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» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Nauturapath, Womens Health Physio and Herbalist

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Nauturapath, Womens Health Physio and Herbalist

Post  Aussie on Fri Jun 24, 2011 12:13 am

Hi everyone,

On Wednesday I went to see a woman’s health physio with a difference. She gave me a zinc taste test and said that every vulvodynia patient of hers is zinc deficient Something to do with the way the stomach works without zinc causes something with stomach acid, which causes bloating ibs etc it also makes you prone to infections and irritates the mucosa of the vulva. I may have got that competely wrong there was a lot of info in our session.

She has given me the following:

Zinc Drink ¼ tsp OR 1mL in water at night after food

SPIP – 2 every hour for 3 hours before sex and for 1 hour after (stops burning)

MP 65 – 2 every 10 minutes for 2 hours before sex (relaxes muscles)

She said the latter two should make a difference straight away if they are going to work. The zinc will take longer. It's interesting she picked things up in my pathology that doctors completely ignored and classed as 'normal'

She has treated a lot of women with v and the reason she stopped doing physio alone was because she was helping some why others still has pain and irritation. It was then that she looked in to the naturopathy side of things and said combining the two really helps. She said my muscles are great now the tension is so mild. She said the problem she feels is in the mucosa.

I will let you know how I go with the supplements.

I don't really understand as it was my first visit but thought you would all be interested.

Aussie

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Re: Nauturapath, Womens Health Physio and Herbalist

Post  itchyandscratchy on Fri Jun 24, 2011 9:16 am

That's interesting, I have IBS strongly linked with my vulvodynia also. Basically most forms of carbs cause me digestive upset, pains in abdomen, and itchy vulva. Before vulvodynia I could eat whatever I wanted. According to the doctor my vitamin and levels are normal also, so do let us know how this goes!
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Re: Nauturapath, Womens Health Physio and Herbalist

Post  Zazu on Fri Jun 24, 2011 2:01 pm

That's really interesting! I'd definitely love to hear more. Can you tell me what those last two things are (SPIP and MP)? Maybe I'm just dense and you explained it but it would be great to know!
Keep sharing!
xx

Zazu

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Re: Nauturapath, Womens Health Physio and Herbalist

Post  Aussie on Fri Jun 24, 2011 10:08 pm

spip something to do with the nervous system. Google it. mp is magnesium phosophate. She suggested specific brands and advised me other brands wont work.

Aussie

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worlds worst period

Post  Aussie on Fri Jun 24, 2011 10:22 pm

well as most of you know as part of this whole natural thing i am trying i came off all meds, including- as of Wednesday the pill. I stopped mid cycle which i know was a bad idea. I now have the heaviest period ever with dizzyness cramping feeling sick and i have the shits. I only had my pill period a week ago. Sad. I hope this bleeding wont last long.

Aussie

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Has anyone used Milk Thistle before?

Post  Lea on Sun Jun 26, 2011 2:55 pm

Hello all,

Has anyone used milk thistle before as a liver support? I've been on a lot of prescription & otc meds in the past year thanks to vulvodynia and feel like my body has been through the ringer & back. I notice that my V symptoms have been worse when I was on a combination of meds or did 1 treatment after another. I have read that milk thistle is supposed to help cleanse the liver, but that it may have adverse side effects if used in combo with other medications. My MD knows nothing about this (of course). Has anyone had luck or negative results when using milk thistle or other natural products/remedies?

Thanks!

Lea

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Re: Nauturapath, Womens Health Physio and Herbalist

Post  katerebecca on Mon Jun 27, 2011 2:42 am

I'm happy to try anything at this point! What brands of magnesium phosophate were you suggested to use?

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Re: Nauturapath, Womens Health Physio and Herbalist

Post  Sarah001 on Mon Jun 27, 2011 11:34 am

I take Milk Thistle Lea but hadn't heard about any interactions, I've taken it for years but it doesn't help my V. I've tried every supplement I've come across online to help with my V but none of them have. I take the Milk Thistle because I take alot of medication and also drink so I like to give my liver some help.
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Re: Nauturapath, Womens Health Physio and Herbalist

Post  Aussie on Tue Jun 28, 2011 12:50 am

katerebecca wrote:I'm happy to try anything at this point! What brands of magnesium phosophate were you suggested to use?


blackmoors professional range. Most chemists or health food shops wont give it to you without a script from your practitioner though.

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Re: Nauturapath, Womens Health Physio and Herbalist

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