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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Disappointed burning when I went for a long walk

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Disappointed burning when I went for a long walk

Post  ria on Wed Jun 22, 2011 4:34 pm

I have been doing really well I managed to get the pain under control and felt I was getting somewhere, untill today went for a long walk with my dogs and I could feel the burning. My vulvodynia is constant so for me to have no pain it was like winning the jackpot. So I have to sort the walking out I have not had any physio it was never mentioned, I see my consultant in 2 weeks and I am going to ask him to send me. Can the Consultant refuse Physio? I am thinking about hospital budgets.

Its only when I go walking I get the burning so I feel I should get my pelvis checked out.


Does anyone else have problems walking? Underwear makes no difference, infact its worse without any on.


Ria


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Disappointed burning when I went for a long walk

Post  Joolibee on Wed Jun 22, 2011 9:53 pm

I sometimes get more pain after a long walk, especially if I do hill walking (which I love). My physio advised me not to give up walking, but to make sure I do my relaxation exercises as soon as I get back. This can include a warm bath or gentle stretching, relaxation and breathing exercises. I think the problem is that I tend to tighten my pelvic muscles when I go walking, especially up-hill walking. Worth a try, maybe. I do think that physio can be helpful for pelvic pain.

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Re: Disappointed burning when I went for a long walk

Post  noni on Wed Jun 22, 2011 10:00 pm

Hey ladies,

Too much of anything kinda sets my V.
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Re: Disappointed burning when I went for a long walk

Post  toosore on Mon Jun 18, 2012 8:06 pm

I have constant generalized pain, too. And walking or standing both make it worse, as does sitting and lying on either side. So it's flat on my back most of the time. It took me a while to figure out that standing or walking made the pain worse. Sitting was obviously painful, but it turns out that being on my feet is bad, too. So I usually limit standing/walking to 20 minutes or less.

Just last week, I discovered that exerting myself with heaving pushing and pulling (e.g. mowing the lawn) causes a huge flair. I was having a better day, and I thought I could mow our postage-size lawn in about 5 minutes, so it would be okay. But I had a huge flair up. I didn't realize how much I use my core and pelvic floor muscles when lifting, pushing or pulling something heavy - how dumb am I?! It's so difficult to manage this condition when we really don't have proper medical advice and treatment.

I think that pain that is exacerbated by position or movement must be related to muscles and ligaments, etc. I hope you get to see a good physio. I think I am beyond physio right now, and am going to try and get in with a vulvar pain specialist for some botox or trigger point injections first. I think there is also great variability in the skill and techniques used by all these practitioners, as well as a pain condition that has multiple causes, so each person's outcome is unique. One physio may make you worse, but another one may "cure" you. How much botox and where to inject? It's all still experimental. It is really tough to know what to do next....

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