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    » Vestibulectomy
    Yesterday at 12:39 pm by Hopeitworks

    » Anyone been to see Dr.Claire Bailey in Birmingham?
    Tue Aug 15, 2017 6:36 pm by Kezz

    » Recently Diagnosed.... Help!
    Tue Aug 15, 2017 2:57 pm by amyhp

    » Discomfort from my own liquids
    Sun Aug 13, 2017 4:27 am by Hopeitworks

    » Anyone else have burning on the front of thighs?
    Sun Aug 13, 2017 2:20 am by Hopeitworks

    » Partial Vestibulectomy
    Sun Aug 13, 2017 1:38 am by infinitelywondering

    » Anyone being treated by Drexel University???
    Sat Aug 12, 2017 8:50 pm by Hopeitworks

    » Post Vestibulectomy Pain !!!
    Sat Aug 12, 2017 8:00 pm by sj17

    » Pain management - what works for me
    Sat Aug 12, 2017 9:58 am by sj17

    Partial Vestibulectomy

    Mon Jul 31, 2017 6:44 pm by JGD13

    Hi all i am new here.
    I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
    After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

    Comments: 4

    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 3

    Anyone from the PNW?

    Sat Aug 05, 2017 7:54 am by jungleclover

    I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

    Comments: 0

    Constant pain, I want to die.

    Fri Jun 02, 2017 4:29 am by Meggiemay

    I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

    For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

    Comments: 22

    Newbie to the site

    Sun Jul 30, 2017 12:16 am by Ksa

    Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

    Comments: 1

    New to the site and just had a vestibulectomy

    Fri Aug 04, 2017 12:19 am by Hopeitworks

    Hello Everyone,

    I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

    Comments: 2

    Post Vestibulectomy

    Thu Aug 03, 2017 6:15 pm by infinitelywondering

    Heya,

    I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

    However, today I came home and have done the following things:

    -washed with warm water
    -applied manuka honey to the area
    -ensured I wash at least 3 times a day and dab the area dry gently
    -use frozen peas to stop the swelling

    As of now I am …

    Comments: 0

    can anyone recommend a good dermatologist in LA?

    Thu Jul 27, 2017 4:17 pm by saffron

    Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

    I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

    Comments: 3

    Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

    Sun Jul 30, 2017 1:03 am by Carolyn4

    Hi everyone,

    I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

    Comments: 0


    Saw vuval dermatologist..

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    Saw vuval dermatologist..

    Post  Sebby (Admin) on Sat May 21, 2011 7:03 pm


    I saw a Vuval dermatoligist a few days ago (prob spelled that wrong lol)

    I got her name off the Vuval Pain society's Vuval clinic list (this list is also on this forum..under Vulvodynia info)

    I saw her at Whips Cross hosptial and she was the first dr who really knew about V and seemed to really care.

    She examined me and said that I do not have any skin disease..phew! I guess

    I told her about the biofeedback from Dr Glazer and she said "oh Howard!" yeah she knew him and his research, that was odd lol. What was also very interesting from the examination is she said that when she pressed on the entrance to my Vagina she felt my pelvic floor tighten and go into spasm! This is the first time a dr has confirmed for me what I have thought was going on!

    She said to carry on with the Pregabalin for the time being, the biofeedback and told me to do pilates as a way of relaxing the pelvic floor. She also recommended a book called "a headache in the Pelvis" which I am about to Google to find out more about it.

    She also stated to carry on with the counselling to help with the psychological aspects of pain and gave me lidocaine for bad pain days. I havent tried this yet am a little nervous.

    She also said that there was a current experiment in the USA where they got a bunch on women to use Lidocaine 5% for a month 3 times a day and this helped to calm the nerve endings

    I'm gonna try the lidocaine on a different piece of skin first as she said it will sting at first..gulp!

    Right am off to google that book..but all in all Im told im doing all the right things and she was the best dr I have ever seen Smile

    Keep the faith girls she said it is so possible for us to get better!

    Godbless


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    Re: Saw vuval dermatologist..

