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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 1


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Stacys story

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Re: Stacys story

Post  stacybrevin on Mon Jun 13, 2011 6:15 pm

whats physico?

Misery loves company. I know that sounds awful. I wish none of us had to deal with any of this but at least I found you all. Thank you! My V is just like my tongue.... if anything irritates it...it gets MAD. So the key is to calm down the nerves. MMMMMMM.


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Re: Stacys story

Post  Sarah001 on Mon Jun 13, 2011 7:35 pm

Zazu it could be fibro or it could be pelvic floor related. My WH physio told me the pelvic floor being in spasm totally drains energy and once it's sorted people feel alot more energetic and clear headed. I got diagnosed with fibro by a Rheumatologist I saw about my Hypermobility Syndrome, I had no clue I had it as well and put all my symptoms down to my HMS because that's bilateral, involves trigger points and spasmed muscles all over the body and is very painful all the time so the fibro diagnosis was based on tender points, the fact I don't feel refreshed when I wake up and feel as tired as I did when I went to bed and I also have Raynauds (lucky me, aren't I healthy!!) which is a common feature of fibro. You'd need to run it past your doctor and either have them do the tests or refer you elsewhere for them.

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Re: Stacys story

Post  stacybrevin on Tue Jun 14, 2011 3:15 pm

Whats a physico? Is that a pt?


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Re: Stacys story

Post  jules on Fri Jun 17, 2011 4:11 am

a physio is what we call a P.T. in the U.S. I have no other burning pain or tingling...other than my vulva. That makes up for it.


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Re: Stacys story

Post  arlee on Mon Nov 28, 2011 4:10 pm

Stacy - I was reading your post about how you feel good when you go to bed and sleep, until you go to the bathroom. I have the same problem, and then of course it gets worse as the day goes by. It's almost as though a "monster" is slowly creeping up and taking over! Does it burn when you urinate? I don't have that problem, so I would like to check and see if I have excess oxalates in my urine. My gyno doesn't think it's necessary, so I will ask my family doctor to send me. I need to explore all avenues.


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mine too started after yeast

Post  Melissa777 on Tue Nov 29, 2011 6:30 am

I got my V after a BAD yeast infection and I too have treated my yeast with diflucan and natural anti fungals
I seriously HATE V
its taken away my happiness
I have my good days/ my bad days
and the days I wish I could fall asleep and not wake up

I do acupuncture, cold laser therapy- herbal therapy, and all of which work, but it doesnt seem to cure it
ive had this for a little over a year now and i seriously am not liking life anymore
im single, pretty, in my 30s, no kids
and i was hoping id meet a great guy, get married, have kids
and now i feel like none of this is possible
this sucks


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Re: Stacys story

Post  Ceriane on Tue Mar 13, 2012 9:44 pm

Hi Stacey,

I worried at one point it was lichen sclerosis or lichen planus...but my doctor assured me it wasn't...there is a test for that.

Noni...have you had your B12 levels checked as I have something called pernicious anaemia, and that causes burning sensation or pins and needles in the hands and feet, as well as a sore tongue and soreness of the vagina....(although not a common symptom). Do you have any other symptoms such as tiredness, dizziness, memory problems or soreness around the mouth? Ask for a B12 test and ask for the number...B12 injections really helped me.


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Re: Stacys story

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