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Today at 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Disappointed burning when I went for a long walk

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Disappointed burning when I went for a long walk

Post  ria on Wed Jun 22, 2011 4:34 pm

I have been doing really well I managed to get the pain under control and felt I was getting somewhere, untill today went for a long walk with my dogs and I could feel the burning. My vulvodynia is constant so for me to have no pain it was like winning the jackpot. So I have to sort the walking out I have not had any physio it was never mentioned, I see my consultant in 2 weeks and I am going to ask him to send me. Can the Consultant refuse Physio? I am thinking about hospital budgets.

Its only when I go walking I get the burning so I feel I should get my pelvis checked out.


Does anyone else have problems walking? Underwear makes no difference, infact its worse without any on.


Ria


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Disappointed burning when I went for a long walk

Post  Joolibee on Wed Jun 22, 2011 9:53 pm

I sometimes get more pain after a long walk, especially if I do hill walking (which I love). My physio advised me not to give up walking, but to make sure I do my relaxation exercises as soon as I get back. This can include a warm bath or gentle stretching, relaxation and breathing exercises. I think the problem is that I tend to tighten my pelvic muscles when I go walking, especially up-hill walking. Worth a try, maybe. I do think that physio can be helpful for pelvic pain.

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Re: Disappointed burning when I went for a long walk

Post  noni on Wed Jun 22, 2011 10:00 pm

Hey ladies,

Too much of anything kinda sets my V.
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noni

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Re: Disappointed burning when I went for a long walk

Post  toosore on Mon Jun 18, 2012 8:06 pm

I have constant generalized pain, too. And walking or standing both make it worse, as does sitting and lying on either side. So it's flat on my back most of the time. It took me a while to figure out that standing or walking made the pain worse. Sitting was obviously painful, but it turns out that being on my feet is bad, too. So I usually limit standing/walking to 20 minutes or less.

Just last week, I discovered that exerting myself with heaving pushing and pulling (e.g. mowing the lawn) causes a huge flair. I was having a better day, and I thought I could mow our postage-size lawn in about 5 minutes, so it would be okay. But I had a huge flair up. I didn't realize how much I use my core and pelvic floor muscles when lifting, pushing or pulling something heavy - how dumb am I?! It's so difficult to manage this condition when we really don't have proper medical advice and treatment.

I think that pain that is exacerbated by position or movement must be related to muscles and ligaments, etc. I hope you get to see a good physio. I think I am beyond physio right now, and am going to try and get in with a vulvar pain specialist for some botox or trigger point injections first. I think there is also great variability in the skill and techniques used by all these practitioners, as well as a pain condition that has multiple causes, so each person's outcome is unique. One physio may make you worse, but another one may "cure" you. How much botox and where to inject? It's all still experimental. It is really tough to know what to do next....

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Re: Disappointed burning when I went for a long walk

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