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» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Cushion question

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Cushion question

Post  Joolibee on Thu Jun 30, 2011 9:49 pm

Hello everyone, I've seen a cushion on Amazon.com, designed especially for people with vulval type pain. It seems to be sold via the IC network. Instead of having a hole in the middle, it has a kind of trough down the centre. I thought I would order one, as the normal doughnut cushions put too much pressure on the backs of my thighs, thus causing more pain. Unfortunately, when I tried to order it, I received a message saying the item could not be delivered to my address. I am currently in France, but I assume it could not be delivered to my UK address either. I am wondering whether anyone else in UK / Europe has come across this type of cushion and if so, where did you get it from? And did it help? Question

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Re: Cushion question

Post  Aussie on Fri Jul 01, 2011 3:05 am

I got one from the IC Network but the gap between where your legs go and the gap for the vulva was too small, it still touched and hurt. I can't stand any pressure at all.

I made my own:

I got one of those cushions that go on outdoor chairs and I took out the stuffing in the middle bit so there is a huge gap between where my bottom/legs are and where my vulva goes. There is still slight pressure but it is better than nothing, and way cheeper too! Smile

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Re: Cushion question

Post  Joolibee on Fri Jul 01, 2011 11:53 am

Hi Aussie,thanks for the advice. There's loads of outdoor cushions in the local supermarket at the moment, (it being early summer here). I'll give that a try. Like you say, it will be much less expensive as well. Thanks again. J cheers

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Re: Cushion question

Post  key_lime_teddy on Tue Jul 05, 2011 12:28 am

I use a boppy as a cushion to set on... I just sewed up the two parts that is not joined and just set on it.. It's works as good as any other cushion out there. I like it cause I can take off the cover and wash it any time..
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Re: Cushion question

Post  Joolibee on Tue Jul 05, 2011 8:52 am

Thanks for that. I had never heard of boppy cushions before, but just googled it. Are they softer than donut cushions? I think it's the memory foam in donut cushions that I have a problem with - it creates too much pressure on the back of my thighs and creates a type of sciatica. I'm busy experimenting at the moment with some cheapo cushions I bought at the supermarket. Not quite got it right yet, but it's bringing out a new creativity in me Smile

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Re: Cushion question

Post  JemimaSurrender on Wed Dec 28, 2011 1:10 pm

I've just bought one of these...

http://www.ebay.co.uk/itm/Hemorrhoids-Cushion-Donut-Pregnant-Woman-Ventilation-/180660068975?_trksid=p5197.m7&_trkparms=algo%3DLVI%26itu%3DUCI%26otn%3D5%26po%3DLVI%26ps%3D63%26clkid%3D5209585479785673753

I actually don't tend to sit up straight generally, as I don't have to sit for my job, and when I'm at home I tend to sit further back, almost on the bottom of my spine so the whole vulva/bottom area is off the seat.

However, I eat at my boyfriends house the majority of the week and there I sit on a settee and eat our food off a coffee table which means I have to sit right forward and my, oh my! I'd never noticed that sitting in a certain position hurt before, but lately it's been very awkward and painful, so I'm soooooo excited to get this cushion!

I had been fashioning my own seating device, by putting a cushion under each cheek, thus creating a canal in the middle. Not comfortable whilst you're eating your tea, but it seemed to do the job.

I'd looked at similar cushions before and found them to be quite expensive, and I wasn't keen on a memory foam one either, so I was delighted when I found this as it's a bit cheaper than the others, and it looks very cute and comes in different colours!

Plus, as it doesn't look so clinical I thought it might be a bit more subtle and people wouldn't ask too many questions. As it goes... Whilst searching eBay for one, I found the same as the above, but also a square version, and you can get Hello Kitty, and a Nightmare Before Xmas one.

I'll look forward to my delivery!

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Re: Cushion question

Post  ButterflyLiz on Wed Dec 28, 2011 5:33 pm

Hiya! Getting a special cushion is definitely a great idea, I bought one for my chair at work when it was getting to the point where I really couldn’t sit on a normal chair all day and it’s made SUCH a difference. I’ve got one for my car now, too. I know what you mean about the slouchy type of sitting too, I catch myself doing it all the time and I’m sure I’m just making problems for myself in the future. Must try not to do that but it seems to just happen!

I have heard that the donut cushions can restrict blood flow to the thighs so just be aware that that’s a possibility. The ones I use are pressure relief cushions (sort of bumpy) with a big cutout bit in the middle for the vulva. They’re not too expensive. Link as follows:

http://putnams.co.uk/sitting/bonyparts-sero-pressure-cushion

Can get a few funny looks when I carry them around but I just tell them it’s for back problems, unless I feel like getting into the whole sorry saga!!

Liz x
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donut cushion

Post  sadone on Wed Dec 28, 2011 8:15 pm

The worst pain for me is when I am driving because I can't adjust my sitting position. I'd end up with burning discomfort any time I drove anywhere. Then, I bought a donut cushion, and the pain just disappeared. Thank goodness. Now I can drive on long trips with no pain.

The cushion definitely made a difference in my life. I thought I wouldn't be able to drive again without pain.

If the donut cushion doesn't work for you, I'm sure the other kind mentioned will make a HUGE difference.

It changed my life!

Good luck and let us know how it works for u! Smile

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Re: Cushion question

Post  Chinchilla on Tue Jan 03, 2012 9:28 pm

Ugh, I know what you mean about sitting on your tailbone! I slouch like that, too, to avoid sitting on my vulva, and unfortunately I have to go to the chiropractor somewhat regularly to get my pelvic/hip joint put back in.

And then there's going to people's houses...one of the first things I notice when I go somewhere for a meal is "oh goody, look at their nice set of wooden chairs". And then after the meal they want to continue sitting there chatting - hello, in agony here!

At home we have wooden chairs too, but I've put cushions on them. My husband has gotten to liking the cushions, too, haha! My computer chair I've put a neck pillow on - you know, the kind people have on airplanes? It's kinda gotten squashed flat though, and so I might look into some of the ideas and links people have posted here.
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Re: Cushion question

Post  JemimaSurrender on Sat Jan 07, 2012 3:29 pm

So... I received my cushion on Thursday, which already had me impressed as it had come from Japan in around about a week, wow!

So far I've got to say... I absolutely love it!! It's fantastic. Soooo comfy, stops almost all the pain when I'm sitting eating my tea, and is just the right size to get in the perfect position. Infact, it's so good my boyfriend even had a nap on it yesterday.

I'm so happy I bought it, I really recommend it to anyone. Here's the link again if anyone's interested:

http://www.ebay.co.uk/itm/Hemorrhoids-Cushion-Donut-Pregnant-Woman-Ventilation-/180660068975?_trksid=p5197.m7&_trkparms=algo%3DLVI%26itu%3DUCI%26otn%3D5%26po%3DLVI%26ps%3D63%26clkid%3D5443813816860167611

Please, go buy now! It will save your life. Ha ha!

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Re: Cushion question

Post  Loveactually on Mon Mar 23, 2015 4:45 pm

ButterflyLiz wrote:
I have heard that the donut cushions can restrict blood flow to the thighs so just be aware that that’s a possibility. The ones I use are pressure relief cushions (sort of bumpy) with a big cutout bit in the middle for the vulva. They’re not too expensive. Link as follows:

http://putnams.co.uk/sitting/bonyparts-sero-pressure-cushion


Completely agree with you Liz, this cushion is fab! Glad you agree!

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Re: Cushion question

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