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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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my story hi from cindy

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my story hi from cindy

Post  grassy on Mon Jul 04, 2011 4:09 pm

Hi there. I'm cindy. My story began one year ago when i was given a sulfa antibiotic for an infection from a bug bite. I ended up in the ER severely allergic to sulfa. Next was rashes, and hives of all kinds. Next the sulfa created a reaction in my v area. I felt this horrific burning. By day 9 of the antibiotic and had developed my first bad yeast infection at age 50. Never had one before. Since then, this horrible burning has never gone away. I have seen a slew of doctors, and even a big bucks gyno. To date no doctor will culture or test me for a yeast.
So here i am one year later, on diflucan, and still i do not know if this is a yeast or not. Yeast is what started my nightmare. At times, i swear its yeast, other times i think its IC bladder issues. What a nightmare this is. My sympoms are burning v tissues, and it seems like my own urine burns. Yet when i look, see nothing. Been tested for UTI, tested for Bacteria, normal. Tested for herpes. Negative. tested my v ph at least 20 times.4.5. normal. Feels like acid is being poured on me. I am researching the sulfa connection and more. New to the group, and belong to many other groups. anyway HELLO there ladies! glad to meet you all! cindy

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my story hi from cindy

Post  Joolibee on Mon Jul 04, 2011 6:53 pm

Hi there Cindy. Welcome to the forum. We all have similar pain, yet slightly different stories. Some people have had this problem from being very young, others of us didn't start till later. Antibiotics are a major cause of yeast infections and a lot of women have a history of yeast infections. I started with mild pain and occasional UTIs (or symptoms of UTIs), when I was in my late 40s. Of course, I was given antibiotics and did end up with a yeast infection once, but I don't think this was the cause for me. I'm convinced that menopause and scar tissue contributed to my v pain, but it is difficult to be certain. We all have different ways of coping and are able to offer advice, provide a virtual shoulder to cry on, or just have a laugh (very important). I hope you are able to gain something from the forum. Smile

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Hi!

Post  grassy on Mon Jul 04, 2011 7:47 pm

thank you for answering! I do need a shoulder to cry on! i plan on sticking around and meeting everyone. cindy Laughing

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Re: my story hi from cindy

Post  Sebby (Admin) on Tue Jul 05, 2011 7:27 am


Hi Cindy and welcome to the forum

Have you been to a Vuval Clinic? The best way to approach this is to bascially look into everything! Think about looking into Pelvic Floor issues, Physical Therapy, Dermotology etc

Take a look the articals on www.vulvodynia.com about biofeedback as it explains about how the Pelvic Floor could be involved in maintaining pain after injury or infection

http://www.vulvodynia.com/bio_vvpn.htm

Take Care and wishing you all the luck with your treatment journey


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Re: my story hi from cindy

Post  jules on Tue Jul 05, 2011 2:12 pm

Hi Cindy, welcome to this wonderful group of ladies. We all support each other. My V started the same way yours did. I thought i had a UTI so i was put on antibiotics. w/in days i had a yeast infection or symptoms of a yeast infection. i was put on Diflucan daily for months, then creams, gels..(made the pain far worse). I also had a biopsy and was finally diagnosed w/ V. All of my yeast tests were negative. It's very difficult to find out the cause of this disorder because it could be so many things. So..we focus on the treatments. There are a number of treatments used for V. I have found the most help at a pain clinic that my doctor referred me to. I found that Gyn. docs have no idea how to treat pain. I do acupuncture, P.T. and I'm on a number of different meds. Keep us updated on your progress. Unfortunately, you are not alone. One out of every 6 women have V or are diagnosed w/in their lifetime. there are 14 million in America...(probably more, but undiagnosed). There are treatments that help, so don't give up.

jules

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wow!

Post  grassy on Tue Jul 05, 2011 7:26 pm

What a nice group, and such a nice welcome too! thanks. I'll look around and read the articles. I'm new and not used to the site. We'll figure it out! wont we? nothing smarter then a bunch of us women and our computers! thanks for the nice welcome here! cindy

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Re: my story hi from cindy

Post  Sarah001 on Wed Jul 06, 2011 10:44 am

Hi and welcome. I too started with suspected UTI symptoms and then suspected yeast symptoms. I think if you've tried long term Diflucan it's not likely to be an ongoing yeast problem but it could be your pelvic floor so that's always worth getting checked out. I'm currently on Ami 50mg (doesn't help) and Lyrica 300mg (helps a bit sometimes but not all the time and not enough) and I'm trying to get my very, very tight pelvic floor to relax (it doesn't want to).
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Re: my story hi from cindy

Post  Zazu on Thu Jul 07, 2011 2:40 pm

Hi there and welcome!
Vulvodynia is diagnosed through deduction - if it isn't an infection or dermatology issue, then it's vulvodynia. Well, of course, a lot of us have a lot of co-issues, like yeast, endometriosis, IC, etc etc. too. I'd definitely recommend getting a book like "When sex hurts" which talks about all the different conditions and can help you find which one you have or "The Vulvodynia survival guide". You might want to also go on the anti-yeast diet (candida diet) which can really help along with Diflucan to clear out the yeast.
We're all here to support each other so come on whenever you need advice or support!
xx

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YOU GUYS ARE GREAT!

Post  grassy on Fri Jul 08, 2011 7:00 pm

You guys are great. The first thing I noticed was the good links. I was amazed to actually read women saying they suspected yeast was the start of it all! that was so refressing just to read that! I gotta get used to the site, then you'll never get me to shut up! I'm so glad i joined! yipeeeeeee!cindy

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Re: My story hi from Cindy

Post  ria on Sat Jul 09, 2011 10:47 pm



Hi Cindy,

Just reading through posts, and would like to say Hello. The Ladies on here are fantastic and have a great attitude, so much information when you read through the posts.

Take care xxx Smile Smile

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Re: my story hi from cindy

Post  Sebby (Admin) on Sun Jul 10, 2011 8:51 am


You'll get used to our site, I'm the admin and sometimes I get confused lol!




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Re: my story hi from cindy

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