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» Honey decreased my pain considerably!
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» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

» Newbie and feeling helpless
Thu Jul 12, 2018 6:35 pm by emalita

» Using dilators
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» Hello. In Need of Advice, Please and Thank You. Long Read.
Sun Jul 08, 2018 3:58 am by cg1991

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Stacys story

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Re: Stacys story

Post  stacybrevin on Mon Jun 13, 2011 6:15 pm

whats physico?

Misery loves company. I know that sounds awful. I wish none of us had to deal with any of this but at least I found you all. Thank you! My V is just like my tongue.... if anything irritates it...it gets MAD. So the key is to calm down the nerves. MMMMMMM.

stacybrevin

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Re: Stacys story

Post  Sarah001 on Mon Jun 13, 2011 7:35 pm

Zazu it could be fibro or it could be pelvic floor related. My WH physio told me the pelvic floor being in spasm totally drains energy and once it's sorted people feel alot more energetic and clear headed. I got diagnosed with fibro by a Rheumatologist I saw about my Hypermobility Syndrome, I had no clue I had it as well and put all my symptoms down to my HMS because that's bilateral, involves trigger points and spasmed muscles all over the body and is very painful all the time so the fibro diagnosis was based on tender points, the fact I don't feel refreshed when I wake up and feel as tired as I did when I went to bed and I also have Raynauds (lucky me, aren't I healthy!!) which is a common feature of fibro. You'd need to run it past your doctor and either have them do the tests or refer you elsewhere for them.
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Sarah001

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Re: Stacys story

Post  stacybrevin on Tue Jun 14, 2011 3:15 pm

Whats a physico? Is that a pt?

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Re: Stacys story

Post  jules on Fri Jun 17, 2011 4:11 am

a physio is what we call a P.T. in the U.S. I have no other burning pain or tingling...other than my vulva. That makes up for it.

jules

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Re: Stacys story

Post  arlee on Mon Nov 28, 2011 4:10 pm

Stacy - I was reading your post about how you feel good when you go to bed and sleep, until you go to the bathroom. I have the same problem, and then of course it gets worse as the day goes by. It's almost as though a "monster" is slowly creeping up and taking over! Does it burn when you urinate? I don't have that problem, so I would like to check and see if I have excess oxalates in my urine. My gyno doesn't think it's necessary, so I will ask my family doctor to send me. I need to explore all avenues.

arlee

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mine too started after yeast

Post  Melissa777 on Tue Nov 29, 2011 6:30 am

I got my V after a BAD yeast infection and I too have treated my yeast with diflucan and natural anti fungals
I seriously HATE V
its taken away my happiness
I have my good days/ my bad days
and the days I wish I could fall asleep and not wake up

I do acupuncture, cold laser therapy- herbal therapy, and all of which work, but it doesnt seem to cure it
ive had this for a little over a year now and i seriously am not liking life anymore
im single, pretty, in my 30s, no kids
and i was hoping id meet a great guy, get married, have kids
and now i feel like none of this is possible
this sucks

Melissa777

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Re: Stacys story

Post  Ceriane on Tue Mar 13, 2012 9:44 pm

Hi Stacey,

I worried at one point it was lichen sclerosis or lichen planus...but my doctor assured me it wasn't...there is a test for that.

Noni...have you had your B12 levels checked as I have something called pernicious anaemia, and that causes burning sensation or pins and needles in the hands and feet, as well as a sore tongue and soreness of the vagina....(although not a common symptom). Do you have any other symptoms such as tiredness, dizziness, memory problems or soreness around the mouth? Ask for a B12 test and ask for the number...B12 injections really helped me.

Ceriane

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Re: Stacys story

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