    Post  noni on Sun May 22, 2011 2:34 am

    Hey Sebby!

    Your post pretty much summed up my last Vulvar dermatologist appointment! Smile

    Its good to know you are otherwise healthy down there and dont have a skin condition.

    Im tired, sorry. Long day.

    noni Smile
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    Re: Saw vuval dermatologist..

    Post  Sarah001 on Sun May 22, 2011 1:05 pm

    That sounds like a good appointment Sebby, alot more informed than the Vulvar Dermatologist I see! My Women's Health Physio had heard of Dr Glazer too but wasn't keen on his method so she hadn't met him or attended a course etc. As for your doctor suggesting Pilates for relaxing the pelvic floor, be very careful with that as pilates style exercises flared my V up in the first place as I was using too much pelvic floor activity. If you've seen my post about the Transversus Abs and Pelvic Floor I'm waiting for Isa Herrera to get back to us with any tips she can give about using the TrA without contracting the pelvic floor which is what she recommends in her book to strengthen the core but not overdo the PF. If you've tried it and have found a way to do that please share! Otherwise at least there's one Vulvar Dermatologist with some understanding about this and who bothered to check the pelvic floor! Mine won't even discuss the pelvic floor, she just looks blank when I bring it up and then proceeds to tell me which drug she's adding this time.

    I've got some lidocaine ointment but it really irritated my inflamed skin. It's really for provoked V so sex and tampons don't hurt so much, if pain is everywhere on the vulva it won't do alot because it's only applied in the vestibule but it's personal choice if you try it.

    I almost bought a Headache In The Pelvis but someone on a review said it was alot about how it's in your head which put me off, I don't know if it is or not as I just read reviews about it. A good book I've recently read is When Sex Hurts which was mentioned in another thread and it's really good because it scorns the diagnosis of Vulvodynia which of course we all know doesn't tell us what's wrong and goes through all the possible causes and treatment options which I liked. For me I know my pelvic floor and wobbly pelvis are the cause but it's nice to read about it and see what it says about how that connects to inflamed skin etc.

    Anyway glad you're happy after your appointment. Wink
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    Re: Saw vuval dermatologist..

    Post  Aussie on Wed May 25, 2011 2:43 am

    Hey Sarah,

    I think I have got it! I have worked out how to tense abs and not pelvic floor, if that's what you mean? I gently contract abs then do the "drop' of pelvic floor and I can feel it completely relax, as if I wasnt tensing my abs. I feel it through my bottom cheeks to, if that makes a difference, just eveything relaxes. I hope this helps.

    Sebby glad you have found someone that hasn't brushed you off Smile xx

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    Re: Saw vuval dermatologist..

    Post  Sarah001 on Wed May 25, 2011 9:26 am

    Ok I can kind of do that, I can relax the pelvic floor a little bit while holding the abs tense but not all the way! I even tried it while peeing, trying to keep the flow constant while tensing the abs but it sort of reduced down to a dribble! Rolling Eyes I find my pelvic floor flutters while I'm trying to do it, it desperately wants to tighten up and keeps fluttering on and off. Bloody pelvic floors!
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    Re: Saw vuval dermatologist..

    Post  Sebby (Admin) on Thu May 26, 2011 8:05 pm


    Thanks girls...have just bought the Gym Ball recommened in the book so will be trying it this weekend!

    Im not sure I understand how to do it all at the moment but I will give it a go and if it makes it worse I'll just stop

    As for the lidocaine..well I tried it whilst having a flare up and It didnt make anything numb! Maybe I didnt use enough? it said between 2 and 4 centimetres so tried just 2 at first.

    It well stings like she said when you first put it on..really not sure I like it..I mean if it stung and then made it go numb I might think differently but I didnt feel any difference?

    I just put it on the vestibule area and wondered if this would help with the sitting etc during the flare up but I still had to lie down as sitting still put too much pressure on it!

    Really am disapointed with it but I will probably just try it again and use more..if its still rubbish I just wont bother


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