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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Saw vuval dermatologist..

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Saw vuval dermatologist..

Post  Sebby (Admin) on Sat May 21, 2011 7:03 pm


I saw a Vuval dermatoligist a few days ago (prob spelled that wrong lol)

I got her name off the Vuval Pain society's Vuval clinic list (this list is also on this forum..under Vulvodynia info)

I saw her at Whips Cross hosptial and she was the first dr who really knew about V and seemed to really care.

She examined me and said that I do not have any skin disease..phew! I guess

I told her about the biofeedback from Dr Glazer and she said "oh Howard!" yeah she knew him and his research, that was odd lol. What was also very interesting from the examination is she said that when she pressed on the entrance to my Vagina she felt my pelvic floor tighten and go into spasm! This is the first time a dr has confirmed for me what I have thought was going on!

She said to carry on with the Pregabalin for the time being, the biofeedback and told me to do pilates as a way of relaxing the pelvic floor. She also recommended a book called "a headache in the Pelvis" which I am about to Google to find out more about it.

She also stated to carry on with the counselling to help with the psychological aspects of pain and gave me lidocaine for bad pain days. I havent tried this yet am a little nervous.

She also said that there was a current experiment in the USA where they got a bunch on women to use Lidocaine 5% for a month 3 times a day and this helped to calm the nerve endings

I'm gonna try the lidocaine on a different piece of skin first as she said it will sting at first..gulp!

Right am off to google that book..but all in all Im told im doing all the right things and she was the best dr I have ever seen Smile

Keep the faith girls she said it is so possible for us to get better!

Godbless


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Re: Saw vuval dermatologist..

Post  noni on Sun May 22, 2011 2:34 am

Hey Sebby!

Your post pretty much summed up my last Vulvar dermatologist appointment! Smile

Its good to know you are otherwise healthy down there and dont have a skin condition.

Im tired, sorry. Long day.

noni Smile
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Re: Saw vuval dermatologist..

Post  Sarah001 on Sun May 22, 2011 1:05 pm

That sounds like a good appointment Sebby, alot more informed than the Vulvar Dermatologist I see! My Women's Health Physio had heard of Dr Glazer too but wasn't keen on his method so she hadn't met him or attended a course etc. As for your doctor suggesting Pilates for relaxing the pelvic floor, be very careful with that as pilates style exercises flared my V up in the first place as I was using too much pelvic floor activity. If you've seen my post about the Transversus Abs and Pelvic Floor I'm waiting for Isa Herrera to get back to us with any tips she can give about using the TrA without contracting the pelvic floor which is what she recommends in her book to strengthen the core but not overdo the PF. If you've tried it and have found a way to do that please share! Otherwise at least there's one Vulvar Dermatologist with some understanding about this and who bothered to check the pelvic floor! Mine won't even discuss the pelvic floor, she just looks blank when I bring it up and then proceeds to tell me which drug she's adding this time.

I've got some lidocaine ointment but it really irritated my inflamed skin. It's really for provoked V so sex and tampons don't hurt so much, if pain is everywhere on the vulva it won't do alot because it's only applied in the vestibule but it's personal choice if you try it.

I almost bought a Headache In The Pelvis but someone on a review said it was alot about how it's in your head which put me off, I don't know if it is or not as I just read reviews about it. A good book I've recently read is When Sex Hurts which was mentioned in another thread and it's really good because it scorns the diagnosis of Vulvodynia which of course we all know doesn't tell us what's wrong and goes through all the possible causes and treatment options which I liked. For me I know my pelvic floor and wobbly pelvis are the cause but it's nice to read about it and see what it says about how that connects to inflamed skin etc.

Anyway glad you're happy after your appointment. Wink
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Re: Saw vuval dermatologist..

Post  Aussie on Wed May 25, 2011 2:43 am

Hey Sarah,

I think I have got it! I have worked out how to tense abs and not pelvic floor, if that's what you mean? I gently contract abs then do the "drop' of pelvic floor and I can feel it completely relax, as if I wasnt tensing my abs. I feel it through my bottom cheeks to, if that makes a difference, just eveything relaxes. I hope this helps.

Sebby glad you have found someone that hasn't brushed you off Smile xx

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Re: Saw vuval dermatologist..

Post  Sarah001 on Wed May 25, 2011 9:26 am

Ok I can kind of do that, I can relax the pelvic floor a little bit while holding the abs tense but not all the way! I even tried it while peeing, trying to keep the flow constant while tensing the abs but it sort of reduced down to a dribble! Rolling Eyes I find my pelvic floor flutters while I'm trying to do it, it desperately wants to tighten up and keeps fluttering on and off. Bloody pelvic floors!
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Re: Saw vuval dermatologist..

Post  Sebby (Admin) on Thu May 26, 2011 8:05 pm


Thanks girls...have just bought the Gym Ball recommened in the book so will be trying it this weekend!

Im not sure I understand how to do it all at the moment but I will give it a go and if it makes it worse I'll just stop

As for the lidocaine..well I tried it whilst having a flare up and It didnt make anything numb! Maybe I didnt use enough? it said between 2 and 4 centimetres so tried just 2 at first.

It well stings like she said when you first put it on..really not sure I like it..I mean if it stung and then made it go numb I might think differently but I didnt feel any difference?

I just put it on the vestibule area and wondered if this would help with the sitting etc during the flare up but I still had to lie down as sitting still put too much pressure on it!

Really am disapointed with it but I will probably just try it again and use more..if its still rubbish I just wont bother


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Re: Saw vuval dermatologist..

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