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Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

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» Cured, cyst in foot
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» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

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» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

Pelvi Pain

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Pelvi Pain

Post  Vivian on Tue May 31, 2011 6:13 pm


I feel like I am at the end of my world.... Do any of you ladies feel depressed and have the why me? There are days I struggle to put one foot in front of the other. just when things seem to be going better something else comes up. That brings me to this question, do any of you have pelvic pain and feel sick to your stomach? This is where I hurt my whole vigina feels like it is on fire somedays other days just around the opening and then there are days that my anus itchess and burns, feels like hemrroids on one side, my back hurts and I feel bloated and to top it all off I am going through menopause..................................
Sorry to vent but I just had to get it out there.. This whole thing has just taken a toll on my life, I am tired and have no energy don't want to do anything except be alone and feel sorry for myself.
And yes I too have second guessed my doctor.. But she is the head of the Pelvic Pain Clinic at UNC Chapel Hill and has helped me soo much. Sometimes i think I have a yeast infection, herpes, hpv, you name it and it runs through my mind that is when i almost go off the deep end. I am very happy married but to set my mind at ease she has tested for everyting under the sun and all is negative. This is a mind of matter thing. And believe me you can drive yourself crazy.. and I almost have.........................
Thanks for letting me vent!!!!! It take a little pressure off of my dear husband.


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Re: Pelvi Pain

Post  Sebby (Admin) on Tue May 31, 2011 6:28 pm

Hi Vivian and welcome to the forum

Dont apologise for venting we all need to do it!

I to have felt like it is the end of the world and even didnt want to go on anymore. Some days I just cried and didnt see the point in everything else in my life even the good things.

I do often get sickness and nausea. I get it mostly when Im very anxious along with cramps and have been unable to eat. Im not sure if this is just my anxiety or some part of the Pelvic Pain. I to get bloated am very sensitive to the foods I can eat and have always had lower back pain problems. The back pain I know is linked to Chronic Pelvic Pain

What treatments are you on at the moment?

I am on 400mg of Pregabalin and am doing biofeedback

Take Care and thank you for sharing with us


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Re: Pelvi Pain

Post  Joolibee on Tue May 31, 2011 7:11 pm

Hi Vivian, It's really OK to vent your feelings - that's what we're here for. My impression is that most people have other types of chronic pain in addition to vulvar pain. I also am going through menopause and have had lots of other symptoms, including severe migraine, exhaustion, arthritic neck and bloating (which I think is a common symptom). I had very heavy periods, but thankfully, they have stopped now and I don't feel quite as exhausted lately. Just lately, my body seems to be reacting to all kinds of things that never bothered me before and my skin has become very sensitive. I'm lucky that I've never really been prone to depression, but I do get anxious and occasionally have days when I just cry all day and want to lock myself away. But I have a very understanding partner, a good family and lots of things to be thankful for, so I don't tend to stay 'down' for long. I've done some research into the psychological effects of pain and it does seem that, when we are feeling anxious and depressed, this feeds into the pain and makes it worse. I know what you mean about the symptoms. I find it hard to understand how my symptoms can vary and I still find it hard to believe that there is nothing to see down there. It is important to try to remain as positive as possible. I do very gentle relaxation exercises and abdominal breathing, which always make me feel better. I think that whatever makes you feel better, you should build into your routine, whether it's exercise, mediation or relaxation etc. Anyway, nice to hear from you. I hope that the forum helps you. Smile


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Re: Pelvi Pain

Post  noni on Mon Jun 06, 2011 12:07 am

Hey Vivian

Yes vulvodynia can make you feel like you are going crazy and losing your life in the process. Girl I was there for 5 months!!! I now have made peace with my vulvar pain...I take amitriptyline so some days I feel almost ``normal``.

You can vent here anytime !!!!

We know the struggle. The depression, desperation, hopelessness.....isolation of this condition.

Hang in there!

What meds have you tried ? Did any of them work for your pain ?


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Re: Pelvi Pain

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