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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

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Tired of being tired.

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Tired of being tired.

Post  noni on Tue Jul 05, 2011 10:11 pm

There. I said it. My brain is in a mush of tangled emotions...stress, trying to stay positive. I feel burnt out.

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Re: Tired of being tired.

Post  Sarah001 on Wed Jul 06, 2011 10:41 am

Me too!
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Re: Tired of being tired.

Post  noni on Wed Jul 06, 2011 11:39 am

I hope theres a light at the end of this tunnel.
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Re: Tired of being tired.

Post  Sarah001 on Wed Jul 06, 2011 7:10 pm

It's truly exhausting trying to remain positive isn't it? I'm in the middle of a flare up right now because I've done some decorating and it was too much for my wobbly pelvis so my pelvic floor has just clamped right up again. I was doing a bit better before that and hoped I was on the right path. Even my mind numbing medications aren't doing anything in any respect at the moment, except make me fat of course. Rolling Eyes
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Re: Tired of being tired.

Post  noni on Thu Jul 07, 2011 12:39 am

Hey Sarah

Yeah flare ups defintely are a downer, big time.

I hope you are doing better and can continue with decorating. Thats one of my favourite things to do.

Take care Smile
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Re: Tired of being tired.

Post  Sarah001 on Sat Jul 09, 2011 8:22 pm

Oh my god, I hate decorating!! I've finished the thankless task now, I'm actually sprucing up my house to sell it so I'm not even going to get to enjoy my efforts! It looks brilliant though and is making me even more sad to have to sell. Sad
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Re: Tired of being tired.

Post  Sebby (Admin) on Sun Jul 10, 2011 8:41 am


@ Noni I can so relate. Work is so stressful right now and Im having a flare up and family issues blah blah blah feel like I can just about cope. My anxiety is so high!

@ Sarah, have you found somewhere else to live yet? I do wish you peace soon with that situation.

To both, a song I love to listen too is 'This Too Shall Pass' by India Arie (she is singing about love being crap lol but the sentiment that all bad things pass helps me to know I'll get through these times)


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Re: Tired of being tired.

Post  Sarah001 on Sun Jul 10, 2011 12:08 pm

Well Sebby, I've spent the last few months refusing to get the house valued until it's in the best shape it can be as it was my Mum's house I will not let it sell for peanuts but he hasn't helped me at all and swans off with his new girlfriend and leaves me to it. As I have joint problems I've continuously set off my pelvic joints (not to mention my shoulders too) which in turn has set off my V so I'm having flare ups on a weekly basis which is very hard work. I borrowed money from my brother to get the roof repaired as my ex with his big salary wouldn't contribute and as of the start of August he'll be moving out permanently with his new partner and taking all the kitchen appliances with him and leaving me to struggle to run a 4 bedroomed house on benefits which is a huge worry right now as it can't be done. The house I was thinking would be perfect for me and my boy that had been on the renting market for months has just gone so I've no idea where we'll end up now. It's all a massive stress that's just gone on and on and the new woman is being a total bitch about everything because she's jealous of me for some unknown reason so she's making sure she constantly makes life more difficult for me wherever possible. I don't mind admitting this year has so far been the worst of my life so far and I can't wait to be in a position where neither of them can have an impact on me anymore. The stress levels are just ridiculous. Sad
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Re: Tired of being tired.

Post  naomi on Sun Jul 10, 2011 9:56 pm

When i need to recharge my batteries and im cried out and exhausted i listen to my fav chill out cd....hang on i'll find it online...

http://www.amazon.co.uk/Chilled-Euphoria-Various-Artists/dp/B00004TQO1/ref=sr_1_2?s=music&ie=UTF8&qid=1310334973&sr=1-2

works wonders xxxxxxxxxxxxx
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Re: Tired of being tired.

Post  Zazu on Mon Jul 11, 2011 1:45 pm

Sometimes I catch myself wishing that I could disappear all the rest of my life so that I could have time to work exclusively on dealing with v. and then I think "oh my god, I'm so far gone down this rabbit hole". It's like have two full time jobs, or caring for two people - my normal life and my vulvodynia Razz
But thinking like that just gives you total burn out, eh?
Definitely exhausting ...

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Re: Tired of being tired.

Post  Sebby (Admin) on Tue Jul 12, 2011 6:24 am


@Sarah

Seriously your ex needs such a good damn kicking!! In the balls!!

I so hope and pray you soon find a lovely home and that you can get a decent sum of money from the sale of the house. I can't believe he is being such a barstad when he has basically pissed off with another women! She needs a good kicking aswell (in the vulvar!) sorry I'm having a hissy fit. I do wonder how some people go to sleep at night with the way they treat others Question

Deff try and chill out as much as possible. I know it isnt easy but this crappy time for you will end. Look to an independant future without that dumb ass.

Sending you prayers xx I love you

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Re: Tired of being tired.

Post  Sarah001 on Wed Jul 13, 2011 10:32 am

I agree, about the kicks!! Laughing Thanks for your prayers, gratefully received and I'm counting down the days until he goes even though I'll struggle badly to keep the house even close to afloat. He's been vile to live with all year and has made my life hell, he shouts and swears and throws my things around until they break. I've moved some bits I had left from my Mum to my brother's house because I know they'd have got broken here to upset me. I even thought about getting an injunction on him after he threatened to push me through a window but just keep thinking he'll be gone soon. I can't believe what he's turned into, I don't even recognise him and thanks to all my medication I've actually been far too reasonable about the whole situation but the Ami in particular has taken any fight out of me! I can't wait for him to leave, roll on calm quiet days.
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Re: Tired of being tired.

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