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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


here is a crazy question

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here is a crazy question

Post  sleeplessnights on Tue Jun 07, 2011 5:44 am

Ok so I notice now for a while what part hurts the most for me down there....my labia minor hangs down past my major labia and is being rub to pieces...Ok here is the crazy thought...what if I had this part of my minor labia trim off so it would not stick out and be the culprit....It seems that if I could stick my finger and tuck everything inside it feels a lot bettte but as you ladies knows, the bits sneaks out and gets rubs to hell and back again...
Do I make a bit of sense here...I was going to ask my gyno for a plastic referall for this Embarassed
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Re: here is a crazy question

Post  Sarah001 on Tue Jun 07, 2011 12:02 pm

It's a common finding and I suspect the reason you find it so painful is because you have V, women without don't notice it. I really wouldn't have surgery if I was you, you might set off the nerves even worse and make your problem a whole lot worse than it already is. Plus it may not make any difference to your pain and you'll have gone through all that surgery for nothing. Up to you but that's my opinion.
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Here is a crazy question

Post  ria on Tue Jun 07, 2011 2:43 pm

I had this problem walking was sooooooooo painful and annoying. Olive oil first thing in the morning rub all over the vulva and then do it again before bed time it worked for me it nourishes the skin. My vulva skin was red raw swollen and the doctors kept giving me yeast creams which irritated the skin even more. My advice is dont put anything on the skin that you cannot eat so avoid anything not pure.

Its the nerves not the skin I have only got this into my head I thought it was the skin but when the nerves settle you will not
have as much discomfort with the rubbing. We have to get the nerves to stop firing up we want them to sleep and stop causing pain.

Hope this helps

Ria



























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Re: here is a crazy question

Post  jules on Wed Jun 08, 2011 3:23 am

I need to agree w/ both ladies. It has got to be the nerves and sore skin that cause pain and not because your labia minor is hanging lower. You still have your underwear to hold back your labia from hitting your pants. You probably just notice it because of the pain. I am much more aware of my lady parts because of this disorder. I would not resort to surgery. I agree that you may be wrong and it could make it far worse.

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Re: here is a crazy question

Post  noni on Wed Jun 08, 2011 9:37 am

Hi there

I would NOT go for any type of surgery for this. I dont care about all those things out there on the internet. It sounds ridiculous and scary !!!!

Sleeplessnights: This condition just makes you very aware of your lady parts. There is nothing wrong with you down there...only that your nerve endings in that area are going bananas !!!

Take care hon.

Noni xo
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Re: here is a crazy question

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