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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Cushion question

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Cushion question

Post  Joolibee on Thu Jun 30, 2011 9:49 pm

Hello everyone, I've seen a cushion on Amazon.com, designed especially for people with vulval type pain. It seems to be sold via the IC network. Instead of having a hole in the middle, it has a kind of trough down the centre. I thought I would order one, as the normal doughnut cushions put too much pressure on the backs of my thighs, thus causing more pain. Unfortunately, when I tried to order it, I received a message saying the item could not be delivered to my address. I am currently in France, but I assume it could not be delivered to my UK address either. I am wondering whether anyone else in UK / Europe has come across this type of cushion and if so, where did you get it from? And did it help? Question

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Re: Cushion question

Post  Aussie on Fri Jul 01, 2011 3:05 am

I got one from the IC Network but the gap between where your legs go and the gap for the vulva was too small, it still touched and hurt. I can't stand any pressure at all.

I made my own:

I got one of those cushions that go on outdoor chairs and I took out the stuffing in the middle bit so there is a huge gap between where my bottom/legs are and where my vulva goes. There is still slight pressure but it is better than nothing, and way cheeper too! Smile

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Re: Cushion question

Post  Joolibee on Fri Jul 01, 2011 11:53 am

Hi Aussie,thanks for the advice. There's loads of outdoor cushions in the local supermarket at the moment, (it being early summer here). I'll give that a try. Like you say, it will be much less expensive as well. Thanks again. J cheers

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Re: Cushion question

Post  key_lime_teddy on Tue Jul 05, 2011 12:28 am

I use a boppy as a cushion to set on... I just sewed up the two parts that is not joined and just set on it.. It's works as good as any other cushion out there. I like it cause I can take off the cover and wash it any time..
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Re: Cushion question

Post  Joolibee on Tue Jul 05, 2011 8:52 am

Thanks for that. I had never heard of boppy cushions before, but just googled it. Are they softer than donut cushions? I think it's the memory foam in donut cushions that I have a problem with - it creates too much pressure on the back of my thighs and creates a type of sciatica. I'm busy experimenting at the moment with some cheapo cushions I bought at the supermarket. Not quite got it right yet, but it's bringing out a new creativity in me Smile

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Re: Cushion question

Post  JemimaSurrender on Wed Dec 28, 2011 1:10 pm

I've just bought one of these...

http://www.ebay.co.uk/itm/Hemorrhoids-Cushion-Donut-Pregnant-Woman-Ventilation-/180660068975?_trksid=p5197.m7&_trkparms=algo%3DLVI%26itu%3DUCI%26otn%3D5%26po%3DLVI%26ps%3D63%26clkid%3D5209585479785673753

I actually don't tend to sit up straight generally, as I don't have to sit for my job, and when I'm at home I tend to sit further back, almost on the bottom of my spine so the whole vulva/bottom area is off the seat.

However, I eat at my boyfriends house the majority of the week and there I sit on a settee and eat our food off a coffee table which means I have to sit right forward and my, oh my! I'd never noticed that sitting in a certain position hurt before, but lately it's been very awkward and painful, so I'm soooooo excited to get this cushion!

I had been fashioning my own seating device, by putting a cushion under each cheek, thus creating a canal in the middle. Not comfortable whilst you're eating your tea, but it seemed to do the job.

I'd looked at similar cushions before and found them to be quite expensive, and I wasn't keen on a memory foam one either, so I was delighted when I found this as it's a bit cheaper than the others, and it looks very cute and comes in different colours!

Plus, as it doesn't look so clinical I thought it might be a bit more subtle and people wouldn't ask too many questions. As it goes... Whilst searching eBay for one, I found the same as the above, but also a square version, and you can get Hello Kitty, and a Nightmare Before Xmas one.

I'll look forward to my delivery!

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Re: Cushion question

Post  ButterflyLiz on Wed Dec 28, 2011 5:33 pm

Hiya! Getting a special cushion is definitely a great idea, I bought one for my chair at work when it was getting to the point where I really couldn’t sit on a normal chair all day and it’s made SUCH a difference. I’ve got one for my car now, too. I know what you mean about the slouchy type of sitting too, I catch myself doing it all the time and I’m sure I’m just making problems for myself in the future. Must try not to do that but it seems to just happen!

I have heard that the donut cushions can restrict blood flow to the thighs so just be aware that that’s a possibility. The ones I use are pressure relief cushions (sort of bumpy) with a big cutout bit in the middle for the vulva. They’re not too expensive. Link as follows:

http://putnams.co.uk/sitting/bonyparts-sero-pressure-cushion

Can get a few funny looks when I carry them around but I just tell them it’s for back problems, unless I feel like getting into the whole sorry saga!!

Liz x
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donut cushion

Post  sadone on Wed Dec 28, 2011 8:15 pm

The worst pain for me is when I am driving because I can't adjust my sitting position. I'd end up with burning discomfort any time I drove anywhere. Then, I bought a donut cushion, and the pain just disappeared. Thank goodness. Now I can drive on long trips with no pain.

The cushion definitely made a difference in my life. I thought I wouldn't be able to drive again without pain.

If the donut cushion doesn't work for you, I'm sure the other kind mentioned will make a HUGE difference.

It changed my life!

Good luck and let us know how it works for u! Smile

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Re: Cushion question

Post  Chinchilla on Tue Jan 03, 2012 9:28 pm

Ugh, I know what you mean about sitting on your tailbone! I slouch like that, too, to avoid sitting on my vulva, and unfortunately I have to go to the chiropractor somewhat regularly to get my pelvic/hip joint put back in.

And then there's going to people's houses...one of the first things I notice when I go somewhere for a meal is "oh goody, look at their nice set of wooden chairs". And then after the meal they want to continue sitting there chatting - hello, in agony here!

At home we have wooden chairs too, but I've put cushions on them. My husband has gotten to liking the cushions, too, haha! My computer chair I've put a neck pillow on - you know, the kind people have on airplanes? It's kinda gotten squashed flat though, and so I might look into some of the ideas and links people have posted here.
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Re: Cushion question

Post  JemimaSurrender on Sat Jan 07, 2012 3:29 pm

So... I received my cushion on Thursday, which already had me impressed as it had come from Japan in around about a week, wow!

So far I've got to say... I absolutely love it!! It's fantastic. Soooo comfy, stops almost all the pain when I'm sitting eating my tea, and is just the right size to get in the perfect position. Infact, it's so good my boyfriend even had a nap on it yesterday.

I'm so happy I bought it, I really recommend it to anyone. Here's the link again if anyone's interested:

http://www.ebay.co.uk/itm/Hemorrhoids-Cushion-Donut-Pregnant-Woman-Ventilation-/180660068975?_trksid=p5197.m7&_trkparms=algo%3DLVI%26itu%3DUCI%26otn%3D5%26po%3DLVI%26ps%3D63%26clkid%3D5443813816860167611

Please, go buy now! It will save your life. Ha ha!

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Re: Cushion question

Post  Loveactually on Mon Mar 23, 2015 4:45 pm

ButterflyLiz wrote:
I have heard that the donut cushions can restrict blood flow to the thighs so just be aware that that’s a possibility. The ones I use are pressure relief cushions (sort of bumpy) with a big cutout bit in the middle for the vulva. They’re not too expensive. Link as follows:

http://putnams.co.uk/sitting/bonyparts-sero-pressure-cushion


Completely agree with you Liz, this cushion is fab! Glad you agree!

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Re: Cushion question

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