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» Hope to all my suffering ladies
Coffee and Amitriptyline EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Coffee and Amitriptyline EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Coffee and Amitriptyline EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Coffee and Amitriptyline EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Coffee and Amitriptyline EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Coffee and Amitriptyline EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Coffee and Amitriptyline EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Coffee and Amitriptyline EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Coffee and Amitriptyline EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Coffee and Amitriptyline

+6
Sarah001
Joolibee
Zazu
Mouse
Sebby (Admin)
noni
10 posters

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Coffee and Amitriptyline Empty Coffee and Amitriptyline

Post  noni Thu May 26, 2011 10:21 am

I felt it important to post this.

Any ladies on here taking Ami need to know that coffee effects the effectiveness of this drug.

food/herb affecting drug performance and toxicity: Herbs containing Tannins as in beverages such as Coffea arabica (Coffee) and Camellia sinensis (Tea)

• research: Studies of the interactions between tricyclic antidepressants, particularly amitriptyline and imipramine, and tannin-containing herbs, such as coffee and tea, observed the formation of strong complexes in test tubes. Researchers raised the concern that should this interaction occur within humans using these two substances togther the absortpion of the drugs could be significantly reduced or rendered inconsistent.
(Lasswell WL Jr, et al. J Pharm Sci 1984 Aug;73(Cool:1056-1058.)

• nutritional concerns: Pending further research individuals taking tricyclic antidepressants, particularly amitriptyline and imipramine, might reduce their risk of problematic interactions between the prescription and tea or coffee by separating consumption of the beverages from taking the drug by at least two hours.



http://home.caregroup.org/clinical/altmed/interactions/Drug_Classes/Tricyclic_Antid.htm
noni
noni

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Coffee and Amitriptyline Empty Re: Coffee and Amitriptyline

Post  Sebby (Admin) Thu May 26, 2011 8:11 pm


Again...thanks for posting this

I think you should train to be a doctor!!

Your a real asset to this forum cheers
Sebby (Admin)
Sebby (Admin)
Admin

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https://vulvodyniasupport.forumotion.net

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Coffee and Amitriptyline Empty Re: Coffee and Amitriptyline

Post  noni Thu May 26, 2011 9:22 pm

Thank you Sebby.

I encourage every woman on here, who are taking meds for their pain, to look at foods/substances that react negatively and positively with the drugs.

Take care all
noni
noni

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Coffee and Amitriptyline Empty Re: Coffee and Amitriptyline

Post  Mouse Fri May 27, 2011 8:05 am

Noni, I know I am preaching to the choir but I think we should look at all things we can control. Like everything we put in or do to our bodies. We take all these drugs without questioning it because a Dr said so. Look how that turns out :\

Mouse

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Coffee and Amitriptyline Empty Re: Coffee and Amitriptyline

Post  noni Fri May 27, 2011 8:40 pm

Hey Vicki, you are absolutely right.

But, for some us, drugs have been the only thing to give us relief from this crap. And I just think we need to know as much as possible about drug interaction with other things.

noni
noni

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Coffee and Amitriptyline Empty Re: Coffee and Amitriptyline

Post  Mouse Fri May 27, 2011 10:07 pm

Hey Noni, sorry I completely missed the point of the discussion =) You are right of course, everything is connected somehow.

Can you tell I'm a little frustrated with Drs? I've just had to battle for six months for a fucken vitamin supplement. You would think I was asking for bloody crack cocaine. Assholes. I got fobbed off so many times I started ringing daily. I could write a book of how many ways to not answer a simple question. In the end I got the stuff without doing the "very expensive and no longer funded" test to see if I was deficient. Gggrrrrr! So they gave me 3 tablets which last 3 months and then I'll be doing that exercise all over again. I might bypass the GP and go straight the specialist next time.

It will be a no coffee day for me today. There's none in the house.

Mouse

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Coffee and Amitriptyline Empty Re: Coffee and Amitriptyline

Post  noni Sat May 28, 2011 12:41 am

Hey Vicki,

Im so sorry it has been such a hassle for you to get your supplements. And they`re only supplements, geez it would probably be easier to get methadone, atleast here in Canada, lol.

I love coffee. Regardless of the heart palpitations and excessive sweating...and yes now apparently it interferes with amitriptylines effectiveness, go figure. I cant win.

Im frustrated too. This condition is so tedious. Doctors visits, diet modifications, crotch exercises, etc etc...

