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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Nauturapath, Womens Health Physio and Herbalist

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Nauturapath, Womens Health Physio and Herbalist

Post  Aussie on Fri Jun 24, 2011 12:13 am

Hi everyone,

On Wednesday I went to see a woman’s health physio with a difference. She gave me a zinc taste test and said that every vulvodynia patient of hers is zinc deficient Something to do with the way the stomach works without zinc causes something with stomach acid, which causes bloating ibs etc it also makes you prone to infections and irritates the mucosa of the vulva. I may have got that competely wrong there was a lot of info in our session.

She has given me the following:

Zinc Drink ¼ tsp OR 1mL in water at night after food

SPIP – 2 every hour for 3 hours before sex and for 1 hour after (stops burning)

MP 65 – 2 every 10 minutes for 2 hours before sex (relaxes muscles)

She said the latter two should make a difference straight away if they are going to work. The zinc will take longer. It's interesting she picked things up in my pathology that doctors completely ignored and classed as 'normal'

She has treated a lot of women with v and the reason she stopped doing physio alone was because she was helping some why others still has pain and irritation. It was then that she looked in to the naturopathy side of things and said combining the two really helps. She said my muscles are great now the tension is so mild. She said the problem she feels is in the mucosa.

I will let you know how I go with the supplements.

I don't really understand as it was my first visit but thought you would all be interested.

Aussie

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Re: Nauturapath, Womens Health Physio and Herbalist

Post  itchyandscratchy on Fri Jun 24, 2011 9:16 am

That's interesting, I have IBS strongly linked with my vulvodynia also. Basically most forms of carbs cause me digestive upset, pains in abdomen, and itchy vulva. Before vulvodynia I could eat whatever I wanted. According to the doctor my vitamin and levels are normal also, so do let us know how this goes!
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Re: Nauturapath, Womens Health Physio and Herbalist

Post  Zazu on Fri Jun 24, 2011 2:01 pm

That's really interesting! I'd definitely love to hear more. Can you tell me what those last two things are (SPIP and MP)? Maybe I'm just dense and you explained it but it would be great to know!
Keep sharing!
xx

Zazu

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Re: Nauturapath, Womens Health Physio and Herbalist

Post  Aussie on Fri Jun 24, 2011 10:08 pm

spip something to do with the nervous system. Google it. mp is magnesium phosophate. She suggested specific brands and advised me other brands wont work.

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worlds worst period

Post  Aussie on Fri Jun 24, 2011 10:22 pm

well as most of you know as part of this whole natural thing i am trying i came off all meds, including- as of Wednesday the pill. I stopped mid cycle which i know was a bad idea. I now have the heaviest period ever with dizzyness cramping feeling sick and i have the shits. I only had my pill period a week ago. Sad. I hope this bleeding wont last long.

Aussie

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Has anyone used Milk Thistle before?

Post  Lea on Sun Jun 26, 2011 2:55 pm

Hello all,

Has anyone used milk thistle before as a liver support? I've been on a lot of prescription & otc meds in the past year thanks to vulvodynia and feel like my body has been through the ringer & back. I notice that my V symptoms have been worse when I was on a combination of meds or did 1 treatment after another. I have read that milk thistle is supposed to help cleanse the liver, but that it may have adverse side effects if used in combo with other medications. My MD knows nothing about this (of course). Has anyone had luck or negative results when using milk thistle or other natural products/remedies?

Thanks!

Lea

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Re: Nauturapath, Womens Health Physio and Herbalist

Post  katerebecca on Mon Jun 27, 2011 2:42 am

I'm happy to try anything at this point! What brands of magnesium phosophate were you suggested to use?

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Re: Nauturapath, Womens Health Physio and Herbalist

Post  Sarah001 on Mon Jun 27, 2011 11:34 am

I take Milk Thistle Lea but hadn't heard about any interactions, I've taken it for years but it doesn't help my V. I've tried every supplement I've come across online to help with my V but none of them have. I take the Milk Thistle because I take alot of medication and also drink so I like to give my liver some help.
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Re: Nauturapath, Womens Health Physio and Herbalist

Post  Aussie on Tue Jun 28, 2011 12:50 am

katerebecca wrote:I'm happy to try anything at this point! What brands of magnesium phosophate were you suggested to use?


blackmoors professional range. Most chemists or health food shops wont give it to you without a script from your practitioner though.

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Re: Nauturapath, Womens Health Physio and Herbalist

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