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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

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Coffee and Amitriptyline

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Coffee and Amitriptyline

Post  noni on Thu May 26, 2011 10:21 am

I felt it important to post this.

Any ladies on here taking Ami need to know that coffee effects the effectiveness of this drug.

food/herb affecting drug performance and toxicity: Herbs containing Tannins as in beverages such as Coffea arabica (Coffee) and Camellia sinensis (Tea)

• research: Studies of the interactions between tricyclic antidepressants, particularly amitriptyline and imipramine, and tannin-containing herbs, such as coffee and tea, observed the formation of strong complexes in test tubes. Researchers raised the concern that should this interaction occur within humans using these two substances togther the absortpion of the drugs could be significantly reduced or rendered inconsistent.
(Lasswell WL Jr, et al. J Pharm Sci 1984 Aug;73(Cool:1056-1058.)

• nutritional concerns: Pending further research individuals taking tricyclic antidepressants, particularly amitriptyline and imipramine, might reduce their risk of problematic interactions between the prescription and tea or coffee by separating consumption of the beverages from taking the drug by at least two hours.



http://home.caregroup.org/clinical/altmed/interactions/Drug_Classes/Tricyclic_Antid.htm
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Re: Coffee and Amitriptyline

Post  Sebby (Admin) on Thu May 26, 2011 8:11 pm


Again...thanks for posting this

I think you should train to be a doctor!!

Your a real asset to this forum cheers

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Re: Coffee and Amitriptyline

Post  noni on Thu May 26, 2011 9:22 pm

Thank you Sebby.

I encourage every woman on here, who are taking meds for their pain, to look at foods/substances that react negatively and positively with the drugs.

Take care all
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Re: Coffee and Amitriptyline

Post  Mouse on Fri May 27, 2011 8:05 am

Noni, I know I am preaching to the choir but I think we should look at all things we can control. Like everything we put in or do to our bodies. We take all these drugs without questioning it because a Dr said so. Look how that turns out :\

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Re: Coffee and Amitriptyline

Post  noni on Fri May 27, 2011 8:40 pm

Hey Vicki, you are absolutely right.

But, for some us, drugs have been the only thing to give us relief from this crap. And I just think we need to know as much as possible about drug interaction with other things.

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Re: Coffee and Amitriptyline

Post  Mouse on Fri May 27, 2011 10:07 pm

Hey Noni, sorry I completely missed the point of the discussion =) You are right of course, everything is connected somehow.

Can you tell I'm a little frustrated with Drs? I've just had to battle for six months for a fucken vitamin supplement. You would think I was asking for bloody crack cocaine. Assholes. I got fobbed off so many times I started ringing daily. I could write a book of how many ways to not answer a simple question. In the end I got the stuff without doing the "very expensive and no longer funded" test to see if I was deficient. Gggrrrrr! So they gave me 3 tablets which last 3 months and then I'll be doing that exercise all over again. I might bypass the GP and go straight the specialist next time.

It will be a no coffee day for me today. There's none in the house.

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Re: Coffee and Amitriptyline

Post  noni on Sat May 28, 2011 12:41 am

Hey Vicki,

Im so sorry it has been such a hassle for you to get your supplements. And they`re only supplements, geez it would probably be easier to get methadone, atleast here in Canada, lol.

I love coffee. Regardless of the heart palpitations and excessive sweating...and yes now apparently it interferes with amitriptylines effectiveness, go figure. I cant win.

Im frustrated too. This condition is so tedious. Doctors visits, diet modifications, crotch exercises, etc etc...

...life cant be a 24/7 crotch watch. Theres so much more out there!

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Re: Coffee and Amitriptyline

Post  Zazu on Mon May 30, 2011 1:42 pm

"Crotch watch" haha amazing! I love it! Sometimes it feels like that's what life is getting reduced to. When your to-do list reads physio exercises, dilator work, food modification, meditation, physio appt., therapist appt., and massage appt., where is the time for work, or play? Or even weekend errands?? It also creates this standard for what you're "supposed to do" that can leave you feeling like you're never doing enough. Maybe it hurts because you didn't stretch, or ate some chocolate, or .... or... And the ultimate mind eff-up - maybe the effort of doing all these thing is stressing you out too much and THAT is causing the pain!! Bah!
Mini-rant! Done now Smile
@Noni - Canada! I didn't know anyone else on here was from Canada. I'm in Toronto. Whereabouts are you?

