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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

Stacys story

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Re: Stacys story

Post  stacybrevin on Mon Jun 13, 2011 6:15 pm

whats physico?

Misery loves company. I know that sounds awful. I wish none of us had to deal with any of this but at least I found you all. Thank you! My V is just like my tongue.... if anything irritates it...it gets MAD. So the key is to calm down the nerves. MMMMMMM.


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Re: Stacys story

Post  Sarah001 on Mon Jun 13, 2011 7:35 pm

Zazu it could be fibro or it could be pelvic floor related. My WH physio told me the pelvic floor being in spasm totally drains energy and once it's sorted people feel alot more energetic and clear headed. I got diagnosed with fibro by a Rheumatologist I saw about my Hypermobility Syndrome, I had no clue I had it as well and put all my symptoms down to my HMS because that's bilateral, involves trigger points and spasmed muscles all over the body and is very painful all the time so the fibro diagnosis was based on tender points, the fact I don't feel refreshed when I wake up and feel as tired as I did when I went to bed and I also have Raynauds (lucky me, aren't I healthy!!) which is a common feature of fibro. You'd need to run it past your doctor and either have them do the tests or refer you elsewhere for them.

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Re: Stacys story

Post  stacybrevin on Tue Jun 14, 2011 3:15 pm

Whats a physico? Is that a pt?


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Re: Stacys story

Post  jules on Fri Jun 17, 2011 4:11 am

a physio is what we call a P.T. in the U.S. I have no other burning pain or tingling...other than my vulva. That makes up for it.


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Re: Stacys story

Post  arlee on Mon Nov 28, 2011 4:10 pm

Stacy - I was reading your post about how you feel good when you go to bed and sleep, until you go to the bathroom. I have the same problem, and then of course it gets worse as the day goes by. It's almost as though a "monster" is slowly creeping up and taking over! Does it burn when you urinate? I don't have that problem, so I would like to check and see if I have excess oxalates in my urine. My gyno doesn't think it's necessary, so I will ask my family doctor to send me. I need to explore all avenues.


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mine too started after yeast

Post  Melissa777 on Tue Nov 29, 2011 6:30 am

I got my V after a BAD yeast infection and I too have treated my yeast with diflucan and natural anti fungals
I seriously HATE V
its taken away my happiness
I have my good days/ my bad days
and the days I wish I could fall asleep and not wake up

I do acupuncture, cold laser therapy- herbal therapy, and all of which work, but it doesnt seem to cure it
ive had this for a little over a year now and i seriously am not liking life anymore
im single, pretty, in my 30s, no kids
and i was hoping id meet a great guy, get married, have kids
and now i feel like none of this is possible
this sucks


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Re: Stacys story

Post  Ceriane on Tue Mar 13, 2012 9:44 pm

Hi Stacey,

I worried at one point it was lichen sclerosis or lichen planus...but my doctor assured me it wasn't...there is a test for that.

Noni...have you had your B12 levels checked as I have something called pernicious anaemia, and that causes burning sensation or pins and needles in the hands and feet, as well as a sore tongue and soreness of the vagina....(although not a common symptom). Do you have any other symptoms such as tiredness, dizziness, memory problems or soreness around the mouth? Ask for a B12 test and ask for the number...B12 injections really helped me.


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Re: Stacys story

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