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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Nauturapath, Womens Health Physio and Herbalist

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Nauturapath, Womens Health Physio and Herbalist

Post  Aussie on Fri Jun 24, 2011 12:13 am

Hi everyone,

On Wednesday I went to see a woman’s health physio with a difference. She gave me a zinc taste test and said that every vulvodynia patient of hers is zinc deficient Something to do with the way the stomach works without zinc causes something with stomach acid, which causes bloating ibs etc it also makes you prone to infections and irritates the mucosa of the vulva. I may have got that competely wrong there was a lot of info in our session.

She has given me the following:

Zinc Drink ¼ tsp OR 1mL in water at night after food

SPIP – 2 every hour for 3 hours before sex and for 1 hour after (stops burning)

MP 65 – 2 every 10 minutes for 2 hours before sex (relaxes muscles)

She said the latter two should make a difference straight away if they are going to work. The zinc will take longer. It's interesting she picked things up in my pathology that doctors completely ignored and classed as 'normal'

She has treated a lot of women with v and the reason she stopped doing physio alone was because she was helping some why others still has pain and irritation. It was then that she looked in to the naturopathy side of things and said combining the two really helps. She said my muscles are great now the tension is so mild. She said the problem she feels is in the mucosa.

I will let you know how I go with the supplements.

I don't really understand as it was my first visit but thought you would all be interested.

Aussie

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Re: Nauturapath, Womens Health Physio and Herbalist

Post  itchyandscratchy on Fri Jun 24, 2011 9:16 am

That's interesting, I have IBS strongly linked with my vulvodynia also. Basically most forms of carbs cause me digestive upset, pains in abdomen, and itchy vulva. Before vulvodynia I could eat whatever I wanted. According to the doctor my vitamin and levels are normal also, so do let us know how this goes!
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Re: Nauturapath, Womens Health Physio and Herbalist

Post  Zazu on Fri Jun 24, 2011 2:01 pm

That's really interesting! I'd definitely love to hear more. Can you tell me what those last two things are (SPIP and MP)? Maybe I'm just dense and you explained it but it would be great to know!
Keep sharing!
xx

Zazu

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Re: Nauturapath, Womens Health Physio and Herbalist

Post  Aussie on Fri Jun 24, 2011 10:08 pm

spip something to do with the nervous system. Google it. mp is magnesium phosophate. She suggested specific brands and advised me other brands wont work.

Aussie

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worlds worst period

Post  Aussie on Fri Jun 24, 2011 10:22 pm

well as most of you know as part of this whole natural thing i am trying i came off all meds, including- as of Wednesday the pill. I stopped mid cycle which i know was a bad idea. I now have the heaviest period ever with dizzyness cramping feeling sick and i have the shits. I only had my pill period a week ago. Sad. I hope this bleeding wont last long.

Aussie

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Has anyone used Milk Thistle before?

Post  Lea on Sun Jun 26, 2011 2:55 pm

Hello all,

Has anyone used milk thistle before as a liver support? I've been on a lot of prescription & otc meds in the past year thanks to vulvodynia and feel like my body has been through the ringer & back. I notice that my V symptoms have been worse when I was on a combination of meds or did 1 treatment after another. I have read that milk thistle is supposed to help cleanse the liver, but that it may have adverse side effects if used in combo with other medications. My MD knows nothing about this (of course). Has anyone had luck or negative results when using milk thistle or other natural products/remedies?

Thanks!

Lea

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Re: Nauturapath, Womens Health Physio and Herbalist

Post  katerebecca on Mon Jun 27, 2011 2:42 am

I'm happy to try anything at this point! What brands of magnesium phosophate were you suggested to use?

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Re: Nauturapath, Womens Health Physio and Herbalist

Post  Sarah001 on Mon Jun 27, 2011 11:34 am

I take Milk Thistle Lea but hadn't heard about any interactions, I've taken it for years but it doesn't help my V. I've tried every supplement I've come across online to help with my V but none of them have. I take the Milk Thistle because I take alot of medication and also drink so I like to give my liver some help.
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Re: Nauturapath, Womens Health Physio and Herbalist

Post  Aussie on Tue Jun 28, 2011 12:50 am

katerebecca wrote:I'm happy to try anything at this point! What brands of magnesium phosophate were you suggested to use?


blackmoors professional range. Most chemists or health food shops wont give it to you without a script from your practitioner though.

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Re: Nauturapath, Womens Health Physio and Herbalist

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