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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
anyone from southern california in here?
5 posters
Page 1 of 1
anyone from southern california in here?
Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!
I am in san diego- but from LA!!!
Melissa777- Posts : 55
Join date : 2011-07-10
Location isn't the most important thing Melissa...
Hi from NZ!
Just a quick note to connect with you. You want to talk/meet with someone close to you? I understand that.
I was diagnosed in 2005 in Wellington, New Zealand and thought for 5 years that I must be the only woman in NZ who had this condition. But that was not true.
With the internet it doesn't mean that you need to be a few physical miles from someone to share.
Have a look at my blog and know that you are not alone:
www.happyinmyskinnz.blogspot.com
Take care,
Mx
Just a quick note to connect with you. You want to talk/meet with someone close to you? I understand that.
I was diagnosed in 2005 in Wellington, New Zealand and thought for 5 years that I must be the only woman in NZ who had this condition. But that was not true.
With the internet it doesn't mean that you need to be a few physical miles from someone to share.
Have a look at my blog and know that you are not alone:
www.happyinmyskinnz.blogspot.com
Take care,
Mx
Re: anyone from southern california in here?
Not California, but from the USA. If you are looking for a face-to-face meeting with other women with vulvar vestibulitis or vulvodynia, you might put flyers up in gyn offices around the city. You might also call and just ask the receptionists if they know of any support groups. When I lived in Ames, IA (town of 50,000), I was in a support group of 5 women who found each other through common doctors (this was back in the early 90's before the internet as we know it now). It was very important to my sanity. I also joined the VP Foundation and was able to call and eventually meet many women with vulvar pain. I'm sure there are a lot of women in San Diego with VP. For such a big city, I'd be surprised if there wasn't a support group already.
Heidi
http://lowoxalatefamily.wordpress.com
Heidi
http://lowoxalatefamily.wordpress.com
thanks
thanks for the info- id really love to connect with someone near me though, maybe join an "in person" support group.
so thats why im asking for people in so. cal- specifically san diego, riverside, and orange county areas.... since those are closest to me
Melissa
so thats why im asking for people in so. cal- specifically san diego, riverside, and orange county areas.... since those are closest to me
Melissa
Melissa777- Posts : 55
Join date : 2011-07-10
Re: anyone from southern california in here?
Hey, I'm in San Diego! I'd love to talk to someone in my area! I'm also interested in talking about your experiences since I'm still on the fence about if I even have vulvodynia. Somethings definitely wrong but I'd love to talk. Let me know
OutdoorGirl- Posts : 1
Join date : 2011-08-12
see ur inbox
i sent you a msg- but pc is being lame, so it sent the same msg prob 3 or 4 times
Melissa777- Posts : 55
Join date : 2011-07-10
Still Looking?
Hello, I hope this finds you well. I don't know if you're still looking to meet up with someone. In case you are I am in Long Beach and am interested in meeting. It'd be nice to have someone to talk to (in person) about this besides my doctor.
crypticcalico- Posts : 3
Join date : 2017-07-18
Location : Long Beach
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer