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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


New member, feeling very down

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Re: New member, feeling very down

Post  jules on Sun Jul 31, 2011 2:49 pm

Vicki...wow, you have lots going on. i hope you can find time for you. it is very hard to work w/ V and your other health issues. What's up w/ the burning in your hands etc. how about a chiropractor. that's helped me in the past w/ numbness in my hands. i haven't had that problem in years. it wasn't burning, just tingling. i know it was related to my back issues. as for the feeling of hair pulling, i have never felt that. however, i have seen on the V facebook page that many women have. hope your health improves soon. miss chatting!

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Re: New member, feeling very down

Post  JustWantHelp on Fri Aug 05, 2011 9:12 pm

Hi ladies! I am new here and I have been suffering for almost 2 years from intense burning!! It all started after a really bad yeast infection. I have seen 17 doctors including dermatologists and they cants find what it is, nobody wants to help me and the one doctor that acts like he cares tells me it isn't vulvodynia when I think it is. Well anyways I hope you don't mind me asking a question or two Very Happy Other than certain foods and coffee, are there any other things that cause your pain to get worse? For me I have noticed around my period usually is bad, some months more than others and after my shower is really bad..I have to immediately put something on like Vaseline or steroid cream(doctor said he thought I might have lichen sclerosis so I use the steroid cream even though it seems to make it worse)..If I don't use anything after I shower my skin if on fire, it stings and feels like pins are poking me and my skin feels really tight. Any input would be great and very much appreciated! Thanks flower

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Re: New member, feeling very down

Post  Sarah001 on Sat Aug 06, 2011 4:36 pm

Hi Justwanthelp and welcome. Personally I don't find any food or drink makes my symptoms worse and alcohol improves them which I think is down to its muscle relaxant ability. I usually feel a bit better at the start of my period but any friction from clothes, sitting, any type of touching in the area makes things alot worse. I think you should maybe knock the steroid cream on the head, not only does it thin the skin but if you had lichen sclerosus a dermatologist would have picked up on this as it's very easy to spot when its there, my GP told me I had lichen planus and gave me a really strong steroid ointment but I didn't have it at all and the ointment took a layer of skin off and made things alot worse so I wouldn't use that if I were you. Generally we get given steroid ointments/creams to see if its an allergy or skin condition and if they don't work after 7-10 days they should be scrapped.

If your showers make things alot worse is it shampoo/conditioner/shower gel getting on the area that's the problem? Have you tried rinsing the vulva after you're done with all chemicals to see if that works? I too have to apply vaseline or zinc and castor oil cream every day several times a day to stop one side of skin rubbing on the other and without it I get loads worse so you're not on your own there. We're all different though and I can happily lay in a bath with bubble bath in it and feel no ill effects from that, coffee and acidic foods make no difference whatsoever to my symptoms and as my pelvic floor is the suspected culprit the relaxation I get from alcohol takes alot of the pain off but other ladies on here are different and couldn't do those things so it's trial and error really and not one solution fits all.
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Re: New member, feeling very down

Post  JustWantHelp on Sat Aug 06, 2011 8:13 pm

Thank you so much for your reply. I have found it hard to believe that it is a skin problem like lichen sclerosis because other than it being a little red sometimes, there's no change. I have considered that maybe it was my shampoo or soap and have since started using sensitive skin dove soap for my body and baby shampoo (perfume free) for my hair and I rinse off very well. I have changed so many things in my life so far and nothing seems to help. Maybe I should stop seeing this doctor, he has been giving me steroid creams the whole time...I haven't used them the whole time though because they just don't do anything for me. The only reason I keep going to him is because nobody else will listen to me. I am sick of being told I have a yeast infection when I don't or herpes when I have been tested several times and its negative and if it was herpes this would be the weirdest case I have ever heard of!
You mentioned about the pelvic floor...Do you get any pain anywhere else or feel spasms? I am just wondering because I thought maybe that was my problem but I didn't know if there were any signs to look for. I do have lower back pain and I am pretty sure I may have IBS, I sometimes get what feels like spasms in my anus (sorry, cant think of a nicer word) and my lower abdomen often feels very heavy. I have NO clue if any of that has to do with one or the other..Its nice that someone knows the pain I feel and that its not just all in my head. Thanks again!!

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Re: New member, feeling very down

Post  Sarah001 on Sun Aug 07, 2011 10:58 am

I think you should definitely get your pelvic floor checked, you need to see a womens health physio for that, low back pain and spasms around the anus could easily be pelvic floor related. I actually have full body pain because I have a condition where my ligaments are faulty and don't stabilise my joints properly so all my muscles are overworked, in spasm and full of trigger points all the time, plus I have fibromyalgia too, and my pelvic joints are badly affected so my pelvic floor is incredibly tense. You can rule out all infections at a GUM clinic to make sure you don't have anything else and a dermotologist would definitely have noticed lichen sclerosus so you can rule that out. Herpes causes flare ups with normal periods in between so unless you have lots of periods of time where you have no pain it's very unlikely to be herpes but you can have a swab of the area done when there's redness to be sure but I really doubt that's your problem. Definitely get your pelvic floor tested as your next step and do let us know how you get on.

With regards the shower you could always wash the vulva with plain water before your shower and apply vaseline to keep the water off the area beforehand and see if that helps. Keep us posted.
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Re: New member, feeling very down

Post  JustWantHelp on Sun Aug 07, 2011 2:57 pm

Thank you so much! I will be making an appointment tomorrow to see what we can find out. I will for sure try the shower idea, thanks! As far as the lichen sclerosis and herpes goes I don't think it is anything like that either. I don't have long periods of time were it gets better in fact since it started almost 2 years ago I don't remember it really going away and coming back but I do know that there are times where it feels worse than other times. I had a punch biopsy done when all this started and it showed some signs of herpes but nothing else which is why this doctor is so hell bent on it being herpes. I have had a swap test, a scraping and a blood test for herpes and they have all been negative so I think it is safe to say that I don't have it.
I think it is just time for a new doctor, it just sucks because I have seen 17 already!! I will keep you posted and again thank you!

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Re: New member, feeling very down

Post  kateelizabeth on Tue Aug 09, 2011 6:59 pm

Libby I am so sorry to here about what you are going through at the moment.
I have (sorry to be graphic) small white blisters/erosions/ulcers on the entrance of my vagina, which led my gp to diagnose me with herpes, however after having tests done I have found out that I do not have the herpes virus. I have been diagnosed with vulvodynia, yet these 'blisters' make me question that it is either something else, or a combination of the two, yet after researching extensively on the internet I can't find out what it could possibly be. It would be great if we could keep each other informed!

I am only 21 and studying, and missing out on the student lifestyle is horrible and its not something you can just tell people which makes it hard for friends to understand.
Where are you in the UK?

I want you to know you are not alone and to tell you not to lose hope in getting better.
As for tips, I have found that using vagisil helps give temporary relief.

I wish you well x x x

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Re: New member, feeling very down

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