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Yesterday at 7:34 pm by Jo44

» Weird Reactions to Natural Remedies
Yesterday at 4:38 pm by emalita

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Gabapentin

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Gabapentin

Post  ria on Mon May 23, 2011 4:34 pm


Hello Ladies,

My Consultant faxed a letter to my GP for me to be prescribed Gabapentin.I have been to the Doctors today to pick up a prescription. I was taking Nortriptyline but had a reaction tried Venlafaxine but did not tolerate it at all. The Lady Doctor seemed reluctant for me to go on the Gabapentin and suggested I try Nortriptyline again as she was concerned with the side affects of the Gabapentin, she suggested taking clarityn with the Nortriptyline.

When on the Nortriptyline 75mg it did help but never went away. I have been looking on the web at some clinical trials
using Gabapentin, see below. I have both prescriptions, any feedback?

Many Thanks. Ria

RESULTS:

A total of 152 patients were included in the study. Ninety-eight (64%) patients treated with gabapentin had resolution of at least 80% of their symptoms during the study period. Forty-nine (32%) did not have adequate resolution. There was a high percentage of comorbidities in patients with generalized vulvodynia. Sleep disturbance was the only comorbidity that negatively affected the efficacy of gabapentin. In addition, there appeared to be a trend toward a less favorable response in patients with a longer period of untreated illness (p value not less than 0.05). Side effects of gabapentin were few. Forty (26%) reported some side effects. Fatigue was the most common complaint. Seventeen patients (11%) discontinued the medication secondary to side effects.
CONCLUSION:

Gabapentin appears to be very effective in the treatment of generalized vulvodynia, unprovoked. It has a very low side effect profile. Certain patients may be less likely to benefit from gabapentin, including those with the comorbidity of sleep disturbance. Patients with symptoms of longer-standing generalized vulvodynia, unprovoked, may also be less likely to benefit from this treatment.

ria

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Re: Gabapentin

Post  noni on Mon May 23, 2011 10:05 pm

Hey Ria,

Thanks for this post.

Over here its called Neurontin...and I have read its pretty effective with V. I wish you the best!

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Re: Gabapentin

Post  Sarah001 on Tue May 24, 2011 9:58 am

I'm on Pregabalin which is also an anti-convulsant (but alot more expensive than Gaba) and it helps. You can only really figure out if they will help you by trying them. Good luck.
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Re: Gabapentin

Post  Aussie on Wed May 25, 2011 2:34 am

I too am on gaba, well I was. I stopped after 10 weeks because it hadn't made a difference, no side effects other than dry mouth and felt a bit groggy for the first 2 weeks. I seem to tolorate meds well though.

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GABAPENTIN

Post  ria on Wed May 25, 2011 12:10 pm

Hi All,

Sitting here at the computer with my Gabapentin just picked it up from the pharmacy, drugs they scare me. I have taken nothing for 10days but I know I may need them if the V kicks in. I was told to take all medication for 6 months to allow the nerves to heal, but the nortriptyline gave me a reaction so I stopped taking it.

I can feel mild discomfort but its ok, does anyone have no pain on meds, forums always say they still have a level of background vulva pain. My Vulva Specialists said take them everyday even if you think its gone away. Anyone put weight on with Gabapentin, some forums say they have piled it on..................... Sad Sad Sad Sad Sad

Well Gapapentin in one hand and a bottle of red wine.................I have not had a drink for ages tonite I am having some wine and I will think about the Medication tomorrow. I just want my life back No alcohol when on Medication. Please anyone on medication totally free of any discomfort/pain?


Thank you girls its good to talk cheers Laughing Laughing Laughing Ria

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Re: Gabapentin

Post  Sarah001 on Wed May 25, 2011 6:46 pm

What I find with meds is they work well on burning pain but not on soreness/rawness type pain. The combination of Ami and Lyrica has almost got rid of all my burning but had little effect on the rawness I feel in the vestibule which is a real pity because if they worked on both types of pain I'd be feeling pretty good now. I've gained half a stone but can honestly say it's because the tablets cause an increased appetite, initially I thought I was eating the same as always but gaining weight so I started to keep tabs on every morsel that went in my mouth and soon realised I was actually eating quite a bit more so I'm now keeping an eye on that but do find I'm hungry alot of the time. They can also cause water retention which no doubt adds to the weight gain. So I can't tell you I'm painfree on meds no but they do help some and even though I know I shouldn't I do drink alcohol while taking the above and don't find it any different to before I was on meds!
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Re: Gabapentin

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