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Re: Coffee and Amitriptyline

Post  noni on Tue May 31, 2011 3:30 am

Hey Zazu!!!

Yep im in Toronto!

And actually trying soooooooooooooo desperately to start a support group in the city!!! Like for the last 7 months.

e-mail me at vulvodyniagroup416@gmail.com if you are interested.

Take care,

Noni Smile
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Re: Coffee and Amitriptyline

Post  Joolibee on Mon Jun 13, 2011 4:00 pm

Wow! Don't know how I missed this posting, but I find this very interesting. Amitriptyline never seems to work for me, except when combined with other meds. I only drink about 2 cups of coffee per day, but never thought about the timing of it. I'll try to make sure I leave at least 2 hours between the coffee and ami and see whether it makes any difference. BTW, I've discovered that ami can help as an anti-histamine. When I stop taking it, my chronic hives gets worse. Anyway, thanks for the tip.

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Re: Coffee and Amitriptyline

Post  noni on Mon Jun 13, 2011 5:09 pm

Yes, apparently in one study done on rats it was shown that when coffee was administered to them that Amitripyline was not as effective as compared to the rats not consuming coffee.

I dunno...but I think theres someting to it.

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Re: Coffee and Amitriptyline

Post  Sarah001 on Mon Jun 13, 2011 7:38 pm

I'm not sure if it applies to me, I take 50mg of Ami before I go to bed and never drink coffee for at least another 10 hours and I don't have much luck with the Ami anyway. Rolling Eyes I once stopped coffee and started drinking decaf tea and it made no difference. Maybe it works for some and not others like every-bloody-thing!!
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Another thing that doesn't mix with ami

Post  Aussie on Tue Jun 14, 2011 6:25 am

So I have smoked weed on occasions prior to all this crap. I was sitting with my friend the other night watching a movie and felt like some decent pain relief (alcohol sets off my bladder), so out it came.

Aside from being completely pain free, happy and relaxed (which made a wonderful change) I got a horrible heart racing sensation. The next day I felt awful! My heart was still racing. I googled it and ami and weed don't mix at all, people have ended up in intensive care with heart palpitations!

I just wanted to put it out there. I don't want anyone else to do this. I was an idiot and should have done my research. I have come off ami now as it wasn't doing anything for the v after 5 months anyway. I hope I have not offended anyone by this post, just wanted to make everyone aware, just incase.

I also hope I don’t get in trouble for posting this? Sorry!!

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Re: Coffee and Amitriptyline

Post  Sarah001 on Tue Jun 14, 2011 11:24 am

It's always useful to know interactions. I take all my various pain meds every day then I'll get a migraine and take my migraine tablets and while I'm taking them I find myself thinking how easy it must be to overdose on presciption medication.
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Re: Coffee and Amitriptyline

Post  mary jane on Wed Nov 20, 2013 9:19 pm

crap. is this why I'm in pain today ? Sad
. I take 3 ami in the morning and then I have a latte.
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Re: Coffee and Amitriptyline

Post  Alana3 on Wed Nov 20, 2013 10:25 pm

Caffeine is bad on so many levels

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Re: Coffee and Amitriptyline

Post  mary jane on Wed Nov 20, 2013 10:55 pm

yes, I know, I tried quitting for 2 weeks, but the depression over not being able to enjoy the little things got to me in the end.
I shall try and quit again and let my nervous system relax or at least QUIT MAKING ALL THE RANDOM NERVES FIRE
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Re: Coffee and Amitriptyline

Post  Alana3 on Wed Nov 20, 2013 11:17 pm

Decaf?

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Re: Coffee and Amitriptyline

Post  mary jane on Wed Nov 20, 2013 11:28 pm

forgot about that option Very Happy
thanks, Alana!
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Re: Coffee and Amitriptyline

Post  Alana3 on Thu Nov 21, 2013 12:58 am

Haha no problem!

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Re: Coffee and Amitriptyline

Post  Annie82 on Thu Nov 21, 2013 9:56 am

Decaf still contains tannic acids or tannins.

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Re: Coffee and Amitriptyline

Post  Alana3 on Thu Nov 21, 2013 12:10 pm

Yeah but if you have to have it or are trying to wean yourself off its a way to go...

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Re: Coffee and Amitriptyline

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