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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


anyone from southern california in here?

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anyone from southern california in here?

Post  Melissa777 on Tue Jul 12, 2011 6:43 pm

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Melissa777

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Location isn't the most important thing Melissa...

Post  Mary on Thu Jul 21, 2011 9:10 am

Hi from NZ!
Just a quick note to connect with you. You want to talk/meet with someone close to you? I understand that.
I was diagnosed in 2005 in Wellington, New Zealand and thought for 5 years that I must be the only woman in NZ who had this condition. But that was not true.
With the internet it doesn't mean that you need to be a few physical miles from someone to share.
Have a look at my blog and know that you are not alone:
www.happyinmyskinnz.blogspot.com
Take care,
Mx
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Mary

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Re: anyone from southern california in here?

Post  Heidi on Mon Jul 25, 2011 2:06 am

Not California, but from the USA. If you are looking for a face-to-face meeting with other women with vulvar vestibulitis or vulvodynia, you might put flyers up in gyn offices around the city. You might also call and just ask the receptionists if they know of any support groups. When I lived in Ames, IA (town of 50,000), I was in a support group of 5 women who found each other through common doctors (this was back in the early 90's before the internet as we know it now). It was very important to my sanity. I also joined the VP Foundation and was able to call and eventually meet many women with vulvar pain. I'm sure there are a lot of women in San Diego with VP. For such a big city, I'd be surprised if there wasn't a support group already.
Heidi
http://lowoxalatefamily.wordpress.com

Heidi

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thanks

Post  Melissa777 on Thu Aug 04, 2011 7:33 pm

thanks for the info- id really love to connect with someone near me though, maybe join an "in person" support group.

so thats why im asking for people in so. cal- specifically san diego, riverside, and orange county areas.... since those are closest to me


Melissa

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Re: anyone from southern california in here?

Post  OutdoorGirl on Fri Aug 12, 2011 9:50 pm

Hey, I'm in San Diego! I'd love to talk to someone in my area! I'm also interested in talking about your experiences since I'm still on the fence about if I even have vulvodynia. Somethings definitely wrong but I'd love to talk. Let me know Smile

OutdoorGirl

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see ur inbox

Post  Melissa777 on Sun Aug 21, 2011 12:43 am

i sent you a msg- but pc is being lame, so it sent the same msg prob 3 or 4 times

Melissa777

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Still Looking?

Post  crypticcalico on Tue Jul 18, 2017 2:38 am

Hello, I hope this finds you well. I don't know if you're still looking to meet up with someone. In case you are I am in Long Beach and am interested in meeting. It'd be nice to have someone to talk to (in person) about this besides my doctor.

crypticcalico

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Re: anyone from southern california in here?

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