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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 3

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Stacys story

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Re: Stacys story

Post  stacybrevin on Mon Jun 13, 2011 6:15 pm

whats physico?

Misery loves company. I know that sounds awful. I wish none of us had to deal with any of this but at least I found you all. Thank you! My V is just like my tongue.... if anything irritates it...it gets MAD. So the key is to calm down the nerves. MMMMMMM.


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Re: Stacys story

Post  Sarah001 on Mon Jun 13, 2011 7:35 pm

Zazu it could be fibro or it could be pelvic floor related. My WH physio told me the pelvic floor being in spasm totally drains energy and once it's sorted people feel alot more energetic and clear headed. I got diagnosed with fibro by a Rheumatologist I saw about my Hypermobility Syndrome, I had no clue I had it as well and put all my symptoms down to my HMS because that's bilateral, involves trigger points and spasmed muscles all over the body and is very painful all the time so the fibro diagnosis was based on tender points, the fact I don't feel refreshed when I wake up and feel as tired as I did when I went to bed and I also have Raynauds (lucky me, aren't I healthy!!) which is a common feature of fibro. You'd need to run it past your doctor and either have them do the tests or refer you elsewhere for them.

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Re: Stacys story

Post  stacybrevin on Tue Jun 14, 2011 3:15 pm

Whats a physico? Is that a pt?


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Re: Stacys story

Post  jules on Fri Jun 17, 2011 4:11 am

a physio is what we call a P.T. in the U.S. I have no other burning pain or tingling...other than my vulva. That makes up for it.


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Re: Stacys story

Post  arlee on Mon Nov 28, 2011 4:10 pm

Stacy - I was reading your post about how you feel good when you go to bed and sleep, until you go to the bathroom. I have the same problem, and then of course it gets worse as the day goes by. It's almost as though a "monster" is slowly creeping up and taking over! Does it burn when you urinate? I don't have that problem, so I would like to check and see if I have excess oxalates in my urine. My gyno doesn't think it's necessary, so I will ask my family doctor to send me. I need to explore all avenues.


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mine too started after yeast

Post  Melissa777 on Tue Nov 29, 2011 6:30 am

I got my V after a BAD yeast infection and I too have treated my yeast with diflucan and natural anti fungals
I seriously HATE V
its taken away my happiness
I have my good days/ my bad days
and the days I wish I could fall asleep and not wake up

I do acupuncture, cold laser therapy- herbal therapy, and all of which work, but it doesnt seem to cure it
ive had this for a little over a year now and i seriously am not liking life anymore
im single, pretty, in my 30s, no kids
and i was hoping id meet a great guy, get married, have kids
and now i feel like none of this is possible
this sucks


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Re: Stacys story

Post  Ceriane on Tue Mar 13, 2012 9:44 pm

Hi Stacey,

I worried at one point it was lichen sclerosis or lichen planus...but my doctor assured me it wasn't...there is a test for that.

Noni...have you had your B12 levels checked as I have something called pernicious anaemia, and that causes burning sensation or pins and needles in the hands and feet, as well as a sore tongue and soreness of the vagina....(although not a common symptom). Do you have any other symptoms such as tiredness, dizziness, memory problems or soreness around the mouth? Ask for a B12 test and ask for the number...B12 injections really helped me.


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Re: Stacys story

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