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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1


Disappointed burning when I went for a long walk

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Disappointed burning when I went for a long walk

Post  ria on Wed Jun 22, 2011 4:34 pm

I have been doing really well I managed to get the pain under control and felt I was getting somewhere, untill today went for a long walk with my dogs and I could feel the burning. My vulvodynia is constant so for me to have no pain it was like winning the jackpot. So I have to sort the walking out I have not had any physio it was never mentioned, I see my consultant in 2 weeks and I am going to ask him to send me. Can the Consultant refuse Physio? I am thinking about hospital budgets.

Its only when I go walking I get the burning so I feel I should get my pelvis checked out.


Does anyone else have problems walking? Underwear makes no difference, infact its worse without any on.


Ria


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Disappointed burning when I went for a long walk

Post  Joolibee on Wed Jun 22, 2011 9:53 pm

I sometimes get more pain after a long walk, especially if I do hill walking (which I love). My physio advised me not to give up walking, but to make sure I do my relaxation exercises as soon as I get back. This can include a warm bath or gentle stretching, relaxation and breathing exercises. I think the problem is that I tend to tighten my pelvic muscles when I go walking, especially up-hill walking. Worth a try, maybe. I do think that physio can be helpful for pelvic pain.

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Re: Disappointed burning when I went for a long walk

Post  noni on Wed Jun 22, 2011 10:00 pm

Hey ladies,

Too much of anything kinda sets my V.
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Re: Disappointed burning when I went for a long walk

Post  toosore on Mon Jun 18, 2012 8:06 pm

I have constant generalized pain, too. And walking or standing both make it worse, as does sitting and lying on either side. So it's flat on my back most of the time. It took me a while to figure out that standing or walking made the pain worse. Sitting was obviously painful, but it turns out that being on my feet is bad, too. So I usually limit standing/walking to 20 minutes or less.

Just last week, I discovered that exerting myself with heaving pushing and pulling (e.g. mowing the lawn) causes a huge flair. I was having a better day, and I thought I could mow our postage-size lawn in about 5 minutes, so it would be okay. But I had a huge flair up. I didn't realize how much I use my core and pelvic floor muscles when lifting, pushing or pulling something heavy - how dumb am I?! It's so difficult to manage this condition when we really don't have proper medical advice and treatment.

I think that pain that is exacerbated by position or movement must be related to muscles and ligaments, etc. I hope you get to see a good physio. I think I am beyond physio right now, and am going to try and get in with a vulvar pain specialist for some botox or trigger point injections first. I think there is also great variability in the skill and techniques used by all these practitioners, as well as a pain condition that has multiple causes, so each person's outcome is unique. One physio may make you worse, but another one may "cure" you. How much botox and where to inject? It's all still experimental. It is really tough to know what to do next....

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