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» 8 years and struggling
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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Tired of being tired.

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Tired of being tired.

Post  noni on Tue Jul 05, 2011 10:11 pm

There. I said it. My brain is in a mush of tangled emotions...stress, trying to stay positive. I feel burnt out.

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Re: Tired of being tired.

Post  Sarah001 on Wed Jul 06, 2011 10:41 am

Me too!
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Re: Tired of being tired.

Post  noni on Wed Jul 06, 2011 11:39 am

I hope theres a light at the end of this tunnel.
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Re: Tired of being tired.

Post  Sarah001 on Wed Jul 06, 2011 7:10 pm

It's truly exhausting trying to remain positive isn't it? I'm in the middle of a flare up right now because I've done some decorating and it was too much for my wobbly pelvis so my pelvic floor has just clamped right up again. I was doing a bit better before that and hoped I was on the right path. Even my mind numbing medications aren't doing anything in any respect at the moment, except make me fat of course. Rolling Eyes
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Re: Tired of being tired.

Post  noni on Thu Jul 07, 2011 12:39 am

Hey Sarah

Yeah flare ups defintely are a downer, big time.

I hope you are doing better and can continue with decorating. Thats one of my favourite things to do.

Take care Smile
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Re: Tired of being tired.

Post  Sarah001 on Sat Jul 09, 2011 8:22 pm

Oh my god, I hate decorating!! I've finished the thankless task now, I'm actually sprucing up my house to sell it so I'm not even going to get to enjoy my efforts! It looks brilliant though and is making me even more sad to have to sell. Sad
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Re: Tired of being tired.

Post  Sebby (Admin) on Sun Jul 10, 2011 8:41 am


@ Noni I can so relate. Work is so stressful right now and Im having a flare up and family issues blah blah blah feel like I can just about cope. My anxiety is so high!

@ Sarah, have you found somewhere else to live yet? I do wish you peace soon with that situation.

To both, a song I love to listen too is 'This Too Shall Pass' by India Arie (she is singing about love being crap lol but the sentiment that all bad things pass helps me to know I'll get through these times)


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Re: Tired of being tired.

Post  Sarah001 on Sun Jul 10, 2011 12:08 pm

Well Sebby, I've spent the last few months refusing to get the house valued until it's in the best shape it can be as it was my Mum's house I will not let it sell for peanuts but he hasn't helped me at all and swans off with his new girlfriend and leaves me to it. As I have joint problems I've continuously set off my pelvic joints (not to mention my shoulders too) which in turn has set off my V so I'm having flare ups on a weekly basis which is very hard work. I borrowed money from my brother to get the roof repaired as my ex with his big salary wouldn't contribute and as of the start of August he'll be moving out permanently with his new partner and taking all the kitchen appliances with him and leaving me to struggle to run a 4 bedroomed house on benefits which is a huge worry right now as it can't be done. The house I was thinking would be perfect for me and my boy that had been on the renting market for months has just gone so I've no idea where we'll end up now. It's all a massive stress that's just gone on and on and the new woman is being a total bitch about everything because she's jealous of me for some unknown reason so she's making sure she constantly makes life more difficult for me wherever possible. I don't mind admitting this year has so far been the worst of my life so far and I can't wait to be in a position where neither of them can have an impact on me anymore. The stress levels are just ridiculous. Sad
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Re: Tired of being tired.

Post  naomi on Sun Jul 10, 2011 9:56 pm

When i need to recharge my batteries and im cried out and exhausted i listen to my fav chill out cd....hang on i'll find it online...

http://www.amazon.co.uk/Chilled-Euphoria-Various-Artists/dp/B00004TQO1/ref=sr_1_2?s=music&ie=UTF8&qid=1310334973&sr=1-2

works wonders xxxxxxxxxxxxx
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Re: Tired of being tired.

Post  Zazu on Mon Jul 11, 2011 1:45 pm

Sometimes I catch myself wishing that I could disappear all the rest of my life so that I could have time to work exclusively on dealing with v. and then I think "oh my god, I'm so far gone down this rabbit hole". It's like have two full time jobs, or caring for two people - my normal life and my vulvodynia Razz
But thinking like that just gives you total burn out, eh?
Definitely exhausting ...

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Re: Tired of being tired.

Post  Sebby (Admin) on Tue Jul 12, 2011 6:24 am


@Sarah

Seriously your ex needs such a good damn kicking!! In the balls!!

I so hope and pray you soon find a lovely home and that you can get a decent sum of money from the sale of the house. I can't believe he is being such a barstad when he has basically pissed off with another women! She needs a good kicking aswell (in the vulvar!) sorry I'm having a hissy fit. I do wonder how some people go to sleep at night with the way they treat others Question

Deff try and chill out as much as possible. I know it isnt easy but this crappy time for you will end. Look to an independant future without that dumb ass.

Sending you prayers xx I love you

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Re: Tired of being tired.

Post  Sarah001 on Wed Jul 13, 2011 10:32 am

I agree, about the kicks!! Laughing Thanks for your prayers, gratefully received and I'm counting down the days until he goes even though I'll struggle badly to keep the house even close to afloat. He's been vile to live with all year and has made my life hell, he shouts and swears and throws my things around until they break. I've moved some bits I had left from my Mum to my brother's house because I know they'd have got broken here to upset me. I even thought about getting an injunction on him after he threatened to push me through a window but just keep thinking he'll be gone soon. I can't believe what he's turned into, I don't even recognise him and thanks to all my medication I've actually been far too reasonable about the whole situation but the Ami in particular has taken any fight out of me! I can't wait for him to leave, roll on calm quiet days.
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Re: Tired of being tired.

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