...life cant be a 24/7 crotch watch. Theres so much more out there!

noni
noni

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Location : Ontario

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Post  Zazu Mon May 30, 2011 1:42 pm

"Crotch watch" haha amazing! I love it! Sometimes it feels like that's what life is getting reduced to. When your to-do list reads physio exercises, dilator work, food modification, meditation, physio appt., therapist appt., and massage appt., where is the time for work, or play? Or even weekend errands?? It also creates this standard for what you're "supposed to do" that can leave you feeling like you're never doing enough. Maybe it hurts because you didn't stretch, or ate some chocolate, or .... or... And the ultimate mind eff-up - maybe the effort of doing all these thing is stressing you out too much and THAT is causing the pain!! Bah!
Mini-rant! Done now Smile
@Noni - Canada! I didn't know anyone else on here was from Canada. I'm in Toronto. Whereabouts are you?

Zazu

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Coffee and Amitriptyline Empty Re: Coffee and Amitriptyline

Post  noni Tue May 31, 2011 3:30 am

Hey Zazu!!!

Yep im in Toronto!

And actually trying soooooooooooooo desperately to start a support group in the city!!! Like for the last 7 months.

e-mail me at vulvodyniagroup416@gmail.com if you are interested.

Take care,

Noni Smile
noni
noni

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Coffee and Amitriptyline Empty Re: Coffee and Amitriptyline

Post  Joolibee Mon Jun 13, 2011 4:00 pm

Wow! Don't know how I missed this posting, but I find this very interesting. Amitriptyline never seems to work for me, except when combined with other meds. I only drink about 2 cups of coffee per day, but never thought about the timing of it. I'll try to make sure I leave at least 2 hours between the coffee and ami and see whether it makes any difference. BTW, I've discovered that ami can help as an anti-histamine. When I stop taking it, my chronic hives gets worse. Anyway, thanks for the tip.

Joolibee

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Coffee and Amitriptyline Empty Re: Coffee and Amitriptyline

Post  noni Mon Jun 13, 2011 5:09 pm

Yes, apparently in one study done on rats it was shown that when coffee was administered to them that Amitripyline was not as effective as compared to the rats not consuming coffee.

I dunno...but I think theres someting to it.

noni
noni

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Coffee and Amitriptyline Empty Re: Coffee and Amitriptyline

Post  Sarah001 Mon Jun 13, 2011 7:38 pm

I'm not sure if it applies to me, I take 50mg of Ami before I go to bed and never drink coffee for at least another 10 hours and I don't have much luck with the Ami anyway. Rolling Eyes I once stopped coffee and started drinking decaf tea and it made no difference. Maybe it works for some and not others like every-bloody-thing!!
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Coffee and Amitriptyline Empty Another thing that doesn't mix with ami

Post  Aussie Tue Jun 14, 2011 6:25 am

So I have smoked weed on occasions prior to all this crap. I was sitting with my friend the other night watching a movie and felt like some decent pain relief (alcohol sets off my bladder), so out it came.

Aside from being completely pain free, happy and relaxed (which made a wonderful change) I got a horrible heart racing sensation. The next day I felt awful! My heart was still racing. I googled it and ami and weed don't mix at all, people have ended up in intensive care with heart palpitations!

I just wanted to put it out there. I don't want anyone else to do this. I was an idiot and should have done my research. I have come off ami now as it wasn't doing anything for the v after 5 months anyway. I hope I have not offended anyone by this post, just wanted to make everyone aware, just incase.

I also hope I don’t get in trouble for posting this? Sorry!!

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Coffee and Amitriptyline Empty Re: Coffee and Amitriptyline

Post  Sarah001 Tue Jun 14, 2011 11:24 am

It's always useful to know interactions. I take all my various pain meds every day then I'll get a migraine and take my migraine tablets and while I'm taking them I find myself thinking how easy it must be to overdose on presciption medication.
Sarah001
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Coffee and Amitriptyline Empty Re: Coffee and Amitriptyline

Post  mary jane Wed Nov 20, 2013 9:19 pm

crap. is this why I'm in pain today ? Sad
. I take 3 ami in the morning and then I have a latte.
mary jane
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Coffee and Amitriptyline Empty Re: Coffee and Amitriptyline

Post  Alana3 Wed Nov 20, 2013 10:25 pm

Caffeine is bad on so many levels

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Post  mary jane Wed Nov 20, 2013 10:55 pm

yes, I know, I tried quitting for 2 weeks, but the depression over not being able to enjoy the little things got to me in the end.
I shall try and quit again and let my nervous system relax or at least QUIT MAKING ALL THE RANDOM NERVES FIRE
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Post  Alana3 Wed Nov 20, 2013 11:17 pm

Decaf?

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Post  mary jane Wed Nov 20, 2013 11:28 pm

forgot about that option Very Happy
thanks, Alana!
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Post  Alana3 Thu Nov 21, 2013 12:58 am

Haha no problem!

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Coffee and Amitriptyline Empty Re: Coffee and Amitriptyline

Post  Annie82 Thu Nov 21, 2013 9:56 am

Decaf still contains tannic acids or tannins.

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Post  Alana3 Thu Nov 21, 2013 12:10 pm

Yeah but if you have to have it or are trying to wean yourself off its a way to go...

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