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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


Neogyn.us

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Neogyn ordering system a rip off

Post  cfitz on Mon Jun 10, 2013 3:28 pm

I have had VV for several years - but with the low-oxalate diet (which decreased my pain by 50%) and finally the use of Amitriptyline which decreased my pain by 99%. I discontinued the low oxalate diet after 3 months and the amitriptyline kept me comfortable for the past 4-5 years. I started to experience a flare-up three weeks ago - pain pretty bad. Back on diet - it is helping. Ordered the neogyn on-line; when I got the order confirmation I found they are sending me a "continuing package" each month. During the ordering process I declined this continuing package at least 4 times; I called their support line - the individual I spoke with said if you order online you get the continuing package - even if you supposedly refused it. READ the fine print. If you want to get just one tube to try it - call them an order that!

cfitz

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Re: Neogyn.us

Post  Qu_789 on Sat Apr 30, 2016 10:45 pm

Hi,

Could anyone give me any more info on the results of using this cream?
Did it work for good? Did it cause other problems? Do you use it long-term or just for initial few weeks?

I know it's been a while since last post, but would be really helpful to find out more about this,

Thanks

Qu_789

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Re: Neogyn.us

Post  emalita on Sun May 01, 2016 12:30 am

Hi,

Do a search on this forum for this product. There was a long conversation about it a long time ago, and supposedly a rep from the company was chiming in. It's not a cure, just another product that you have to use the rest of your life. I haven't tried it, but if you choose to, I hope it helps! Good luck!

emalita

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Re: Neogyn.us

Post  girlcraft on Sat Jun 04, 2016 11:46 pm

Qu_789 wrote:Hi,

Could anyone give me any more info on the results of using this cream?
Did it work for good? Did it cause other problems? Do you use it long-term or just for initial few weeks?

I know it's been a while since last post, but would be really helpful to find out more about this,

Thanks


Basically it is a a rip off, it's essentially an expensive version of lidocaine. Try lidocaine, should be sold over the counter

girlcraft

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Re: Neogyn.us

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