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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Newbie here - with a good news story ( which is why I joined).

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Newbie here - with a good news story ( which is why I joined).

Post  Ozgirl on Sun Jun 12, 2011 11:27 am

Hi all - I have just joined up as I thought I might be able to lend support to people with V.V. My story is very long and i will put it in the my story section but I have primary VV which was not diagnosed with until I was 26 after suffering since I was at least 2 years of age. I am now 35 and so pleased to see what support there out there now!! No-one had even heard of it when I was seeking help - then when I did get diagnosed still no-one had heard of it ( nothing like explaining to a Dr what your condition is)...and now 10 years on there are VV support forums like this!!! Mine is largely controlled now thanks to biofeedback treatment which worked really well for me - with much dedication on my part. After having it all my life - and being treated so much for thrush i am now allergic to thrush treatments- you can imagine it took a lot of work to improve it. After having my two children it has improved even more. Although still very much a part of my life as it always will be. Anyway - hi all and look forward to sharing experiences. My story will be coming soon... Very Happy

Ozgirl

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Location : australia

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Re: Newbie here - with a good news story ( which is why I joined).

Post  Sarah001 on Sun Jun 12, 2011 11:47 am

Excellent, I look forward to reading your story and thanks for sharing good news with us.
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Re: Newbie here - with a good news story ( which is why I joined).

Post  Sebby (Admin) on Mon Jun 13, 2011 9:11 pm


Welcome to the forum and thanks for giving us hope Smile I to am doing biofeedback and yes it helps x

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Re: Newbie here - with a good news story ( which is why I joined).

Post  Aussie on Tue Jun 14, 2011 6:43 am

Hi Ozgirl.

Where abouts in Aus are you? did you see Marek for this? I have had improvment, especially after intesive treatment, sex is much better. I just get burning afterwards now not much during at all.

Daily pain still remains though. Any tips?

Thanks,

Claire

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Re: Newbie here - with a good news story ( which is why I joined).

Post  Melanie on Fri Jul 22, 2011 9:58 am

Ozgirl wrote:Hi all - I have just joined up as I thought I might be able to lend support to people with V.V. My story is very long and i will put it in the my story section but I have primary VV which was not diagnosed with until I was 26 after suffering since I was at least 2 years of age. I am now 35 and so pleased to see what support there out there now!! No-one had even heard of it when I was seeking help - then when I did get diagnosed still no-one had heard of it ( nothing like explaining to a Dr what your condition is)...and now 10 years on there are VV support forums like this!!! Mine is largely controlled now thanks to biofeedback treatment which worked really well for me - with much dedication on my part. After having it all my life - and being treated so much for thrush i am now allergic to thrush treatments- you can imagine it took a lot of work to improve it. After having my two children it has improved even more. Although still very much a part of my life as it always will be. Anyway - hi all and look forward to sharing experiences. My story will be coming soon... Very Happy

Just wondering what your story was with having children? Did you give birth naturally or Cesarian section? I am terrified of both options.

Melanie

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Re: Newbie here - with a good news story ( which is why I joined).

Post  Aussie on Mon Aug 01, 2011 6:19 am

I have spoken with Ozgirl, it was natural births.

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Re: Newbie here - with a good news story ( which is why I joined).

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