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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

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New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

How I became pain free

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How I became pain free

Post  richardson42 on Thu Jun 16, 2011 5:21 pm

A few years ago I could be found scouring the internet for a solution to the pain I had experienced since my first sexual encounter.
I think it is important for me to share the one thing that saved my relationship. I struggled with painful intercourse for 5 years, constant yeast infection like symptoms when the doctor found no evidence of anything wrong and months of drugs to combat yeast I supposedly didn't have. I tried dilation, drugs, diets - everything but nothing helped. I suffered with the knowledge that I would have this problem forever and it caused so many problems in my marriage because neither one of us knew how to fix it. One day last summer I decided to stop wearing underwear. After 2 weeks, I was 100% cured of pain and for the first time in my life, I have an enjoyable sex life and insatiable drive. I wear mostly dresses and skirts to avoid any problems - only once after visiting family for 3 days wearing jeans did my condition reappear. A few days at home letting everything breathe and I was back to normal. I hope this helps someone else who feels like they have tried it all.


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Re: How I became pain free

Post  noni on Fri Jun 17, 2011 12:40 am

I find that only gives partial relief. Its awesome that this has helped you so much. But for most of us, it hasnt been that simple.

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Re: How I became pain free

Post  jules on Fri Jun 17, 2011 4:00 am

I wish it was that easy. I have tried that myself to no avail. The burning continued on and on. i wear very soft thongs. they do not put any pressure on my vulva. Unfortunately, sitting puts a lot of pressure on my vulva, even when sitting on a cushion. So glad it worked for you. i don't think that's the norm. Congrats!!!


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Re: How I became pain free

Post  Sebby (Admin) on Mon Jun 20, 2011 6:11 pm

It is wonderful that that helped you Smile

I wear leggings and soft cotton knickers. I do find that if I come home and put on a skirt with no underwear that it helps but still I get stinging etc if I go to the loo etc

Letting the skin breathe is very important tho, trouble is I cant find any decent skirts that I would look normal in lol


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Re: How I became pain free

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