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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Hi, I'm new (from the UK)

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Hi, I'm new (from the UK)

Post  Dina on Fri Jun 17, 2011 7:06 pm

Hi everybody!

Great to see that there is a support forum for this! I'm pretty sure that I have vulvodynia, but still waiting for my GP to bother giving me a diagnosis. This all started after I had my first child back in 2007. Very soon after I noticed a horrible burning/stinging feeling upon penetration and it was the same every time. After over a year I went to see my GP who said I probably had a nerve problem where my stiches had been. He gave me gabapentin and referred me to the gyno at the hospital. The gabapentin started working straight away and I was soon painfree, and by the time I finally got my appointment at the hospital there was no pain for them to assess.
I stopped taking gabapentin a few months before I got pregnant again and never felt the pain again. But then a few weeks after I had my second child I noticed strong discomfort on touch, particulary in the area around my clitoris or urethra (if I can manage to climax I don't get a wave of pleasure, I get a sharp, deep shooting pain all the way down my thighs). It was only upon contact at first and I didn't really feel up for sex anyway because of my baby blues, but then suddenly it got much worse. I started getting so much pain that it was sometimes difficult to walk, or sit and my trousers were getting to tight to wear. I also had periods of little or no pain unless there is direct contact. I already have an existing issue with my bladder (long story short, my GP messed up my meds for a UTI and I ended up with an overly sensitiv bladder so I constantly feel full and have to use the toilet at least 20 times a day) so my first thought was that this was something relating to that. I get UTIs at least 4 times a year so I went to my GP and got some antibiotics but it didn't improve.

So after 4 appointments with my GP I've now had another appointment with gyno but the seriously stressed gyno I saw didn't have time to listen and thought that all my problems (I also had a seriously heavy and irregular period) would be solved by removing my copper coil. Well, the coil has been out for well over a week and I still feel this constant throbbing pain.
I have an appointment with my GP on Wednesday and could really do with some help in regards to how I can get a diagnosis. My GP doesn't seem familiar with this (the GP that gave me the gabapentin left the clinic so I can no longer see him).

Dina

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Re: Hi, I'm new (from the UK)

Post  noni on Fri Jun 17, 2011 9:07 pm

Get a refferal to a VULVAR CLINIC or PELVIC PAIN SPECIALIST.

or to a PAIN CLINIC.

Goodluck !!! Smile
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Re: Hi, I'm new (from the UK)

Post  Aussie on Sat Jun 18, 2011 12:04 pm

hi there,

it sounds like you have been suffering with ic for a while now. look into the diet. It may help with frequency also have ic. As for vulvodynia, a women's health physio is better than any one to assess tension in pelvic floor which will be contributing to pain. Gynos i found have been les experienced with these issues. Will write more on monday , too hard on my phone.

Claire x


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Re: Hi, I'm new (from the UK)

Post  Sarah001 on Sat Jun 18, 2011 12:52 pm

Hi and welcome. Aussie is right a Women's Health Physio is where you need to be to have the pelvic floor checked out, only being hooked up to a machine with a vaginal sensor in place will give you precise readings and information about what needs doing. V can be caused by tight muscles, weak muscles or tight and weak muscles so it can vary from woman to woman. Strangely I have a friend with burning mouth syndrome and she was also told the coil she had in place could be behind that, I don't know how exactly but it was something she recently discussed with me.
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Re: Hi, I'm new (from the UK)

Post  Dina on Sat Jun 18, 2011 6:07 pm

Do they have these clinics in the UK? I have been referred to physio at the hospital before do learn pelvic floor exercises for my bladder, but that was years ago though.

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Re: Hi, I'm new (from the UK)

Post  Aussie on Mon Jun 20, 2011 3:18 am

They will have clinics in the UK for sure. Ask Sarah on that one, but any women’s health physio should be able to give you some guidance, it is just finding the right one that is willing to work with you, getting those trigger points to settle and stay settled down.

Have you tried the IC diet? www.icnetwork.com

Some times 'kegles" prescribed to help frequency can make the condition worse and in some cases better, so an assessment by a competant physio is essential, you don't want to do the exercises wrong.

If you gp can't give you a diagnosis - of 'vulva pain' (vulvodynia) - excellent diagnosis doc Smile - then change gp's. I had to go to 4 gp's then 2 gynos to get my 'you have vulva pain' diagnosis. Bloody idiots, not that it really matters, we already know what we have.

Anything else I can help with give me a shout, always happy to give advice. We are all in this together.

Claire


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Re: Hi, I'm new (from the UK)

Post  Sarah001 on Mon Jun 20, 2011 11:28 am

There are vulval clinics but they tend to have a huge waiting list, there's a list in the info section I think but it is exactly as Claire said you need a Women's Health Physio. WH Physios are available on the NHS if you can find one in your area but again have a waiting list because there aren't many but there are private ones who charge the same as normal physios. Mine was private and she charged £32 a session. They can test your pelvic floor to see how tight it is, whether you can relax it etc and give you a program to suit your own needs.
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Re: Hi, I'm new (from the UK)

Post  Sebby (Admin) on Mon Jun 20, 2011 6:03 pm


Welcome to the forum..yes there are Vulval clinics...see forum link below

http://www.vulvodyniasupportforum.com/t230-list-of-uk-vulval-clinics

Ask to be refered to the one nearest you


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Re: Hi, I'm new (from the UK)

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