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» It feels like I’m going to have pain forever
Yesterday at 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Yesterday at 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Yesterday at 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


my story hi from cindy

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my story hi from cindy

Post  grassy on Mon Jul 04, 2011 4:09 pm

Hi there. I'm cindy. My story began one year ago when i was given a sulfa antibiotic for an infection from a bug bite. I ended up in the ER severely allergic to sulfa. Next was rashes, and hives of all kinds. Next the sulfa created a reaction in my v area. I felt this horrific burning. By day 9 of the antibiotic and had developed my first bad yeast infection at age 50. Never had one before. Since then, this horrible burning has never gone away. I have seen a slew of doctors, and even a big bucks gyno. To date no doctor will culture or test me for a yeast.
So here i am one year later, on diflucan, and still i do not know if this is a yeast or not. Yeast is what started my nightmare. At times, i swear its yeast, other times i think its IC bladder issues. What a nightmare this is. My sympoms are burning v tissues, and it seems like my own urine burns. Yet when i look, see nothing. Been tested for UTI, tested for Bacteria, normal. Tested for herpes. Negative. tested my v ph at least 20 times.4.5. normal. Feels like acid is being poured on me. I am researching the sulfa connection and more. New to the group, and belong to many other groups. anyway HELLO there ladies! glad to meet you all! cindy

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my story hi from cindy

Post  Joolibee on Mon Jul 04, 2011 6:53 pm

Hi there Cindy. Welcome to the forum. We all have similar pain, yet slightly different stories. Some people have had this problem from being very young, others of us didn't start till later. Antibiotics are a major cause of yeast infections and a lot of women have a history of yeast infections. I started with mild pain and occasional UTIs (or symptoms of UTIs), when I was in my late 40s. Of course, I was given antibiotics and did end up with a yeast infection once, but I don't think this was the cause for me. I'm convinced that menopause and scar tissue contributed to my v pain, but it is difficult to be certain. We all have different ways of coping and are able to offer advice, provide a virtual shoulder to cry on, or just have a laugh (very important). I hope you are able to gain something from the forum. Smile

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Hi!

Post  grassy on Mon Jul 04, 2011 7:47 pm

thank you for answering! I do need a shoulder to cry on! i plan on sticking around and meeting everyone. cindy Laughing

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Re: my story hi from cindy

Post  Sebby (Admin) on Tue Jul 05, 2011 7:27 am


Hi Cindy and welcome to the forum

Have you been to a Vuval Clinic? The best way to approach this is to bascially look into everything! Think about looking into Pelvic Floor issues, Physical Therapy, Dermotology etc

Take a look the articals on www.vulvodynia.com about biofeedback as it explains about how the Pelvic Floor could be involved in maintaining pain after injury or infection

http://www.vulvodynia.com/bio_vvpn.htm

Take Care and wishing you all the luck with your treatment journey


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Re: my story hi from cindy

Post  jules on Tue Jul 05, 2011 2:12 pm

Hi Cindy, welcome to this wonderful group of ladies. We all support each other. My V started the same way yours did. I thought i had a UTI so i was put on antibiotics. w/in days i had a yeast infection or symptoms of a yeast infection. i was put on Diflucan daily for months, then creams, gels..(made the pain far worse). I also had a biopsy and was finally diagnosed w/ V. All of my yeast tests were negative. It's very difficult to find out the cause of this disorder because it could be so many things. So..we focus on the treatments. There are a number of treatments used for V. I have found the most help at a pain clinic that my doctor referred me to. I found that Gyn. docs have no idea how to treat pain. I do acupuncture, P.T. and I'm on a number of different meds. Keep us updated on your progress. Unfortunately, you are not alone. One out of every 6 women have V or are diagnosed w/in their lifetime. there are 14 million in America...(probably more, but undiagnosed). There are treatments that help, so don't give up.

jules

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wow!

Post  grassy on Tue Jul 05, 2011 7:26 pm

What a nice group, and such a nice welcome too! thanks. I'll look around and read the articles. I'm new and not used to the site. We'll figure it out! wont we? nothing smarter then a bunch of us women and our computers! thanks for the nice welcome here! cindy

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Re: my story hi from cindy

Post  Sarah001 on Wed Jul 06, 2011 10:44 am

Hi and welcome. I too started with suspected UTI symptoms and then suspected yeast symptoms. I think if you've tried long term Diflucan it's not likely to be an ongoing yeast problem but it could be your pelvic floor so that's always worth getting checked out. I'm currently on Ami 50mg (doesn't help) and Lyrica 300mg (helps a bit sometimes but not all the time and not enough) and I'm trying to get my very, very tight pelvic floor to relax (it doesn't want to).
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Re: my story hi from cindy

Post  Zazu on Thu Jul 07, 2011 2:40 pm

Hi there and welcome!
Vulvodynia is diagnosed through deduction - if it isn't an infection or dermatology issue, then it's vulvodynia. Well, of course, a lot of us have a lot of co-issues, like yeast, endometriosis, IC, etc etc. too. I'd definitely recommend getting a book like "When sex hurts" which talks about all the different conditions and can help you find which one you have or "The Vulvodynia survival guide". You might want to also go on the anti-yeast diet (candida diet) which can really help along with Diflucan to clear out the yeast.
We're all here to support each other so come on whenever you need advice or support!
xx

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YOU GUYS ARE GREAT!

Post  grassy on Fri Jul 08, 2011 7:00 pm

You guys are great. The first thing I noticed was the good links. I was amazed to actually read women saying they suspected yeast was the start of it all! that was so refressing just to read that! I gotta get used to the site, then you'll never get me to shut up! I'm so glad i joined! yipeeeeeee!cindy

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Re: My story hi from Cindy

Post  ria on Sat Jul 09, 2011 10:47 pm



Hi Cindy,

Just reading through posts, and would like to say Hello. The Ladies on here are fantastic and have a great attitude, so much information when you read through the posts.

Take care xxx Smile Smile

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Re: my story hi from cindy

Post  Sebby (Admin) on Sun Jul 10, 2011 8:51 am


You'll get used to our site, I'm the admin and sometimes I get confused lol!




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Re: my story hi from cindy

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