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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Newbie here - with a good news story ( which is why I joined).

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Newbie here - with a good news story ( which is why I joined).

Post  Ozgirl on Sun Jun 12, 2011 11:27 am

Hi all - I have just joined up as I thought I might be able to lend support to people with V.V. My story is very long and i will put it in the my story section but I have primary VV which was not diagnosed with until I was 26 after suffering since I was at least 2 years of age. I am now 35 and so pleased to see what support there out there now!! No-one had even heard of it when I was seeking help - then when I did get diagnosed still no-one had heard of it ( nothing like explaining to a Dr what your condition is)...and now 10 years on there are VV support forums like this!!! Mine is largely controlled now thanks to biofeedback treatment which worked really well for me - with much dedication on my part. After having it all my life - and being treated so much for thrush i am now allergic to thrush treatments- you can imagine it took a lot of work to improve it. After having my two children it has improved even more. Although still very much a part of my life as it always will be. Anyway - hi all and look forward to sharing experiences. My story will be coming soon... Very Happy

Ozgirl

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Re: Newbie here - with a good news story ( which is why I joined).

Post  Sarah001 on Sun Jun 12, 2011 11:47 am

Excellent, I look forward to reading your story and thanks for sharing good news with us.
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Re: Newbie here - with a good news story ( which is why I joined).

Post  Sebby (Admin) on Mon Jun 13, 2011 9:11 pm


Welcome to the forum and thanks for giving us hope Smile I to am doing biofeedback and yes it helps x

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Re: Newbie here - with a good news story ( which is why I joined).

Post  Aussie on Tue Jun 14, 2011 6:43 am

Hi Ozgirl.

Where abouts in Aus are you? did you see Marek for this? I have had improvment, especially after intesive treatment, sex is much better. I just get burning afterwards now not much during at all.

Daily pain still remains though. Any tips?

Thanks,

Claire

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Re: Newbie here - with a good news story ( which is why I joined).

Post  Melanie on Fri Jul 22, 2011 9:58 am

Ozgirl wrote:Hi all - I have just joined up as I thought I might be able to lend support to people with V.V. My story is very long and i will put it in the my story section but I have primary VV which was not diagnosed with until I was 26 after suffering since I was at least 2 years of age. I am now 35 and so pleased to see what support there out there now!! No-one had even heard of it when I was seeking help - then when I did get diagnosed still no-one had heard of it ( nothing like explaining to a Dr what your condition is)...and now 10 years on there are VV support forums like this!!! Mine is largely controlled now thanks to biofeedback treatment which worked really well for me - with much dedication on my part. After having it all my life - and being treated so much for thrush i am now allergic to thrush treatments- you can imagine it took a lot of work to improve it. After having my two children it has improved even more. Although still very much a part of my life as it always will be. Anyway - hi all and look forward to sharing experiences. My story will be coming soon... Very Happy

Just wondering what your story was with having children? Did you give birth naturally or Cesarian section? I am terrified of both options.

Melanie

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Re: Newbie here - with a good news story ( which is why I joined).

Post  Aussie on Mon Aug 01, 2011 6:19 am

I have spoken with Ozgirl, it was natural births.

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Re: Newbie here - with a good news story ( which is why I joined).

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