Log in

I forgot my password

Latest topics
» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 1

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


Cushion question

Go down

Cushion question

Post  Joolibee on Thu Jun 30, 2011 9:49 pm

Hello everyone, I've seen a cushion on Amazon.com, designed especially for people with vulval type pain. It seems to be sold via the IC network. Instead of having a hole in the middle, it has a kind of trough down the centre. I thought I would order one, as the normal doughnut cushions put too much pressure on the backs of my thighs, thus causing more pain. Unfortunately, when I tried to order it, I received a message saying the item could not be delivered to my address. I am currently in France, but I assume it could not be delivered to my UK address either. I am wondering whether anyone else in UK / Europe has come across this type of cushion and if so, where did you get it from? And did it help? Question

Joolibee

Posts : 36
Join date : 2011-03-09
Location : France / UK

View user profile

Back to top Go down

Re: Cushion question

Post  Aussie on Fri Jul 01, 2011 3:05 am

I got one from the IC Network but the gap between where your legs go and the gap for the vulva was too small, it still touched and hurt. I can't stand any pressure at all.

I made my own:

I got one of those cushions that go on outdoor chairs and I took out the stuffing in the middle bit so there is a huge gap between where my bottom/legs are and where my vulva goes. There is still slight pressure but it is better than nothing, and way cheeper too! Smile

Aussie

Posts : 227
Join date : 2011-03-15
Age : 29
Location : Queensland, Australia

View user profile

Back to top Go down

Re: Cushion question

Post  Joolibee on Fri Jul 01, 2011 11:53 am

Hi Aussie,thanks for the advice. There's loads of outdoor cushions in the local supermarket at the moment, (it being early summer here). I'll give that a try. Like you say, it will be much less expensive as well. Thanks again. J cheers

Joolibee

Posts : 36
Join date : 2011-03-09
Location : France / UK

View user profile

Back to top Go down

Re: Cushion question

Post  key_lime_teddy on Tue Jul 05, 2011 12:28 am

I use a boppy as a cushion to set on... I just sewed up the two parts that is not joined and just set on it.. It's works as good as any other cushion out there. I like it cause I can take off the cover and wash it any time..
avatar
key_lime_teddy

Posts : 7
Join date : 2010-10-07
Age : 44

View user profile

Back to top Go down

Re: Cushion question

Post  Joolibee on Tue Jul 05, 2011 8:52 am

Thanks for that. I had never heard of boppy cushions before, but just googled it. Are they softer than donut cushions? I think it's the memory foam in donut cushions that I have a problem with - it creates too much pressure on the back of my thighs and creates a type of sciatica. I'm busy experimenting at the moment with some cheapo cushions I bought at the supermarket. Not quite got it right yet, but it's bringing out a new creativity in me Smile

Joolibee

Posts : 36
Join date : 2011-03-09
Location : France / UK

View user profile

Back to top Go down

Re: Cushion question

Post  JemimaSurrender on Wed Dec 28, 2011 1:10 pm

I've just bought one of these...

http://www.ebay.co.uk/itm/Hemorrhoids-Cushion-Donut-Pregnant-Woman-Ventilation-/180660068975?_trksid=p5197.m7&_trkparms=algo%3DLVI%26itu%3DUCI%26otn%3D5%26po%3DLVI%26ps%3D63%26clkid%3D5209585479785673753

I actually don't tend to sit up straight generally, as I don't have to sit for my job, and when I'm at home I tend to sit further back, almost on the bottom of my spine so the whole vulva/bottom area is off the seat.

However, I eat at my boyfriends house the majority of the week and there I sit on a settee and eat our food off a coffee table which means I have to sit right forward and my, oh my! I'd never noticed that sitting in a certain position hurt before, but lately it's been very awkward and painful, so I'm soooooo excited to get this cushion!

I had been fashioning my own seating device, by putting a cushion under each cheek, thus creating a canal in the middle. Not comfortable whilst you're eating your tea, but it seemed to do the job.

I'd looked at similar cushions before and found them to be quite expensive, and I wasn't keen on a memory foam one either, so I was delighted when I found this as it's a bit cheaper than the others, and it looks very cute and comes in different colours!

Plus, as it doesn't look so clinical I thought it might be a bit more subtle and people wouldn't ask too many questions. As it goes... Whilst searching eBay for one, I found the same as the above, but also a square version, and you can get Hello Kitty, and a Nightmare Before Xmas one.

I'll look forward to my delivery!

