Log in

I forgot my password

Latest topics
» Acupuncture advice please
Yesterday at 6:08 pm by fairlight10

» Please tell me this can get better
Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Disappointed burning when I went for a long walk

Go down

Disappointed burning when I went for a long walk

Post  ria on Wed Jun 22, 2011 4:34 pm

I have been doing really well I managed to get the pain under control and felt I was getting somewhere, untill today went for a long walk with my dogs and I could feel the burning. My vulvodynia is constant so for me to have no pain it was like winning the jackpot. So I have to sort the walking out I have not had any physio it was never mentioned, I see my consultant in 2 weeks and I am going to ask him to send me. Can the Consultant refuse Physio? I am thinking about hospital budgets.

Its only when I go walking I get the burning so I feel I should get my pelvis checked out.


Does anyone else have problems walking? Underwear makes no difference, infact its worse without any on.


Ria


ria

Posts : 99
Join date : 2010-07-21

View user profile

Back to top Go down

Disappointed burning when I went for a long walk

Post  Joolibee on Wed Jun 22, 2011 9:53 pm

I sometimes get more pain after a long walk, especially if I do hill walking (which I love). My physio advised me not to give up walking, but to make sure I do my relaxation exercises as soon as I get back. This can include a warm bath or gentle stretching, relaxation and breathing exercises. I think the problem is that I tend to tighten my pelvic muscles when I go walking, especially up-hill walking. Worth a try, maybe. I do think that physio can be helpful for pelvic pain.

Joolibee

Posts : 36
Join date : 2011-03-09
Location : France / UK

View user profile

Back to top Go down

Re: Disappointed burning when I went for a long walk

Post  noni on Wed Jun 22, 2011 10:00 pm

Hey ladies,

Too much of anything kinda sets my V.
avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 30
Location : Ontario

View user profile

Back to top Go down

Re: Disappointed burning when I went for a long walk

Post  toosore on Mon Jun 18, 2012 8:06 pm

I have constant generalized pain, too. And walking or standing both make it worse, as does sitting and lying on either side. So it's flat on my back most of the time. It took me a while to figure out that standing or walking made the pain worse. Sitting was obviously painful, but it turns out that being on my feet is bad, too. So I usually limit standing/walking to 20 minutes or less.

Just last week, I discovered that exerting myself with heaving pushing and pulling (e.g. mowing the lawn) causes a huge flair. I was having a better day, and I thought I could mow our postage-size lawn in about 5 minutes, so it would be okay. But I had a huge flair up. I didn't realize how much I use my core and pelvic floor muscles when lifting, pushing or pulling something heavy - how dumb am I?! It's so difficult to manage this condition when we really don't have proper medical advice and treatment.

I think that pain that is exacerbated by position or movement must be related to muscles and ligaments, etc. I hope you get to see a good physio. I think I am beyond physio right now, and am going to try and get in with a vulvar pain specialist for some botox or trigger point injections first. I think there is also great variability in the skill and techniques used by all these practitioners, as well as a pain condition that has multiple causes, so each person's outcome is unique. One physio may make you worse, but another one may "cure" you. How much botox and where to inject? It's all still experimental. It is really tough to know what to do next....

toosore

Posts : 18
Join date : 2012-06-18
Location : Vancouver

View user profile

Back to top Go down

Re: Disappointed burning when I went for a long walk

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum