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» I think I've developed vulvodynia?? Please help!
Yesterday at 9:10 pm by Necromeowncer

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:38 pm by Mel T

» New w/ Secondary Provoked Vestibuldynia
Sun Oct 22, 2017 3:47 am by Birdy

» Newly diagnosed
Sat Oct 21, 2017 9:50 pm by sarisbaris

» Prednisone Injections?
Wed Oct 18, 2017 5:07 am by sarisbaris

» Has anyone had continued success with gabapentin or Botox injections?
Wed Oct 18, 2017 4:47 am by sarisbaris

» Recent "Poke" Pain - So Confused/Losing My Mind
Wed Oct 18, 2017 2:37 am by sarisbaris

» What is Vulvodynia?
Tue Oct 17, 2017 11:57 pm by Jenjen

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Mon Oct 16, 2017 2:22 am by Sagewoman

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


The pain comes and goes

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The pain comes and goes

Post  EmmaAte on Fri May 20, 2011 10:15 pm

I'm so glad you set up this forum! It's a relief to hear that my story doesn't differ much from other VV sufferers. My only difference is this -- I was diagnosed with vulvodynia in 2007 but I'd been experiencing pain for about 2 years previously. I was also married to an abusive jerk -- I assumed that my vulvodynia was psychosomatic. Fast forward a few years. I moved out, got divorced, started a new job, a new relationship (with the sweetest most wonderful guy I'd ever met) and suddenly, sex did not hurt AT ALL. My symptoms disappeared slowly because I didn't really notice their absence until I had sex for the first time in a while. It was an awesome period for about a year and a half.

Then, it felt like I got a yeast infection. I bought some monistat to curb symptoms until I could get to a doctor (I was out of town). It didn't help. Neither did the diflucan prescribed to me a week later. I was so uncomfortably itchy that I couldn't concentrate or sleep. I went back to the doctor and got a clean bill of health. So, I started alternative treatments -- yeast-free diet, genetian violet, yogurt, probiotics, and I started exercising. The pain did diminish but it still hurt after working out, or if I walked around too long, wore tight clothing, and definitely if I tried to have sex. In addition, I started having UTI symptoms. My visit to a gyno didn't answer any questions and instead, led me to a urologist who tentatively diagnosed me with interstitial cystitis. bleh.

I read somewhere online that noni and calcium citrate supplements have helped some people. I've been using them for a couple months now and honestly, honestly -- up until a couple days ago I've been able to have sex without pain. The one catch, I've discovered, is that I have to shower with cold water afterwards or else I suffer for the next couple days. I don't know why this is. And most frustrating part -- why did I have a year and a half reprieve? What was I doing right??? Has anyone else had this type of remission?

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Re: The pain comes and goes

Post  noni on Sat May 21, 2011 3:27 am

Hey there,

yes I have heard of women being is "remission" for years and then wham they get hit by V again.

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Re: The pain comes and goes

Post  Sebby (Admin) on Sat May 21, 2011 6:50 pm


Firstly welcome to our forum Smile

I got constant vulval pain just over 2 years ago now and have only noticed remission a couple of times for a month or so. Im not entirely sure why but it does seem that the pain has a mind of its own!

I have read about Calcium Citrate, with regards to oxylates in the diet but am trying so many things right now that I think if I add anything else to the mix I'll get proper confused!

Im wondering also if the pain with sex diminishes a bit when we meet someone new? I mean all those hormones and feel good chemicals have gotta have some kind of effect! Maybe the trick is to fight to keep that "new person" spark throughout the relationship..like go on dates again or dare I say it..role play? lol


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Re: The pain comes and goes

Post  Sarah001 on Sun May 22, 2011 1:08 pm

I read something the other day about oxalates and it recommended potassium citrate rather than calcium citrate, I don't recall the whys and explanations but it might be worth a google if you think oxalates are your problem.
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Re: The pain comes and goes

Post  Mouse on Mon May 23, 2011 12:51 am

My specialist recommended the oxalate diet. I did some research and found it was originally found to be helpful for one person! So became the advice of the day. I asked her in a subsequent email if I should have a test done before I took on another restrictive diet, she said she didn't know about a test. That demonstrates to me she knows sweet FA about it. From what I've read there would be a high concentration of oxalate crystal in urine which would burn. Drinking water can significantly reduce this. Ho-hum!

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Re: The pain comes and goes

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