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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


Saw vuval dermatologist..

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Saw vuval dermatologist..

Post  Sebby (Admin) on Sat May 21, 2011 7:03 pm


I saw a Vuval dermatoligist a few days ago (prob spelled that wrong lol)

I got her name off the Vuval Pain society's Vuval clinic list (this list is also on this forum..under Vulvodynia info)

I saw her at Whips Cross hosptial and she was the first dr who really knew about V and seemed to really care.

She examined me and said that I do not have any skin disease..phew! I guess

I told her about the biofeedback from Dr Glazer and she said "oh Howard!" yeah she knew him and his research, that was odd lol. What was also very interesting from the examination is she said that when she pressed on the entrance to my Vagina she felt my pelvic floor tighten and go into spasm! This is the first time a dr has confirmed for me what I have thought was going on!

She said to carry on with the Pregabalin for the time being, the biofeedback and told me to do pilates as a way of relaxing the pelvic floor. She also recommended a book called "a headache in the Pelvis" which I am about to Google to find out more about it.

She also stated to carry on with the counselling to help with the psychological aspects of pain and gave me lidocaine for bad pain days. I havent tried this yet am a little nervous.

She also said that there was a current experiment in the USA where they got a bunch on women to use Lidocaine 5% for a month 3 times a day and this helped to calm the nerve endings

I'm gonna try the lidocaine on a different piece of skin first as she said it will sting at first..gulp!

Right am off to google that book..but all in all Im told im doing all the right things and she was the best dr I have ever seen Smile

Keep the faith girls she said it is so possible for us to get better!

Godbless


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Re: Saw vuval dermatologist..

Post  noni on Sun May 22, 2011 2:34 am

Hey Sebby!

Your post pretty much summed up my last Vulvar dermatologist appointment! Smile

Its good to know you are otherwise healthy down there and dont have a skin condition.

Im tired, sorry. Long day.

noni Smile
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Re: Saw vuval dermatologist..

Post  Sarah001 on Sun May 22, 2011 1:05 pm

That sounds like a good appointment Sebby, alot more informed than the Vulvar Dermatologist I see! My Women's Health Physio had heard of Dr Glazer too but wasn't keen on his method so she hadn't met him or attended a course etc. As for your doctor suggesting Pilates for relaxing the pelvic floor, be very careful with that as pilates style exercises flared my V up in the first place as I was using too much pelvic floor activity. If you've seen my post about the Transversus Abs and Pelvic Floor I'm waiting for Isa Herrera to get back to us with any tips she can give about using the TrA without contracting the pelvic floor which is what she recommends in her book to strengthen the core but not overdo the PF. If you've tried it and have found a way to do that please share! Otherwise at least there's one Vulvar Dermatologist with some understanding about this and who bothered to check the pelvic floor! Mine won't even discuss the pelvic floor, she just looks blank when I bring it up and then proceeds to tell me which drug she's adding this time.

I've got some lidocaine ointment but it really irritated my inflamed skin. It's really for provoked V so sex and tampons don't hurt so much, if pain is everywhere on the vulva it won't do alot because it's only applied in the vestibule but it's personal choice if you try it.

I almost bought a Headache In The Pelvis but someone on a review said it was alot about how it's in your head which put me off, I don't know if it is or not as I just read reviews about it. A good book I've recently read is When Sex Hurts which was mentioned in another thread and it's really good because it scorns the diagnosis of Vulvodynia which of course we all know doesn't tell us what's wrong and goes through all the possible causes and treatment options which I liked. For me I know my pelvic floor and wobbly pelvis are the cause but it's nice to read about it and see what it says about how that connects to inflamed skin etc.

Anyway glad you're happy after your appointment. Wink
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Re: Saw vuval dermatologist..

Post  Aussie on Wed May 25, 2011 2:43 am

Hey Sarah,

I think I have got it! I have worked out how to tense abs and not pelvic floor, if that's what you mean? I gently contract abs then do the "drop' of pelvic floor and I can feel it completely relax, as if I wasnt tensing my abs. I feel it through my bottom cheeks to, if that makes a difference, just eveything relaxes. I hope this helps.

Sebby glad you have found someone that hasn't brushed you off Smile xx

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Re: Saw vuval dermatologist..

Post  Sarah001 on Wed May 25, 2011 9:26 am

Ok I can kind of do that, I can relax the pelvic floor a little bit while holding the abs tense but not all the way! I even tried it while peeing, trying to keep the flow constant while tensing the abs but it sort of reduced down to a dribble! Rolling Eyes I find my pelvic floor flutters while I'm trying to do it, it desperately wants to tighten up and keeps fluttering on and off. Bloody pelvic floors!
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Re: Saw vuval dermatologist..

Post  Sebby (Admin) on Thu May 26, 2011 8:05 pm


Thanks girls...have just bought the Gym Ball recommened in the book so will be trying it this weekend!

Im not sure I understand how to do it all at the moment but I will give it a go and if it makes it worse I'll just stop

As for the lidocaine..well I tried it whilst having a flare up and It didnt make anything numb! Maybe I didnt use enough? it said between 2 and 4 centimetres so tried just 2 at first.

It well stings like she said when you first put it on..really not sure I like it..I mean if it stung and then made it go numb I might think differently but I didnt feel any difference?

I just put it on the vestibule area and wondered if this would help with the sitting etc during the flare up but I still had to lie down as sitting still put too much pressure on it!

Really am disapointed with it but I will probably just try it again and use more..if its still rubbish I just wont bother


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Re: Saw vuval dermatologist..

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