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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

New Underwear

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New Underwear

Post  ria on Sun Jul 03, 2011 1:20 pm

Went to get some new underwear, fitted for Bras and the assistant came with these matching thongs I nearly died. I felt the pain just looking at them Rolling Eyes Rolling Eyes Rolling Eyes Rolling Eyes Rolling Eyes Rolling Eyes Rolling Eyes It made me quite sad Sad Sad Sad but I got over it.

Sometimes everyday things just hit you with V.


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New Underwear

Post  Joolibee on Sun Jul 03, 2011 9:52 pm

I've recently given in and accepted that proper full knickers are the only ones I can wear. I've been buying larger and larger sizes, only to discover that they still press on my V. Anyway, I just bought some size 24 (over the internet of course). They don't fall down, but feel like the old navy blue school knickers - if anyone remembers them. When I stand, the gussett doesn't even touch my V and they are sooo comfy and cool - (cool in a not hot way, I mean). Defo not sexy, but on the plus side, when the cold weather comes, I could pull them a little higher and they will keep my chest warm Laughing Laughing Laughing


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Location : France / UK

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Re: New Underwear

Post  jules on Tue Jul 05, 2011 2:55 pm

Hi "Ria, they do make very soft thongs that don't touch your V. I buy them my size, but they tend to hang down and don't put any pressure on my V. i have a bunch of thongs to throw away. i'll never be able to wear them. now i buy super soft thongs that put no pressure on my vulva. They are out there. i live in the US. don't know where you live. if you're not living in the US, i can't recommend a store. just keep your eyes open. it's possible. also, who says you can't be sexy w/ regular underwear? for me, i am envious of anyone who can sit on a chair. i look around when i'm out at bars/restaurants and wonder why i'm the only one who has to sit on a damn cushion. oh well! i could be in a wheel chair and that would be far worse. Wink Wink Wink


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Re: New Underwear

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