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» What's next?
Fri Apr 20, 2018 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


here is a crazy question

Go down

here is a crazy question

Post  sleeplessnights on Tue Jun 07, 2011 5:44 am

Ok so I notice now for a while what part hurts the most for me down there....my labia minor hangs down past my major labia and is being rub to pieces...Ok here is the crazy thought...what if I had this part of my minor labia trim off so it would not stick out and be the culprit....It seems that if I could stick my finger and tuck everything inside it feels a lot bettte but as you ladies knows, the bits sneaks out and gets rubs to hell and back again...
Do I make a bit of sense here...I was going to ask my gyno for a plastic referall for this Embarassed
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Re: here is a crazy question

Post  Sarah001 on Tue Jun 07, 2011 12:02 pm

It's a common finding and I suspect the reason you find it so painful is because you have V, women without don't notice it. I really wouldn't have surgery if I was you, you might set off the nerves even worse and make your problem a whole lot worse than it already is. Plus it may not make any difference to your pain and you'll have gone through all that surgery for nothing. Up to you but that's my opinion.
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Here is a crazy question

Post  ria on Tue Jun 07, 2011 2:43 pm

I had this problem walking was sooooooooo painful and annoying. Olive oil first thing in the morning rub all over the vulva and then do it again before bed time it worked for me it nourishes the skin. My vulva skin was red raw swollen and the doctors kept giving me yeast creams which irritated the skin even more. My advice is dont put anything on the skin that you cannot eat so avoid anything not pure.

Its the nerves not the skin I have only got this into my head I thought it was the skin but when the nerves settle you will not
have as much discomfort with the rubbing. We have to get the nerves to stop firing up we want them to sleep and stop causing pain.

Hope this helps

Ria



























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Re: here is a crazy question

Post  jules on Wed Jun 08, 2011 3:23 am

I need to agree w/ both ladies. It has got to be the nerves and sore skin that cause pain and not because your labia minor is hanging lower. You still have your underwear to hold back your labia from hitting your pants. You probably just notice it because of the pain. I am much more aware of my lady parts because of this disorder. I would not resort to surgery. I agree that you may be wrong and it could make it far worse.

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Re: here is a crazy question

Post  noni on Wed Jun 08, 2011 9:37 am

Hi there

I would NOT go for any type of surgery for this. I dont care about all those things out there on the internet. It sounds ridiculous and scary !!!!

Sleeplessnights: This condition just makes you very aware of your lady parts. There is nothing wrong with you down there...only that your nerve endings in that area are going bananas !!!

Take care hon.

Noni xo
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Re: here is a crazy question

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