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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Nauturapath, Womens Health Physio and Herbalist

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Nauturapath, Womens Health Physio and Herbalist

Post  Aussie on Fri Jun 24, 2011 12:13 am

Hi everyone,

On Wednesday I went to see a woman’s health physio with a difference. She gave me a zinc taste test and said that every vulvodynia patient of hers is zinc deficient Something to do with the way the stomach works without zinc causes something with stomach acid, which causes bloating ibs etc it also makes you prone to infections and irritates the mucosa of the vulva. I may have got that competely wrong there was a lot of info in our session.

She has given me the following:

Zinc Drink ¼ tsp OR 1mL in water at night after food

SPIP – 2 every hour for 3 hours before sex and for 1 hour after (stops burning)

MP 65 – 2 every 10 minutes for 2 hours before sex (relaxes muscles)

She said the latter two should make a difference straight away if they are going to work. The zinc will take longer. It's interesting she picked things up in my pathology that doctors completely ignored and classed as 'normal'

She has treated a lot of women with v and the reason she stopped doing physio alone was because she was helping some why others still has pain and irritation. It was then that she looked in to the naturopathy side of things and said combining the two really helps. She said my muscles are great now the tension is so mild. She said the problem she feels is in the mucosa.

I will let you know how I go with the supplements.

I don't really understand as it was my first visit but thought you would all be interested.

Aussie

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Re: Nauturapath, Womens Health Physio and Herbalist

Post  itchyandscratchy on Fri Jun 24, 2011 9:16 am

That's interesting, I have IBS strongly linked with my vulvodynia also. Basically most forms of carbs cause me digestive upset, pains in abdomen, and itchy vulva. Before vulvodynia I could eat whatever I wanted. According to the doctor my vitamin and levels are normal also, so do let us know how this goes!
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Re: Nauturapath, Womens Health Physio and Herbalist

Post  Zazu on Fri Jun 24, 2011 2:01 pm

That's really interesting! I'd definitely love to hear more. Can you tell me what those last two things are (SPIP and MP)? Maybe I'm just dense and you explained it but it would be great to know!
Keep sharing!
xx

Zazu

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Re: Nauturapath, Womens Health Physio and Herbalist

Post  Aussie on Fri Jun 24, 2011 10:08 pm

spip something to do with the nervous system. Google it. mp is magnesium phosophate. She suggested specific brands and advised me other brands wont work.

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worlds worst period

Post  Aussie on Fri Jun 24, 2011 10:22 pm

well as most of you know as part of this whole natural thing i am trying i came off all meds, including- as of Wednesday the pill. I stopped mid cycle which i know was a bad idea. I now have the heaviest period ever with dizzyness cramping feeling sick and i have the shits. I only had my pill period a week ago. Sad. I hope this bleeding wont last long.

Aussie

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Has anyone used Milk Thistle before?

Post  Lea on Sun Jun 26, 2011 2:55 pm

Hello all,

Has anyone used milk thistle before as a liver support? I've been on a lot of prescription & otc meds in the past year thanks to vulvodynia and feel like my body has been through the ringer & back. I notice that my V symptoms have been worse when I was on a combination of meds or did 1 treatment after another. I have read that milk thistle is supposed to help cleanse the liver, but that it may have adverse side effects if used in combo with other medications. My MD knows nothing about this (of course). Has anyone had luck or negative results when using milk thistle or other natural products/remedies?

Thanks!

Lea

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Re: Nauturapath, Womens Health Physio and Herbalist

Post  katerebecca on Mon Jun 27, 2011 2:42 am

I'm happy to try anything at this point! What brands of magnesium phosophate were you suggested to use?

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Re: Nauturapath, Womens Health Physio and Herbalist

Post  Sarah001 on Mon Jun 27, 2011 11:34 am

I take Milk Thistle Lea but hadn't heard about any interactions, I've taken it for years but it doesn't help my V. I've tried every supplement I've come across online to help with my V but none of them have. I take the Milk Thistle because I take alot of medication and also drink so I like to give my liver some help.
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Re: Nauturapath, Womens Health Physio and Herbalist

Post  Aussie on Tue Jun 28, 2011 12:50 am

katerebecca wrote:I'm happy to try anything at this point! What brands of magnesium phosophate were you suggested to use?


blackmoors professional range. Most chemists or health food shops wont give it to you without a script from your practitioner though.

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Re: Nauturapath, Womens Health Physio and Herbalist

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