JemimaSurrender

Posts : 107
Join date : 2011-12-03
Age : 28
Location : Staffordshire, UK

View user profile

Back to top Go down

Re: Cushion question

Post  ButterflyLiz on Wed Dec 28, 2011 5:33 pm

Hiya! Getting a special cushion is definitely a great idea, I bought one for my chair at work when it was getting to the point where I really couldn’t sit on a normal chair all day and it’s made SUCH a difference. I’ve got one for my car now, too. I know what you mean about the slouchy type of sitting too, I catch myself doing it all the time and I’m sure I’m just making problems for myself in the future. Must try not to do that but it seems to just happen!

I have heard that the donut cushions can restrict blood flow to the thighs so just be aware that that’s a possibility. The ones I use are pressure relief cushions (sort of bumpy) with a big cutout bit in the middle for the vulva. They’re not too expensive. Link as follows:

http://putnams.co.uk/sitting/bonyparts-sero-pressure-cushion

Can get a few funny looks when I carry them around but I just tell them it’s for back problems, unless I feel like getting into the whole sorry saga!!

Liz x
avatar
ButterflyLiz

Posts : 137
Join date : 2011-11-18
Age : 32
Location : UK

View user profile

Back to top Go down

donut cushion

Post  sadone on Wed Dec 28, 2011 8:15 pm

The worst pain for me is when I am driving because I can't adjust my sitting position. I'd end up with burning discomfort any time I drove anywhere. Then, I bought a donut cushion, and the pain just disappeared. Thank goodness. Now I can drive on long trips with no pain.

The cushion definitely made a difference in my life. I thought I wouldn't be able to drive again without pain.

If the donut cushion doesn't work for you, I'm sure the other kind mentioned will make a HUGE difference.

It changed my life!

Good luck and let us know how it works for u! Smile

sadone

Posts : 53
Join date : 2011-12-12

View user profile

Back to top Go down

Re: Cushion question

Post  Chinchilla on Tue Jan 03, 2012 9:28 pm

Ugh, I know what you mean about sitting on your tailbone! I slouch like that, too, to avoid sitting on my vulva, and unfortunately I have to go to the chiropractor somewhat regularly to get my pelvic/hip joint put back in.

And then there's going to people's houses...one of the first things I notice when I go somewhere for a meal is "oh goody, look at their nice set of wooden chairs". And then after the meal they want to continue sitting there chatting - hello, in agony here!

At home we have wooden chairs too, but I've put cushions on them. My husband has gotten to liking the cushions, too, haha! My computer chair I've put a neck pillow on - you know, the kind people have on airplanes? It's kinda gotten squashed flat though, and so I might look into some of the ideas and links people have posted here.
avatar
Chinchilla

Posts : 24
Join date : 2010-03-16

View user profile

Back to top Go down

Re: Cushion question

Post  JemimaSurrender on Sat Jan 07, 2012 3:29 pm

So... I received my cushion on Thursday, which already had me impressed as it had come from Japan in around about a week, wow!

So far I've got to say... I absolutely love it!! It's fantastic. Soooo comfy, stops almost all the pain when I'm sitting eating my tea, and is just the right size to get in the perfect position. Infact, it's so good my boyfriend even had a nap on it yesterday.

I'm so happy I bought it, I really recommend it to anyone. Here's the link again if anyone's interested:

http://www.ebay.co.uk/itm/Hemorrhoids-Cushion-Donut-Pregnant-Woman-Ventilation-/180660068975?_trksid=p5197.m7&_trkparms=algo%3DLVI%26itu%3DUCI%26otn%3D5%26po%3DLVI%26ps%3D63%26clkid%3D5443813816860167611

Please, go buy now! It will save your life. Ha ha!

JemimaSurrender

Posts : 107
Join date : 2011-12-03
Age : 28
Location : Staffordshire, UK

View user profile

Back to top Go down

Re: Cushion question

Post  Loveactually on Mon Mar 23, 2015 4:45 pm

ButterflyLiz wrote:
I have heard that the donut cushions can restrict blood flow to the thighs so just be aware that that’s a possibility. The ones I use are pressure relief cushions (sort of bumpy) with a big cutout bit in the middle for the vulva. They’re not too expensive. Link as follows:

http://putnams.co.uk/sitting/bonyparts-sero-pressure-cushion


Completely agree with you Liz, this cushion is fab! Glad you agree!

Loveactually

Posts : 3
Join date : 2015-03-13

View user profile

Back to top Go down

Re: Cushion question

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum