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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Had sex for the second time last night...

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Had sex for the second time last night...

Post  Amy on Sat May 28, 2011 7:45 pm

BG: with my first born I had a 3rd degree tear and it took a good several months before sex got back to normal again. I'm now 7 weeks post partum with my third child and had a second degree tear so I was expecting it to be like last time and have it hurt for a while. I didn't know, though, how the pain in my vestibule would play into it, but wanted to try. The pain that I have doesn't hurt when you touch it, but there's a constant burning and before when dh has touched me down there it rubbed me a bit raw and burned for a couple of days. We haven't tried intercourse since all this started about 10-11 months ago, so I knew that would add to the tightness of where the dr stitched me up.

We had sex for the first time Wed night and I had all the pain I expected to have: tightness and pain where I tore. All that pain masked any vulval/vestibule pain I may have had so I'm not sure yet if I'll be able to have sex pain free or not. We did it again last night and it was a little better: not has much tightness and not as much pain. I know the more we do it, the easier it'll get for me as far as the tightness/perineum pain goes. I'm just not sure how much my vaginal pain is contributing to it all. I guess only time will tell. Over all I was pretty pleased that it wasn't unbearable.

Oh, and I have an appointment with a pelvic pain clinic a couple hours away from me. It's not till Oct. but they put me on a waiting list and said it never takes more than 2 months to get seen. I'm looking forward to seeing what they can do for me. This particular dr has a really good reputation for treating pelvic pain (Dr. Childs).


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Re: Had sex for the second time last night...

Post  Sebby (Admin) on Mon May 30, 2011 6:28 pm

Its good to see that the second time was less painful and tight.

The more you relax the easier it should get. Hopefully once your fully healed from chidbirth it will be even easier!

Don't give up but still go easy on yourself..if you cant manage full intercourse try asking your hubby to use his fingers instead or a small dildo

Good Luck


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