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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Welcome to Celebrating

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Welcome to Celebrating

Post  Sebby (Admin) on Mon May 30, 2011 6:35 pm


Hi all

After a great suggestion by one of our members I have created a category where you can celebrate sucess. Whether a treatment is working or you have just had a good few days pain free and just wana sing about it!

I hope this will help to give us hope

cheers

x

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Re: Welcome to Celebrating

Post  lolainslacks on Mon May 30, 2011 7:44 pm

Yay! I helped!
C:
I hope we have plenty of good news to put here.

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Re: Welcome to Celebrating

Post  noni on Tue May 31, 2011 3:32 am

I love this!
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Re: Welcome to Celebrating

Post  Mouse on Tue May 31, 2011 7:00 am

Well I want to celebrate meeting all of you! You are amazing! A big hug and wee blessing from NZ. Kia Kaha.

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Re: Welcome to Celebrating

Post  Sebby (Admin) on Tue May 31, 2011 6:49 pm


You did help lolainslacks!

Lets so hope we will soon have lots of great stuff to put here!

Yes and I too wana celebrate meeting all of you...the best thing I've ever done was setting up this forum! cheers

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welcome to celebrating

Post  ria on Tue May 31, 2011 9:47 pm


What a great idea. I am doing ok at the moment Biofeedback and Gabapentin. Six months ago I could not walk with the burning, now I am walking pain free and on the jogger. Its a full time job trying to keep the symptoms at bay. So Ladies I have just popped the Champers lets say cheers for this fab website and the lovely ladies who all help each other.

Cheers
Ria
Very Happy Laughing Laughing

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Love this forum

Post  bhaukti on Fri Dec 14, 2012 3:56 am

I think it's great how you sectioned off different areas for different topics. I like the fact that we can come here and just look at postitive posts about what works instead of having to go thru a million posts before you read something that might have worked for someone. sunny


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Re: Welcome to Celebrating

Post  JW2012 on Sat Dec 15, 2012 2:33 am

ria wrote:
What a great idea. I am doing ok at the moment Biofeedback and Gabapentin. Six months ago I could not walk with the burning, now I am walking pain free and on the jogger. Its a full time job trying to keep the symptoms at bay. So Ladies I have just popped the Champers lets say cheers for this fab website and the lovely ladies who all help each other.

Cheers
Ria
Very Happy Laughing Laughing

Ria, How did the Biofeedback work for you? I start that next week and am very excited to start.

I am going to get botox the first week of January and am anxious to see how it works also. Feeling so lucky to have great doctors where I live as I see many people have had horror stories with their medical care.

Jaclyn

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Re: Welcome to Celebrating

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