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» Acupuncture advice please
Yesterday at 11:27 pm by infinitelywondering

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Pelvi Pain

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Pelvi Pain

Post  Vivian on Tue May 31, 2011 6:13 pm



.



I feel like I am at the end of my world.... Do any of you ladies feel depressed and have the why me? There are days I struggle to put one foot in front of the other. just when things seem to be going better something else comes up. That brings me to this question, do any of you have pelvic pain and feel sick to your stomach? This is where I hurt my whole vigina feels like it is on fire somedays other days just around the opening and then there are days that my anus itchess and burns, feels like hemrroids on one side, my back hurts and I feel bloated and to top it all off I am going through menopause..................................
Sorry to vent but I just had to get it out there.. This whole thing has just taken a toll on my life, I am tired and have no energy don't want to do anything except be alone and feel sorry for myself.
And yes I too have second guessed my doctor.. But she is the head of the Pelvic Pain Clinic at UNC Chapel Hill and has helped me soo much. Sometimes i think I have a yeast infection, herpes, hpv, you name it and it runs through my mind that is when i almost go off the deep end. I am very happy married but to set my mind at ease she has tested for everyting under the sun and all is negative. This is a mind of matter thing. And believe me you can drive yourself crazy.. and I almost have.........................
Thanks for letting me vent!!!!! It take a little pressure off of my dear husband.
Vivian

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Re: Pelvi Pain

Post  Sebby (Admin) on Tue May 31, 2011 6:28 pm


Hi Vivian and welcome to the forum

Dont apologise for venting we all need to do it!

I to have felt like it is the end of the world and even didnt want to go on anymore. Some days I just cried and didnt see the point in everything else in my life even the good things.

I do often get sickness and nausea. I get it mostly when Im very anxious along with cramps and have been unable to eat. Im not sure if this is just my anxiety or some part of the Pelvic Pain. I to get bloated am very sensitive to the foods I can eat and have always had lower back pain problems. The back pain I know is linked to Chronic Pelvic Pain

What treatments are you on at the moment?

I am on 400mg of Pregabalin and am doing biofeedback

Take Care and thank you for sharing with us




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Re: Pelvi Pain

Post  Joolibee on Tue May 31, 2011 7:11 pm

Hi Vivian, It's really OK to vent your feelings - that's what we're here for. My impression is that most people have other types of chronic pain in addition to vulvar pain. I also am going through menopause and have had lots of other symptoms, including severe migraine, exhaustion, arthritic neck and bloating (which I think is a common symptom). I had very heavy periods, but thankfully, they have stopped now and I don't feel quite as exhausted lately. Just lately, my body seems to be reacting to all kinds of things that never bothered me before and my skin has become very sensitive. I'm lucky that I've never really been prone to depression, but I do get anxious and occasionally have days when I just cry all day and want to lock myself away. But I have a very understanding partner, a good family and lots of things to be thankful for, so I don't tend to stay 'down' for long. I've done some research into the psychological effects of pain and it does seem that, when we are feeling anxious and depressed, this feeds into the pain and makes it worse. I know what you mean about the symptoms. I find it hard to understand how my symptoms can vary and I still find it hard to believe that there is nothing to see down there. It is important to try to remain as positive as possible. I do very gentle relaxation exercises and abdominal breathing, which always make me feel better. I think that whatever makes you feel better, you should build into your routine, whether it's exercise, mediation or relaxation etc. Anyway, nice to hear from you. I hope that the forum helps you. Smile

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Re: Pelvi Pain

Post  noni on Mon Jun 06, 2011 12:07 am

Hey Vivian

Yes vulvodynia can make you feel like you are going crazy and losing your life in the process. Girl I was there for 5 months!!! I now have made peace with my vulvar pain...I take amitriptyline so some days I feel almost ``normal``.

You can vent here anytime !!!!

We know the struggle. The depression, desperation, hopelessness.....isolation of this condition.

Hang in there!

What meds have you tried ? Did any of them work for your pain ?

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Re: Pelvi Pain

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