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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

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» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


my story hi from cindy

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my story hi from cindy

Post  grassy on Mon Jul 04, 2011 4:09 pm

Hi there. I'm cindy. My story began one year ago when i was given a sulfa antibiotic for an infection from a bug bite. I ended up in the ER severely allergic to sulfa. Next was rashes, and hives of all kinds. Next the sulfa created a reaction in my v area. I felt this horrific burning. By day 9 of the antibiotic and had developed my first bad yeast infection at age 50. Never had one before. Since then, this horrible burning has never gone away. I have seen a slew of doctors, and even a big bucks gyno. To date no doctor will culture or test me for a yeast.
So here i am one year later, on diflucan, and still i do not know if this is a yeast or not. Yeast is what started my nightmare. At times, i swear its yeast, other times i think its IC bladder issues. What a nightmare this is. My sympoms are burning v tissues, and it seems like my own urine burns. Yet when i look, see nothing. Been tested for UTI, tested for Bacteria, normal. Tested for herpes. Negative. tested my v ph at least 20 times.4.5. normal. Feels like acid is being poured on me. I am researching the sulfa connection and more. New to the group, and belong to many other groups. anyway HELLO there ladies! glad to meet you all! cindy

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my story hi from cindy

Post  Joolibee on Mon Jul 04, 2011 6:53 pm

Hi there Cindy. Welcome to the forum. We all have similar pain, yet slightly different stories. Some people have had this problem from being very young, others of us didn't start till later. Antibiotics are a major cause of yeast infections and a lot of women have a history of yeast infections. I started with mild pain and occasional UTIs (or symptoms of UTIs), when I was in my late 40s. Of course, I was given antibiotics and did end up with a yeast infection once, but I don't think this was the cause for me. I'm convinced that menopause and scar tissue contributed to my v pain, but it is difficult to be certain. We all have different ways of coping and are able to offer advice, provide a virtual shoulder to cry on, or just have a laugh (very important). I hope you are able to gain something from the forum. Smile

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Hi!

Post  grassy on Mon Jul 04, 2011 7:47 pm

thank you for answering! I do need a shoulder to cry on! i plan on sticking around and meeting everyone. cindy Laughing

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Re: my story hi from cindy

Post  Sebby (Admin) on Tue Jul 05, 2011 7:27 am


Hi Cindy and welcome to the forum

Have you been to a Vuval Clinic? The best way to approach this is to bascially look into everything! Think about looking into Pelvic Floor issues, Physical Therapy, Dermotology etc

Take a look the articals on www.vulvodynia.com about biofeedback as it explains about how the Pelvic Floor could be involved in maintaining pain after injury or infection

http://www.vulvodynia.com/bio_vvpn.htm

Take Care and wishing you all the luck with your treatment journey


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Re: my story hi from cindy

Post  jules on Tue Jul 05, 2011 2:12 pm

Hi Cindy, welcome to this wonderful group of ladies. We all support each other. My V started the same way yours did. I thought i had a UTI so i was put on antibiotics. w/in days i had a yeast infection or symptoms of a yeast infection. i was put on Diflucan daily for months, then creams, gels..(made the pain far worse). I also had a biopsy and was finally diagnosed w/ V. All of my yeast tests were negative. It's very difficult to find out the cause of this disorder because it could be so many things. So..we focus on the treatments. There are a number of treatments used for V. I have found the most help at a pain clinic that my doctor referred me to. I found that Gyn. docs have no idea how to treat pain. I do acupuncture, P.T. and I'm on a number of different meds. Keep us updated on your progress. Unfortunately, you are not alone. One out of every 6 women have V or are diagnosed w/in their lifetime. there are 14 million in America...(probably more, but undiagnosed). There are treatments that help, so don't give up.

jules

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wow!

Post  grassy on Tue Jul 05, 2011 7:26 pm

What a nice group, and such a nice welcome too! thanks. I'll look around and read the articles. I'm new and not used to the site. We'll figure it out! wont we? nothing smarter then a bunch of us women and our computers! thanks for the nice welcome here! cindy

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Re: my story hi from cindy

Post  Sarah001 on Wed Jul 06, 2011 10:44 am

Hi and welcome. I too started with suspected UTI symptoms and then suspected yeast symptoms. I think if you've tried long term Diflucan it's not likely to be an ongoing yeast problem but it could be your pelvic floor so that's always worth getting checked out. I'm currently on Ami 50mg (doesn't help) and Lyrica 300mg (helps a bit sometimes but not all the time and not enough) and I'm trying to get my very, very tight pelvic floor to relax (it doesn't want to).
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Re: my story hi from cindy

Post  Zazu on Thu Jul 07, 2011 2:40 pm

Hi there and welcome!
Vulvodynia is diagnosed through deduction - if it isn't an infection or dermatology issue, then it's vulvodynia. Well, of course, a lot of us have a lot of co-issues, like yeast, endometriosis, IC, etc etc. too. I'd definitely recommend getting a book like "When sex hurts" which talks about all the different conditions and can help you find which one you have or "The Vulvodynia survival guide". You might want to also go on the anti-yeast diet (candida diet) which can really help along with Diflucan to clear out the yeast.
We're all here to support each other so come on whenever you need advice or support!
xx

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YOU GUYS ARE GREAT!

Post  grassy on Fri Jul 08, 2011 7:00 pm

You guys are great. The first thing I noticed was the good links. I was amazed to actually read women saying they suspected yeast was the start of it all! that was so refressing just to read that! I gotta get used to the site, then you'll never get me to shut up! I'm so glad i joined! yipeeeeeee!cindy

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Re: My story hi from Cindy

Post  ria on Sat Jul 09, 2011 10:47 pm



Hi Cindy,

Just reading through posts, and would like to say Hello. The Ladies on here are fantastic and have a great attitude, so much information when you read through the posts.

Take care xxx Smile Smile

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Re: my story hi from cindy

Post  Sebby (Admin) on Sun Jul 10, 2011 8:51 am


You'll get used to our site, I'm the admin and sometimes I get confused lol!




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Re: my story hi from cindy

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