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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Pelvi Pain

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Pelvi Pain

Post  Vivian on Tue May 31, 2011 6:13 pm


I feel like I am at the end of my world.... Do any of you ladies feel depressed and have the why me? There are days I struggle to put one foot in front of the other. just when things seem to be going better something else comes up. That brings me to this question, do any of you have pelvic pain and feel sick to your stomach? This is where I hurt my whole vigina feels like it is on fire somedays other days just around the opening and then there are days that my anus itchess and burns, feels like hemrroids on one side, my back hurts and I feel bloated and to top it all off I am going through menopause..................................
Sorry to vent but I just had to get it out there.. This whole thing has just taken a toll on my life, I am tired and have no energy don't want to do anything except be alone and feel sorry for myself.
And yes I too have second guessed my doctor.. But she is the head of the Pelvic Pain Clinic at UNC Chapel Hill and has helped me soo much. Sometimes i think I have a yeast infection, herpes, hpv, you name it and it runs through my mind that is when i almost go off the deep end. I am very happy married but to set my mind at ease she has tested for everyting under the sun and all is negative. This is a mind of matter thing. And believe me you can drive yourself crazy.. and I almost have.........................
Thanks for letting me vent!!!!! It take a little pressure off of my dear husband.


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Re: Pelvi Pain

Post  Sebby (Admin) on Tue May 31, 2011 6:28 pm

Hi Vivian and welcome to the forum

Dont apologise for venting we all need to do it!

I to have felt like it is the end of the world and even didnt want to go on anymore. Some days I just cried and didnt see the point in everything else in my life even the good things.

I do often get sickness and nausea. I get it mostly when Im very anxious along with cramps and have been unable to eat. Im not sure if this is just my anxiety or some part of the Pelvic Pain. I to get bloated am very sensitive to the foods I can eat and have always had lower back pain problems. The back pain I know is linked to Chronic Pelvic Pain

What treatments are you on at the moment?

I am on 400mg of Pregabalin and am doing biofeedback

Take Care and thank you for sharing with us


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Re: Pelvi Pain

Post  Joolibee on Tue May 31, 2011 7:11 pm

Hi Vivian, It's really OK to vent your feelings - that's what we're here for. My impression is that most people have other types of chronic pain in addition to vulvar pain. I also am going through menopause and have had lots of other symptoms, including severe migraine, exhaustion, arthritic neck and bloating (which I think is a common symptom). I had very heavy periods, but thankfully, they have stopped now and I don't feel quite as exhausted lately. Just lately, my body seems to be reacting to all kinds of things that never bothered me before and my skin has become very sensitive. I'm lucky that I've never really been prone to depression, but I do get anxious and occasionally have days when I just cry all day and want to lock myself away. But I have a very understanding partner, a good family and lots of things to be thankful for, so I don't tend to stay 'down' for long. I've done some research into the psychological effects of pain and it does seem that, when we are feeling anxious and depressed, this feeds into the pain and makes it worse. I know what you mean about the symptoms. I find it hard to understand how my symptoms can vary and I still find it hard to believe that there is nothing to see down there. It is important to try to remain as positive as possible. I do very gentle relaxation exercises and abdominal breathing, which always make me feel better. I think that whatever makes you feel better, you should build into your routine, whether it's exercise, mediation or relaxation etc. Anyway, nice to hear from you. I hope that the forum helps you. Smile


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Re: Pelvi Pain

Post  noni on Mon Jun 06, 2011 12:07 am

Hey Vivian

Yes vulvodynia can make you feel like you are going crazy and losing your life in the process. Girl I was there for 5 months!!! I now have made peace with my vulvar pain...I take amitriptyline so some days I feel almost ``normal``.

You can vent here anytime !!!!

We know the struggle. The depression, desperation, hopelessness.....isolation of this condition.

Hang in there!

What meds have you tried ? Did any of them work for your pain ?


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Re: Pelvi Pain

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