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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Cushion question

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Cushion question

Post  Joolibee on Thu Jun 30, 2011 9:49 pm

Hello everyone, I've seen a cushion on Amazon.com, designed especially for people with vulval type pain. It seems to be sold via the IC network. Instead of having a hole in the middle, it has a kind of trough down the centre. I thought I would order one, as the normal doughnut cushions put too much pressure on the backs of my thighs, thus causing more pain. Unfortunately, when I tried to order it, I received a message saying the item could not be delivered to my address. I am currently in France, but I assume it could not be delivered to my UK address either. I am wondering whether anyone else in UK / Europe has come across this type of cushion and if so, where did you get it from? And did it help? Question

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Re: Cushion question

Post  Aussie on Fri Jul 01, 2011 3:05 am

I got one from the IC Network but the gap between where your legs go and the gap for the vulva was too small, it still touched and hurt. I can't stand any pressure at all.

I made my own:

I got one of those cushions that go on outdoor chairs and I took out the stuffing in the middle bit so there is a huge gap between where my bottom/legs are and where my vulva goes. There is still slight pressure but it is better than nothing, and way cheeper too! Smile

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Re: Cushion question

Post  Joolibee on Fri Jul 01, 2011 11:53 am

Hi Aussie,thanks for the advice. There's loads of outdoor cushions in the local supermarket at the moment, (it being early summer here). I'll give that a try. Like you say, it will be much less expensive as well. Thanks again. J cheers

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Re: Cushion question

Post  key_lime_teddy on Tue Jul 05, 2011 12:28 am

I use a boppy as a cushion to set on... I just sewed up the two parts that is not joined and just set on it.. It's works as good as any other cushion out there. I like it cause I can take off the cover and wash it any time..
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Re: Cushion question

Post  Joolibee on Tue Jul 05, 2011 8:52 am

Thanks for that. I had never heard of boppy cushions before, but just googled it. Are they softer than donut cushions? I think it's the memory foam in donut cushions that I have a problem with - it creates too much pressure on the back of my thighs and creates a type of sciatica. I'm busy experimenting at the moment with some cheapo cushions I bought at the supermarket. Not quite got it right yet, but it's bringing out a new creativity in me Smile

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Re: Cushion question

Post  JemimaSurrender on Wed Dec 28, 2011 1:10 pm

I've just bought one of these...

http://www.ebay.co.uk/itm/Hemorrhoids-Cushion-Donut-Pregnant-Woman-Ventilation-/180660068975?_trksid=p5197.m7&_trkparms=algo%3DLVI%26itu%3DUCI%26otn%3D5%26po%3DLVI%26ps%3D63%26clkid%3D5209585479785673753

I actually don't tend to sit up straight generally, as I don't have to sit for my job, and when I'm at home I tend to sit further back, almost on the bottom of my spine so the whole vulva/bottom area is off the seat.

However, I eat at my boyfriends house the majority of the week and there I sit on a settee and eat our food off a coffee table which means I have to sit right forward and my, oh my! I'd never noticed that sitting in a certain position hurt before, but lately it's been very awkward and painful, so I'm soooooo excited to get this cushion!

I had been fashioning my own seating device, by putting a cushion under each cheek, thus creating a canal in the middle. Not comfortable whilst you're eating your tea, but it seemed to do the job.

I'd looked at similar cushions before and found them to be quite expensive, and I wasn't keen on a memory foam one either, so I was delighted when I found this as it's a bit cheaper than the others, and it looks very cute and comes in different colours!

Plus, as it doesn't look so clinical I thought it might be a bit more subtle and people wouldn't ask too many questions. As it goes... Whilst searching eBay for one, I found the same as the above, but also a square version, and you can get Hello Kitty, and a Nightmare Before Xmas one.

I'll look forward to my delivery!

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Re: Cushion question

Post  ButterflyLiz on Wed Dec 28, 2011 5:33 pm

Hiya! Getting a special cushion is definitely a great idea, I bought one for my chair at work when it was getting to the point where I really couldn’t sit on a normal chair all day and it’s made SUCH a difference. I’ve got one for my car now, too. I know what you mean about the slouchy type of sitting too, I catch myself doing it all the time and I’m sure I’m just making problems for myself in the future. Must try not to do that but it seems to just happen!

I have heard that the donut cushions can restrict blood flow to the thighs so just be aware that that’s a possibility. The ones I use are pressure relief cushions (sort of bumpy) with a big cutout bit in the middle for the vulva. They’re not too expensive. Link as follows:

http://putnams.co.uk/sitting/bonyparts-sero-pressure-cushion

Can get a few funny looks when I carry them around but I just tell them it’s for back problems, unless I feel like getting into the whole sorry saga!!

Liz x
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donut cushion

Post  sadone on Wed Dec 28, 2011 8:15 pm

The worst pain for me is when I am driving because I can't adjust my sitting position. I'd end up with burning discomfort any time I drove anywhere. Then, I bought a donut cushion, and the pain just disappeared. Thank goodness. Now I can drive on long trips with no pain.

The cushion definitely made a difference in my life. I thought I wouldn't be able to drive again without pain.

If the donut cushion doesn't work for you, I'm sure the other kind mentioned will make a HUGE difference.

It changed my life!

Good luck and let us know how it works for u! Smile

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Re: Cushion question

Post  Chinchilla on Tue Jan 03, 2012 9:28 pm

Ugh, I know what you mean about sitting on your tailbone! I slouch like that, too, to avoid sitting on my vulva, and unfortunately I have to go to the chiropractor somewhat regularly to get my pelvic/hip joint put back in.

And then there's going to people's houses...one of the first things I notice when I go somewhere for a meal is "oh goody, look at their nice set of wooden chairs". And then after the meal they want to continue sitting there chatting - hello, in agony here!

At home we have wooden chairs too, but I've put cushions on them. My husband has gotten to liking the cushions, too, haha! My computer chair I've put a neck pillow on - you know, the kind people have on airplanes? It's kinda gotten squashed flat though, and so I might look into some of the ideas and links people have posted here.
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Re: Cushion question

Post  JemimaSurrender on Sat Jan 07, 2012 3:29 pm

So... I received my cushion on Thursday, which already had me impressed as it had come from Japan in around about a week, wow!

So far I've got to say... I absolutely love it!! It's fantastic. Soooo comfy, stops almost all the pain when I'm sitting eating my tea, and is just the right size to get in the perfect position. Infact, it's so good my boyfriend even had a nap on it yesterday.

I'm so happy I bought it, I really recommend it to anyone. Here's the link again if anyone's interested:

http://www.ebay.co.uk/itm/Hemorrhoids-Cushion-Donut-Pregnant-Woman-Ventilation-/180660068975?_trksid=p5197.m7&_trkparms=algo%3DLVI%26itu%3DUCI%26otn%3D5%26po%3DLVI%26ps%3D63%26clkid%3D5443813816860167611

Please, go buy now! It will save your life. Ha ha!

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Re: Cushion question

Post  Loveactually on Mon Mar 23, 2015 4:45 pm

ButterflyLiz wrote:
I have heard that the donut cushions can restrict blood flow to the thighs so just be aware that that’s a possibility. The ones I use are pressure relief cushions (sort of bumpy) with a big cutout bit in the middle for the vulva. They’re not too expensive. Link as follows:

http://putnams.co.uk/sitting/bonyparts-sero-pressure-cushion


Completely agree with you Liz, this cushion is fab! Glad you agree!

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Re: Cushion question

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