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» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

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Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Tired of being tired.

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Tired of being tired.

Post  noni on Tue Jul 05, 2011 10:11 pm

There. I said it. My brain is in a mush of tangled emotions...stress, trying to stay positive. I feel burnt out.

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Re: Tired of being tired.

Post  Sarah001 on Wed Jul 06, 2011 10:41 am

Me too!
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Re: Tired of being tired.

Post  noni on Wed Jul 06, 2011 11:39 am

I hope theres a light at the end of this tunnel.
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Re: Tired of being tired.

Post  Sarah001 on Wed Jul 06, 2011 7:10 pm

It's truly exhausting trying to remain positive isn't it? I'm in the middle of a flare up right now because I've done some decorating and it was too much for my wobbly pelvis so my pelvic floor has just clamped right up again. I was doing a bit better before that and hoped I was on the right path. Even my mind numbing medications aren't doing anything in any respect at the moment, except make me fat of course. Rolling Eyes
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Re: Tired of being tired.

Post  noni on Thu Jul 07, 2011 12:39 am

Hey Sarah

Yeah flare ups defintely are a downer, big time.

I hope you are doing better and can continue with decorating. Thats one of my favourite things to do.

Take care Smile
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Re: Tired of being tired.

Post  Sarah001 on Sat Jul 09, 2011 8:22 pm

Oh my god, I hate decorating!! I've finished the thankless task now, I'm actually sprucing up my house to sell it so I'm not even going to get to enjoy my efforts! It looks brilliant though and is making me even more sad to have to sell. Sad
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Re: Tired of being tired.

Post  Sebby (Admin) on Sun Jul 10, 2011 8:41 am


@ Noni I can so relate. Work is so stressful right now and Im having a flare up and family issues blah blah blah feel like I can just about cope. My anxiety is so high!

@ Sarah, have you found somewhere else to live yet? I do wish you peace soon with that situation.

To both, a song I love to listen too is 'This Too Shall Pass' by India Arie (she is singing about love being crap lol but the sentiment that all bad things pass helps me to know I'll get through these times)


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Re: Tired of being tired.

Post  Sarah001 on Sun Jul 10, 2011 12:08 pm

Well Sebby, I've spent the last few months refusing to get the house valued until it's in the best shape it can be as it was my Mum's house I will not let it sell for peanuts but he hasn't helped me at all and swans off with his new girlfriend and leaves me to it. As I have joint problems I've continuously set off my pelvic joints (not to mention my shoulders too) which in turn has set off my V so I'm having flare ups on a weekly basis which is very hard work. I borrowed money from my brother to get the roof repaired as my ex with his big salary wouldn't contribute and as of the start of August he'll be moving out permanently with his new partner and taking all the kitchen appliances with him and leaving me to struggle to run a 4 bedroomed house on benefits which is a huge worry right now as it can't be done. The house I was thinking would be perfect for me and my boy that had been on the renting market for months has just gone so I've no idea where we'll end up now. It's all a massive stress that's just gone on and on and the new woman is being a total bitch about everything because she's jealous of me for some unknown reason so she's making sure she constantly makes life more difficult for me wherever possible. I don't mind admitting this year has so far been the worst of my life so far and I can't wait to be in a position where neither of them can have an impact on me anymore. The stress levels are just ridiculous. Sad
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Re: Tired of being tired.

Post  naomi on Sun Jul 10, 2011 9:56 pm

When i need to recharge my batteries and im cried out and exhausted i listen to my fav chill out cd....hang on i'll find it online...

http://www.amazon.co.uk/Chilled-Euphoria-Various-Artists/dp/B00004TQO1/ref=sr_1_2?s=music&ie=UTF8&qid=1310334973&sr=1-2

works wonders xxxxxxxxxxxxx
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Re: Tired of being tired.

Post  Zazu on Mon Jul 11, 2011 1:45 pm

Sometimes I catch myself wishing that I could disappear all the rest of my life so that I could have time to work exclusively on dealing with v. and then I think "oh my god, I'm so far gone down this rabbit hole". It's like have two full time jobs, or caring for two people - my normal life and my vulvodynia Razz
But thinking like that just gives you total burn out, eh?
Definitely exhausting ...

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Re: Tired of being tired.

Post  Sebby (Admin) on Tue Jul 12, 2011 6:24 am


@Sarah

Seriously your ex needs such a good damn kicking!! In the balls!!

I so hope and pray you soon find a lovely home and that you can get a decent sum of money from the sale of the house. I can't believe he is being such a barstad when he has basically pissed off with another women! She needs a good kicking aswell (in the vulvar!) sorry I'm having a hissy fit. I do wonder how some people go to sleep at night with the way they treat others Question

Deff try and chill out as much as possible. I know it isnt easy but this crappy time for you will end. Look to an independant future without that dumb ass.

Sending you prayers xx I love you

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Re: Tired of being tired.

Post  Sarah001 on Wed Jul 13, 2011 10:32 am

I agree, about the kicks!! Laughing Thanks for your prayers, gratefully received and I'm counting down the days until he goes even though I'll struggle badly to keep the house even close to afloat. He's been vile to live with all year and has made my life hell, he shouts and swears and throws my things around until they break. I've moved some bits I had left from my Mum to my brother's house because I know they'd have got broken here to upset me. I even thought about getting an injunction on him after he threatened to push me through a window but just keep thinking he'll be gone soon. I can't believe what he's turned into, I don't even recognise him and thanks to all my medication I've actually been far too reasonable about the whole situation but the Ami in particular has taken any fight out of me! I can't wait for him to leave, roll on calm quiet days.
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Re: Tired of being tired.

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