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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


The pain comes and goes

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The pain comes and goes

Post  EmmaAte on Fri May 20, 2011 10:15 pm

I'm so glad you set up this forum! It's a relief to hear that my story doesn't differ much from other VV sufferers. My only difference is this -- I was diagnosed with vulvodynia in 2007 but I'd been experiencing pain for about 2 years previously. I was also married to an abusive jerk -- I assumed that my vulvodynia was psychosomatic. Fast forward a few years. I moved out, got divorced, started a new job, a new relationship (with the sweetest most wonderful guy I'd ever met) and suddenly, sex did not hurt AT ALL. My symptoms disappeared slowly because I didn't really notice their absence until I had sex for the first time in a while. It was an awesome period for about a year and a half.

Then, it felt like I got a yeast infection. I bought some monistat to curb symptoms until I could get to a doctor (I was out of town). It didn't help. Neither did the diflucan prescribed to me a week later. I was so uncomfortably itchy that I couldn't concentrate or sleep. I went back to the doctor and got a clean bill of health. So, I started alternative treatments -- yeast-free diet, genetian violet, yogurt, probiotics, and I started exercising. The pain did diminish but it still hurt after working out, or if I walked around too long, wore tight clothing, and definitely if I tried to have sex. In addition, I started having UTI symptoms. My visit to a gyno didn't answer any questions and instead, led me to a urologist who tentatively diagnosed me with interstitial cystitis. bleh.

I read somewhere online that noni and calcium citrate supplements have helped some people. I've been using them for a couple months now and honestly, honestly -- up until a couple days ago I've been able to have sex without pain. The one catch, I've discovered, is that I have to shower with cold water afterwards or else I suffer for the next couple days. I don't know why this is. And most frustrating part -- why did I have a year and a half reprieve? What was I doing right??? Has anyone else had this type of remission?

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Re: The pain comes and goes

Post  noni on Sat May 21, 2011 3:27 am

Hey there,

yes I have heard of women being is "remission" for years and then wham they get hit by V again.

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Re: The pain comes and goes

Post  Sebby (Admin) on Sat May 21, 2011 6:50 pm


Firstly welcome to our forum Smile

I got constant vulval pain just over 2 years ago now and have only noticed remission a couple of times for a month or so. Im not entirely sure why but it does seem that the pain has a mind of its own!

I have read about Calcium Citrate, with regards to oxylates in the diet but am trying so many things right now that I think if I add anything else to the mix I'll get proper confused!

Im wondering also if the pain with sex diminishes a bit when we meet someone new? I mean all those hormones and feel good chemicals have gotta have some kind of effect! Maybe the trick is to fight to keep that "new person" spark throughout the relationship..like go on dates again or dare I say it..role play? lol


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Re: The pain comes and goes

Post  Sarah001 on Sun May 22, 2011 1:08 pm

I read something the other day about oxalates and it recommended potassium citrate rather than calcium citrate, I don't recall the whys and explanations but it might be worth a google if you think oxalates are your problem.
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Re: The pain comes and goes

Post  Mouse on Mon May 23, 2011 12:51 am

My specialist recommended the oxalate diet. I did some research and found it was originally found to be helpful for one person! So became the advice of the day. I asked her in a subsequent email if I should have a test done before I took on another restrictive diet, she said she didn't know about a test. That demonstrates to me she knows sweet FA about it. From what I've read there would be a high concentration of oxalate crystal in urine which would burn. Drinking water can significantly reduce this. Ho-hum!

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Re: The pain comes and goes

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