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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Welcome to Celebrating

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Welcome to Celebrating

Post  Sebby (Admin) on Mon May 30, 2011 6:35 pm


Hi all

After a great suggestion by one of our members I have created a category where you can celebrate sucess. Whether a treatment is working or you have just had a good few days pain free and just wana sing about it!

I hope this will help to give us hope

cheers

x

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Re: Welcome to Celebrating

Post  lolainslacks on Mon May 30, 2011 7:44 pm

Yay! I helped!
C:
I hope we have plenty of good news to put here.

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Re: Welcome to Celebrating

Post  noni on Tue May 31, 2011 3:32 am

I love this!
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Re: Welcome to Celebrating

Post  Mouse on Tue May 31, 2011 7:00 am

Well I want to celebrate meeting all of you! You are amazing! A big hug and wee blessing from NZ. Kia Kaha.

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Re: Welcome to Celebrating

Post  Sebby (Admin) on Tue May 31, 2011 6:49 pm


You did help lolainslacks!

Lets so hope we will soon have lots of great stuff to put here!

Yes and I too wana celebrate meeting all of you...the best thing I've ever done was setting up this forum! cheers

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welcome to celebrating

Post  ria on Tue May 31, 2011 9:47 pm


What a great idea. I am doing ok at the moment Biofeedback and Gabapentin. Six months ago I could not walk with the burning, now I am walking pain free and on the jogger. Its a full time job trying to keep the symptoms at bay. So Ladies I have just popped the Champers lets say cheers for this fab website and the lovely ladies who all help each other.

Cheers
Ria
Very Happy Laughing Laughing

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Love this forum

Post  bhaukti on Fri Dec 14, 2012 3:56 am

I think it's great how you sectioned off different areas for different topics. I like the fact that we can come here and just look at postitive posts about what works instead of having to go thru a million posts before you read something that might have worked for someone. sunny


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Re: Welcome to Celebrating

Post  JW2012 on Sat Dec 15, 2012 2:33 am

ria wrote:
What a great idea. I am doing ok at the moment Biofeedback and Gabapentin. Six months ago I could not walk with the burning, now I am walking pain free and on the jogger. Its a full time job trying to keep the symptoms at bay. So Ladies I have just popped the Champers lets say cheers for this fab website and the lovely ladies who all help each other.

Cheers
Ria
Very Happy Laughing Laughing

Ria, How did the Biofeedback work for you? I start that next week and am very excited to start.

I am going to get botox the first week of January and am anxious to see how it works also. Feeling so lucky to have great doctors where I live as I see many people have had horror stories with their medical care.

Jaclyn

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Re: Welcome to Celebrating

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