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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


here is a crazy question

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here is a crazy question

Post  sleeplessnights on Tue Jun 07, 2011 5:44 am

Ok so I notice now for a while what part hurts the most for me down there....my labia minor hangs down past my major labia and is being rub to pieces...Ok here is the crazy thought...what if I had this part of my minor labia trim off so it would not stick out and be the culprit....It seems that if I could stick my finger and tuck everything inside it feels a lot bettte but as you ladies knows, the bits sneaks out and gets rubs to hell and back again...
Do I make a bit of sense here...I was going to ask my gyno for a plastic referall for this Embarassed
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Re: here is a crazy question

Post  Sarah001 on Tue Jun 07, 2011 12:02 pm

It's a common finding and I suspect the reason you find it so painful is because you have V, women without don't notice it. I really wouldn't have surgery if I was you, you might set off the nerves even worse and make your problem a whole lot worse than it already is. Plus it may not make any difference to your pain and you'll have gone through all that surgery for nothing. Up to you but that's my opinion.
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Here is a crazy question

Post  ria on Tue Jun 07, 2011 2:43 pm

I had this problem walking was sooooooooo painful and annoying. Olive oil first thing in the morning rub all over the vulva and then do it again before bed time it worked for me it nourishes the skin. My vulva skin was red raw swollen and the doctors kept giving me yeast creams which irritated the skin even more. My advice is dont put anything on the skin that you cannot eat so avoid anything not pure.

Its the nerves not the skin I have only got this into my head I thought it was the skin but when the nerves settle you will not
have as much discomfort with the rubbing. We have to get the nerves to stop firing up we want them to sleep and stop causing pain.

Hope this helps

Ria



























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Re: here is a crazy question

Post  jules on Wed Jun 08, 2011 3:23 am

I need to agree w/ both ladies. It has got to be the nerves and sore skin that cause pain and not because your labia minor is hanging lower. You still have your underwear to hold back your labia from hitting your pants. You probably just notice it because of the pain. I am much more aware of my lady parts because of this disorder. I would not resort to surgery. I agree that you may be wrong and it could make it far worse.

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Re: here is a crazy question

Post  noni on Wed Jun 08, 2011 9:37 am

Hi there

I would NOT go for any type of surgery for this. I dont care about all those things out there on the internet. It sounds ridiculous and scary !!!!

Sleeplessnights: This condition just makes you very aware of your lady parts. There is nothing wrong with you down there...only that your nerve endings in that area are going bananas !!!

Take care hon.

Noni xo
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Re: here is a crazy question

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