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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


anyone from southern california in here?

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anyone from southern california in here?

Post  Melissa777 on Tue Jul 12, 2011 6:43 pm

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

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Location isn't the most important thing Melissa...

Post  Mary on Thu Jul 21, 2011 9:10 am

Hi from NZ!
Just a quick note to connect with you. You want to talk/meet with someone close to you? I understand that.
I was diagnosed in 2005 in Wellington, New Zealand and thought for 5 years that I must be the only woman in NZ who had this condition. But that was not true.
With the internet it doesn't mean that you need to be a few physical miles from someone to share.
Have a look at my blog and know that you are not alone:
www.happyinmyskinnz.blogspot.com
Take care,
Mx
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Mary

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Re: anyone from southern california in here?

Post  Heidi on Mon Jul 25, 2011 2:06 am

Not California, but from the USA. If you are looking for a face-to-face meeting with other women with vulvar vestibulitis or vulvodynia, you might put flyers up in gyn offices around the city. You might also call and just ask the receptionists if they know of any support groups. When I lived in Ames, IA (town of 50,000), I was in a support group of 5 women who found each other through common doctors (this was back in the early 90's before the internet as we know it now). It was very important to my sanity. I also joined the VP Foundation and was able to call and eventually meet many women with vulvar pain. I'm sure there are a lot of women in San Diego with VP. For such a big city, I'd be surprised if there wasn't a support group already.
Heidi
http://lowoxalatefamily.wordpress.com

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thanks

Post  Melissa777 on Thu Aug 04, 2011 7:33 pm

thanks for the info- id really love to connect with someone near me though, maybe join an "in person" support group.

so thats why im asking for people in so. cal- specifically san diego, riverside, and orange county areas.... since those are closest to me


Melissa

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Re: anyone from southern california in here?

Post  OutdoorGirl on Fri Aug 12, 2011 9:50 pm

Hey, I'm in San Diego! I'd love to talk to someone in my area! I'm also interested in talking about your experiences since I'm still on the fence about if I even have vulvodynia. Somethings definitely wrong but I'd love to talk. Let me know Smile

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see ur inbox

Post  Melissa777 on Sun Aug 21, 2011 12:43 am

i sent you a msg- but pc is being lame, so it sent the same msg prob 3 or 4 times

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Still Looking?

Post  crypticcalico on Tue Jul 18, 2017 2:38 am

Hello, I hope this finds you well. I don't know if you're still looking to meet up with someone. In case you are I am in Long Beach and am interested in meeting. It'd be nice to have someone to talk to (in person) about this besides my doctor.

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Re: anyone from southern california in here?

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