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» Struggling
Yesterday at 3:19 am by doublej

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Wed Dec 13, 2017 5:17 pm by Katiej

» Amitriptyline Success and new-found love
Mon Dec 11, 2017 2:47 am by hannah22

» Went Away and Came Back
Sun Dec 10, 2017 8:48 pm by lindsey_taylor

» Somebody please help me...
Sat Dec 09, 2017 5:46 pm by PainBlogger

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 09, 2017 4:40 pm by mary jane

» 7 years later and life looks bleak :(
Thu Dec 07, 2017 12:37 am by sarisbaris

» Laser or Botox Injections for treating vulvodynia
Wed Dec 06, 2017 6:04 am by sarisbaris

» difficult to treat vaginal infections, un-understanding docotrs
Wed Dec 06, 2017 2:52 am by RainyShay77

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Tired of being tired.

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Tired of being tired.

Post  noni on Tue Jul 05, 2011 10:11 pm

There. I said it. My brain is in a mush of tangled emotions...stress, trying to stay positive. I feel burnt out.

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Re: Tired of being tired.

Post  Sarah001 on Wed Jul 06, 2011 10:41 am

Me too!
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Re: Tired of being tired.

Post  noni on Wed Jul 06, 2011 11:39 am

I hope theres a light at the end of this tunnel.
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Re: Tired of being tired.

Post  Sarah001 on Wed Jul 06, 2011 7:10 pm

It's truly exhausting trying to remain positive isn't it? I'm in the middle of a flare up right now because I've done some decorating and it was too much for my wobbly pelvis so my pelvic floor has just clamped right up again. I was doing a bit better before that and hoped I was on the right path. Even my mind numbing medications aren't doing anything in any respect at the moment, except make me fat of course. Rolling Eyes
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Re: Tired of being tired.

Post  noni on Thu Jul 07, 2011 12:39 am

Hey Sarah

Yeah flare ups defintely are a downer, big time.

I hope you are doing better and can continue with decorating. Thats one of my favourite things to do.

Take care Smile
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Re: Tired of being tired.

Post  Sarah001 on Sat Jul 09, 2011 8:22 pm

Oh my god, I hate decorating!! I've finished the thankless task now, I'm actually sprucing up my house to sell it so I'm not even going to get to enjoy my efforts! It looks brilliant though and is making me even more sad to have to sell. Sad
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Re: Tired of being tired.

Post  Sebby (Admin) on Sun Jul 10, 2011 8:41 am


@ Noni I can so relate. Work is so stressful right now and Im having a flare up and family issues blah blah blah feel like I can just about cope. My anxiety is so high!

@ Sarah, have you found somewhere else to live yet? I do wish you peace soon with that situation.

To both, a song I love to listen too is 'This Too Shall Pass' by India Arie (she is singing about love being crap lol but the sentiment that all bad things pass helps me to know I'll get through these times)


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Re: Tired of being tired.

Post  Sarah001 on Sun Jul 10, 2011 12:08 pm

Well Sebby, I've spent the last few months refusing to get the house valued until it's in the best shape it can be as it was my Mum's house I will not let it sell for peanuts but he hasn't helped me at all and swans off with his new girlfriend and leaves me to it. As I have joint problems I've continuously set off my pelvic joints (not to mention my shoulders too) which in turn has set off my V so I'm having flare ups on a weekly basis which is very hard work. I borrowed money from my brother to get the roof repaired as my ex with his big salary wouldn't contribute and as of the start of August he'll be moving out permanently with his new partner and taking all the kitchen appliances with him and leaving me to struggle to run a 4 bedroomed house on benefits which is a huge worry right now as it can't be done. The house I was thinking would be perfect for me and my boy that had been on the renting market for months has just gone so I've no idea where we'll end up now. It's all a massive stress that's just gone on and on and the new woman is being a total bitch about everything because she's jealous of me for some unknown reason so she's making sure she constantly makes life more difficult for me wherever possible. I don't mind admitting this year has so far been the worst of my life so far and I can't wait to be in a position where neither of them can have an impact on me anymore. The stress levels are just ridiculous. Sad
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Re: Tired of being tired.

Post  naomi on Sun Jul 10, 2011 9:56 pm

When i need to recharge my batteries and im cried out and exhausted i listen to my fav chill out cd....hang on i'll find it online...

http://www.amazon.co.uk/Chilled-Euphoria-Various-Artists/dp/B00004TQO1/ref=sr_1_2?s=music&ie=UTF8&qid=1310334973&sr=1-2

works wonders xxxxxxxxxxxxx
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Re: Tired of being tired.

Post  Zazu on Mon Jul 11, 2011 1:45 pm

Sometimes I catch myself wishing that I could disappear all the rest of my life so that I could have time to work exclusively on dealing with v. and then I think "oh my god, I'm so far gone down this rabbit hole". It's like have two full time jobs, or caring for two people - my normal life and my vulvodynia Razz
But thinking like that just gives you total burn out, eh?
Definitely exhausting ...

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Re: Tired of being tired.

Post  Sebby (Admin) on Tue Jul 12, 2011 6:24 am


@Sarah

Seriously your ex needs such a good damn kicking!! In the balls!!

I so hope and pray you soon find a lovely home and that you can get a decent sum of money from the sale of the house. I can't believe he is being such a barstad when he has basically pissed off with another women! She needs a good kicking aswell (in the vulvar!) sorry I'm having a hissy fit. I do wonder how some people go to sleep at night with the way they treat others Question

Deff try and chill out as much as possible. I know it isnt easy but this crappy time for you will end. Look to an independant future without that dumb ass.

Sending you prayers xx I love you

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Re: Tired of being tired.

Post  Sarah001 on Wed Jul 13, 2011 10:32 am

I agree, about the kicks!! Laughing Thanks for your prayers, gratefully received and I'm counting down the days until he goes even though I'll struggle badly to keep the house even close to afloat. He's been vile to live with all year and has made my life hell, he shouts and swears and throws my things around until they break. I've moved some bits I had left from my Mum to my brother's house because I know they'd have got broken here to upset me. I even thought about getting an injunction on him after he threatened to push me through a window but just keep thinking he'll be gone soon. I can't believe what he's turned into, I don't even recognise him and thanks to all my medication I've actually been far too reasonable about the whole situation but the Ami in particular has taken any fight out of me! I can't wait for him to leave, roll on calm quiet days.
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Re: Tired of being tired.

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