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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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anyone from southern california in here?

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anyone from southern california in here?

Post  Melissa777 on Tue Jul 12, 2011 6:43 pm

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

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Location isn't the most important thing Melissa...

Post  Mary on Thu Jul 21, 2011 9:10 am

Hi from NZ!
Just a quick note to connect with you. You want to talk/meet with someone close to you? I understand that.
I was diagnosed in 2005 in Wellington, New Zealand and thought for 5 years that I must be the only woman in NZ who had this condition. But that was not true.
With the internet it doesn't mean that you need to be a few physical miles from someone to share.
Have a look at my blog and know that you are not alone:
www.happyinmyskinnz.blogspot.com
Take care,
Mx
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Re: anyone from southern california in here?

Post  Heidi on Mon Jul 25, 2011 2:06 am

Not California, but from the USA. If you are looking for a face-to-face meeting with other women with vulvar vestibulitis or vulvodynia, you might put flyers up in gyn offices around the city. You might also call and just ask the receptionists if they know of any support groups. When I lived in Ames, IA (town of 50,000), I was in a support group of 5 women who found each other through common doctors (this was back in the early 90's before the internet as we know it now). It was very important to my sanity. I also joined the VP Foundation and was able to call and eventually meet many women with vulvar pain. I'm sure there are a lot of women in San Diego with VP. For such a big city, I'd be surprised if there wasn't a support group already.
Heidi
http://lowoxalatefamily.wordpress.com

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thanks

Post  Melissa777 on Thu Aug 04, 2011 7:33 pm

thanks for the info- id really love to connect with someone near me though, maybe join an "in person" support group.

so thats why im asking for people in so. cal- specifically san diego, riverside, and orange county areas.... since those are closest to me


Melissa

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Re: anyone from southern california in here?

Post  OutdoorGirl on Fri Aug 12, 2011 9:50 pm

Hey, I'm in San Diego! I'd love to talk to someone in my area! I'm also interested in talking about your experiences since I'm still on the fence about if I even have vulvodynia. Somethings definitely wrong but I'd love to talk. Let me know Smile

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see ur inbox

Post  Melissa777 on Sun Aug 21, 2011 12:43 am

i sent you a msg- but pc is being lame, so it sent the same msg prob 3 or 4 times

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Still Looking?

Post  crypticcalico on Tue Jul 18, 2017 2:38 am

Hello, I hope this finds you well. I don't know if you're still looking to meet up with someone. In case you are I am in Long Beach and am interested in meeting. It'd be nice to have someone to talk to (in person) about this besides my doctor.

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Re: anyone from southern california in here?

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