Vulvodynia Support
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Vulvodynia Support

Does life feel like one huge pain in the Vulva??? I have created this forum so that women living with Vulvodynia (Vulva Pain) can have a place to share, chat and support each other.


The link to my research project is in the Announcements forum, please participate if you can!!
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» Hope to all my suffering ladies
Hi - New Member - GF has V and looking to support her EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Hi - New Member - GF has V and looking to support her EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Hi - New Member - GF has V and looking to support her EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Hi - New Member - GF has V and looking to support her EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Hi - New Member - GF has V and looking to support her EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Hi - New Member - GF has V and looking to support her EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Hi - New Member - GF has V and looking to support her EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Hi - New Member - GF has V and looking to support her EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Hi - New Member - GF has V and looking to support her EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Hi - New Member - GF has V and looking to support her

3 posters

Vulvodynia Support :: New Members

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Hi - New Member - GF has V and looking to support her Empty Hi - New Member - GF has V and looking to support her

Post  asaphx Tue Aug 16, 2011 7:08 pm

Hi new member here...

I am joining this site in hopes of learning ways to support my new girl friend... We have been dating only a couple of months; and not yet been intimate...

I look forward to hearing some advice and ideas that may be helpful...

Thanks in Advance!


asaphx

Posts : 2
Join date : 2011-08-16
Age : 60
Location : Delaware, USA

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Hi - New Member - GF has V and looking to support her Empty Re: Hi - New Member - GF has V and looking to support her

Post  MysteryMe Tue Aug 16, 2011 7:36 pm

Good on you! I'm afraid I'm a very new member myself so I cannot offer much in the way of advice but I really wanted to say how much I admire you for signing up and wanting to support your partner.

MysteryMe

Posts : 5
Join date : 2011-08-13

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Post  asaphx Tue Aug 16, 2011 7:54 pm

Certainly... I view this as a minor issue that we can work on together and hopefully learn together.

She was scared to death to tell me about it; and I really did not understand it until I did some research today. She desparately wants to have intercourse (as do I), I think in part to please me... but I do not want her to be in any pain. I told her there is no hurry... which I truly mean... We will get there...

I hope there are some posts that discuss ways to enjoy intimacy without intercourse... Some of the obvious ones I know... oral; but I just read that this was also painful for one of the members..

Well... thanks... I look forward to learning about this horrid illness and offering support to my gf.


asaphx

Posts : 2
Join date : 2011-08-16
Age : 60
Location : Delaware, USA

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Hi - New Member - GF has V and looking to support her Empty Re: Hi - New Member - GF has V and looking to support her

Post  Kate Wed Aug 17, 2011 6:41 am

Hi,
In terms of intimacy, showers together have been the best thing for my boyfriend and I. Touching and kissing is as far as we go, and sometimes I'll do things to please him, but I personally do not like to receive... and he has no issues with any of this. Every now and then we will have intercourse, but what has worked for us is copious amounts of non-sexual intimacy. Lots of hugs, kisses, holding hands etc. Hope that helps.

Kate

Posts : 11
Join date : 2011-07-05
Age : 37
Location : Auckland, New Zealand

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