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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

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Coffee and Amitriptyline

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Coffee and Amitriptyline

Post  noni on Thu May 26, 2011 10:21 am

I felt it important to post this.

Any ladies on here taking Ami need to know that coffee effects the effectiveness of this drug.

food/herb affecting drug performance and toxicity: Herbs containing Tannins as in beverages such as Coffea arabica (Coffee) and Camellia sinensis (Tea)

• research: Studies of the interactions between tricyclic antidepressants, particularly amitriptyline and imipramine, and tannin-containing herbs, such as coffee and tea, observed the formation of strong complexes in test tubes. Researchers raised the concern that should this interaction occur within humans using these two substances togther the absortpion of the drugs could be significantly reduced or rendered inconsistent.
(Lasswell WL Jr, et al. J Pharm Sci 1984 Aug;73(Cool:1056-1058.)

• nutritional concerns: Pending further research individuals taking tricyclic antidepressants, particularly amitriptyline and imipramine, might reduce their risk of problematic interactions between the prescription and tea or coffee by separating consumption of the beverages from taking the drug by at least two hours.



http://home.caregroup.org/clinical/altmed/interactions/Drug_Classes/Tricyclic_Antid.htm
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Re: Coffee and Amitriptyline

Post  Sebby (Admin) on Thu May 26, 2011 8:11 pm


Again...thanks for posting this

I think you should train to be a doctor!!

Your a real asset to this forum cheers

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Re: Coffee and Amitriptyline

Post  noni on Thu May 26, 2011 9:22 pm

Thank you Sebby.

I encourage every woman on here, who are taking meds for their pain, to look at foods/substances that react negatively and positively with the drugs.

Take care all
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Re: Coffee and Amitriptyline

Post  Mouse on Fri May 27, 2011 8:05 am

Noni, I know I am preaching to the choir but I think we should look at all things we can control. Like everything we put in or do to our bodies. We take all these drugs without questioning it because a Dr said so. Look how that turns out :\

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Re: Coffee and Amitriptyline

Post  noni on Fri May 27, 2011 8:40 pm

Hey Vicki, you are absolutely right.

But, for some us, drugs have been the only thing to give us relief from this crap. And I just think we need to know as much as possible about drug interaction with other things.

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Re: Coffee and Amitriptyline

Post  Mouse on Fri May 27, 2011 10:07 pm

Hey Noni, sorry I completely missed the point of the discussion =) You are right of course, everything is connected somehow.

Can you tell I'm a little frustrated with Drs? I've just had to battle for six months for a fucken vitamin supplement. You would think I was asking for bloody crack cocaine. Assholes. I got fobbed off so many times I started ringing daily. I could write a book of how many ways to not answer a simple question. In the end I got the stuff without doing the "very expensive and no longer funded" test to see if I was deficient. Gggrrrrr! So they gave me 3 tablets which last 3 months and then I'll be doing that exercise all over again. I might bypass the GP and go straight the specialist next time.

It will be a no coffee day for me today. There's none in the house.

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Re: Coffee and Amitriptyline

Post  noni on Sat May 28, 2011 12:41 am

Hey Vicki,

Im so sorry it has been such a hassle for you to get your supplements. And they`re only supplements, geez it would probably be easier to get methadone, atleast here in Canada, lol.

I love coffee. Regardless of the heart palpitations and excessive sweating...and yes now apparently it interferes with amitriptylines effectiveness, go figure. I cant win.

Im frustrated too. This condition is so tedious. Doctors visits, diet modifications, crotch exercises, etc etc...

...life cant be a 24/7 crotch watch. Theres so much more out there!

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Re: Coffee and Amitriptyline

Post  Zazu on Mon May 30, 2011 1:42 pm

"Crotch watch" haha amazing! I love it! Sometimes it feels like that's what life is getting reduced to. When your to-do list reads physio exercises, dilator work, food modification, meditation, physio appt., therapist appt., and massage appt., where is the time for work, or play? Or even weekend errands?? It also creates this standard for what you're "supposed to do" that can leave you feeling like you're never doing enough. Maybe it hurts because you didn't stretch, or ate some chocolate, or .... or... And the ultimate mind eff-up - maybe the effort of doing all these thing is stressing you out too much and THAT is causing the pain!! Bah!
Mini-rant! Done now Smile
@Noni - Canada! I didn't know anyone else on here was from Canada. I'm in Toronto. Whereabouts are you?

