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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


anyone from southern california in here?

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anyone from southern california in here?

Post  Melissa777 on Tue Jul 12, 2011 6:43 pm

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Melissa777

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Location isn't the most important thing Melissa...

Post  Mary on Thu Jul 21, 2011 9:10 am

Hi from NZ!
Just a quick note to connect with you. You want to talk/meet with someone close to you? I understand that.
I was diagnosed in 2005 in Wellington, New Zealand and thought for 5 years that I must be the only woman in NZ who had this condition. But that was not true.
With the internet it doesn't mean that you need to be a few physical miles from someone to share.
Have a look at my blog and know that you are not alone:
www.happyinmyskinnz.blogspot.com
Take care,
Mx
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Re: anyone from southern california in here?

Post  Heidi on Mon Jul 25, 2011 2:06 am

Not California, but from the USA. If you are looking for a face-to-face meeting with other women with vulvar vestibulitis or vulvodynia, you might put flyers up in gyn offices around the city. You might also call and just ask the receptionists if they know of any support groups. When I lived in Ames, IA (town of 50,000), I was in a support group of 5 women who found each other through common doctors (this was back in the early 90's before the internet as we know it now). It was very important to my sanity. I also joined the VP Foundation and was able to call and eventually meet many women with vulvar pain. I'm sure there are a lot of women in San Diego with VP. For such a big city, I'd be surprised if there wasn't a support group already.
Heidi
http://lowoxalatefamily.wordpress.com

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thanks

Post  Melissa777 on Thu Aug 04, 2011 7:33 pm

thanks for the info- id really love to connect with someone near me though, maybe join an "in person" support group.

so thats why im asking for people in so. cal- specifically san diego, riverside, and orange county areas.... since those are closest to me


Melissa

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Re: anyone from southern california in here?

Post  OutdoorGirl on Fri Aug 12, 2011 9:50 pm

Hey, I'm in San Diego! I'd love to talk to someone in my area! I'm also interested in talking about your experiences since I'm still on the fence about if I even have vulvodynia. Somethings definitely wrong but I'd love to talk. Let me know Smile

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see ur inbox

Post  Melissa777 on Sun Aug 21, 2011 12:43 am

i sent you a msg- but pc is being lame, so it sent the same msg prob 3 or 4 times

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Still Looking?

Post  crypticcalico on Tue Jul 18, 2017 2:38 am

Hello, I hope this finds you well. I don't know if you're still looking to meet up with someone. In case you are I am in Long Beach and am interested in meeting. It'd be nice to have someone to talk to (in person) about this besides my doctor.

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Re: anyone from southern california in here?

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