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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
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» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Newbie here - with a good news story ( which is why I joined).

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Newbie here - with a good news story ( which is why I joined).

Post  Ozgirl on Sun Jun 12, 2011 11:27 am

Hi all - I have just joined up as I thought I might be able to lend support to people with V.V. My story is very long and i will put it in the my story section but I have primary VV which was not diagnosed with until I was 26 after suffering since I was at least 2 years of age. I am now 35 and so pleased to see what support there out there now!! No-one had even heard of it when I was seeking help - then when I did get diagnosed still no-one had heard of it ( nothing like explaining to a Dr what your condition is)...and now 10 years on there are VV support forums like this!!! Mine is largely controlled now thanks to biofeedback treatment which worked really well for me - with much dedication on my part. After having it all my life - and being treated so much for thrush i am now allergic to thrush treatments- you can imagine it took a lot of work to improve it. After having my two children it has improved even more. Although still very much a part of my life as it always will be. Anyway - hi all and look forward to sharing experiences. My story will be coming soon... Very Happy

Ozgirl

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Location : australia

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Re: Newbie here - with a good news story ( which is why I joined).

Post  Sarah001 on Sun Jun 12, 2011 11:47 am

Excellent, I look forward to reading your story and thanks for sharing good news with us.
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Re: Newbie here - with a good news story ( which is why I joined).

Post  Sebby (Admin) on Mon Jun 13, 2011 9:11 pm


Welcome to the forum and thanks for giving us hope Smile I to am doing biofeedback and yes it helps x

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Sebby (Admin)
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Re: Newbie here - with a good news story ( which is why I joined).

Post  Aussie on Tue Jun 14, 2011 6:43 am

Hi Ozgirl.

Where abouts in Aus are you? did you see Marek for this? I have had improvment, especially after intesive treatment, sex is much better. I just get burning afterwards now not much during at all.

Daily pain still remains though. Any tips?

Thanks,

Claire

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Age : 29
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Re: Newbie here - with a good news story ( which is why I joined).

Post  Melanie on Fri Jul 22, 2011 9:58 am

Ozgirl wrote:Hi all - I have just joined up as I thought I might be able to lend support to people with V.V. My story is very long and i will put it in the my story section but I have primary VV which was not diagnosed with until I was 26 after suffering since I was at least 2 years of age. I am now 35 and so pleased to see what support there out there now!! No-one had even heard of it when I was seeking help - then when I did get diagnosed still no-one had heard of it ( nothing like explaining to a Dr what your condition is)...and now 10 years on there are VV support forums like this!!! Mine is largely controlled now thanks to biofeedback treatment which worked really well for me - with much dedication on my part. After having it all my life - and being treated so much for thrush i am now allergic to thrush treatments- you can imagine it took a lot of work to improve it. After having my two children it has improved even more. Although still very much a part of my life as it always will be. Anyway - hi all and look forward to sharing experiences. My story will be coming soon... Very Happy

Just wondering what your story was with having children? Did you give birth naturally or Cesarian section? I am terrified of both options.

Melanie

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Re: Newbie here - with a good news story ( which is why I joined).

Post  Aussie on Mon Aug 01, 2011 6:19 am

I have spoken with Ozgirl, it was natural births.

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Re: Newbie here - with a good news story ( which is why I joined).

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