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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


here is a crazy question

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here is a crazy question

Post  sleeplessnights on Tue Jun 07, 2011 5:44 am

Ok so I notice now for a while what part hurts the most for me down there....my labia minor hangs down past my major labia and is being rub to pieces...Ok here is the crazy thought...what if I had this part of my minor labia trim off so it would not stick out and be the culprit....It seems that if I could stick my finger and tuck everything inside it feels a lot bettte but as you ladies knows, the bits sneaks out and gets rubs to hell and back again...
Do I make a bit of sense here...I was going to ask my gyno for a plastic referall for this Embarassed
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Re: here is a crazy question

Post  Sarah001 on Tue Jun 07, 2011 12:02 pm

It's a common finding and I suspect the reason you find it so painful is because you have V, women without don't notice it. I really wouldn't have surgery if I was you, you might set off the nerves even worse and make your problem a whole lot worse than it already is. Plus it may not make any difference to your pain and you'll have gone through all that surgery for nothing. Up to you but that's my opinion.
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Here is a crazy question

Post  ria on Tue Jun 07, 2011 2:43 pm

I had this problem walking was sooooooooo painful and annoying. Olive oil first thing in the morning rub all over the vulva and then do it again before bed time it worked for me it nourishes the skin. My vulva skin was red raw swollen and the doctors kept giving me yeast creams which irritated the skin even more. My advice is dont put anything on the skin that you cannot eat so avoid anything not pure.

Its the nerves not the skin I have only got this into my head I thought it was the skin but when the nerves settle you will not
have as much discomfort with the rubbing. We have to get the nerves to stop firing up we want them to sleep and stop causing pain.

Hope this helps

Ria



























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Re: here is a crazy question

Post  jules on Wed Jun 08, 2011 3:23 am

I need to agree w/ both ladies. It has got to be the nerves and sore skin that cause pain and not because your labia minor is hanging lower. You still have your underwear to hold back your labia from hitting your pants. You probably just notice it because of the pain. I am much more aware of my lady parts because of this disorder. I would not resort to surgery. I agree that you may be wrong and it could make it far worse.

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Re: here is a crazy question

Post  noni on Wed Jun 08, 2011 9:37 am

Hi there

I would NOT go for any type of surgery for this. I dont care about all those things out there on the internet. It sounds ridiculous and scary !!!!

Sleeplessnights: This condition just makes you very aware of your lady parts. There is nothing wrong with you down there...only that your nerve endings in that area are going bananas !!!

Take care hon.

Noni xo
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Re: here is a crazy question

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