon May 23, 2011 12:51 am

My specialist recommended the oxalate diet. I did some research and found it was originally found to be helpful for one person! So became the advice of the day. I asked her in a subsequent email if I should have a test done before I took on another restrictive diet, she said she didn't know about a test. That demonstrates to me she knows sweet FA about it. From what I've read there would be a high concentration of oxalate crystal in urine which would burn. Drinking water can significantly reduce this. Ho-hum!


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Re: The pain comes and goes

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