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» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


The pain comes and goes

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The pain comes and goes

Post  EmmaAte on Fri May 20, 2011 10:15 pm

I'm so glad you set up this forum! It's a relief to hear that my story doesn't differ much from other VV sufferers. My only difference is this -- I was diagnosed with vulvodynia in 2007 but I'd been experiencing pain for about 2 years previously. I was also married to an abusive jerk -- I assumed that my vulvodynia was psychosomatic. Fast forward a few years. I moved out, got divorced, started a new job, a new relationship (with the sweetest most wonderful guy I'd ever met) and suddenly, sex did not hurt AT ALL. My symptoms disappeared slowly because I didn't really notice their absence until I had sex for the first time in a while. It was an awesome period for about a year and a half.

Then, it felt like I got a yeast infection. I bought some monistat to curb symptoms until I could get to a doctor (I was out of town). It didn't help. Neither did the diflucan prescribed to me a week later. I was so uncomfortably itchy that I couldn't concentrate or sleep. I went back to the doctor and got a clean bill of health. So, I started alternative treatments -- yeast-free diet, genetian violet, yogurt, probiotics, and I started exercising. The pain did diminish but it still hurt after working out, or if I walked around too long, wore tight clothing, and definitely if I tried to have sex. In addition, I started having UTI symptoms. My visit to a gyno didn't answer any questions and instead, led me to a urologist who tentatively diagnosed me with interstitial cystitis. bleh.

I read somewhere online that noni and calcium citrate supplements have helped some people. I've been using them for a couple months now and honestly, honestly -- up until a couple days ago I've been able to have sex without pain. The one catch, I've discovered, is that I have to shower with cold water afterwards or else I suffer for the next couple days. I don't know why this is. And most frustrating part -- why did I have a year and a half reprieve? What was I doing right??? Has anyone else had this type of remission?

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Re: The pain comes and goes

Post  noni on Sat May 21, 2011 3:27 am

Hey there,

yes I have heard of women being is "remission" for years and then wham they get hit by V again.

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Re: The pain comes and goes

Post  Sebby (Admin) on Sat May 21, 2011 6:50 pm


Firstly welcome to our forum Smile

I got constant vulval pain just over 2 years ago now and have only noticed remission a couple of times for a month or so. Im not entirely sure why but it does seem that the pain has a mind of its own!

I have read about Calcium Citrate, with regards to oxylates in the diet but am trying so many things right now that I think if I add anything else to the mix I'll get proper confused!

Im wondering also if the pain with sex diminishes a bit when we meet someone new? I mean all those hormones and feel good chemicals have gotta have some kind of effect! Maybe the trick is to fight to keep that "new person" spark throughout the relationship..like go on dates again or dare I say it..role play? lol


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Re: The pain comes and goes

Post  Sarah001 on Sun May 22, 2011 1:08 pm

I read something the other day about oxalates and it recommended potassium citrate rather than calcium citrate, I don't recall the whys and explanations but it might be worth a google if you think oxalates are your problem.
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Re: The pain comes and goes

Post  Mouse on Mon May 23, 2011 12:51 am

My specialist recommended the oxalate diet. I did some research and found it was originally found to be helpful for one person! So became the advice of the day. I asked her in a subsequent email if I should have a test done before I took on another restrictive diet, she said she didn't know about a test. That demonstrates to me she knows sweet FA about it. From what I've read there would be a high concentration of oxalate crystal in urine which would burn. Drinking water can significantly reduce this. Ho-hum!

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Re: The pain comes and goes

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