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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


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Post  ria on Mon May 23, 2011 4:34 pm

Hello Ladies,

My Consultant faxed a letter to my GP for me to be prescribed Gabapentin.I have been to the Doctors today to pick up a prescription. I was taking Nortriptyline but had a reaction tried Venlafaxine but did not tolerate it at all. The Lady Doctor seemed reluctant for me to go on the Gabapentin and suggested I try Nortriptyline again as she was concerned with the side affects of the Gabapentin, she suggested taking clarityn with the Nortriptyline.

When on the Nortriptyline 75mg it did help but never went away. I have been looking on the web at some clinical trials
using Gabapentin, see below. I have both prescriptions, any feedback?

Many Thanks. Ria


A total of 152 patients were included in the study. Ninety-eight (64%) patients treated with gabapentin had resolution of at least 80% of their symptoms during the study period. Forty-nine (32%) did not have adequate resolution. There was a high percentage of comorbidities in patients with generalized vulvodynia. Sleep disturbance was the only comorbidity that negatively affected the efficacy of gabapentin. In addition, there appeared to be a trend toward a less favorable response in patients with a longer period of untreated illness (p value not less than 0.05). Side effects of gabapentin were few. Forty (26%) reported some side effects. Fatigue was the most common complaint. Seventeen patients (11%) discontinued the medication secondary to side effects.

Gabapentin appears to be very effective in the treatment of generalized vulvodynia, unprovoked. It has a very low side effect profile. Certain patients may be less likely to benefit from gabapentin, including those with the comorbidity of sleep disturbance. Patients with symptoms of longer-standing generalized vulvodynia, unprovoked, may also be less likely to benefit from this treatment.


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Re: Gabapentin

Post  noni on Mon May 23, 2011 10:05 pm

Hey Ria,

Thanks for this post.

Over here its called Neurontin...and I have read its pretty effective with V. I wish you the best!


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Re: Gabapentin

Post  Sarah001 on Tue May 24, 2011 9:58 am

I'm on Pregabalin which is also an anti-convulsant (but alot more expensive than Gaba) and it helps. You can only really figure out if they will help you by trying them. Good luck.

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Re: Gabapentin

Post  Aussie on Wed May 25, 2011 2:34 am

I too am on gaba, well I was. I stopped after 10 weeks because it hadn't made a difference, no side effects other than dry mouth and felt a bit groggy for the first 2 weeks. I seem to tolorate meds well though.


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Post  ria on Wed May 25, 2011 12:10 pm

Hi All,

Sitting here at the computer with my Gabapentin just picked it up from the pharmacy, drugs they scare me. I have taken nothing for 10days but I know I may need them if the V kicks in. I was told to take all medication for 6 months to allow the nerves to heal, but the nortriptyline gave me a reaction so I stopped taking it.

I can feel mild discomfort but its ok, does anyone have no pain on meds, forums always say they still have a level of background vulva pain. My Vulva Specialists said take them everyday even if you think its gone away. Anyone put weight on with Gabapentin, some forums say they have piled it on..................... Sad Sad Sad Sad Sad

Well Gapapentin in one hand and a bottle of red wine.................I have not had a drink for ages tonite I am having some wine and I will think about the Medication tomorrow. I just want my life back No alcohol when on Medication. Please anyone on medication totally free of any discomfort/pain?

Thank you girls its good to talk cheers Laughing Laughing Laughing Ria


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Re: Gabapentin

Post  Sarah001 on Wed May 25, 2011 6:46 pm

What I find with meds is they work well on burning pain but not on soreness/rawness type pain. The combination of Ami and Lyrica has almost got rid of all my burning but had little effect on the rawness I feel in the vestibule which is a real pity because if they worked on both types of pain I'd be feeling pretty good now. I've gained half a stone but can honestly say it's because the tablets cause an increased appetite, initially I thought I was eating the same as always but gaining weight so I started to keep tabs on every morsel that went in my mouth and soon realised I was actually eating quite a bit more so I'm now keeping an eye on that but do find I'm hungry alot of the time. They can also cause water retention which no doubt adds to the weight gain. So I can't tell you I'm painfree on meds no but they do help some and even though I know I shouldn't I do drink alcohol while taking the above and don't find it any different to before I was on meds!

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Re: Gabapentin

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