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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Pelvi Pain

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Pelvi Pain

Post  Vivian on Tue May 31, 2011 6:13 pm



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I feel like I am at the end of my world.... Do any of you ladies feel depressed and have the why me? There are days I struggle to put one foot in front of the other. just when things seem to be going better something else comes up. That brings me to this question, do any of you have pelvic pain and feel sick to your stomach? This is where I hurt my whole vigina feels like it is on fire somedays other days just around the opening and then there are days that my anus itchess and burns, feels like hemrroids on one side, my back hurts and I feel bloated and to top it all off I am going through menopause..................................
Sorry to vent but I just had to get it out there.. This whole thing has just taken a toll on my life, I am tired and have no energy don't want to do anything except be alone and feel sorry for myself.
And yes I too have second guessed my doctor.. But she is the head of the Pelvic Pain Clinic at UNC Chapel Hill and has helped me soo much. Sometimes i think I have a yeast infection, herpes, hpv, you name it and it runs through my mind that is when i almost go off the deep end. I am very happy married but to set my mind at ease she has tested for everyting under the sun and all is negative. This is a mind of matter thing. And believe me you can drive yourself crazy.. and I almost have.........................
Thanks for letting me vent!!!!! It take a little pressure off of my dear husband.
Vivian

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Re: Pelvi Pain

Post  Sebby (Admin) on Tue May 31, 2011 6:28 pm


Hi Vivian and welcome to the forum

Dont apologise for venting we all need to do it!

I to have felt like it is the end of the world and even didnt want to go on anymore. Some days I just cried and didnt see the point in everything else in my life even the good things.

I do often get sickness and nausea. I get it mostly when Im very anxious along with cramps and have been unable to eat. Im not sure if this is just my anxiety or some part of the Pelvic Pain. I to get bloated am very sensitive to the foods I can eat and have always had lower back pain problems. The back pain I know is linked to Chronic Pelvic Pain

What treatments are you on at the moment?

I am on 400mg of Pregabalin and am doing biofeedback

Take Care and thank you for sharing with us




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Re: Pelvi Pain

Post  Joolibee on Tue May 31, 2011 7:11 pm

Hi Vivian, It's really OK to vent your feelings - that's what we're here for. My impression is that most people have other types of chronic pain in addition to vulvar pain. I also am going through menopause and have had lots of other symptoms, including severe migraine, exhaustion, arthritic neck and bloating (which I think is a common symptom). I had very heavy periods, but thankfully, they have stopped now and I don't feel quite as exhausted lately. Just lately, my body seems to be reacting to all kinds of things that never bothered me before and my skin has become very sensitive. I'm lucky that I've never really been prone to depression, but I do get anxious and occasionally have days when I just cry all day and want to lock myself away. But I have a very understanding partner, a good family and lots of things to be thankful for, so I don't tend to stay 'down' for long. I've done some research into the psychological effects of pain and it does seem that, when we are feeling anxious and depressed, this feeds into the pain and makes it worse. I know what you mean about the symptoms. I find it hard to understand how my symptoms can vary and I still find it hard to believe that there is nothing to see down there. It is important to try to remain as positive as possible. I do very gentle relaxation exercises and abdominal breathing, which always make me feel better. I think that whatever makes you feel better, you should build into your routine, whether it's exercise, mediation or relaxation etc. Anyway, nice to hear from you. I hope that the forum helps you. Smile

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Re: Pelvi Pain

Post  noni on Mon Jun 06, 2011 12:07 am

Hey Vivian

Yes vulvodynia can make you feel like you are going crazy and losing your life in the process. Girl I was there for 5 months!!! I now have made peace with my vulvar pain...I take amitriptyline so some days I feel almost ``normal``.

You can vent here anytime !!!!

We know the struggle. The depression, desperation, hopelessness.....isolation of this condition.

Hang in there!

What meds have you tried ? Did any of them work for your pain ?

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