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Re: Coffee and Amitriptyline

Post  noni on Tue May 31, 2011 3:30 am

Hey Zazu!!!

Yep im in Toronto!

And actually trying soooooooooooooo desperately to start a support group in the city!!! Like for the last 7 months.

e-mail me at vulvodyniagroup416@gmail.com if you are interested.

Take care,

Noni Smile
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Re: Coffee and Amitriptyline

Post  Joolibee on Mon Jun 13, 2011 4:00 pm

Wow! Don't know how I missed this posting, but I find this very interesting. Amitriptyline never seems to work for me, except when combined with other meds. I only drink about 2 cups of coffee per day, but never thought about the timing of it. I'll try to make sure I leave at least 2 hours between the coffee and ami and see whether it makes any difference. BTW, I've discovered that ami can help as an anti-histamine. When I stop taking it, my chronic hives gets worse. Anyway, thanks for the tip.

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Re: Coffee and Amitriptyline

Post  noni on Mon Jun 13, 2011 5:09 pm

Yes, apparently in one study done on rats it was shown that when coffee was administered to them that Amitripyline was not as effective as compared to the rats not consuming coffee.

I dunno...but I think theres someting to it.

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Re: Coffee and Amitriptyline

Post  Sarah001 on Mon Jun 13, 2011 7:38 pm

I'm not sure if it applies to me, I take 50mg of Ami before I go to bed and never drink coffee for at least another 10 hours and I don't have much luck with the Ami anyway. Rolling Eyes I once stopped coffee and started drinking decaf tea and it made no difference. Maybe it works for some and not others like every-bloody-thing!!
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Another thing that doesn't mix with ami

Post  Aussie on Tue Jun 14, 2011 6:25 am

So I have smoked weed on occasions prior to all this crap. I was sitting with my friend the other night watching a movie and felt like some decent pain relief (alcohol sets off my bladder), so out it came.

Aside from being completely pain free, happy and relaxed (which made a wonderful change) I got a horrible heart racing sensation. The next day I felt awful! My heart was still racing. I googled it and ami and weed don't mix at all, people have ended up in intensive care with heart palpitations!

I just wanted to put it out there. I don't want anyone else to do this. I was an idiot and should have done my research. I have come off ami now as it wasn't doing anything for the v after 5 months anyway. I hope I have not offended anyone by this post, just wanted to make everyone aware, just incase.

I also hope I don’t get in trouble for posting this? Sorry!!

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Re: Coffee and Amitriptyline

Post  Sarah001 on Tue Jun 14, 2011 11:24 am

It's always useful to know interactions. I take all my various pain meds every day then I'll get a migraine and take my migraine tablets and while I'm taking them I find myself thinking how easy it must be to overdose on presciption medication.
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Re: Coffee and Amitriptyline

Post  mary jane on Wed Nov 20, 2013 9:19 pm

crap. is this why I'm in pain today ? Sad
. I take 3 ami in the morning and then I have a latte.
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Re: Coffee and Amitriptyline

Post  Alana3 on Wed Nov 20, 2013 10:25 pm

Caffeine is bad on so many levels

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Re: Coffee and Amitriptyline

Post  mary jane on Wed Nov 20, 2013 10:55 pm

yes, I know, I tried quitting for 2 weeks, but the depression over not being able to enjoy the little things got to me in the end.
I shall try and quit again and let my nervous system relax or at least QUIT MAKING ALL THE RANDOM NERVES FIRE
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Re: Coffee and Amitriptyline

Post  Alana3 on Wed Nov 20, 2013 11:17 pm

Decaf?

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Re: Coffee and Amitriptyline

Post  mary jane on Wed Nov 20, 2013 11:28 pm

forgot about that option Very Happy
thanks, Alana!
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Re: Coffee and Amitriptyline

Post  Alana3 on Thu Nov 21, 2013 12:58 am

Haha no problem!

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Re: Coffee and Amitriptyline

Post  Annie82 on Thu Nov 21, 2013 9:56 am

Decaf still contains tannic acids or tannins.

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Re: Coffee and Amitriptyline

Post  Alana3 on Thu Nov 21, 2013 12:10 pm

Yeah but if you have to have it or are trying to wean yourself off its a way to go...

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Re: Coffee and Amitriptyline

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