Log in

I forgot my password

Latest topics
» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 3

Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 0

vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0


my story hi from cindy

Go down

my story hi from cindy

Post  grassy on Mon Jul 04, 2011 4:09 pm

Hi there. I'm cindy. My story began one year ago when i was given a sulfa antibiotic for an infection from a bug bite. I ended up in the ER severely allergic to sulfa. Next was rashes, and hives of all kinds. Next the sulfa created a reaction in my v area. I felt this horrific burning. By day 9 of the antibiotic and had developed my first bad yeast infection at age 50. Never had one before. Since then, this horrible burning has never gone away. I have seen a slew of doctors, and even a big bucks gyno. To date no doctor will culture or test me for a yeast.
So here i am one year later, on diflucan, and still i do not know if this is a yeast or not. Yeast is what started my nightmare. At times, i swear its yeast, other times i think its IC bladder issues. What a nightmare this is. My sympoms are burning v tissues, and it seems like my own urine burns. Yet when i look, see nothing. Been tested for UTI, tested for Bacteria, normal. Tested for herpes. Negative. tested my v ph at least 20 times.4.5. normal. Feels like acid is being poured on me. I am researching the sulfa connection and more. New to the group, and belong to many other groups. anyway HELLO there ladies! glad to meet you all! cindy

grassy

Posts : 52
Join date : 2011-07-04

View user profile

Back to top Go down

my story hi from cindy

Post  Joolibee on Mon Jul 04, 2011 6:53 pm

Hi there Cindy. Welcome to the forum. We all have similar pain, yet slightly different stories. Some people have had this problem from being very young, others of us didn't start till later. Antibiotics are a major cause of yeast infections and a lot of women have a history of yeast infections. I started with mild pain and occasional UTIs (or symptoms of UTIs), when I was in my late 40s. Of course, I was given antibiotics and did end up with a yeast infection once, but I don't think this was the cause for me. I'm convinced that menopause and scar tissue contributed to my v pain, but it is difficult to be certain. We all have different ways of coping and are able to offer advice, provide a virtual shoulder to cry on, or just have a laugh (very important). I hope you are able to gain something from the forum. Smile

Joolibee

Posts : 36
Join date : 2011-03-09
Location : France / UK

View user profile

Back to top Go down

Hi!

Post  grassy on Mon Jul 04, 2011 7:47 pm

thank you for answering! I do need a shoulder to cry on! i plan on sticking around and meeting everyone. cindy Laughing

grassy

Posts : 52
Join date : 2011-07-04

View user profile

Back to top Go down

Re: my story hi from cindy

Post  Sebby (Admin) on Tue Jul 05, 2011 7:27 am


Hi Cindy and welcome to the forum

Have you been to a Vuval Clinic? The best way to approach this is to bascially look into everything! Think about looking into Pelvic Floor issues, Physical Therapy, Dermotology etc

Take a look the articals on www.vulvodynia.com about biofeedback as it explains about how the Pelvic Floor could be involved in maintaining pain after injury or infection

http://www.vulvodynia.com/bio_vvpn.htm

Take Care and wishing you all the luck with your treatment journey


_________________
Sebby
XxX

admin@vulvodyniasupportforum.com
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: my story hi from cindy

Post  jules on Tue Jul 05, 2011 2:12 pm

Hi Cindy, welcome to this wonderful group of ladies. We all support each other. My V started the same way yours did. I thought i had a UTI so i was put on antibiotics. w/in days i had a yeast infection or symptoms of a yeast infection. i was put on Diflucan daily for months, then creams, gels..(made the pain far worse). I also had a biopsy and was finally diagnosed w/ V. All of my yeast tests were negative. It's very difficult to find out the cause of this disorder because it could be so many things. So..we focus on the treatments. There are a number of treatments used for V. I have found the most help at a pain clinic that my doctor referred me to. I found that Gyn. docs have no idea how to treat pain. I do acupuncture, P.T. and I'm on a number of different meds. Keep us updated on your progress. Unfortunately, you are not alone. One out of every 6 women have V or are diagnosed w/in their lifetime. there are 14 million in America...(probably more, but undiagnosed). There are treatments that help, so don't give up.

jules

jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

wow!

Post  grassy on Tue Jul 05, 2011 7:26 pm

What a nice group, and such a nice welcome too! thanks. I'll look around and read the articles. I'm new and not used to the site. We'll figure it out! wont we? nothing smarter then a bunch of us women and our computers! thanks for the nice welcome here! cindy

grassy

Posts : 52
Join date : 2011-07-04

View user profile

Back to top Go down

Re: my story hi from cindy

Post  Sarah001 on Wed Jul 06, 2011 10:44 am

Hi and welcome. I too started with suspected UTI symptoms and then suspected yeast symptoms. I think if you've tried long term Diflucan it's not likely to be an ongoing yeast problem but it could be your pelvic floor so that's always worth getting checked out. I'm currently on Ami 50mg (doesn't help) and Lyrica 300mg (helps a bit sometimes but not all the time and not enough) and I'm trying to get my very, very tight pelvic floor to relax (it doesn't want to).
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: my story hi from cindy

Post  Zazu on Thu Jul 07, 2011 2:40 pm

Hi there and welcome!
Vulvodynia is diagnosed through deduction - if it isn't an infection or dermatology issue, then it's vulvodynia. Well, of course, a lot of us have a lot of co-issues, like yeast, endometriosis, IC, etc etc. too. I'd definitely recommend getting a book like "When sex hurts" which talks about all the different conditions and can help you find which one you have or "The Vulvodynia survival guide". You might want to also go on the anti-yeast diet (candida diet) which can really help along with Diflucan to clear out the yeast.
We're all here to support each other so come on whenever you need advice or support!
xx

Zazu

Posts : 64
Join date : 2011-04-05
Location : Canada

View user profile

Back to top Go down

YOU GUYS ARE GREAT!

Post  grassy on Fri Jul 08, 2011 7:00 pm

You guys are great. The first thing I noticed was the good links. I was amazed to actually read women saying they suspected yeast was the start of it all! that was so refressing just to read that! I gotta get used to the site, then you'll never get me to shut up! I'm so glad i joined! yipeeeeeee!cindy

grassy

Posts : 52
Join date : 2011-07-04

View user profile

Back to top Go down

Re: My story hi from Cindy

Post  ria on Sat Jul 09, 2011 10:47 pm



Hi Cindy,

Just reading through posts, and would like to say Hello. The Ladies on here are fantastic and have a great attitude, so much information when you read through the posts.

Take care xxx Smile Smile

ria

Posts : 99
Join date : 2010-07-21

View user profile

Back to top Go down

Re: my story hi from cindy

Post  Sebby (Admin) on Sun Jul 10, 2011 8:51 am


You'll get used to our site, I'm the admin and sometimes I get confused lol!




_________________
Sebby
XxX

admin@vulvodyniasupportforum.com
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: my story hi from cindy

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum