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» Acupuncture advice please
Yesterday at 6:08 pm by fairlight10

» Please tell me this can get better
Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


here is a crazy question

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here is a crazy question

Post  sleeplessnights on Tue Jun 07, 2011 5:44 am

Ok so I notice now for a while what part hurts the most for me down there....my labia minor hangs down past my major labia and is being rub to pieces...Ok here is the crazy thought...what if I had this part of my minor labia trim off so it would not stick out and be the culprit....It seems that if I could stick my finger and tuck everything inside it feels a lot bettte but as you ladies knows, the bits sneaks out and gets rubs to hell and back again...
Do I make a bit of sense here...I was going to ask my gyno for a plastic referall for this Embarassed
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Re: here is a crazy question

Post  Sarah001 on Tue Jun 07, 2011 12:02 pm

It's a common finding and I suspect the reason you find it so painful is because you have V, women without don't notice it. I really wouldn't have surgery if I was you, you might set off the nerves even worse and make your problem a whole lot worse than it already is. Plus it may not make any difference to your pain and you'll have gone through all that surgery for nothing. Up to you but that's my opinion.
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Here is a crazy question

Post  ria on Tue Jun 07, 2011 2:43 pm

I had this problem walking was sooooooooo painful and annoying. Olive oil first thing in the morning rub all over the vulva and then do it again before bed time it worked for me it nourishes the skin. My vulva skin was red raw swollen and the doctors kept giving me yeast creams which irritated the skin even more. My advice is dont put anything on the skin that you cannot eat so avoid anything not pure.

Its the nerves not the skin I have only got this into my head I thought it was the skin but when the nerves settle you will not
have as much discomfort with the rubbing. We have to get the nerves to stop firing up we want them to sleep and stop causing pain.

Hope this helps

Ria



























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Re: here is a crazy question

Post  jules on Wed Jun 08, 2011 3:23 am

I need to agree w/ both ladies. It has got to be the nerves and sore skin that cause pain and not because your labia minor is hanging lower. You still have your underwear to hold back your labia from hitting your pants. You probably just notice it because of the pain. I am much more aware of my lady parts because of this disorder. I would not resort to surgery. I agree that you may be wrong and it could make it far worse.

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Re: here is a crazy question

Post  noni on Wed Jun 08, 2011 9:37 am

Hi there

I would NOT go for any type of surgery for this. I dont care about all those things out there on the internet. It sounds ridiculous and scary !!!!

Sleeplessnights: This condition just makes you very aware of your lady parts. There is nothing wrong with you down there...only that your nerve endings in that area are going bananas !!!

Take care hon.

Noni xo
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Re: here is a crazy question

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